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Author Topic: An interesting article  (Read 1276 times)

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Offline spacecanada

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An interesting article
« on: March 14, 2015, 11:05:45 AM »
http://robynobrien.com/food-allergies-a-14-year-old-boys-life-and-why-labels-matter/

Mods, please move this if it's in the wrong place.  (I'm lousy at knowing what goes where...)
anaphylaxis to tree nuts, peanuts, potato, and wheat

Offline GoingNuts

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Re: An interesting article
« Reply #1 on: March 14, 2015, 11:53:46 AM »
Spacecanada, thank you so much for sharing. It was agonizing to read, but so valuable.

My Heart is broken for this family, but I'm in awe of their strength for what they are trying to achieve. 
"Speak out against the madness" - David Crosby
N.E. US

Offline PurpleCat

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Re: An interesting article
« Reply #2 on: March 15, 2015, 08:23:29 AM »
That was a hard read.   :'(

Offline hedgehog

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Re: An interesting article
« Reply #3 on: March 15, 2015, 08:33:42 AM »
I had to stop reading.  I was crying too hard to see the screen.
USA

Offline Macabre

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Re: An interesting article
« Reply #4 on: March 16, 2015, 08:21:25 AM »
It was very hard.

I used Giovanni Cipriano's heartbreaking story about two years ago when I found DS' AuviQs in the pocket of shorts he had worn the prior week.  I put together an 8 page collection of stories of children and young adults who had died from anaphyylaxis who had not used Epi or used it in time (most of whom didn't have Epi with them). I had him read it and initial each page as he read it. I gave it to him with his AuviQs when I picked him up from school, and he read it while we were driving to an event.  The pages are tear stained.

Giovanni's mom has a wonderful mission.

:'(
Me: Sesame, shellfish, chamomile, sage
DS: Peanuts

Offline my3guys

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Re: An interesting article
« Reply #5 on: March 23, 2015, 09:30:05 AM »
Yes Mac I remember you did that. :heart:

Wow this one was hard to read. They're all hard to read, but this one especially hit me. I've done the dash to the hospital instead of using epi...thank god our situation ended up better. And her description of her son reminds me so much of mine, so close in age too. And it shows how quickly one mistake made at your own home (I've done that too) can turn disastrous without epi use.

We've gotten more casual over the years since he's gotten older (hence the mistake at home this past fall). This is a good wake up call that I needed, thanks for posting spacecanada. My heart breaks for his mom.

Offline my3guys

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Re: An interesting article
« Reply #6 on: March 24, 2015, 05:09:29 AM »
I know I've always heard/read that teens are more at risk for anaphylaxis, and I've seen that attributed to increased likelihood of risk taking behavior. I thought the study below was worth noting.

https://www.sciencenews.org/article/teens-have-higher-anaphylaxis-risk-younger-kids

In this article, the child had other peanut reactions before, none like this. I wonder if teen hormones and body changes have any impact in the likelihood of severe anaphylaxis vs. a more mild reaction. I looked for information about it, and wasn't able to find anything on it. Anyone?


Offline daisy madness

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Re: An interesting article
« Reply #7 on: March 24, 2015, 11:09:05 AM »
I can't even imagine.  I sobbed through the story.  She is such a strong woman.  I love that picture of her and Giovanni.