I think there is no doubt that the driving force in most everything these days is money. Including those things in the food allergy world. And, I'm sure that the levels of conflict of interest that exists is staggering and sickening.
Honestly, who really cares if anyone figured out why food allergies happen, just for the purpose of knowing right? The only way to make it so someone would bankroll that research is if there was a way to turn that into money making. Unless, of course, they are independently, and obnoxiously, wealthy, and want to know just for the sake of knowing.
OH... and I did see something somewhere about a few Moms out there doing something research-ish like that. There is also that guy who gave a whole bunch of money to Stanford to find a cure.... and as far as I know that is all about immunotherapy based. Money maker.
But..... and I'm not quite sure if I'll get this vision out there right.... think for a moment about the group of kids, now teens, that exist "out there".... the actual numbers of them.... who are the children of those of us who started at PA.com, moved to FAS.... and various other sites (there's a canadian one escaping me right now) that have remained a collective of parents that started the FA journey around roughly the same time.
How many of our "kids"..... who we were lost with, fighting with schools for, and looking for help figuring out mystery hives and lab results for..... are headed out into the world? College, jobs, etc.
Right now, that number could easily be in the thousands.
Think about Dr. Wood. He is one person. He was a kid, now a big name doctor in the allergy world. But, let's say he came out with a statement that was contrary to AAAI? Right now, in this link:
http://drrobertwood.com/check-your-autoinjectors he says to keep at least two auto-injectors. That is in contradiction to the guidelines for BSACI that eragon posted. For those of us with kids with FA's, or for those with FA's themselves, who are they going to listen to?
If our children, go out into the world, I wonder what they will do. They could be the next allergist who gets on a board somewhere that speaks out. Who says that eragon's son won't end up someday affecting the policies that BSCAI comes up with? Or, my kids? My older two are very interested in civil rights. They remember our days fighting with the school district, contacting the OCR, and the long lasting effects bullying had on our family. Maybe one of them will end up in the OCR. Or, someone else's kid may become the Superintendent of a school district, and make policies that support, rather than undermine, 504's for kids with LTFA's.... in a real way.... not just lip service to shut up the helicopter parents.
I honestly am a pretty cynical person, but, I do wonder what will happen. What are the possibilities that there are enough people in the coming years that have LTFA's, and have lived through the experience that compelled many of us to find support because of terrible things with schools, or awful stuff with friends & family, that will be a voice that manages to speak out, even if it doesn't make money, but because it is right? They might have positions or jobs, or have enough money to finance something..... maybe. And, maybe people would be more likely to listen to what they have to say because they have first hand experience having lived with LTFA's, instead of just reading about it from pamphlets.