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Author Topic: Two more trial participants needed for FAHF-2 in Chicago!  (Read 11664 times)

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Offline booandbrimom

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Come on, guys...surely there's someone in this group, or someone who knows someone, who wants to be part of the fabulous FAHF-2 trial: http://www.childrensmrc.org/clinical_trials/allergy/. The study needs two more participants before it can close.

Why do I care? None of us get results reported out until it closes and everyone completes. Obviously I'll know what happens with my own kid, but I won't know if we got placebo and, if he did, we won't get the real drug until everyone's done.

If you know of anyone in the area, please promote it! Allergens are peanut, tree nuts, sesame, fish or shellfish and child has to be between 12 and 24 without history of a reaction that required intubation.
What doesn't kill you makes you bitter.

Come commiserate with me: foodallergybitch.blogspot.com

Offline ajasfolks2

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Re: Two more trial participants needed for FAHF-2 in Chicago!
« Reply #1 on: June 06, 2012, 10:36:39 PM »
This was shared elsewhere regarding this type of study.

Have not read, just re-sharing:

For more about FAHF-2, read what the woman, Xiu-Min Li, who invented it said on our website.

http://www.asthmaallergieschildren​.com/2010/08/16/​traditional-chinese-medicin​e-and-allergy/



(Hopefully edited link works  now?)

« Last Edit: June 12, 2012, 11:05:04 AM by ajasfolks2 »
Is this where I blame iPhone and cuss like an old fighter pilot's wife?

**(&%@@&%$^%$#^%$#$*&      LOL!!   

Offline GingerPye

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Re: Two more trial participants needed for FAHF-2 in Chicago!
« Reply #2 on: June 06, 2012, 10:48:33 PM »
I cannot get that link to work ...
DD, 25 - MA/EA/PA/env./eczema/asthma
DS, 22 - MA/EA/PA/env.
DH - adult-onset asthma
me - env. allergies, exhaustion, & mental collapse ...

Offline ajasfolks2

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Re: Two more trial participants needed for FAHF-2 in Chicago!
« Reply #3 on: June 07, 2012, 03:41:55 PM »
It was clickable from Facebook, but goofed up when I got here.  I'll try to mess with it.

Will it work for you to copy/paste into browser instead?

Is this where I blame iPhone and cuss like an old fighter pilot's wife?

**(&%@@&%$^%$#^%$#$*&      LOL!!   

Offline starlight

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Re: Two more trial participants needed for FAHF-2 in Chicago!
« Reply #4 on: June 07, 2012, 07:14:59 PM »
I look 24, does that count?  :hiding:  :-[  This is the one potential "cure" I most want to work, I'd so be there if they'd allow someone pushing 30.

Offline notnutty

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Re: Two more trial participants needed for FAHF-2 in Chicago!
« Reply #5 on: June 08, 2012, 12:05:52 PM »
I tried, but my DS won't be 12 until January.  :-[

Offline hezzier

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Re: Two more trial participants needed for FAHF-2 in Chicago!
« Reply #6 on: June 08, 2012, 02:01:28 PM »
I wish my DS was old enough also.

Offline booandbrimom

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Re: Two more trial participants needed for FAHF-2 in Chicago!
« Reply #7 on: June 08, 2012, 05:40:20 PM »
Guys, for the next trial, they need children 6 and up! I wasn't 100% clear if it was the peanut patch trial...the clinician just mentioned that it will involve component testing and they're going to start recruiting soon. I'm sure you could just use the general email and ask if you're interested in seeing what it's about.
What doesn't kill you makes you bitter.

Come commiserate with me: foodallergybitch.blogspot.com

Offline hezzier

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Re: Two more trial participants needed for FAHF-2 in Chicago!
« Reply #8 on: June 08, 2012, 06:36:25 PM »
I sent an email so I will report back what they say.

Offline notnutty

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Re: Two more trial participants needed for FAHF-2 in Chicago!
« Reply #9 on: June 09, 2012, 07:26:52 AM »
I sent an email also, but no response yet.

Offline hopechap

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Re: Two more trial participants needed for FAHF-2 in Chicago!
« Reply #10 on: June 09, 2012, 09:52:13 PM »
I think they need more participants in NYC too.  My son, being nine, was not eligible.  I'd do it if he were.

Offline booandbrimom

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Re: Two more trial participants needed for FAHF-2 in Chicago!
« Reply #11 on: June 10, 2012, 06:15:57 PM »
FYI, Children's is moving to the spanking new Lurie Center this weekend so it make take them a while to get back to you guys. I'm so excited you're trying though! (If you don't hear back, let me know and I'll ask our coordinator.)
What doesn't kill you makes you bitter.

Come commiserate with me: foodallergybitch.blogspot.com

Offline GingerPye

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Re: Two more trial participants needed for FAHF-2 in Chicago!
« Reply #12 on: June 10, 2012, 08:48:12 PM »
WHere is the Lurie Center?  Is it in the western suburbs, by chance?
DD, 25 - MA/EA/PA/env./eczema/asthma
DS, 22 - MA/EA/PA/env.
DH - adult-onset asthma
me - env. allergies, exhaustion, & mental collapse ...

Offline booandbrimom

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Re: Two more trial participants needed for FAHF-2 in Chicago!
« Reply #13 on: June 11, 2012, 06:30:14 AM »
WHere is the Lurie Center?  Is it in the western suburbs, by chance?


Smack in the middle of downtown, Ginger:

http://www.luriechildrens.org/en-us/care-services/parking-locations/Pages/lurie-childrens.aspx

It's a lot less convenient for us, but I'm looking forward to seeing what $100 million buys these days.
What doesn't kill you makes you bitter.

Come commiserate with me: foodallergybitch.blogspot.com

Offline GingerPye

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Re: Two more trial participants needed for FAHF-2 in Chicago!
« Reply #14 on: June 11, 2012, 10:05:44 AM »
i'm thinking about it, but I'm not sure my DD or DS want to participate.  Haven't asked.  I don't know how much we would need to go there --- can you give me an idea of how many visits it requires?  The one visit for the other research project at Children's Hospital was perfect for us. 
DD, 25 - MA/EA/PA/env./eczema/asthma
DS, 22 - MA/EA/PA/env.
DH - adult-onset asthma
me - env. allergies, exhaustion, & mental collapse ...