Today's update-- and I realize that I hadn't updated from our allergist's appointment back in early October, either!!
DD has been off of her egg dose for... er... well, "a while" now.
Frankly, she had trouble REMEMBERING to do them, and also had trouble remembering to TELL me that she was running low, which was an incredibly big deal since the process of making the individually portioned dose-controlled eggy stuff is still...
well. We have to
get eggs from a friend, I have to clear the entire kitchen and preheat my oven (which contains a pizza/bread stone) for an hour, and then make things in batches-- and I can either portion things
as I go (oy vey... this means 1 tbs in each of 50 or so mini-muffin cups) and treat everything as though I'm handling toxic waste....
or I can handle everything as though I were handling toxic waste and make a "pan" of brownies and then cut them up and
weigh them as I go...I prefer the mini-muffin route, honestly-- less weighing and crumbs, and better dose control, ultimately. It's more labor intensive on the front end, no doubt-- but it's also neater and it leaves me getting my kitchen back after just a few hours (as opposed to wrapping a pan of brownies overnight for easier cutting and portioning the following day).
102 mini-muffins and 307g of egg later, I have made 102 mini brownies at 330 mg of protein
each. GO, me!
Why, one might ask, are we sticking with this level of dosing and not pushing things higher?
Well, because of the research coming out now. As we raise the dose, we also raise
risk-- because if her tolerance
were to snap back down for some reason (and we've seen it happen before-- we know that tweaking her immune system is like pushing a sheet of styrofoam underwater... if you push in one spot, something is going to tip upward elsewhere)....
then we're courting anaphylaxis if that dose is 1000 mg rather than 250.
So at our October appt, his recommendation was to "NOT" up either the dose or the concentration. Both matter, and we want to play it safe.