I had to lean pretty hard on a hospital administrator to get "parents suspect allergic reaction" amended to read "florid presentation of anaphylaxis" when DD was a baby.
Yeah. Wasn't much "suspect" about it, actually-- and the attending physician KNEW IT when he finally showed up. They didn't triage, and therefore didn't call for transport (which they should have done, since post-disaster, they weren't actually an operational ER and had NO PHYSICIAN ON-FLOOR). Which would have been fine IF the way they coded it had been how it was going down-- but it wasn't.
Our child was on the edge of "conscious" when we rolled through the ER doors shrieking for help.
Similar to TT, I leaned hard on them about that coding-- with the reasoning that if they CHOSE to mis-code that, it could have a deleterious impact on our future ability to access appropriate resources for MANAGEMENT of our DD. Oh, and that it would sure be a shame if we had to get ugly over how poorly they "handled" us that morning. (Our pediatrician and brand new allergist had already apparently had parts of that conversation, by the way-- including things like "what do you MEAN you don't have a peds crash cart on floor?") So Ms. Administrator knew that wasn't an idle threat; they were grossly incompetent, and they (and we, obviously) were VERY lucky that she didn't die. Because she certainly didn't get any care for the first thirty minutes we were there-- nobody even checked in on us. DD was not awake/was unconscious at that point. Hard to know which given that she was 11months old. We also told them very specifically that she was anaphylaxing-- TO PEANUT. I still have very serious PTSD when I think about that morning. I have never felt more hopeless, helpless, and heartbroken in my life.
I was deeply unpleasant to that hospital administrator, and I have NO regrets about that. She was CYA-ing her staff.