Living with Food Allergies, 2013 and on

[PurpleCat]

Meeting DD's prom date in a short while.  My questions and info to share (allergies) are so different from what other parents meeting their child's new boyfriend need to cover. 

[LinksEtc]

Ugh, it's so easy for me to fall back into Links ... ok, I think I'm done again for now ...

I'm going to leave off with a funny thing from this morning ...



I hand dd a tissue, saying "here, I think this is clean" &
dd laughs and says "What if it's SNOT?"

 



We both agreed that @AllergyKidsDoc might appreciate this since he does those "really bad jokes of the week" tweets ... dd likes those ... I won't bug him on Twitter, but I figured that I'd post it here.

[CMdeux]

   Links. 

[PurpleCat]

 

[PurpleCat]

Letter from allergists office states due to DD's high IGE total, she is still considered allergic to other tested foods even though some individual tests came down.  Continue strict avoidance.

She did decide to run a peanut component and DD is class 6 to the high risk components so certainly not a candidate for patch or any other treatments.  No surprise there.

[LinksEtc]

   Links.

        

[Macabre]

Why would you think you're bugging him on Twitter? He would see it as engagement. That's what he wants.

[LinksEtc]

Yeah, you're probably right ...


but I think it's best if I back off ... I don't know ... it felt more appropriate to post here.



 

[Macabre]

So when one has a shellfish allergy and has a systemic reaction to contrast dye, one has to go to the other side of the world for a CT scan with contrast dye.

I will have an oral contrast. And I will start premedicating with pred and Benadryl twelve hours in advance. Which means I technically am supposed to have someone drive me.

[spacecanada]

There is no alternative dye, Mac? Is the reason for the CT worth the risk?  How scary!  I will be thinking of you on Friday.   

[Macabre]

I am thinking I may reschedule to Monday if possible. Friday is not a good day for anaphylaxis.

[CMdeux]

Friday is not a good day for anaphylaxis.

That sort of encapsulates what life with food allergies is actually like, doesn't it?? 

 


Other person says:  Hey, how about that new restaurant??

Me, thinking:  Hmm-- well, I don't have anything scheduled with anyone or anything else this afternoon... if I wound up in the hospital or even just immobilized at home, it wouldn't really impact anyone but me.... I mean, I'll just get water if they turn out to have mostly unsafe stuff on the menu...   "Sure!  Korean-SW Fusion sounds really interesting!!"

[YouKnowWho]

Finally got bloodwork dine and back for the kiddos.

DS1 tests at a Class 6 for wheat, rye and barley and class 2 for egg white and yolk.  We are considering baked egg desenzitation but I want DS1 and DH to meet with allergist first to discuss really sad and benefits.

DS2 - Class 3 for peanut and component test shows he is likely to react.  Sigh.  So years of being reaction free and hopes it was false positive are out the window.  Not considering desenzitation right now due to increased environmental reactions and limited outside interactions due to homeschooling.

DD - all tree nuts, soy and sunflower.  She has been having mystery reactions for a few months and the two ingredients I questioned were soy and sunflower.  So no surprise there but still a kick in the gut.  The irony is not lost on me that she is reacting to Sunbutter and Enjoy Life products.

Off to reevaluate all the stuff in the freezer and cabinet and bring out the good old labels we used for do long. 

[rebekahc]

YKW, that's a lot to take in at one time.

[hezzier]

We have been given the go ahead to challenge sesame.  First appt is for July...excited and scared all at the same time.