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Author Topic: Living with Food Allergies, 2013 and on  (Read 385382 times)

Description: Day-to-day experiences

Offline Gray

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Re: Living with Food Allergies, FEB 2013
« Reply #90 on: March 26, 2013, 07:06:03 PM »
I hear you Ajas!

That's great, TT.

DD passed an IOFC but is now on a small maintenance dose since she started having mild reactions at home.  This is allergist supervised - do NOT try this without allergist approval - there is a risk of anaphylaxis.

Offline Janelle205

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Re: Living with Food Allergies, FEB 2013
« Reply #91 on: March 26, 2013, 07:56:26 PM »
Additionally, I think that there really needs to be a way for patients to relate important intolerances that are not necessarily allergies on a medical form - I explain to them that I'm intolerant of some things, but that it isn't a true allergy, but the medical staff pretty much always just puts it in as an allergy.

To make that somewhat vague sentence more clear, I'm intolerant of a few antibiotics, to the point that I will not take them.  (I understand that some level of GI distress is expected with the abx - the level I had was definitely not just some.)  But it's not an allergy - yet that is the only way to really indicate that on most medical forms.

Offline Macabre

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Re: Living with Food Allergies, FEB 2013
« Reply #92 on: March 26, 2013, 09:47:49 PM »
Oh, I just say allergy and call it a day. I am/have been allergic to penicillin (would love to have a challenge), but quinolones make me wish I were dead. I DO NOT want them. I've never been tested. I don't have hives, etc., but wow, does that stuff make me feel awful and I don't want it.
Me: Sesame, shellfish, chamomile, sage
DS: Peanuts

Offline Janelle205

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Re: Living with Food Allergies, FEB 2013
« Reply #93 on: March 27, 2013, 05:30:35 PM »
See, that's what I usually do, but then the doctor asks about my symptoms and says "Well, that's not a real allergy."  Yes, I know this, but there isn't any other place to write this, and I'm still not going to take it, which is really what is relevant here.

Offline SilverLining

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Re: Living with Food Allergies, FEB 2013
« Reply #94 on: March 27, 2013, 08:19:29 PM »
For years, when my youngest needed any antibiotic I would say NO PENICILLIN.  I did not say he was allergic, I just said he is not getting it.  Then, when he got allergy testing done, the allergist actually said he was amazed ds had never had an anaphylactic reaction to penicillin.  Now, I have the allergists advice to actually say he is allergic.

Offline Janelle205

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Re: Living with Food Allergies, FEB 2013
« Reply #95 on: March 27, 2013, 09:46:55 PM »
My regular doc is used to it, but I've had a stat care doctor totally throw a fit that I need to avoid two antibiotic families.  Zithromax (the z pack) ends with me living in the bathroom, to a point that isn't acceptable.  I was in college and actually had to stop going to class.  Doxyclycline might actually be a real allergy - I throw up, like clockwork, every single time I take it.

Offline notashrimpwimp

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Re: Living with Food Allergies, FEB 2013
« Reply #96 on: March 28, 2013, 01:40:56 AM »
Living with food allergies means starting the evening by reading a menu and planning in advance precisely what to order...only to leave midway through the meal because of an allergic reaction. Pinpointing the cause, because the food read safe, proves difficult.  :disappointed:

Living with food allergies means trusting your body when others disagree and attribute your reaction to anxiety. How can you fear something you aren't even aware of? Sometimes it means facing a reaction's progression while trying to decide if it really is a reaction...when it usually is. :(

Living with food allergies means making alternate suggestions for hanging out with friends while hoping they understand why you declined an invitation because every time you make an exception something happens. :/

Offline booandbrimom

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Re: Living with Food Allergies, FEB 2013
« Reply #97 on: March 29, 2013, 03:57:03 PM »
So soy is 0.8. Challenge in a week.

 :hiding:

Geez, if he can eat soy...and baked milk...and tolerate trace amounts of peanut...he could actually start eating in restaurants.
What doesn't kill you makes you bitter.

Come commiserate with me: foodallergybitch.blogspot.com

Offline Macabre

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Re: Living with Food Allergies, FEB 2013
« Reply #98 on: March 29, 2013, 04:48:46 PM »
Wow. That's great. And such a nice possibility at his age.
Me: Sesame, shellfish, chamomile, sage
DS: Peanuts

Offline SilverLining

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Re: Living with Food Allergies, FEB 2013
« Reply #99 on: April 01, 2013, 02:36:05 PM »
Living with food allergies.....means.....crossing another company off my safe list.

I bought a Selection product.  It does not list "may contain" so I called.  The CSR could not say the name of the product properly because she doesn't speak English well enough. (That matters when I can die if the person doesn't understand me.). Anyway, she says they do not put "may contain" on the label but she can check for me.  I give her the code number and she says she has to put me on hold while she speaks to her specialist.  Then she comes back and says her specialist is in a meeting and she will have to call me back.

 :insane:  :insane:  :insane:

get with the program people.  We are living in the computer age.

Offline SilverLining

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Re: Living with Food Allergies, FEB 2013
« Reply #100 on: April 01, 2013, 02:36:35 PM »

Got the call back.

It's may contain tree nuts.

Offline GoingNuts

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Re: Living with Food Allergies, FEB 2013
« Reply #101 on: April 01, 2013, 06:35:51 PM »

Got the call back.

It's may contain tree nuts.
:disappointed:
"Speak out against the madness" - David Crosby
N.E. US

Offline ajasfolks2

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Re: Living with Food Allergies, FEB 2013
« Reply #102 on: April 01, 2013, 06:40:21 PM »
If ANYONE believes that food allergiy is a "one size fits all" -- all he/she needs to do is READ THIS THREAD.

Such widely varying experiences . . . as we all go through life . . .

and (thankfully!) still living with food allergies!

Is this where I blame iPhone and cuss like an old fighter pilot's wife?

**(&%@@&%$^%$#^%$#$*&      LOL!!   

Offline TabiCat

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Re: Living with Food Allergies, FEB 2013
« Reply #103 on: April 01, 2013, 09:26:24 PM »
This is a little thing but thrilled me. I went out too lunch with some buds from work and found another restruant where I can eat the SALSA  :happydance:
Ds - Peanut and Tree nut and a  host of enviro

Texas

Offline Macabre

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Re: Living with Food Allergies, FEB 2013
« Reply #104 on: April 01, 2013, 09:42:30 PM »
Woot!  Tabi I thought you were NKA.
Me: Sesame, shellfish, chamomile, sage
DS: Peanuts