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Author Topic: Milk Challenge  (Read 2683 times)

Description: Not so good...

Offline Ree

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Milk Challenge
« on: August 13, 2013, 04:41:57 PM »
I took my DS for a milk challenge today... He's been eating baked milk for 2 years.   He was SOOOO nervous and said his stomach hurt before we went in.   She gave him a teaspoon of strawberry milk and he puked within 30 seconds.. and continued to puke until all his lunch was out.  :-[  No Benadryl needed.  But the challenge was obviously called off and we don't know if he's still allergic.  She doesn't recommend we repeat RAST or SPT because his overall IGE is so high and he's dermatographic...she thinks he might have false positives.  So we need to food challenge, but I don't know how he'll ever be able to do it.

Has anyone else experienced this?  Any advice?
DS1 (11) - PA
DS2 (9) - MA, EA, PA, TN (on baked milk for 1 year)
DS3 (7) - KNA

Offline GoingNuts

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Re: Milk Challenge
« Reply #1 on: August 14, 2013, 06:03:02 AM »
No advice since we've never been through it.   :console:

Are you thinking it was likely nerves?  Has he reacted this way in other anxiety provoking situations?

H3lls Bells, I wish there was an easier way to accomplish this.  :grouphug:

"Speak out against the madness" - David Crosby
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Offline Ree

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Re: Milk Challenge
« Reply #2 on: August 14, 2013, 07:52:33 AM »
When he's nervous, he also says he feels like he's going to throw up and asks for a bucket.  He never has in those situations, but I've never given him something to eat then either.  It reminded me of when I've had a stomach virus and I try to eat something too soon.  As soon as the food hit my stomach, I puked it right back up.  That was the timing for him..   

He's never reacted that way to milk before.  My DH accidentally gave him a drinkable yogurt when he was 2 and he just sneezed like crazy. 

But it might have been a reaction...we'll never know.  :-/

I wish there was an easier way too.   :-[
DS1 (11) - PA
DS2 (9) - MA, EA, PA, TN (on baked milk for 1 year)
DS3 (7) - KNA

Offline GoingNuts

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Re: Milk Challenge
« Reply #3 on: August 14, 2013, 05:11:43 PM »
Awwww, poor kiddo.  I had such a nervous tummy when I was a kid too.  Actually, I still do - just not quite so bad.

I hope you can figure this out.
"Speak out against the madness" - David Crosby
N.E. US

Offline Macabre

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Re: Milk Challenge
« Reply #4 on: August 15, 2013, 07:56:03 AM »
Oh wow. I'm sorry. :grouphug:
Me: Sesame, shellfish, chamomile, sage
DS: Peanuts

Offline joanna5

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Re: Milk Challenge
« Reply #5 on: August 15, 2013, 07:29:46 PM »
Oh, that sucks.  It's hard to not get answers...
David (10/04): Allergic to milk, eggs, peanuts, tree nuts, and mustard
Allison (9/06): NKA
Ryan (3/11): Allergic to milk and eggs

Offline aliciapeet

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Re: Milk Challenge
« Reply #6 on: August 18, 2013, 01:20:17 PM »
We are doing the baked milk and recently tried baked cheese only to discover our daughter gets nauseous if the cheese is not overcooked :)...and she doesnt like the taste of cheese to boot--I feel like we will never accomplish baked cheese let alone get to milk challenge.  Her IGE levels are off the charts of greater than 100!

Offline aliciapeet

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Re: Milk Challenge
« Reply #7 on: August 18, 2013, 06:43:21 PM »
That was clearly supposed to bea very unhappy face :(

Online my3guys

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Re: Milk Challenge
« Reply #8 on: August 20, 2013, 08:33:14 AM »
Sorry Ree :grouphug:

I wonder if after some time passed he'd be open to trying other milk type foods in a challenge...pizza? ice cream? mac and cheese? Things that have more milk protein than baked stuff, but may be more appealing?

Aliciapeet, I saw your question for me in another thread.  I raised my thread on ds' clinical trial at mt. Sinai.

Offline Beach Girl

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Re: Milk Challenge
« Reply #9 on: January 31, 2014, 11:03:46 PM »
I think it may have been a real reaction.  I am 18 and have been doing baked milk for 4 1/2 years.  I do fine all the way up to pizza and eat pizza fairly often.  I even had a small serviing of lasagne twice recently and did fine.  My blood level for antibodies to milk is less than 0.35, so it is negative.   I was thinking maybe I had outgrown.  Then I had an accidental exposure to unbaked milk due to a restaurant mistake.  I had to use my epipen for the first time and call 911.  We really thought I had gotten to the point where I would not have a life threatening reaction to unbaked milk, but we were wrong.  I guess I still need the protein to be broken down.  It is very possible that your son had a real reaction even though he has been on baked milk for a long time.  The doctor has a way to do a blind challenge so that your son doesn`t know which dose is milk and which one is not.  I think it takes longer and is more complicated to do, but that should make it more clear whether he can have unbaked milk and not react.

Offline Mfamom

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Re: Milk Challenge
« Reply #10 on: February 03, 2014, 07:25:05 AM »
when ds just did his peanut challenge, he was nervous.  the doctor talked to him about not failing because of nerves (he's 15, so maybe easier to get him in the right mindset).  he also talked about blind challenges when we were getting ready to start.  that might be a good option.  also, just curious why you used flavored milk? 
When People Show You Who They Are, Believe Them.  The First Time.


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Offline Macabre

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Re: Milk Challenge
« Reply #11 on: February 03, 2014, 08:07:50 PM »
I'm guessing the same reason some doctors use Reese's Pieces instead of plain PB--it hides the taste of something that the kid has been brought up to be suspicious of/detest.
Me: Sesame, shellfish, chamomile, sage
DS: Peanuts

Offline Ree

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Re: Milk Challenge
« Reply #12 on: February 04, 2014, 10:09:08 AM »
Wow Beach Girl.. thanks for sharing.  You must have been very scared and shocked... so sorry to hear this.  :( 

My DS accidentally ingested his brothers cows milk recently and had a very scratchy throat and vomiting.  He panicked when he realized he drank it so we're not sure if the vomiting was a reaction or nerves.  But, he is definitely still allergic with his throat reaction... not sure where we go from here.
 
Mfamom - They told me to bring strawberry milk for taste.  I think that was a big mistake, since it's so sweet. But, I don't think it would've changed the outcome.
DS1 (11) - PA
DS2 (9) - MA, EA, PA, TN (on baked milk for 1 year)
DS3 (7) - KNA