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Author Topic: What to do when having a sulfite reaction  (Read 7365 times)

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Offline bentleysmom

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What to do when having a sulfite reaction
« on: January 16, 2014, 10:54:58 AM »
The week before Christmas,  I was given the antibiotic sulfur,  since then I have been to er 4 times, have been living on steroids and benadryl.
I had a BAD reaction to sherbert on Saturday night, read the label had e preservatives,  and four food colorings. (Mymhusband brought it home because I had been feeling so sick, without reading the label I ate a small bowl)
ever sinse then I react everytime I eat. I have been eating only oatmeal w/cinnamon,  milk, sugar and whole milk, homemade bread(contains yeast), chicken,  rice, salt pepper, air popped popcorn with butter. ALL ORGANIC FROM WHOLE FOODS AND TRADER JOES.
I have been using benadryl is there anything else that I can do to get rid if the toxins?

twinturbo

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Re: What to do when having a sulfite reaction
« Reply #1 on: January 16, 2014, 11:32:04 AM »
My understanding of sulfa antibiotics is that they are unrelated to the food additive sulfite. An anaphylactoid reaction is treated the same as an anaphylactic reaction. Allergic reactions are not toxins.

In the wake of a really bad reaction many things your body would normally tolerate set it off making it seem like you're reacting to many things. To sort out the subjective from the objective you should see an allergist that ideally has a good understanding of antibiotic as well as food allergies to help you sort this out in a clinical setting. Chasing down the idea of toxins and organic foods won't help you pin down the proper allergens to practice avoidance. Although familiarizing yourself with IgE-mediated allergic reactions and keeping a food diary would help once you get the right board certified specialist.

What symptoms presented during the sulfa drugs? How were they treated?

Offline SilverLining

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Re: What to do when having a sulfite reaction
« Reply #2 on: January 16, 2014, 04:46:00 PM »
My understanding of sulfa antibiotics is that they are unrelated to the food additive sulfite. An anaphylactoid reaction is treated the same as an anaphylactic reaction. Allergic reactions are not toxins.


That is what the allergist told me when we were discussing my son's serious reaction (not anaphylactic) to a sulfa antibiotic.  The allergist said it is NOT related to sulfite (and he has had not reactions to foods).
Too many people miss the silver lining because they're expecting gold.  ~~~  Maurice Setter


Offline leesieleesie

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Re: What to do when having a sulfite reaction
« Reply #3 on: January 23, 2014, 08:38:12 AM »
I also developed a sulfite sensitivity (it is not called a true allergy) after taking a course of SMZ-TMP (sulfa antibiotic) in the fall. Have also ended up at the ER and at the urgent care clinic as a result. You will read (and many doctors will say) they are not related but IMO they are. (I've had two doctors tell me I was just suffering from anxiety!)

I'm sorry you're suffering from this, too; it is awful. I can't even color my hair anymore without an ER trip! I am currently on the hunt for an allergist, but in the meantime I am avoiding sulfites as much as possible, taking B12, cooking organic, no longer eating out, and carrying Benadryl with me at all times.

I recommend a site with a free e-book. Google "Headaches, Asthma, Fries, and a Cola" for tons of information to help you. Good luck. I know what you're going through, unfortunately.
« Last Edit: January 23, 2014, 08:43:29 AM by leesieleesie »

Offline leesieleesie

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Re: What to do when having a sulfite reaction
« Reply #4 on: January 23, 2014, 08:41:23 AM »

twinturbo

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Re: What to do when having a sulfite reaction
« Reply #5 on: January 23, 2014, 08:52:23 AM »
Hair dyes often have PPD which is a known to be highly allergenic.

Sulfa and sulfite are not related, though it is still possible to react to both. It's not doctors as much as chemistry is my understanding. But both can be very serious reactions. One is a drug, the other is an additive. Like bell pepper and pepper are botanically distinct. Nutmeg is not a nut, etc.

Offline leesieleesie

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Re: What to do when having a sulfite reaction
« Reply #6 on: January 23, 2014, 09:06:40 AM »
Thanks. Yes, PPD is dangerous for some, but most permanent hair dyes are loaded with sulfites, too, unfortunately.

And you're correct that doctors say the two are unrelated (two ER doctors have told me this), but in my research I've found that many sulfite sensitivity sufferers started with a sulfa drug reaction. For me, my reactions to both were exactly the same and I was healthy and had never reacted to anything before that particular course of antibiotics. (Also some antibiotics have sulfite added as a preservative.)

Do you have sulfite sensitivity? Would appreciate any links you might have regarding this. I'm going to peruse this great site for information this morning. Thanks again.
« Last Edit: January 23, 2014, 09:09:28 AM by leesieleesie »

Offline rebekahc

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Re: What to do when having a sulfite reaction
« Reply #7 on: January 23, 2014, 09:08:45 AM »
http://www.uic.edu/pharmacy/services/di/faq/sulfa.php

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One of the more common drug allergies is that to sulfa drugs. Sulfa drugs are more appropriately labeled sulfonamides and are derivatives of para-amino benzoic acid. Table 1 lists common medications that contain a sulfonamide component. A sulfonamide allergy is different from a sulfite allergy because sulfonamides and sulfites are distinctly different chemicals. A person allergic to sulfites is no more likely to be allergic to sulfonamides than any other individual.


It may be possible you are reacting to both sulfites and sulfonamides, but please understand they are not related.  Reacting to sulfa drugs is an allergy - reacting to sulfites is not.
« Last Edit: January 23, 2014, 09:11:31 AM by rebekahc »
TX - USA
DS - peanut, tree nut, milk, eggs, corn, soy, several meds, many environmentals. Finally back on Xolair!
DD - mystery anaphylaxis, shellfish.
DH - banana/avocado, aspirin.  Asthma.
Me - peanut, tree nut, shellfish, banana/avocado/latex,  some meds.

Offline leesieleesie

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Re: What to do when having a sulfite reaction
« Reply #8 on: January 23, 2014, 09:15:49 AM »
They may not be related, but there are many for whom the sulfite sensitivity started after taking a course of these antibiotics, such as the OP and myself. Perhaps they were preserved with sulfites, as many medications are.

Offline leesieleesie

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Re: What to do when having a sulfite reaction
« Reply #9 on: January 23, 2014, 09:28:14 AM »
http://www.beatcfsandfms.org/html/Sulfides.html
Sulfites can hurt you if your protective Sulfite Oxidase enzyme (a chemical that converts one chemical to another chemical) is low. Sulfite Oxidase converts sulfites to sulfates, which are not harmful.
Things that can impair the protective sulfite oxidase are as follows: heavy metal molecules such as lead and mercury, Sulfa-drugs (e.g. a class of drugs within the sulfa group that can impair pterin synthesis, such as asthmatic inhalants and many antibiotics), molybdenum deficiency, proto-IX-porphyria (enzyme that makes blood inhibited), inherited genetic damage encoding of the SO-enzyme, severe B12-vitamin deficiency, and arrays of So2/SO3-group containing drugs including DMPS (an Rx chelation drug).

Offline rebekahc

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Re: What to do when having a sulfite reaction
« Reply #10 on: January 23, 2014, 10:13:05 AM »
Can you please cite a reputable source that has that same information?

The source you cited can't even use proper grammar.  :disappointed:

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This site suggests several research studies that would provide evidence to traditional Doc's on how to proceed with CFS/FMS patients. These would help move the CFS/FMS battle from Integrated to Traditional (Traditional is based on double-blind studies), which is the bulk of the nation's Docs. If you have been hit with CFS/FMS and are very wealthy, you might consider printing out this list of research studies, calling up the major medical organization or university in your area (or CFS/FMS clinic), asking for an appointment with the person in charge of Research and Development, get the appointment, walk into their office, place the printout on their desk, and ask them how much it would cost to do the studies. Expect numbers between $100K and $5M, depending on how many subjects you want in YOUR study. This would help the world, help yourself by connecting with medical researchers, help you compare results of your own tests with others, and help you make decisions about your own treatment by observing how others respond. And, you may actually enjoy being involved in tracking down the cause of a terrible condition that effects 500,000 people, according to the Center For Disease Control. So if you are wealthy, please consider this.

If you would like to discuss Research with our Directory of Research, Ray Saarela, please email Research@BeatCfsAndFms.org and place "BeatCfsAndFms Research" in the subject field. Ray is responsible for researching the more complex biochemical issues discussed at this website.
« Last Edit: January 23, 2014, 10:17:37 AM by rebekahc »
TX - USA
DS - peanut, tree nut, milk, eggs, corn, soy, several meds, many environmentals. Finally back on Xolair!
DD - mystery anaphylaxis, shellfish.
DH - banana/avocado, aspirin.  Asthma.
Me - peanut, tree nut, shellfish, banana/avocado/latex,  some meds.

Offline leesieleesie

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Re: What to do when having a sulfite reaction
« Reply #11 on: January 23, 2014, 10:30:33 AM »
There are other links, and the sarcasm and eyerolling isn't really necessary.

It is very frustrating to have others discount what we are going through.

I joined this morning to perhaps assist the OP, not to argue about a condition from which we suffer and how it originated.

The fact remains, we have this sensitivity now, regardless of how it developed. I would like the OP to know there are many websites and links available to read about this condition and how best to handle it, and they're all available via Google search.

I truly just wanted to OP to know she was not alone in her suffering and wanted to share information with her. Apparently, this was wrong of me; I apologize. Thanks.

Pax.

twinturbo

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Re: What to do when having a sulfite reaction
« Reply #12 on: January 23, 2014, 10:42:16 AM »
Considering the reality and danger of anaphylactoid reactions the onus is upon you to not indulge personal theories under the philosophy Do no further harm.

We and our loved ones live with life threatening autoimmune reactions that are acute and have known causes. We do our best to help, the same we extended to you, to help people who live with our allergic disease how best to cope. You have chosen to turn a blind eye to our help or really to accept anything.

Offline rebekahc

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Re: What to do when having a sulfite reaction
« Reply #13 on: January 23, 2014, 10:55:34 AM »
I'm sorry you didn't get what you were looking for here.  It wasn't my goal to sound sarcastic or roll my eyes at you.  I was shaking my head at the drivel posted on the site you linked to.  Unfortunately, there is a lot of misinformation out there about allergies and allergic-like chemical sensitivities.  There are many sites that post a bunch of pseudoscientific information that is not correct.  My hope for you and all who come here is to receive the very best, most scientifically accurate information possible. Those who are having reactions need to find out the real reason so that they can be as healthy and safe as possible.  Following the advice and pseudoscience offered by non-reputable sources could just mean avoiding things unnecessarily but it could also prove to be harmful or dangerous for some conditions.   
TX - USA
DS - peanut, tree nut, milk, eggs, corn, soy, several meds, many environmentals. Finally back on Xolair!
DD - mystery anaphylaxis, shellfish.
DH - banana/avocado, aspirin.  Asthma.
Me - peanut, tree nut, shellfish, banana/avocado/latex,  some meds.

Offline Macabre

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Re: What to do when having a sulfite reaction
« Reply #14 on: January 23, 2014, 11:02:05 AM »
I have treated my sulfite reactions like I have IgE-mediated reactions--with Benadryl. I have had what I believe was an anaphylactoid sulfite reaction.

Mine tolerance has grown over the last few years. I am now able to have a glass of non-domestic white wine--unthinkable for me a few years ago.   
Me: Sesame, shellfish, chamomile, sage
DS: Peanuts