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Author Topic: Allergic Living  (Read 1115 times)

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Offline LinksEtc

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Allergic Living
« on: July 16, 2014, 03:27:27 PM »

Offline CMdeux

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  • -- but sometimes the voices have good ideas!
Re: Allergic Living
« Reply #1 on: July 16, 2014, 06:25:50 PM »
Wow-- the Giorgis are AMAZING people. 
Resistance isn't futile.  It's voltage divided by current. 

Western U.S.

Offline LinksEtc

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Re: Allergic Living
« Reply #2 on: July 21, 2014, 05:19:47 PM »
Yes.

They were also on NBC.

Tweeted by @AllergyEducator

http://www.today.com/video/today/55433053#55433053

Offline LinksEtc

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Re: Allergic Living
« Reply #3 on: August 22, 2014, 09:20:51 AM »
August 2014

A lot of school stuff.

http://allergicliving.com/newsreport/2014-08.html

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Re: Allergic Living
« Reply #4 on: September 15, 2014, 08:44:49 AM »

Offline LinksEtc

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Re: Allergic Living
« Reply #5 on: July 10, 2015, 01:43:54 PM »

ninjaroll

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Re: Allergic Living
« Reply #6 on: July 10, 2015, 02:07:13 PM »
I'm going to say something unpopular.  In my opinion Dr. Sicherer misses the point on interpreting emotions.  Emotion is more of an affect whereas this is clearly a cognitive risk-benefit where risk is clearly on the table.  We've had our very well qualified allergist be flat out wrong, and right before the challenge I had to sign a waiver about a mile long about the serious risks including death before the allergist would begin the challenge. 

When I voiced concern about starting dose I was met with a dismissive attitude that I was 'worried' rather than had concerns about eliciting dose.  What I did not need is to be dismissed, but still sign a ridiculous risk waiver, then anaphylaxis after initial dose met with a "Whoops, I was wrong," from the allergist.

So until this conversation starts to include interpretation of pass-fail, the complete lack of consistent protocol for dose of progression, developmental appropriateness per patient based on both age and ability to endure something high risk and exhausting for clean data, plus EXPENSE not from the challenge alone if successful but if a spectacular failure.  Not everyone has Cadillac insurance plans or the ability to take the day off from work required and put other children in suitable child care.

They keep playing the emotions card.  Start with a ground up self-evaluation of how challenges are conducted and what the true cost of one includes.