Social Media

[LinksEtc]

I never heard the term "ePatient" until recently, but it's clear that I am one so I'll speak from this perspective ....


I'm not crazy about the analogy of allergists as rock stars ... just my personal opinion.


To me, it reinforces the image that the docs are up high and patients are lower ... there is a great power and knowledge imbalance between doc & patient and this can be intimidating to a patient ... they may not feel like a "partner" in the relationship, patients may not feel that their opinions/ideas are valued by the docs ...

-------------------------------------------


Tweet response for @GilmerHealthLaw

"Breaking a Promise"
http://improvecarenowblog.org/2015/02/12/breaking-a-promise/

“I will listen more than I will speak.” Because that’s what patients do, right? I had the distinct feeling that I would be an intruder in a place where patients don’t belong

-------------------------------------------


Truly, I have a great respect for docs, and in a way you are like rock stars, but the image I prefer is that of the HumbleGuru, walking side by side with patients ... teaching, guiding, listening, & on occasion, even learning from us (because although we don't have your education and wisdom, we often still have something of value to say).

-------------------------------------------


Also, regarding the advice to follow/RT those you want to emulate ...

this is certainly an approach that many people use and it is not "wrong" ....

but I fear this may lead to not "hearing" opinions that are different & to RTs based more on who is tweeting rather than the worthiness of the content of the tweet ...

[LinksEtc]

"Meet the 26-year-old who’s taking on Thomas Piketty’s ominous warnings about inequality"
http://www.washingtonpost.com/blogs/wonkblog/wp/2015/03/19/meet-the-26-year-old-whos-taking-on-thomas-pikettys-ominous-warnings-about-inequality/

The comment blossomed into a near-unprecedented career opportunity for a student who just recently turned 26 years old, and who remains a year away from earning his doctoral degree.

Organizers say it will almost certainly be the first paper at the prestigious Brookings Papers on Economic Activity that was commissioned based on a blog comment.

---------------------------------------------



"6 Digital Health Power Curators"

http://33charts.com/2015/02/6-digital-health-power-curators.html?utm_content=buffer3f24c&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer

Remember that Twitter can be used for many things.  In my world, Twitter is used to filter information from smart, resourceful people. For others, however, Twitter is a cocktail party or a convo tool.

---------------------------------------------



Tweeted by @phdcomics

"Who owns your data? (Hint: It's not you)"
https://m.youtube.com/watch?v=y1txYjoSQQc

[LinksEtc]

Thinking Like a Statistician: Social Media and the ‘Spiral of Silence’
http://simplystatistics.org/2014/12/02/thinking-like-a-statistician-social-media-and-the-spiral-of-silence/

The superficial and fast paced nature of social media is not amenable to nuances and subtleties. Disagreement with the groupthink on one specific topic can therefore get a person labeled

-------------------------------------------


"Q & A with KevinMD: Doctors, Patients and Social Media"
http://blogs.einstein.yu.edu/q-a-with-kevinmd-doctors-patients-and-social-media/

Phenomena such as cyberbullying, “Facebook depression,” sexting and exposure to inappropriate content are all issues about which pediatricians are uniquely positioned to educate patients and their families.

I speak to hundreds of doctors every year who don’t yet see the value of social media in the healthcare setting.

Perhaps in the coming years, when payment isn’t tied to the number of patients seen, communicating with patients can be emphasized, whether it’s through a phone call, email, or social media.

[LinksEtc]

"Social Media Helps Patients Find a Community"
http://www.healthline.com/health-news/social-media-connects-patients-021314#3

Kevin Vicker, who handles social media for the National Stroke Association (NSA), told Healthline that the importance of drawing a line between medical advice and non-clinical information and support is an issue on their Facebook page as well.

More than 40 percent of people also said they would consider information obtained on social media when choosing a doctor, hospital, or other medical facility, according to Demi & Cooper Advertising DC Interactive Group.

----------------------------



Tweeted by @JBBC


"Why Doctors Should Participate In Twitter Chats"
http://hcsmmonitor.com/2013/12/16/why-doctors-should-participate-in-twitter-chats/?utm_content=bufferab0f9&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer

The healthcare conversation is no longer a one-way narrative but is evolving into a global, participatory discussion.

The role Twitter plays in breaking down patient/provider barriers, disseminating and expanding the reach of healthcare information, widening social networks and co-creating a collaborative model of shared health information is for me one of the most exciting developments in social media.

&


"A Step By Step Guide To Digital Storytelling With Storify"
http://snip.ly/uPhP#http://wp.me/p2oc7R-1tM

[LinksEtc]

 Tweeted by @JBBC


"RX NARRATIVE: STORY AS MEDICINE #DOTMED14"
http://journeyingbeyondbreastcancer.com/2014/12/08/rx-narrative-story-as-medicine-dotmed14/?utm_content=bufferda040&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer

The medical chart becomes the official story and the doctor the teller of the patient’s story. What happens when the patient narrative doesn’t match the physician’s version?

Our blogs offer healthcare professionals a unique glimpse into the window of the lived experience of illness. Reading them, you will find grace, humour, persistence, and courage in the face of fear, grief, anger, pain, fatigue, and loss.

-------------------



Tweeted by @ElaineSchattner

"How Blogger Lisa Bonchek Adams Found Meaning In Metastatic Breast Cancer"
http://www.forbes.com/sites/elaineschattner/2015/03/09/seeing-beauty-in-lisa-bonchek-adams-who-tweeted-and-blogged-about-her-life-with-breast-cancer/

Lisa was pulled onto the national stage in January 2014 when Emma Keller, then a contributor to the Guardian, and Keller’s husband Bill, then an op-ed writer at the New York Times, wrote a pair of bruising columns about her. Emma criticized Adams for oversharing, and Bill suggested she give up non-palliative treatments. Their harsh treatments created an uproar, and also highlighted sensitive issues relevant to detailing health information on the Internet, medical journalism and goals of cancer care.

[LinksEtc]

Tweeted by @eliza68


"How A Group Of Lung Cancer Survivors Got Doctors To Listen"
http://www.npr.org/blogs/health/2015/03/01/385995084/how-a-group-of-lung-cancer-survivors-got-doctors-to-listen?utm_campaign=storyshare&utm_source=twitter.com&utm_medium=social

A group of lung cancer survivors was chatting online last May about what they thought was a big problem

She knew this was usually a task for professionals, but decided to go for it anyway.

Newman called on the expertise of current and former online community members.

Newman says she's usually pretty cynical about the ability of an individual or small group of patients to make a difference, but that this victory has changed her thinking.

---------------------


Tweeted by @DrVes

Topol, Mama Doc on Social Media's Power, Vaccines, and Disease Prevention
Eric J. Topol, MD, Wendy Sue L. Swanson, MD, MBE Disclosures
March 17, 2015
Medscape

When I went online and started searching on Twitter, I could see what moms were doing to each other.

You have created a model on how you can not only provide such great patient care but also have an impact at a much bigger level through the tools that we have today that were not available in any significant way 5 or 7 years ago.

[LinksEtc]

Tweeted by @SeattleMamaDoc

Stanford Medicine X | Symplur Signals
Research Challenge

http://medicinex.stanford.edu/medx-symplur-2015/

Stanford Medicine X and Symplur are pleased to announce a joint initiative designed to spark scholarly research activity in healthcare social media.

Proposal submissions begin February 10 and end March 15 2015.

---


2:32

One can almost observe that when traditional communication hierarchies are flattened, which they are in social media, very deep conversations take place between stakeholders, and MedicineX takes this to the next level.

[LinksEtc]

Tweeted by @AllergyNet

"A personal reflection on social media in medicine: I stand, no wiser than before"
http://www.allergynet.com.au/a-personal-reflection-on-social-media-in-medicine-i-stand-no-wiser-than-before/

As an early adopter, my personal reflection on social media is finely balanced. The benefits of knowledge, communication and reach are clear. But the nebulous areas of professionalism, clinical excellence, content, time, distractions and need confuse me.

------------------------


Tweeted by @Skepticscalpel

"Healthcare Social Media is a Waste of Time for Most Doctors"
http://www.thehappymd.com/blog/bid/290754/Healthcare-Social-Media-is-a-Waste-of-Time-for-Most-Doctors

Don’t listen to the healthcare social media flavor of the month … because here are …

3 Reasons Healthcare Social Media is a Bad Idea for the Average Practicing Doctor

------------------------


Tweeted by @JBBC

"7 Questions: Bernadette Keefe on healthcare media"
http://www.pharmaphorum.com/articles/7-questions-bernadette-keefe-on-healthcare-media

I believe that ineffective communication is at the heart of many issues today, including some of healthcare's major pain points, such as patient engagement, health literacy and physician effectiveness.

Observable on social media is people's context and perspective, their priorities, interests and reasons for engaging in their health (or not). Likewise patients' unmet needs, tips about better ways to communicate with them, and insight into how great the burden of chronic lifelong disease is on patients and their families are all laid out vividly on social media, especially in the healthcare Twitterverse.

[LinksEtc]

"Blogging and Defamation in Nevada"
https://ohmahdeehness.wordpress.com/2015/04/25/blogging-and-defamation-in-nevada/

There is a lot of nuance to a successful defamation claim, but I always caution people that just because you’re in the right at the end of the day, it doesn’t mean someone can’t drag you into court.

-----------------------


Tweeted by @subatomicdoc

"Who's Watching When You Look For Health Information Online?"
http://tinyurl.com/mjz4gr4

He also found evidence that health search terms he tried — herpes, cancer and depression — were shared by seven sites with outside companies.

&


"Travelers, be wary of all that free Wi-Fi"
http://tinyurl.com/pc3ux8g

A five-minute session on the the wrong network can compromise e-mail credentials, bank accounts, credit card information, and other private accounts.

[LinksEtc]

"Facebook isn’t a charity. The poor will pay by surrendering their data"
http://www.theguardian.com/commentisfree/2015/apr/26/facebook-isnt-charity-poor-pay-by-surrending-their-data

In fact, we are getting shortchanged twice: first, when we surrender our data – eventually, it ends up on Google’s balance sheet – in exchange for relatively trivial services, and, second, when that data is then later used to customise and structure our world in a way that is neither transparent nor desirable.

---------------


"How to Take a Social Media Vacation: The Complete Guide to Pausing, Leaving, or Taking a Break From Social Media"
https://blog.bufferapp.com/how-to-pause-take-break-leave-social-media

If it’s on your mind, consider some of the thoughts and ideas we discussed here—how to best spend your time, the benefits of saying no, taking a lean approach to social, and more. Social media has tons of advantages and uses when applied in the right way—and the right way so very often comes down to what feels right to you.

[LinksEtc]

Tweeted by @joyclee

"Nobody Famous
What it’s like to have the social network of a celebrity, without actually being famous"
https://medium.com/message/nobody-famous-37790cb4d014

What becomes clear after a few years of having a large social network is that people are desperate to be heard.

The fact is, online celebrity is just a simple reflection of the existing networks of privilege that confer benefits on people in every other realm of life.

--------------------------


Tweeted by @DrVes

"A Mid-Career Perspective on Lifelong Learning in Medicine"
http://knowledgeplus.nejm.org/a-mid-career-perspective-on-lifelong-learning-in-medicine/?utm_content=buffer1ecfa&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer

I have “hired” about 400 people on Twitter to bring me the information that is important to me.

When I show colleagues a new study, sometimes they look at me as if I am exceptionally well-read. “Gosh, John, you sure do read a lot.” What they don’t know (yet) is that the people I have chosen to follow on social media brought this study to me.

--------------------------


Tweeted by @Doctor_V


"Twitter Is Killing Twitter to Save Twitter"
http://tinyurl.com/nvxx4me

Its newly-revealed Project Lightning, BuzzFeed reports, will be the core feature of Twitter going forward: a button in the living center of its mobile app’s menu bar, dedicated to providing useful information in real time.

In the Reputation Economy, speed, bloviation, and #engagement are prized far above the actual dissemination of useful information.

[LinksEtc]

Tweeted by @JBBC

"Antisocial Behavior in Online Discussion Communities"
http://arxiv.org/pdf/1504.00680.pdf

User contributions in the form of posts, comments, and votes are essential to the success of online communities. However, allowing user participation also invites undesirable behavior such as trolling.

-------------------------


Tweeted by @DrVes

"Social Media Use in Diabetes: A Fad, or Here to Stay?"
Lisa Nainggolan
March 30, 2015
Medscape

One fantastic opportunity that social media affords endocrinologists is the ability to "learn from our patients," said Dr Kar.

If you are following the right people you will learn a lot of things

Of course there are risks, he said, such as the urge to get too involved, to give clinical advice, or express opinions that are too personal.

[LinksEtc]

Tweeted by @anildash


"Here’s What Happens When You Confront An Internet Troll Face To Face"
http://www.makeuseof.com/tag/heres-happens-confront-internet-troll-face-face/

It’s no secret that people on the Internet can be mean. That’s an unfortunate fact of online culture: when you give people anonymity, they often feel free to say whatever they want with no regard for how it may affect others. After all, when you’re just typing words into a machine, it’s easy to forget that there are real people reading those words on the other side of the screen.

---------



Tweeted by @colleen_young

http://www.slideshare.net/mobile/Colleen_Young/using-social-media-safely-for-your-health

[LinksEtc]

Tweeted by @colleen_young

"What’s your relationship with privacy? Um, it’s complicated."
JUNE 19, 2015
https://cyhealthcommunications.wordpress.com/2015/06/19/whats-your-relationship-with-privacy-um-its-complicated/

We also know that MedX is the perfect space for this type of nuanced dialogue, as it draws a passionate crowd of doers and dreamers.

This is just the first post in a series leading up to the panel itself, and we want to know what your thoughts are on the intersection of privacy of innovation.

&

Colleen Young ‏@colleen_young  · Jul 15 
Transcript of #hcsmca chat 228: http://embed.symplur.com/twitter/transcript?hashtag=hcsmca&fdate=07%2F15%2F2015&shour=10&smin=00&tdate=07%2F15%2F2015&thour=11&tmin=15 … What's Your Relationship w/ Privacy?

http://embed.symplur.com/twitter/transcript?hashtag=hcsmca&fdate=07%2F15%2F2015&shour=10&smin=00&tdate=07%2F15%2F2015&thour=11&tmin=15


&


"What Does Caring Mean When It Comes To Social Media in Medicine?"
https://cyhealthcommunications.wordpress.com/2015/06/18/what-does-caring-mean-when-it-comes-to-social-media-in-medicine/

When I give a patient the ability to connect with me online, I become accessible to them in a way that may not have been possible in recent years.

My participation on Twitter is a part of my personal and professional life that I hope has humanized me, “the surgeon,” in a way that is positive and engenders confidence.

---------------------------------------



Tweeted by @EricTopol

"Doctors Go Online for Medical Information, Too"
http://www.wsj.com/articles/doctors-go-online-for-medical-information-too-1435008009

Doctors who treat children with rare conditions sometimes seek guidance from online chat groups where families relate their experiences with the disorders.

Some patient-advocacy groups have had their collected experiences published in a scientific journal to lend greater scientific weight to the findings.

[LinksEtc]

Warning - some language in the video / not for kids.



Tweeted by @BadAstronomer


"What Do We Do About Misogyny Online?"
http://www.slate.com/blogs/bad_astronomy/2015/06/23/john_oliver_tackling_online_misogyny.html

John Oliver did a typically brilliant report on all this for his show Last Week Tonight on HBO on Sunday.

-----------------------------



Not saying I agree w/ what Snowden did ... just putting this here b/c thinking about privacy & SM.


Tweeted by @VictoriaBetton

Filmed October 2014 at TEDGlobal 2014
Glenn Greenwald: Why privacy matters

http://www.ted.com/talks/glenn_greenwald_why_privacy_matters?utm_source=t.co&utm_content=awesm-publisher&utm_medium=on.ted.com-twitter&awesm=on.ted.com_r0BmD&utm_campaign=#t-1243296

Glenn Greenwald was one of the first reporters to see — and write about — the Edward Snowden files, with their revelations about the United States' extensive surveillance of private citizens. In this searing talk, Greenwald makes the case for why you need to care about privacy, even if you’re “not doing anything you need to hide."