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Key Verbiage for School Meetings/Letters re-post Page 2
ajasfolks2
Moderator1
Posted: May 17th, 2008 at 09:15 pm

"I'm not trying to create a perfect childhood for him. I'm trying to help create a fully-functioning, whole adult."


Recently uttered comment from this reviled LTFA Mom to a passive-aggressive, dismissive administrator after one of those eye-rolling comments.


Enable the child with LTFA: Disable the food use!


Committee Member FIREBIRD

DS - PA/TNA, latex, other legumes, mango
DD - TNA/verifying PA; drug allergies
Me - sulfites and other drugs
ajasfolks2
Moderator1
Posted: May 21st, 2008 at 01:20 pm


"pattern of exclusion"

when descrbing/referring to the regular and repeated food-events that by virtue of the food alone exclude the LTFA child.





Enable the child with LTFA: Disable the food use!


Committee Member FIREBIRD

DS - PA/TNA, latex, other legumes, mango
DD - TNA/verifying PA; drug allergies
Me - sulfites and other drugs
Stinky
Member
Posted: Jun 9th, 2008 at 12:42 pm

I just wrote our "request" for a 504 eval....but took a different path in that we went with the "assumption close" here is part of our letter...

Based on his life threatening food allergy to peanut, and his reaction history, X is eligible for Section 504 of the Rehabilitation Act of 1973. We would like X’s 504 designation to be established so that we can put together a plan to ensure his safety and inclusion at school.

Attached please find a detailed letter from X’s allergist that describes the seriousness of his allergy. We have been provided some excellent tools (letters, PowerPoint training presentation, door sign) from X, R.N. the Nurse Supervisor for X School District which gives us confidence that this can be accomplished in the short time left before school is out for the summer.

Please call us at # during business hours or # at any time to schedule this meeting as soon as is practical.

We appreciate your prompt attention to these matters and look forward to meeting with the team at School.



ETA - yeah so it hasn't actually worked yet - been told IHP is the same thing - will update as needed.....the game begins

« Last Edited by Stinky Jun 9th, 2008 at 05:30 pm »

I spell bad and am not a medical professional.

DS(1 and only) - PA,
Ddog - allergic to wheat - on gf raw food
ajasfolks2
Moderator1
Posted: Feb 26th, 2009 at 08:19 pm

There might be some useful terminology and/or verbiage here:

http://www.virginiacivilrightsattorneys.com/civil-rights-definitions.cfm



Enable the child with LTFA: Disable the food use!


Committee Member FIREBIRD

DS - PA/TNA, latex, other legumes, mango
DD - TNA/verifying PA; drug allergies
Me - sulfites and other drugs
McCobbre
Moderator
Posted: Feb 26th, 2009 at 09:03 pm

Not sure if I've posted this here in this thread. I know I posted it in our January reaction thread.

Manual for the Training of Public School Employees in the Administration of Medication

http://www.doe.virginia.gov/VDOE/Instruction/Health/med-admin-manual.pdf

A manual to be used by a registered professional school nurse for teaching unlicensed assistive personnel—health assistants, instructional assistants, secretaries, teachers, and principal's designee—in administering medication to students in Virginia public schools


And we found pp 88-89 rather key--it's about the administration of epinephrine during a reaction.

« Last Edited by McCobbre Feb 26th, 2009 at 09:06 pm »

"Words are our most inexhaustible source of magic. They are potent forms of enchantment, rich with the power to hurt or heal."~Albus Dumbledore



Me: shellfish, chamomile, sesame and a few odds & ends
DS: peanuts
ajasfolks2
Moderator1
Posted: Nov 4th, 2010 at 03:53 pm

From thread today discussing documenting.

Nov 3rd, 2010 at 03:53 pm, CMdeux wrote:

"So that it is very clear that you are choosing to create a learning environment which is hostile for my child and are ignoring my efforts to remediate this situation. It occurred to me that perhaps it wasn't clear just how pervasive the problem is, so I am making everyone aware."


Then just let them wonder what you plan to do about it. Believe me, any special ed person will sit up and pay attention to this behavior--- because it is precision groundwork for legal action of some kind.




Link to thread, in case interested and would like to read whole thing & context:

http://allergy.hyperboards.com/index.php?action=view_topic&topic_id=17102&start=1


Enable the child with LTFA: Disable the food use!


Committee Member FIREBIRD

DS - PA/TNA, latex, other legumes, mango
DD - TNA/verifying PA; drug allergies
Me - sulfites and other drugs
ajasfolks2
Moderator1
Posted: Apr 20th, 2011 at 07:21 pm

Adding these 2 phrases here until can get more links/info with them:

Disparate impact

OR

Adverse Impact

(does not necessarily have only to do with employer discriminating against one with disability . . . can also be school)


Enable the child with LTFA: Disable the food use!


Committee Member FIREBIRD

DS - PA/TNA, latex, other legumes, mango
DD - TNA/verifying PA; drug allergies
Me - sulfites and other drugs
ajasfolks2
Moderator1
Posted: Apr 29th, 2011 at 04:34 pm

Had forgotten this phrase until I saw it again in a post today from Carefulmom:

"Peanut allergy can be fatal."

When you really need it, use it.

(And, obviously, NOT limited to PEANUT!)


Enable the child with LTFA: Disable the food use!


Committee Member FIREBIRD

DS - PA/TNA, latex, other legumes, mango
DD - TNA/verifying PA; drug allergies
Me - sulfites and other drugs
ajasfolks2
Moderator1
Posted: Apr 29th, 2011 at 05:05 pm

Apr 29th, 2011 at 04:59 pm, ajasfolks2 wrote:


There is no such thing as EMERGENCY NEED TO FEED.


THIS is the point we ALL need to get across to ALL school personnel.



. . . AND to the food-wielding parents VIA the message from the school administration.




(Yes, excepting the emergency need to feed in the event of a singular person with hypo/hyperglycemia issue . . . or other wildcard.)


Enable the child with LTFA: Disable the food use!


Committee Member FIREBIRD

DS - PA/TNA, latex, other legumes, mango
DD - TNA/verifying PA; drug allergies
Me - sulfites and other drugs
ajasfolks2
Moderator1
Posted: May 4th, 2011 at 04:34 am


"The gravity of harm, in this case death, is greater than the burden of precaution."
~Loudoun County, Virginia School Board Member




Enable the child with LTFA: Disable the food use!


Committee Member FIREBIRD

DS - PA/TNA, latex, other legumes, mango
DD - TNA/verifying PA; drug allergies
Me - sulfites and other drugs
ajasfolks2
Moderator1
Posted: Jun 19th, 2011 at 09:31 am

From another thread we have going abt 504 accommodations:

Jun 19th, 2011 at 09:30 am, ajasfolks2 wrote:
Suggestion for 504 (any age) --

Have 1 provision that requires EACH staff member to read, initial key bullets, and SIGN the document. This is NOT burdensome -- it is part of assuring that EVERYONE is informed.

Notice when you sign any contract these days there are items to initial and places to sign? This should be same for a CONTRACT that is about life-protecting and potentially life-saving measures for a child with the hidden medical disability of life-threatening food allergies (anaphylaxis).

Also, consider a required "review" just after the winter/mid-year break . . . with initials and signatures of course. Smiley




Enable the child with LTFA: Disable the food use!


Committee Member FIREBIRD

DS - PA/TNA, latex, other legumes, mango
DD - TNA/verifying PA; drug allergies
Me - sulfites and other drugs
ajasfolks2
Moderator1
Posted: Jul 22nd, 2011 at 07:00 am

Connecting to this thread.

Excellent verbiage and 504 suggested wording in this thread:

http://allergy.hyperboards.com/index.php?action=view_topic&topic_id=17102&start=1


Enable the child with LTFA: Disable the food use!


Committee Member FIREBIRD

DS - PA/TNA, latex, other legumes, mango
DD - TNA/verifying PA; drug allergies
Me - sulfites and other drugs