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Topic Summary

Posted by: GoingNuts
« on: December 29, 2017, 05:08:02 PM »

Welcome SB!

Corn isn't an issue for me, so I don't have any good recommendations, but your mention of Rockaway Bay makes me think we live in the same general area.  Have you seen a board certified allergist?  They may be able to help you narrow down exactly what you are reacting to (with the help of your reaction history - are you keeping a food diary?), as well as have recommendations for medications that you can eat. 

You're right - corn is devilishly hard to avoid here in the U.S.  I'm sorry to hear it's becoming harder in Europe as well.
Posted by: rebekahc
« on: December 29, 2017, 10:28:46 AM »

It sounds like you have a lot going on - so sorry!

We use a compounding pharmacy to make corn-free for meds for DS and he only takes them when absolutely necessary.  DS's situation when he was little was complicated by an allergy to ibuprofen and to acetaminophen, though, so he learned to live without for a lot of minor things.
Posted by: SBAllergyFree
« on: December 29, 2017, 09:50:26 AM »

Hello everyone,

It is great to have come across this forum. It began with a fish allergy that began when my parents fed my brother and I some fish  from Rockaway Bay. Not sure what they were thinking!

My brother's allergy stayed fairly constant with rashes and vomiting. I thought I could get over it by regular exposure...first vomiting, then a swollen tongue, then an anaphylactic reaction. Needless to say, some of us learn the easy way and some of us learn the hard way.

I have been also struggling with other allergies for the past several years. After the birth of my second child, I noticed that I was beginning to react to corn. I still didn't take it very seriously at first. It wasn't until I started to have swelling around my private area after eating fast foods and I was finally able to figure out what was triggering my allergic reactions. One of my greatest nemesis now...corn!

I thought that it would help to just eat organic corn. I finally realized that I had to stop eating corn altogether when I ate some organic popcorn and the whites of my eyes swoll up and almost popped. Since then, I realized that I react to the protiens, sugars, starches, oils, fats and all derivatives of corn. It took me too long to figure it out. However, I wanted to make sure that I didn't develop another anaphylactic reaction to corn, like the one I had to fish and shellfish.

At that time, I was still able to eat wheat. When I used traveled to Europe, I was able to eat all of the things that I couldn't eat in America, the corn loving capital of the world. I used to load up on the sodas, ice cream, candy, gum...all of the things that I couldn't eat in America. But, as you already know, things change.

In recent years, Europe began to allow GMO onto its fields. About two years ago, I had a massive flair up after loading up on cake, bread and noodles in Germany. I had massive burning and swelling in my back, hips, and feet. It was miserable and I didn't know what to eat. Like the corn additives in America, Europe loves it wheat GMO tainted. My hunch is I am, most likely, really reacting to Round Up.

Since that day, I have had a hard time eating corn, wheat, gluten, beans, nuts, rice...and the list seems to keep growing. I am now strictly on a fruit, meat, and vegetable diet. I have tried to add things back to my diet but it only seems to lead to constipation, inflammation and frustration.

One of my biggest concerns is the possibility of not being able to take medicines in an emergency situation. With the amount of the corn and wheat in medicines, it leaves people with allergies at risk in these kinds of situations.

Based on your own experiences, what medicines, companies and or drugs do you all recommend for basic and common illnesses? For example colds, flu, aches and pains, blood pressure, and other conditions.

Any help is appreiciated. Thanks for your help!!

 :bye: :thumbsup: :hiding: ???
Posted by: Forever Blue
« on: March 10, 2017, 02:24:09 PM »

Hi Everyone!  I'm from Southern California.  I'm wondering if my new discovery of food allergies is the cause of why I've been feeling a certain way for going on 1.5 mos.  I'm glad I found this board & I hope to learn a LOT here!   :)

Please go to my thread below & give your input if possible:

Food Allergies (Questions)
Posted by: Sunshine_burn
« on: January 16, 2017, 01:08:43 AM »

Thank you! Yes it took about a day or so to take it all in after the test! I have an awesome allergist, epipen on me and in my home and work, also great work friends who know my plan and what to do! (Helps that I work in an ICU😆) I have done the food challenges, twice actually, and all are sadly true, except Cantaloupe, never eat it anyway so didn't see the point in trying.
I really appreciate how supportive everyone on the board has been already, so glad to be a part of it.
Biggest struggle right now is fighting cravings for things that I can't have anymore, but exploring new food options has been interesting!
Posted by: spacecanada
« on: January 15, 2017, 07:00:28 PM »


That is a pretty overwhelming list.  I hope you are able to find some resources here to help you deal with your new allergies: finding a certified allergist that specializes in food allergies, carrying epinephrine at all times, having an allergy action plan (how to recognize and treat allergic reactions), and doing allergist-supervised food challenges for any items on that list that may be false positives (foods that you may show allergic to on tests but can eat without allergic reactions.)
Posted by: Sunshine_burn
« on: January 15, 2017, 04:03:09 PM »

I am allergic to the following:
House dust
D farinae
D ptero
Epidermal and grass
Cat pelt
Bermuda grass
Rye perennial grass
Red cedar
Western juniper
Careless pigweed
String Beans
Coffee mix
Egg white
Egg yolk
Posted by: GoingNuts
« on: January 15, 2017, 03:16:38 PM »

Hi Sunshine!

So glad you found us!  What are you allergic to?
Posted by: PurpleCat
« on: January 15, 2017, 09:10:30 AM »

Welcome!  Jump in!
Posted by: Sunshine_burn
« on: January 15, 2017, 02:35:32 AM »

Hello everyone! I am so glad I found this website! I am a 34 yr old female recently diagnosed with a slew of allergies.
I look forward to any advice, encouragement, and support I can offer or is offered!
Posted by: GoingNuts
« on: December 20, 2016, 08:13:42 PM »

Welcome Livinglarge! :bye:
Posted by: rebekahc
« on: December 20, 2016, 04:25:37 PM »

 :bye: livinglarge and welcome!  Feel free to jump in anywhere with help or questions.
Posted by: livinglarge
« on: December 20, 2016, 03:27:42 PM »

 Hi All,

I am happy to be here on this beautiful day.  I have quite a bit to contribute, I am sure we can learn a great deal as well.  My mother, her siblings, my brother and I, and my children all have some very odd allergies.  Corn, Wheat and Soy are all problems there are more things we are discovering that we do best to avoid as well.  Specifically we are narrowing down cottonseed oil and canola.  Thankfully we can all eat peanuts.  I do some food journal-ling complete with pictures of rashes and reactions because things can get dicey.  The highlight of our Thanksgiving meal this year was a violent reaction we think we tracked back to some Soy based cooking spray.

All this said - not griping at all, there is so much we can eat.  Right now we are just trying to figure out how to feel better every day.  Currently there is an ingredient is something that we are eating that we have not been able to pin down after three months of chronicling food etc.

Thanks for having us!  I hope we can help out and pick up some great pointers along the way!

Living Large!!
Posted by: spacecanada
« on: August 16, 2016, 03:26:36 PM »

Welcome to the forum.  There are many knowledgeable people here, links to valuable resources, etc. 

If you are in America be careful with sesame as it doesn't have to be listed on the label (nor does sunflower) and can hide in things like vegetable oil, flavours, seasonings, etc.

In Canada, however, sesame must be listed on the label as 'sesame' if it has been added as an ingredient.  Manufacturers are not allowed to hide it if it is an ingredient.  Sunflower is not a major allergen in Canada and does not have to be identified on the label like sesame here (Canada).

Traces of sesame and sunflower (or any other allergen) do not have to be declared by manufacturers in either country, so be sure to call or email manufacturers to find out if there is a possibility of cross contamination in items that may otherwise seem safe. 
Posted by: stewartjn
« on: August 16, 2016, 02:33:48 PM »

I've just been diagnosed with sunflower/sesame allergy.

Let's see, 10 years ago, I had a reaction while eating multi-grain bread.  At the time, I had just had a baby, had just been diagnosed with cervical cancer, and my mom was dealing with lung cancer.  So, instead of getting tested, I just practiced avoidance.  I didn't eat anything multigrain, and I didn't eat any bread if I didn't know exactly what it was.

Fast forward 10 years, a co-worker brought some snacks to work.  I had never tried kale chips, so I decided to give it a shot.  Within seconds my mouth and throat were itching.  I got some antihistamine, but it continued to get worse.  I decided to go to the minor med, but realized quickly that I was in no shape to drive.  Ended up going into anaphylactic (sp) shock.  Apparently, even the EMT was scared.

I had kept the bag of kale chips, and took it with me when I went to the allergist.  Kale, sesame, sunflower, and tree nuts.  The doctor did a blood test since I had such a bad reaction.  Sunflower and sesame came back positive, with the sunflower much more extreme.  The nurse told me sunflower oil would probably be safe, but the doctor told me no way, no how.

Anyway, now I'm checking labels on everything.  These "sunflower and/or canola oil" labels are killing me.  Especially when it's stuff I've been eating, with no problems.  Sesame doesn't seem to be as much of a struggle; I don't see it on labels very often.

I'd love to find a list of all the various names of these things.