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Schools and Food Allergies / Re: New College has no clue about PA
« Last post by wackattack69 on Yesterday at 10:52:12 PM »
So, wait..... some of the forms that had been sitting at the library were actually not filled out?  Is that good?  I mean, if you know the bundle of forms that were sent, if some were not actually filled in, were those good ones to not have filled in?

I'm sort of trying to grasp at some teeny tiny possible good anything .....

And, uh..... yeah, are they used to violating HIPPA?  You'd figure that she might at least have to say "hold on a minute, let me call HR to figure out who you should call to report that" or fumble around to find that number for a few minutes.

How did your DD's first day of school go though?  That was yesterday right?
The pages that were missing were the ones with her/mine/her dad's info on them. Phone number, diagnosis, medical history, etc.  We are just sick about this. She did ask as the library if she could look around and they said "sure" but assured us that it was cleaned every day and they don't leave things lying around. The pages they did give us were stapled together, but who knows where the rest are??
Her first day was absolutely GREAT and she was so happy. She always stands up and tells everyone about her allergy, rather than be "the mystery" person. They had signs on her classroom doors ("no peanuts in this room, please") and it could not have went better.
 We may hold off on calling/filing a formal complaint as DD has her yearly allergy check up on Sept 5th and as there are limited allergists in this city, I want to get that done first and THEN file the complaint. I have a feeling they won't want to see her, after we do--thoughts on that would be welcome.
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Mfrs. & Packaged Food / Peanut butter cup coffee creamer
« Last post by Mezzo on Yesterday at 06:14:52 PM »
International Delight has come out with a Reese's variety of coffee creamer.
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Schools and Food Allergies / Re: New College has no clue about PA
« Last post by gvmom on Yesterday at 10:12:15 AM »
So, wait..... some of the forms that had been sitting at the library were actually not filled out?  Is that good?  I mean, if you know the bundle of forms that were sent, if some were not actually filled in, were those good ones to not have filled in?

I'm sort of trying to grasp at some teeny tiny possible good anything .....

And, uh..... yeah, are they used to violating HIPPA?  You'd figure that she might at least have to say "hold on a minute, let me call HR to figure out who you should call to report that" or fumble around to find that number for a few minutes.

How did your DD's first day of school go though?  That was yesterday right? 
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Funny, I was thinking that morning reactions could be worse, because of there being no other food in your stomach.  I've read that reactions can be more or less severe based upon whether there were other foods to act as a "buffer", for lack of a better word.  The presence of other foods might slow absorption of the allergen.  Can't remember where I read that.  ???
I have read that somewhere too, GN!  It affects the rate allergens are absorbed into the stomach or bloodstream or something.
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Funny, I was thinking that morning reactions could be worse, because of there being no other food in your stomach.  I've read that reactions can be more or less severe based upon whether there were other foods to act as a "buffer", for lack of a better word.  The presence of other foods might slow absorption of the allergen.  Can't remember where I read that.  ???
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Schools and Food Allergies / Re: New College has no clue about PA
« Last post by GoingNuts on Yesterday at 05:52:50 AM »
GGA, I would have lost my job over that as well.    Unreal.  :disappointed:
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Schools and Food Allergies / Re: New College has no clue about PA
« Last post by wackattack69 on Yesterday at 12:45:57 AM »
So, DD and I went to the allergists office today.She gave them the forms that were NOT filled out and said "we will just wait here until the Dr signs them". The lady was very nice and of course, THE MOM in me came out, very gently.....and told her what had happened with the faxes. I told her that after being a nurse for 20 years, I was pretty sure this was a huge HIPPA violation and she said "oh yes it sure is" and handed me the phone number to report it. It was as if this happened every day!
 Anyway, I thanked her and we took a seat. The forms were filled out within 5 minutes. So now, I (actually DD) needs to call this number and report what happened. I'm just sick about it. I would have lost my job, pronto,if I would have done such a thing. My husband swore....which he never does. I'm trying to stay focused on the GOOD news and just deal with the BAD that happened. What a mess....I'm still in shock.
 Thank you all so much for being here for me. It means a whole lot.
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Natural cortisol levels (your body's homemade steroids) are higher in the mornings and those levels taper off in late afternoon/evening.  Steroids counteract allergies (to some extent), so I could see a relation between time of day and allergies based on that factor alone, for sure.  It's one of the reasons my allergist recommends allergy shots first thing in the morning and won't give them beyond 1 PM.  Most OIT protocols have similar time restrictions due to natural cortisol levels; and most food challenges are first thing in the morning as well for the same reason.

However, I'm not sure natural cortisol levels would have much of an effect over a severe systemic reaction.  If you eat peanuts in the morning vs. late at night... and you have a severe and highly sensitive peanut allergy, you're going to be in serious trouble either way.  But it may help somewhat; I am no expert.

Good luck finding the source of your reactions.  I hope your allergist is following up with you often and giving you some direction on how to narrow down your search.
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I find nearly all of my more severe reactions have started in the evenings.  The days following a major reaction for me are always worse in the evenings than they are in the mornings.  I've been unable to find any consistent patterns in foods consumed, or environmental exposures.  I suspect that this pattern might just be a mast cell disorder thing (histamine release in the evenings is a thing),  but to help me more accurately pick this apart, I figured I would ask if this is just normal all around with allergies too.

Thanks in advance.
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Main Discussion Board / Re: Living with Food Allergies, 2013 and on
« Last post by spacecanada on August 21, 2017, 01:49:37 PM »
When you see a new quick service Mexican restaurant is going to be opening soon near your house... thoughts of Chipotle-esque experience started bubbling up in my head... only to find their online menu and it has mole sauce.  :-/  I still sent an email asking about ingredients but my I won't get any hopes up.

I still dream of Chipotle coming to the island one day.  I'd even drive three or four hours up-island to go there every month or so if I could.  (Not that there are any big cities that far up-island.)
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