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Other foods/MFA/EE / Re: EE and/or Mast Cell Disorders in Adults
« Last post by StridAst on Today at 09:39:34 PM »
Good luck, I hope you get answers!  My own endoscopy that I got the EoE diagnosis from looked mostly normal (some "washboard like contractions" was all he noticed.  Biopsies came back with counts per hpf in the 20s with anything over 15 eosinophils per hpf being a positive biopsy.

My previous symptom history includes a trip to the ER for chest pain, where they determined it "must just be heartburn." And I kept explaining "I've had heartburn.  This doesn't feel anything remotely like heartburn." Definitely was a waste of time and money.  Now I recognize it was most likely EoE related, but at the time I had no idea what was going on.
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Other foods/MFA/EE / Re: EE and/or Mast Cell Disorders in Adults
« Last post by spacecanada on Today at 06:20:22 PM »
I hope you can get some answers, Ciel. 
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Other foods/MFA/EE / Re: EE and/or Mast Cell Disorders in Adults
« Last post by Ciel on Today at 05:48:59 PM »
I had a gastroscope (gastroscopy?) last week. He took biopsies but I haven't heard anything back yet. I'm not holding my breath for any answers. He said that visually everything looked good...I guess that is good. One doctor thinks the pain might be esophageal spasms, it does feel like a milder version of the two I had a few years back, so maybe. I'm not sure how food would be a trigger for spasms like that though. I have very severe reflux, which makes more sense but they don't occur at the same time which I would expect. And they are different types of pain -- reflux is not the same as the squeezing pain that leaves me doubled over. I need to make a follow up appointment for next week with my GI.
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Mary, Iím glad this resolved well. How infuriating that you had to even take them to task on it.
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Phew!

Sometimes good intentions just make things more complicated.  But I'm glad this one worked its way full circle and back to a safe situation.
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Recipes & Cooking / Re: Instant Pot!
« Last post by BensMom on Yesterday at 08:18:11 AM »
Wow!  I just checked Walmartís preview ad, and just note that it is a 5qt, not the 6qt, advertised for $49.  Itís a great deal, though.  They also make a 3qt and 8qt.

Thanks for the tip. I think I'd like to get one for ds, but don't really want to buy him anything that he has to pack up and take to CA. I wish I could buy now and have it delivered in February! I also have no idea what his living arrangements will be and what he'll need. And his company provides three meals a day ( ~) )so he won't be cooking much anyway. 
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I have no advice, but I can imagine how you feel.  Our middle school doesn't have trips like this, but our school in Illinois did.  I can't say that I'm sorry we moved before DS hit MS there.  I will be dealing with this for swim team in a 2 years or so.
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Reactions & Stories / Re: Reaction during post-SLIT food challenge
« Last post by PurpleCat on November 16, 2017, 04:56:47 PM »
hk,  :grouphug:  Your post is so very scary and sad.

First, how is your DD today?  Is she feeling OK, anxious, is she eating?  Any residual weird things.

The scary part after her first EPI reminded me of my DD's biphasic reaction during sesame anaphylaxis (not a food challenge).  It happened after EPI, ambulance, ER and ER meds.  The hives were so huge I could not believe they were hives.  And yes, crazy scratching and yes, respiratory distress.

I think your instinct about the doctor is spot on and suggest you listen to it.

At all of our food challenges, we have two nurses constantly monitoring DD and the allergist is in and out about every half hour to 45 minutes.  Available immediately if needed.  They have EPI pens and emergency equipment in the room.  Vitals are checked every 15 minutes.  They are in constant communication with me and DD, there is no chatter in the hall.
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Main Discussion Board / Re: MULTIPLE food allergies... help!
« Last post by PurpleCat on November 16, 2017, 04:48:30 PM »
From the perspective of a Mom with a kiddo with multiple allergies, I look at your list and don't see what you can not eat, I see what you can eat! 

In addition to the questions already asked, what food categories are you looking for?

Such as you can eat fish and shellfish!  And there are so many different kinds that can be cooked so many different ways.  Meat, and chicken are good.  Lots of veggies are not night shades.  Fruits, nuts, and around here there are many many gluten free options in our grocery stores.

Do you like to cook?  Or are you looking for things to buy, heat and eat?

You can not have sugar, can you use maple syrup, honey, sugar substitutes?
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Schools and Food Allergies / Re: UPDATE: New Policy for School Parties -opinions needed
« Last post by my3guys on November 16, 2017, 03:41:58 PM »
Excellent news!
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