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Main Discussion Board / Re: Need help for MFA friend
« Last post by Former Member1 on Today at 03:23:15 PM »
This person works in health care.  She is a family nurse practioner.  She says she has treated patients with allergies, although I don`t think that includes food allergies.  I understand the denial part to a point.  After six ana reactions requiring epi, it seems that would shake her out of denial.  About her allergist, he did not tell her much.  He tested for everything under the sun, but gave her very little advice.  She only carries one epipen, two for flying.  She says that he has not told her differently.  I told her they come in a two pack because people should have two on them at all times, and more than that for flying.  She flew to another continent with only two epipens.  I cannot wrap my head around that. When my daughter went to Europe she flew with six.  You cannot land a plane over the Atlantic Ocean.  I sent her the article about the woman a few weeks ago who had an ana reaction to peanut in the air and required four epis.  This was on a U.S. flight to Cleveland. It seems like having your throat close would be a big wake up call.  Her third ana reaction was after she tested positive to almonds she "forgot" and ate some.  I understand if you have a positive test and want to have a challenge and see if it is real, but how do you just forget?  I will probably delete most of this post in a few days as there is too much identifying info.  I am planning to send her a long email in a few days.  She may start researching this online (probably to prove it is okay to eat these items she is eating) and may end up on this board.  I can`t for the life of me figure out why after all these reactions she won`t give these things up.

All the links were very helpful.  Thank you.
Mfrs. & Packaged Food / Re: Good Food Made Simple - Pancake Puffs
« Last post by hezzier on Today at 08:28:26 AM »
I emailed the company to see if they had any other products made in nut free facility and this is what I got back...

We do have a number of products that are produced in peanut and tree nut free facilities: 
Egg White Patties
Pancake Puffs
Breakfast & Entrée Burritos
Breakfast Bowls

Our Oatmeals and Entree Meals are produced in a facility that handles peanuts and tree nuts. We use good manufacturing practies and our allergen program identifies each allergen and puts procedures in place to avoid cross contamination. Having said this for these items, if someone is allergic to peanuts or tree nuts I would suggest that the consumer does not eat our entrée meals or oatmeals.

Thank you again for taking the time to write us to let us know about your experience. We really appreciate all of your support and hope that the next time you try Good Food Made Simple it’s simply the best. Let me know if you need anything else.
Best regards,
Mfrs. & Packaged Food / Re: Good Food Made Simple - Pancake Puffs
« Last post by hezzier on Yesterday at 08:49:25 AM »
Kids liked them but they didn't seem very filling.  3 kids polished off the bag which is supposed to serve 6. 

I think the De Wafelbakkers frozen pancakes have more flavor, but these were fun to try.
Mfrs. & Packaged Food / Good Food Made Simple - Pancake Puffs
« Last post by hezzier on May 19, 2018, 12:23:54 PM »
Found a new item at the Grocery store...

I cannot find any info on their website, but the pancake puffs are labeled as being made in a nut free facility.  Bought some for the kids to try tomorrow for breakfast.  Will send an email about other products, but the other things I looked at did not have the same statement.
Allergy Research & News / Study: Economic Impact of Food Allergies
« Last post by spacecanada on May 18, 2018, 05:29:08 PM »
This arrived in my inbox from Food Allergy Canada this week, regarding a study about the impact of food allergies on individuals and families.  Adults with food allergies and parents of children with allergies can all participate.  I had no idea how to answer the question about how much 'specialty foods' cost our family - it's not something I ever kept rack of, but I know the costs are high.  I've copied and pasted the details of the study below (bolded is mine):

From the research team
The research team, led by Dr. Ann Clarke of the University of Calgary, is looking at the economic challenges experienced by adults and parents/caregivers of children living with a food allergy.
This study is open to all Canadians living with food allergy. Participating adults or children (ages 0-18) must have received a food allergy diagnosis from an allergist, family doctor, or pediatrician, and live in Canada. Please contact your physician if you have questions about your or your child’s allergies.
How to participate
The person most knowledgeable about the impact of food allergy in your household is invited to complete a secure, online survey that will include questions on your/your child’s:
food and related allergies, reactions, treatments, and family history of allergies
health care use (i.e. doctor visits, allergy tests, emergency department visits, medications)
time missed from work, housework, volunteer activities
This survey should take up to 20 minutes to complete. To thank you for your time, participants who complete the survey will be entered into a draw to win one of ten pre-paid $50 Visa gift cards.
Following the completion of the survey, you will be asked to complete a shorter survey about other food allergic members in your household (if applicable). A link to this second survey will be provided upon completion of the first survey.
This shorter survey should take up to 15 minutes to complete for each additional food allergic individual. We understand that this requires a greater investment of your time; however, an accurate picture of the total household costs is critical to understanding the economic impact of food allergy on Canadians and their families.
Participation in this study is entirely voluntary. You may refuse to participate, or you may discontinue your participation at any time without explanation. All information obtained during this study will be kept strictly confidential. The research data will be available only to the research team. This study has been approved by the University of Calgary Conjoint Health Research Ethics Board (Study #17-1350).
Complete the survey
Click on this link to start the survey: https://ca.surveygizmo.com/s3/50021259/CanadianFoodAllergyEconomicSurvey

The survey will be open until July 13, 2018.
If you have any questions about the study, please contact:
Chynace Lambalgen at cjvanlam@ucalgary.ca
I'm Julie of Caring Foodie.  I have a blog where you can find allergy-friendly recipes and helpful information for those who suffer from or care for those who suffer from one to all of the top 8 allergens, among other things.  I hope it can be of help to some of you here.  Here's the link:  http://caringfoodie.blogspot.com/
I decided to register so that I could post a link directly to my page.  http://caringfoodie.blogspot.com/p/alternative-names-for-soy-and-soy-free.html  Hopefully it will be of help to some. :)
Soy Allergy / Re: List of soy ingredients (other names, sources of soy)
« Last post by Julie M. on May 18, 2018, 05:04:07 PM »
That list is from my website.  It was originally on Natural and Free, but it is now on my new site, Caring Foodie.  It has been updated.  To view it, you can go to CaringFoodie (dot) blogspot (dot) com and look at the "Alternative Names for Soy and Soy-Free Foods List" page. 
Main Discussion Board / Re: Need help for MFA friend
« Last post by spacecanada on May 18, 2018, 03:03:46 PM »
Here are some additional links:

Allergic Living: Labelling in America

Allergic Living: Labelling in Canada

Newly Diagnosed: Understanding Labels

Some people are simply in denial or don't understand the severity of food allergies - even people with allergies.  I often find it easier to educate people without allergies, than those with them, oddly enough.  Good luck trying to get some messaging across in a positive manner.  I would also suggest mentioning an anaphylaxis emergency plan and creating a list of questions to ask their allergist.  That may be a good place to start - deferring questions to an allergist.  (If the allergist understands the real-world challenges of living with food allergies, that is.)
Main Discussion Board / Re: Need help for MFA friend
« Last post by SilverLining on May 18, 2018, 09:27:49 AM »
Good luck. I hope something gets through to her.
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