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Key Verbiage for School Meetings/Letters re-post Page 1
cya
Member
Posted: Mar 9th, 2008 at 09:04 pm

This is lingo I started putting in my letters which made them very effective (thanks to input here). This is key legal verbage that applies to life threatening food allergies (LTFA). Please feel free add similar lingo in this thread so it's in one place for our letter writing, and notes for meetings.


- Life Threatening Food Allergies - (OCR looks for the Life Threatening words from dr for 504 eligibility)

- Safety (environment free of life threatening allergens)

- Inclusion (least restrictive manner) vs. Exclusion

- Learning Enviornment (ie classroom vs. cafeteria)

- Least Restrictive Environment

- Free and Appropriate Education

- Access to Learning Environment/Experience

- Duty of Care

- Caring for Oneself (child with LTFA is "substantially limited" in this manner, esp if he/she is too young to read labels and understand cross contamination, needs adults to keep him/herself safe).

Please don't quote.
cya
Member
Posted: Mar 9th, 2008 at 09:04 pm

From CMDeux:

No mitigitating device/medication

Meaning that a reaction must be prevented-- that it is not enough to have a 'treatment plan' for anaphylaxis. It is important that your school understand that epinephrine is not a 'get-out-of-danger-free' medication. You'd be surprised how many people labor under that delusion.

Please don't quote.
cya
Member
Posted: Mar 9th, 2008 at 09:05 pm

from Ajasfolks2:

Refer to the in-school/classroom celebrated birthday parties as

school-sanctioned birthday parties


Refer to the in-school/classroom "other" parties (holidays, end-of-term, whatever) as

school-sponsored celebrations -OR- school-sanctioned celebrations

(as the case may be)



Sanctioned = given permission or approval for event

Sponsored = financed/otherwise supported an event


Please don't quote.
cya
Member
Posted: Mar 9th, 2008 at 09:05 pm

from Mfamom:

Communication

Advance Notice

Please don't quote.
cya
Member
Posted: Mar 9th, 2008 at 09:06 pm

from lilipeg:

use of the word:

segregation or segregated

harmful substance


Please don't quote.
cya
Member
Posted: Mar 9th, 2008 at 09:07 pm

"Access to a safe learning environment free of the child's life threatening allergens"

- Where have I heard or read this? OCR?
- I really need a source on this to use in a meeting this week. If this looks familiar, let me know.

Please don't quote.
cya
Member
Posted: Mar 9th, 2008 at 09:08 pm

No idea what happened, I tried to edit something and thread disappeared (from STICKY section), so I back-tracked, opened another window and was able to cut and paste the OP and responses.

Phew!

Please don't quote.
cya
Member
Posted: Mar 11th, 2008 at 08:36 am

BUMP...can anyone help with this question:

"Every child has the right to (Access to) a safe learning environment free of the child's life threatening allergens"

- Where have I heard or read this? OCR?
- I really need a source on this to use in a meeting this week. If this looks familiar, let me know.

« Last Edited by cya Mar 11th, 2008 at 08:40 am »

Please don't quote.
Mfamom
Moderator1
Posted: Mar 12th, 2008 at 08:49 am

Hi, the post isn't stickied anymore. It's on page 2.
Is that phrase somewhere on Rhonda's site?

Committee Member Hermes
The definition of insanity is doing the same thing over and over again and expecting different results. Einstein

cya
Member
Posted: Mar 12th, 2008 at 06:08 pm

I had to un-sticky it because when it was stickied, I tried to modify the OP and it all got lost!

Mfamom, I'll try Rhonda's site, thanks.

Moderator, maybe you can STICKY it again. Thanks!

Please don't quote.
WarmT
Member
Posted: Mar 12th, 2008 at 11:02 pm

2kids,

Not sure if it's in this ruling but thought it might help.(Mystic Valley Case)

http://www.doe.mass.edu/bsea/decisions/03-3629.pdf

DS allergic to cashew, walnut, pecan, hickory nut, macadamia nut, pistachio, almond, brazil nut, hazelnut, coconut, peanut, sesame seed, and poppy seed.
Asthma, eczema, and environmental allergies.
OAS to peach and carrot.
ajasfolks2
Moderator1
Posted: Apr 4th, 2008 at 06:42 pm

Cross-posting from this thread on our boards today:


http://allergy.hyperboards.com/index.php?action=view_topic&topic_id=3700&post_id=67288#67288


http://www.journal-topics.com/topics/08/top080327.1.html

"Based on our experiences as parents and as medical professionals, the current school environment is conducive to a fatality," said Dr. Eric Gomez M.D. and Dr. Regina Gomez M.D., in a joint written statement. Their daughter is a student in a Dist. 25 school.


[/quote]



This is the kind of strength of wording that should be considered when dealing with schools.



CONDUCIVE TO A FATALITY.



Should leave NO questions as to the seriousness of the situation.



« Last Edited by ajasfolks2 Sep 27th, 2008 at 03:24 pm »


Enable the child with LTFA: Disable the food use!


Committee Member FIREBIRD

DS - PA/TNA, latex, other legumes, mango
DD - TNA/verifying PA; drug allergies
Me - sulfites and other drugs
cya
Member
Posted: Apr 4th, 2008 at 07:07 pm

Excellent ajas! thanks!

Please don't quote.
notnutty
Moderator
Posted: Apr 5th, 2008 at 06:56 am

Just getting back to this thread....does something still need to be stickied? Just let me know what thread.

“The truth is that our finest moments are most likely to occur when we are feeling deeply uncomfortable, unhappy, or unfulfilled. For it is only in such moments, propelled by our discomfort, that we are likely to step out of our ruts and start searching for different ways or truer answers.” Scott Peck
ajasfolks2
Moderator1
Posted: May 13th, 2008 at 02:54 pm


Cross-posting this today from Momcat's post in thread about McC's 1st unsuccessful 504 meeting.



May 13th, 2008 at 01:23 pm, Momcat wrote:


When they say, "You don't need a 504 because we can accomplish the same thing with an IHP." You should ask them why they are so reluctant to provide him with a 504 plan for which he is legally eligible.




Link to thread for further reading:

http://allergy.hyperboards.com/index.php?action=view_topic&topic_id=4418&latest=1


Enable the child with LTFA: Disable the food use!


Committee Member FIREBIRD

DS - PA/TNA, latex, other legumes, mango
DD - TNA/verifying PA; drug allergies
Me - sulfites and other drugs