Hi, everyone! Yes, thanks for following up. As suspected, went to the allergist today and guess what? We *stumped* him! The only thing he can offer at this point is an exercise challenge and frankly, right now, I am just not up for it. I am spent. For years, we have been VERY diligent and careful, which has provided us with a wide comfort zone. Now, my head is spinning and I just don't know what to think.
For now, she will not do anything in PE until further notice. We will always have a set of epi pens in the gym from this day forward. And, of course, I plan to be extra vigilant (read: completely on edge) with any physical exertion, although we actually went roller skating this weekend with no problems.
I just don't get it, and neither, of course, does the allergist. He said that he knows of exercise induced ana, but has never had a child suffer from this condition. He pretty much discounted the elderberry theory, and seems to think it is more generalized (i.e. simply exercising within a certain amount of time after eating). It's hard to accept, though, as nothing like this has ever happened before and I am pretty sure at *some* point in her life she has eaten and been physically active.
I am VERY scared of a challenge, even though I know it is the only thing he can offer us at this point. As I mentioned to you all before, I have been prone to mild anxiety in the past, but my allergy-related anxiety was so bad last year that I was sick for 6 months and lost 15 pounds. I was a mess. I have only been well for 3 months and I am just not ready for this. Plus, my daughter's anxiety is at panic level, and her concentration/grades are already suffering and we are only 3 weeks into the school year. I am usually very proactive ... not one to put my head in the sand and claim ignorance is bliss, but I just don't know what to do at this point. She was at gym today (I accompanied her) and she ran a couple laps, but I urged her to not overdo it. She was very scared, and, truth be told, so was I. When I told the allergist, he said, "Well, it doesn't necessarily happen every time," which also makes a challenge pointless on some level because just because it doesn't happen in this particular recreated circumstance, does not mean it will never happen again.
BTW ... he told me that it was def. a borderline epi moment, which I guess I knew in my heart of hearts, but didn't want to hear. Now I do not trust the "clinician," who did not even check her breathing while she was reacting. So confused right now. Thanks for listening.
Topic: Question: Anyone have any insight on exercise induced anaphylaxis? (Read 5841 times)
