Histamine Intolerance - Testing?

Started by Wheezer, May 20, 2017, 10:04:57 AM

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Hi I am new to this forum. I just wondered if anyone here is histamine intolerant? I have a wide group of food allergies already detected by an IGE Rast test but I wondered how the histamine intolerance can be tested for?

Im already on a pretty restricted diet and id rather not over eliminate more food unnecessarily.


As far as I know, histamine intolerance is not a medically accepted diagnosis.  So no, it can not be tested for.  There are similar things that can be tested for.  Mast Cell Activation Syndrome (MCAS) and Mastocytosis are both accepted medical conditions that can be (though not easily) tested for.   All of the "histamine intolerance" symptoms I've ever read about would fit under mast cell stuff.  *shrug*. The mast cell conditions however are either fantastically rare as Mastocytosis is a 1 in 100,000 rare condition. Or poorly recognized as MCAS is typically only diagnosed at the more cutting edge places, as it's a recently accepted diagnosis. (Think places like the Mayo Clinic). Estimates on MCAS suggest it's possibly between 1-10% of the population.

Mast cell symptoms are essentially like allergies that are not tied to specific proteins.  The reactions can be triggered by high histamine foods, or sunlight, or heat/cold or stress (physical or emotional) etc.  Reactions can range from brain fog, all the way up to anaphylaxis.

Edit: Looks like histamine intolerance is definitely gaining traction at the more well known institutions like Mayo Clinic.  The more I've read the more confused I get, as it seems everyone has a different opinion on what is going on, and how to diagnose it.  Some describe it as a milder form of mast cell disorder, some as it's own thing.   So my earlier comment here is inaccurate.  It's still not widely accepted, but it's definitely gaining traction fast.

Reactions to: chickpeas, peanuts, onion, garlic, sunflower, safflower, peas, cherry, almonds and probably soy
Tested positive for, allergy unconfirmed:  beef, carrots, beans, milk, apples, raspberry.
Asthma, EE also

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