Food Allergy Support is now on Twitter. Follow us @FASupport. You may also follow our Tweets in our new global footer at the bottom of the page here at FAS!

FAS has upgraded our forum security. Some members may need to log in again. If you are unable to remember your login information, please email food.allergy.supt@flash.net and we will help you get back in. Thanks for your patience!

Author Topic: 504 -- Social / Emotional Condition as (McCobbre)  (Read 1953 times)

Description: a Major Life Activity

Offline ajasfolks2

  • Global Moderator
  • Member
  • ****
  • Posts: 11,940
  • Committee Member Firebird
504 -- Social / Emotional Condition as (McCobbre)
« on: September 18, 2011, 09:50:37 PM »
Quote
This is what we put in our written case for one major life activity.  Feel free to use what's relevant and to strengthen for your child.

Quote
His Social/Emotional Condition
<<DSName>> suffers emotionally and socially because of his life threatening food allergy. Having a life threatening food allergy is a constant source of stress and fear.  It impacts one�s ability to interact with peers normally, as socialization around food is so prominent in our society.  For <<DSName>> to be safe at <<school>>, a peanut free table has been established, and it is physically separated from the other tables.  Other children may sit with him, but if everyone is eating peanut butter on a given day or if no one wants to sit away from other peers and join <<DSName>> at the peanut free table, he may sit by himself (and has).
 
His everyday life is affected in class.  For example, when the class has a food-related celebration to bid a student teacher good-bye or when another child brings cupcakes to celebrate her birthday, <<DSName>> is constantly reminded how different he is from the other students.  He cannot eat that food that his peers eat if it is brought from home or from a bakery; he must eat food brought from his home, food that is guaranteed to be safe for him and not cause a life threatening reaction.

It is very easy for him to feel excluded and not a part of his peer group. He gets few invitations to birthday parties of his classmates.  His parents assume it is because other parents are not comfortable in dealing with this allergy.  His experiences are not unique. Others who suffer from life threatening food allergies experience the emotional stress and social alienation that <<DSName>> does.

In a recent article, Scott H. Sicherer, MD wrote this about food allergies and social isolation (and related it to an increase in fatalities among adolescents with food allergies):

�Indeed, surveys of food-allergic teenagers reveal that risk-taking (eating foods that may contain an allergen, not carrying medications) was common and associated with feeling socially isolated because of the food allergy. . . When asked about the "worst part" of having a food allergy, 94% cite "social isolation."  (American Academy of Pediatrics News, Vol. 28 No. 6 June 2007, p. 14)

Dr. Sicherer, in his book Understanding and Managing Your Child�s Food Allergens, states the following. 
�   �Because of peer pressure at school, your child may be tempted to eat unsafe food.� (p. 220) 

�   �Living with a food allergy can be like living in a field of land mines. Living and managing this situation can lead to fear, anxiety, sadness, depression, anger frustration, guilt, rivalry among siblings, and stress between spouses and other family members.� (p. 238)

�   �Living with food allergy is a significant challenge. The illness affects every aspect of life for the allergic child and family. Whether it is shopping, being with relatives and friends, at school or camp, or maintaining diligence at every meal, food allergies affect life.� (p. 229)

I stole the book quotes from a member. Thank you.
« Last Edit: March 12, 2013, 06:24:46 AM by ajasfolks2 »
Is this where I blame iPhone and cuss like an old fighter pilot's wife?

**(&%@@&%$^%$#^%$#$*&      LOL!!   

Offline ajasfolks2

  • Global Moderator
  • Member
  • ****
  • Posts: 11,940
  • Committee Member Firebird
Re: 504 -- Social / Emotional Condition as (McCobbre)
« Reply #1 on: September 18, 2011, 09:55:30 PM »
Guest
Quote
In support of this are these articles:

READ FIRST:

www.pubmedcentral.nih.gov:80/articlerender.fcgi?tool=pubmed&pubmedid=16901348

SUPPORTING STUDIES:
http://www.ncbi.nlm.nih.gov/pubmed/17651152?ordinalpos=1&itool=EntrezSystem2.PEn trez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

http://www.chestjournal.org:80/cgi/content/abstract/133/5/1142

http://www.ncbi.nlm.nih.gov/pubmed/14641608?ordinalpos=2&itool=EntrezSystem2.PEn trez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

http://www.ncbi.nlm.nih.gov/pubmed/16597075?ordinalpos=4&itool=EntrezSystem2.PEn trez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

http://www.ncbi.nlm.nih.gov/pubmed/17573718?ordinalpos=2&itool=EntrezSystem2.PEn trez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

http://www2.psych.purdue.edu/~kip/Announce/Docs/Outcast-Williams.doc
Draft of Presentation at the 7th Annual Sydney Symposium of Social Psychology: �The Social Outcast: Ostracism, Social Exclusion, Rejection, and Bullying�

Hayfever drops letter grade automatically
http://www.timesonline.co.uk/tol/news/uk/health/article1929321.ece

Cognitive Sequelae of Pediatric Illnesses
http://www.childrensmemorial.org/cme/online/article.asp?articleID=172





Guest
Quote
McC,
When you say for your case, does that mean due process or 504 meeting? Did the school give you an IEP?



ajasfolks2
Quote
Nonuts -- I know Mcc will get back in here to answer, but wanted to head you in the direction of the thread that gives some info, in case tonight is your main source of reading time for the week --

504 not IEP --

http://allergy.hyperboards.com/index.php?action=view_topic&topic_id=4418



Guest
Quote
Ajas, you are so nice. I haven't been able to be online for much time and I guess I missed out on a lot. Thank you so much.



ajasfolks2
Quote
You are most welcome!   :heart:



McCobbre
Quote
NoNuts4Me, I'm so grateful you posted all those links (was it in the Inclusion thread??).  I've cross posted this one in a few other places, as we found it so helpful that we printed out this web page and included it in the packet the committee received before our meeting where we made our written case (and this was just prior to the actual 504 Eligibility meeting we had this week, where we got it for DS).  :)

Assessment of quality of life in children with peanut allergy.
http://www.ncbi.nlm.nih.gov/pubmed/14641608?ordinalpos=2&itool=EntrezSystem2.PEn

In the Table ofContents for our packet we did indicate that this was an abstract--but it's quite loaded with important informaion about the social isolation our children feel.

We included quotes from an article by Scott Sicherer, and we paid $12 to be able to view that article for two days.  Well worth it IMHO. 





Unknown
Quote
Thank you, this is a great article! Here's a couple more...

The impact of food hypersensitivity reported in 9-year-old children by their parents on health-related quality of life
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1398-9995.2007.01559.x


Food hypersensitivity and quality of life.
http://www.co-allergy.com/pt/re/coallergy/abstract.00130832-200706000-00012.htm;jsessionid=LLTcxBcGJnPJSTcR8P6V6Lm2GGT1SCQfknjthvLN5YRW1yn8JtTG!435538499!181195629!8091!-1

Edited to add: yes, it was in the inclusion thread.  :)



aggiedog
Quote
McC, you and the 504 fairy rock!

That, and the eating excerpt, sound fabulous - calm, collected, fact based. Very nice.



« Last Edit: March 12, 2013, 06:30:26 AM by ajasfolks2 »
Is this where I blame iPhone and cuss like an old fighter pilot's wife?

**(&%@@&%$^%$#^%$#$*&      LOL!!   

Offline ajasfolks2

  • Global Moderator
  • Member
  • ****
  • Posts: 11,940
  • Committee Member Firebird
« Last Edit: March 12, 2013, 11:06:40 AM by ajasfolks2 »
Is this where I blame iPhone and cuss like an old fighter pilot's wife?

**(&%@@&%$^%$#^%$#$*&      LOL!!   

Offline ajasfolks2

  • Global Moderator
  • Member
  • ****
  • Posts: 11,940
  • Committee Member Firebird
Re: 504 -- Social / Emotional Condition as (McCobbre)
« Reply #3 on: March 12, 2013, 11:37:52 AM »
Recently in the news & other links:



Food Allergies, Bullying Often Linked, Study Finds
Dec 2012
http://www.huffingtonpost.com/2012/12/24/food-allergies-bullying_n_2347596.html



Bullying and Food Allergy: What Can Allergists Do?

“You must work – we must all work – to make the world worthy of its children.” -Pablo Casals

by Ralph E. (Gene) Cash, Ph.D., Nationally Certified School Psychologist,
and Past President of the National Association of School Psychologists
http://www.acaai.org/allergist/Resources/letters/Pages/BullyingandFoodAllergyWhatCanAllergistsDo.aspx


Is this where I blame iPhone and cuss like an old fighter pilot's wife?

**(&%@@&%$^%$#^%$#$*&      LOL!!   

Offline ajasfolks2

  • Global Moderator
  • Member
  • ****
  • Posts: 11,940
  • Committee Member Firebird
Is this where I blame iPhone and cuss like an old fighter pilot's wife?

**(&%@@&%$^%$#^%$#$*&      LOL!!   

Offline ajasfolks2

  • Global Moderator
  • Member
  • ****
  • Posts: 11,940
  • Committee Member Firebird
Re: 504 -- Social / Emotional Condition as (McCobbre)
« Reply #5 on: March 12, 2013, 12:36:33 PM »
Would be interesting to see media report/synopsis of this symposium:

(my bold added for emphasis)
Quote
EMOTIONS AND EDUCATION: AFFECT, ANXIETY AND ACHIEVEMENT
 
WHAT:

This second annual one day symposium will bring neuroscientists and educators together to explore how emotions influence learning, engagement, memory and achievement, as well as how stress, trauma and poverty affect emotional development in children. Experts will explore strategies for improving engagement, emotional regulation, resilience, teen behavior and academic achievement.
 
The opening keynote address by Joseph E. LeDoux, PhD will set the tone for the educational conference. He will share an exciting discussion on the emotional brain. Dr. LeDoux will be joined by other distinguished conference faculty whose research focuses on using brain science to improve student achievement and emotional regulation



Who:
The program is produced by Public Information Resources, Inc. and is co-sponsored by several organizations including the Health, Emotion and Behavior Laboratory, Yale University, The Emotional Brain Institute, New York University, the Dana Alliance for Brain Initiatives, and both the national associations of elementary and secondary school principals.  Some of the featured keynote speakers will be:
 ■Joseph E. LeDoux, PhD, New York University; Henry and Lucy Moses Professor of Science; Professor of Neural Science and Psychology, New York University; Director, Emotional Brain Institute, a collaboration between NYU and the Nathan S. Kline Institute for Psychiatric Research (NKI); Author, Synaptic Self: How Our Brains Become Who We Are (2003) and The Emotional Brain: The Mysterious Underpinnings of Emotional Life (1998)
 ■Sam Wang, PhD, Associate Professor of Neuroscience and Molecular Biology, Princeton University; W.M. Keck Foundation Distinguished Young Investigator; winner of the National Science Foundation Young Investigator Award; Co-Author, Welcome to Your Child’s Brain: How the Mind Grows from Conception to College (2011) and Welcome to Your Brain: Why You Lose Your Car Keys but Never Forget How to Drive and Other Puzzles of Everyday Life (2008)
 ■Mary Helen Immordino-Yang, EdD, Assistant Professor of Education and Psychology, Rossier School of Education; Assistant Professor, Brain and Creativity Institute, University of Southern California; Author, “Implications of affective and social neuroscience for educational theory” (2011, Educational Philosophy and Theory); Co-Author, “We feel, therefore we learn: The relevance of affective and social neuroscience to education” (2007, Mind, Brain and Education Journal)




http://www.learningandthebrain.com/blog/eminent-researchers-debate-emotions-and-education-at-learning-the-brain-symposium/


Link help, anyone?

« Last Edit: March 12, 2013, 12:38:28 PM by ajasfolks2 »
Is this where I blame iPhone and cuss like an old fighter pilot's wife?

**(&%@@&%$^%$#^%$#$*&      LOL!!