New to wheat allergy

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admin rebekahc:
Juliebove
Member
Posted: 12.03.2008 at 12:34:40

Spelt *is* wheat. Do not feed her that. Not even if it's sprouted. I've had people tell me that my daughter could eat the sprouted kind because it was living food. But it's still wheat and makes her just as sick.

If you buy gluten free foods, they will also be free of wheat. However, you will not have to be as careful as a person who must avoid gluten would be. For instance, your daughter could have corn flakes or Rice Crispies or other oat based cereals and you wouldn't have to be concerned with the barley malt in there.

My daughter likes Ener-G products.

http://www.ener-g.com/

We buy the 2 slice packets of tapioca and rice starch bread. Why do we buy them that way? Because if we buy a loaf, we'll open it and it will quickly go bad. There is no way she can eat a loaf before it does. I sometimes send in a package of bread for her lunch along with some single serve jelly/jam. Used to send in almond butter but she's allergic to almonds now.

She also likes their pretzels. We buy the Wylde because they are free of soy. She likes the pound cake, cookies and cinnamon rolls. We do get the hamburger and hot dog buns but I have to be careful and open them when I know we can use them up quickly. They don't keep well and are sooo expensive!

Enjoy Life is another brand she likes.

http://www.enjoylifefoods.com/

She likes all but the "no oats" oatmeal cookies and the "no nuts" trail mix. She isn't big into dried fruit.

This is another brand that we like:

http://www.allergyfreefoods.com/index.html

We like the gravy mix, cake and cornbread.

For lunches, you should probably get some insulated containers. It's not likely she will be able to buy her lunch because wheat is usually in there somewhere.

I often send in leftovers. Pasta is a big favorite. So is rice. I might make Spanish rice or send in some cooked white or brown rice and a cut up cooked chicken breast. She likes some that come in a pouch and are seasoned with garlic.

Now that she is no longer allergic to dairy, I sometimes get the Lunchables nachos, or she takes in cottage cheese or yogurt.

Sometimes she will take in a salad.

We get a lot of little things from minimus.

http://www.minimus.biz/

That's where I get the jelly and jam. Also hummus and little packs of meat. If I am in a hurry to get her lunch, I will grab some of those things and maybe a bag of chips, some applesauce or fruit, cookies or a bar of some sort and she's good to go.

For pasta, there is corn, quinoa, rice or a blend. Tinkyada makes a very good rice pasta. Alternate pasta can be expensive though. So if cost is an issue, you can look in the Asian food section. You can sometimes find rice pasta there. You'll also find sweet rice flour which you can use for thickening gravies and sauces and the like.

Be careful with cooking alternate pasta. I usually cook it for a minute less than what the time says and then taste it to see if it is done. You also need to add a lot more salt to the water than what you are used to. It can be rather flavorless if you don't.

When buying flour, you'll probably need a white rice, brown rice and a four flour blend. For most baked things you'll find that you can't just sub in a rice flour for wheat and make it work. You'll also need xanthan gum, but that should be in the mix if you buy a pre-mix.

If you can't find the flour you need in a store, you can get it here at their store and at other places online.

http://www.celiac.com/

Be careful with hidden sources of wheat. I'm sure you already read every label. I've seen wheat in mustard. And it is in some soy sauce. Tamari is a wheat free soy sauce and there is one brand that is wheat free. Sorry I don't know what that is because for the most part we avoid soy.

Ian's makes chicken nuggets and fish sticks that are wheat free. They're very good. They also make a kid's meal that is free of wheat.

IgG, me: Eggs, oysters. OAS: Almonds, pistachios

IgG, daughter: Wheat, spelt, peas, lentils, peanuts, almonds

admin rebekahc:
YouKnowWho
Member
Posted: 12.03.2008 at 08:14:32

Julie - We buy the Ener-G light brown rice loaf and as soon as it is opened, we stick in the fridge. (I tend to buy 4-6 loaves at a time because only one store carries it, as long as it's not opened it will be shelf stable awhile, like 6mo :misspeak: )

We seal the package with a chip clip or binder clip (usually the binder clips are easier to find LOL), stick in the fridge and it will last indefinitely. But I cannot leave it out for long periods of time. Usually pull it out, grab my slices and stick it straight back in. For the price we pay, it's insane how quickly it turns black :crazy:

USA

DS1 (age 6) - wheat, rye, barley and eggs
DS2 (age 5) - soy,legumes, mushrooms, peanuts and tree nuts
DD1 - (age 1) - NKA/Beef Jerky Junkie

DH - many food intolerances
Me - eggplant, banana, drug allergies

admin rebekahc:
Juliebove
Member
Posted: 12.03.2008 at 10:15:29

12.03.2008 at 08:14:32, YouKnowWho wrote:

--- Quote ---Julie - We buy the Ener-G light brown rice loaf and as soon as it is opened, we stick in the fridge. (I tend to buy 4-6 loaves at a time because only one store carries it, as long as it's not opened it will be shelf stable awhile, like 6mo :misspeak: )

We seal the package with a chip clip or binder clip (usually the binder clips are easier to find LOL), stick in the fridge and it will last indefinitely. But I cannot leave it out for long periods of time. Usually pull it out, grab my slices and stick it straight back in. For the price we pay, it's insane how quickly it turns black :crazy:
--- End quote ---

We've tried that, but... She might eat 2 slices then not want any more bread for 2 or 3 weeks. It just won't keep for that long. That's why it is more economical for me to buy the 2 slice packets.

IgG, me: Eggs, oysters. OAS: Almonds, pistachios

IgG, daughter: Wheat, spelt, peas, lentils, peanuts, almonds

admin rebekahc:
krasota
Member
Posted: 12.03.2008 at 11:10:52

Spelt shares several proteins with modern wheat. If she's allergic to those particular proteins, she'll react to spelt.

Barley, rye, and oats all have a significant level of cross contamination, from the field to the combine to the mill. I couldn't get rid of my hives/eczema/allergic reactions until I cut those out.

And cutting those out for *allergy* reasons is how the celiac disease was uncovered. ;) I was able to breathe and had intact skin and suddenly my IBS disappeared, along with a host of other symptoms that were slower to fade.

DS (04/07)--eggs, mango, cashew, pistachio
DH--shellfish, mushrooms
Me--Sometimes it seems like everything.

admin rebekahc:
catelyn
Member
Posted: 12.04.2008 at 08:11:43

Yes, I suspect a lot of wheat allergic people are actually celiac too. I think there is a great cross over IMHO. Baking with wheat flour always made me feel off when I'd breate the dust. I suspect I have some degree of wheat allergy on top of the celiac.

Canada

DS 15
DD 11 Tree Nuts and peaches
DS 7