http://allergy.hyperboards.com/index.php?action=view_topic&topic_id=9849&start=1Hopefully the link above from the old site works for anyone who wants more details. But a quick summary: he started the baked milk clinical trial at Mt. Sinani in NYC in 2009. He's eaten the first year baked milk in the form of a muffin, then the next year pizza, then the next year mac and cheese, then finally, he just passed regular ole milk by drinking a cup of it!! You could either be put on a six month or a year rotation, and he was on a year, and I understand he took longer than many other patients, which really doesn't matter, just giving information. Each year we would go home and he would eat the equivalent of what he passed in milk protein on a daily basis.
I'm so grateful we could participate in this study, so he can now add dairy to his diet! Since he's still allergic to eggs, peanuts, tree nuts, and soy, we still avoid many things, but if I had to pick one to shake, dairy would be it!
He's been such a trooper during all these trips...they used to put in an IV in case emergency meds were needed, which they stopped doing last year. Now they just take blood and do skin tests. He just holds out his arm, and they do what they need. Mt. Sinai has also been absolutely wonderful.
We need to go back in three months for bloodwork, and then he's supposed to go off dairy for one month, and then be re-challenged. I'm not thrilled about the last part, as he eats pizza all the time, and it will be difficult...but they explained it's for his safety. They want to make sure if he ever removed dairy from his diet, that he won't start reacting again.
Here's a happy mother/son moment: he said (and I'll never forget this) "Mom thank you so much for finding out about Mt. Sinai and taking me there every year. I'm so happy I outgrew milk".
Topic: He passed milk!!!!! (Read 6531 times)
