Docs helping patients to surf the internet

Started by LinksEtc, June 07, 2014, 04:23:45 PM

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LinksEtc

#135
Tweeted by @joyclee

"The Google Doctor Is a Reminder of How Badly the Internet Does Real Medicine"
http://www.wired.com/2014/10/google-doctor-reminder-badly-internet-real-medicine/?utm_content=buffer0f71c&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer

Quotea Google search for nearly any health issue results in a cascade of SEO-optimized link bait—symptom lists and forums presided over by the uninformed. Instead of internet medicine, we have cyber-chondria.

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Tweeted by @charlesornstein

This 'Magic Pill' Can Make Patient Care Safer
http://www.healthleadersmedia.com/print/QUA-312416/This-Magic-Pill-Can-Make-Patient-Care-Safer

QuoteCandor and transparency from providers, rather than obstruction and defensive silence, is the only way the healthcare system will improve, says a report from the Lucian Leape Institute of the National Patient Safety Foundation.
QuoteAnd today, all too often, patients and families aren't told when an avoidable error caused them harm. Nor are they given support to deal with a tragic outcome. Or offered an apology. Or options for resolution. At least not in a timely way.


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"Shining a Light: Safer Health Care Through Transparency"
http://www.npsf.org/?shiningalight

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Tweeted by @picardonhealth

"Transparency about medical errors a 'magic bullet' that could help make heath care safer: report"
http://news.nationalpost.com/2015/01/22/transparency-about-medical-errors-a-magic-bullet-that-could-help-make-heath-care-safer-report/

QuoteImproving transparency around medical error is a potential "magic bullet"
QuoteThe report warned, however, there are many barriers to increased openness, such as fear of harm to reputation, livelihood or pride; and the desire of some players in the system to maintain the status quo and "resist the sharing of information."

But deliberate withholding of information puts patients at risk and represents a "moral failure," the report said.





LinksEtc

#136
Tweeted by @SusannahFox

"Life in the End Zone
A discussion of topical issues for anyone concerned with the final phase of life by Muriel R. Gillick, MD"
http://blog.drmurielgillick.com/2013/11/getting-off-drugs.html?m=1

QuoteSo in those care planning meetings in the nursing home, if they ask nothing else, family members should ask "what drugs is mom on?" And that should be followed by "why is she on them?" and "are they helping?"

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Tweeted by @dgmacarthur

"Of Course 23andMe's Plan Has Been to Sell Your Genetic Data All Along"
http://gizmodo.com/of-course-23andmes-business-plan-has-been-to-sell-your-1677810999

Quoteenticing customers to hand over their DNA sequences along with details of their lives in a questionnaire to build a giant database—one that academic researchers and biotech companies alike are, well, salivating over

&

"Surprise! With $60 Million Genentech Deal, 23andMe Has A Business Plan"
http://www.forbes.com/sites/matthewherper/2015/01/06/surprise-with-60-million-genentech-deal-23andme-has-a-business-plan/

QuoteOne big question behind 23andMe's business model has always been whether customers will be happy or upset when they find out that they realize they have paid to be used in for-profit research projects. "I'm sure some people will feel great, no problem, and some will feel cheated," says Hank Greely, director of the Center for Law and the Biosciences at Stanford University. "






LinksEtc

#137
Tweeted by @claychristensen

"The Transparency Trap"
http://hbr.org/2014/10/the-transparency-trap/ar/1

QuoteHere's the paradox: For all that transparency does to drive out wasteful practices and promote collaboration and shared learning, too much of it can trigger distortions of fact and counterproductive inhibitions. Unrehearsed, experimental behaviors sometimes cease altogether. Wide-open workspaces and copious real-time data on how individuals spend their time can leave employees feeling exposed and vulnerable.

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Tweeted by @eliza68

QuoteMust consider unintended consequences of data transparency. Hospitals transfer complex patients to improve stats. Bernard Lo. #hdpalooza15

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Tweeted by @ElaineSchattner

"Disaster for the public as cancer treatments succeed!"
http://runningahospital.blogspot.com/2015/01/disaster-for-public-as-cancer.html

QuoteThe actual story was about how many more people are living with cancer than years ago, with record survival rates.

&


"Medicine is an art and science"
http://blog.acpinternist.org/2015/02/medicine-is-art-and-science.html

QuoteKeep in mind that medical judgments are not right or wrong. Physicians on the same case may have differing judgments and recommendations. This is a typical scenario in the medical universe which can be vexing to patients and their family.


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Tweeted by @HealthNewsRev

"Improving the public dialogue about health care"
http://myemail.constantcontact.com/Raising-the-temperature-on-COI.html?soid=1102072836906&aid=okpie_gVFMM

QuoteIt's another in a long history of TV networks placing their MD-journalists-contributors on the air in a conflict-of-interest situation.

&


A new MD-journalist asks, "Is there a role for the physician-journalist?"
http://www.healthnewsreview.org/2015/02/a-young-md-journalist-asks-is-there-a-role-for-the-physician-journalist/

QuoteLet me suggest that we put aside what might be insulting – to anyone.  Journalism's credibility – and the integrity of the information – is what's at stake. That's why journalism codes of ethics emphasize the phrase about avoiding conflicts real or perceived.






LinksEtc

#138
Tweeted by @readersdigest

"What Your Doctor's Really Thinking (But Won't Say to Your Face)
35 things your doctor would tell you if he weren't worried about time, lawsuits, or hurting your feelings."
http://www.rd.com/health/wellness/doctors-thoughts/?utm_content=buffer76e5d&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer#.

QuoteWhen patients come in with three inches of printouts, I know I'm going to have a good conversation. But they've also almost always terrified themselves beyond need.
QuoteI'd like to see more patients have more empathy for doctors.


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Tweeted by @Atul_Gawande

"Popping the Question"
http://pulsevoices.org/index.php/archive/stories/451-popping-the-question


QuoteThen I remember a visiting palliative-care physician's words about caring for the fragile elderly: "We forget to ask patients what they want from their care. What are their goals?"
QuoteAs new as our doctor-patient relationship is, I feel emboldened to tackle the big, unspoken question looming over us.
QuoteHer husband died peacefully at home, and it felt like the right thing for everyone.

"John liked you," she says.





LinksEtc

#139
Tweeted by @HeartSisters

Misdiagnosis: the perils of "unwarranted certainty"
http://myheartsisters.org/2012/01/08/unwarranted-certainty/

QuoteSpecialists in particular, are known to demonstrate unwarranted clinical certainty. They have trained for so long that they begin too easily to rely on their vast knowledge and overlook the variability in human biology.
QuoteSpecialists are susceptible to diagnosis momentum: once an authoritative senior physician has fixed a label to the problem, it usually stays firmly attached because the specialist is usually right.

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Tweeted by @Skepticscalpel

"When Patients Kill Doctors: The Horrifying Murder Of Michael Davidson"
http://tinyurl.com/nzdw7tc

QuoteWe don't know much about Stephen Pasceri, the fifty-five-year-old man who shot Davidson and killed himself in an exam room afterward.
QuoteWhat we do know is that Pasceri was frustrated with the American health care system.
Quotedoctors will live in a little more fear of their patients


:-[





LinksEtc

#140
Tweeted by @Farzad_MD

"Doctors Tell All—and It's Bad
A crop of books by disillusioned physicians reveals a corrosive doctor-patient relationship at the heart of our health-care crisis."
http://www.theatlantic.com/magazine/archive/2014/11/doctors-tell-all-and-its-bad/380785/

QuotePhysicians at times were brusque and even hostile to us (or was I imagining it?).
Quotewhy it has become so difficult for so many doctors and patients to communicate with each other
QuoteEven the most frustrated patient will come away with respect for how difficult doctors' work is.

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Tweeted by @drval

QuoteIn case you missed it. Twitter chat re wearable tech and the MD-pt relationship summarized here: storify.com/colin_hung/per... #hcldr @Colin_Hung

https://storify.com/colin_hung/personal-health-data-and-doctor-patient-relationsh







LinksEtc

#141
Tweeted by @kfatweets

"Health Literacy"
http://www.health.gov/communication/literacy/#overview

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Tweeted by @RANDCorporation

Making It More Difficult to Sue Physicians for Malpractice May Not Reduce 'Defensive Medicine'
http://www.rand.org/news/press/2014/10/15.html?utm_source=rand_social&utm_medium=hootsuite_rand&utm_campaign=hootsuite_rand_social

Quote"Physicians say they order unnecessary tests strictly out of fear of being sued, but our results suggest the story is more complicated."

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Tweeted by @HeartSisters

QuoteOuch. "To put it bluntly, med school grads are too scientific, don't know how to take care of patients" wp.me/pBQAA-1bT @mellojonny
---

"Everyday ethics"
https://abetternhs.wordpress.com/2015/01/22/everyday-ethics-2/

QuoteThe most interesting work about what it means to be a 'good doctor' is being carried out be Charlotte Rees and Louise Montroux who are studying medical students conceptions and experiences of professional behaviour. Unsurprisingly perhaps, students tend to think about professionalism in terms of individual character and action, rather than more general terms, such the GMC 'Duties of a Doctor' or the succinct 2005 Royal College of Physicians definition of professionalism






LinksEtc

#142
Tweeted by @GilmerHealthLaw

QuoteWhat articles/blogs would you add? Teaching Doctors wp.me/p1sgji-gJ #medx

"Teaching Doctors"
https://healthasahumanright.wordpress.com/2015/01/12/teaching-doctors/

QuoteI bring articles and blog posts and other materials to help them understand the patient experience and, at times, to understand my complex health history (for more often than not, they need help with even the definition of some of my illnesses)


Tweet response for @GilmerHealthLaw


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"What happens when patients know more than their doctors? Experiences of health interactions after diabetes patient education: a qualitative patient-led study"
http://bmjopen.bmj.com/content/3/11/e003583.full

Quoteinteractions within the health system following patient education could be fraught
QuotePatients who have in-depth knowledge of their condition encounter problems when their expertise is seen as inappropriate in standard healthcare interactions, and expertise taught to patients in one branch of medicine can be considered non-compliant by those who are not specialists in that field.




LinksEtc

#143
Tweeted by @MountSinaiNYC

"...Variation ... is What Plagues Healthcare"
http://blog.mountsinai.org/blog/variation-is-what-plagues-healthcare/

Quote"The surgical method obviously involves more pain and scarring for patients, along with a higher rate of infection. The likely reason patients agree to undergo surgery when they could have a polyp removed endoscopically is they simply do not know better."

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Tweeted by @Skepticscalpel

"Readmissions: Sometimes it's the patients"
http://skepticalscalpel.blogspot.com/2014/10/readmissions-sometimes-its-patients.html

QuoteSince doctors get blamed for just about everything, some would say that patients who take suppositories by mouth or eat an orange filled with insulin do so because they were not properly taught by their doctors (or nurses).

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Tweeted by @HeartSisters


"I rang the bell again. No one came."
http://myheartsisters.org/2015/02/22/er-no-one-came/


QuoteIn Emergency, staff phoned a cardiologist to describe my condition. His response was relayed to me by the Emergency physician: 'You can stay in the Emergency Department overnight but we will NOT give you a nitroglycerin infusion' (in spite of that letter from my treating physician with instructions to do so). 'We will not give you a holiday.
QuoteI really am on my own.





LinksEtc

#144
Tweeted by @amcunningham

Quotehealth communities and disclosure - fabulous #medx panel from @colleen_young @MeredithGould @SusannahFox @pamressler youtube.com/watch?v=rBdYLh...

---

"Communicating the experience of illness in the digital age"
https://m.youtube.com/watch?v=rBdYLhiucnE


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Tweeted by @foodanddruglaw

Is It OK for Doctors to "Google" Patients?
http://www.scientificamerican.com/article/is-it-ok-for-doctors-to-google-patients/

QuoteAlthough anecdotal reports highlight some benefit (for example, intervening when a patient is blogging about suicide), real potential exists for blurring professional and personal boundaries.

-----------------------------------------------



Tweeted by @EricTopol


How Hypochondriacs Say 'I Love You'
http://www.nytimes.com/2015/02/22/style/how-hypochondriacs-say-i-love-you.html?_r=0

QuoteThe evening I convinced my boyfriend that he had leprosy defined a moment in our relationship that I can best describe as glorious.
QuoteI took more photos of the small red bumps and typed "rash" into Google images for the 10th time. That's how a hypochondriac says, "I love you."


https://mobile.twitter.com/EricTopol/status/569534697744642050/photo/1






LinksEtc

#145
Tweeted by @HeartSisters

Doctors who aren't afraid of "Medical Googlers"
http://myheartsisters.org/2012/10/02/doctors-unafraid-of-medical-googlers/

QuoteSo – sorry to the other physicians who disagree – but a great many of your patients are perfectly capable of researching their illness and in short order, knowing more about it than you do.

&


"Tessa Richards on the BMJ Patient Partnership"
https://m.youtube.com/watch?feature=youtu.be&v=ykxd9cWcFyE


--------------------------



Tweeted by @ElaineSchattner

"Visualizing the patient-doctor relationship"
https://www.flickr.com/photos/33863277@N05/16267883255/in/photostream/






LinksEtc

#146
What doctors really think about women who are 'Medical Googlers'
http://myheartsisters.org/2009/08/19/med-google/

QuoteOne study found that many physicians rate the know-it-all Googler as somewhere between "frustrating" and "irritating".
Quote"Some doctors felt that these patients were 'overly assertive, undermined their authority, and did not show sufficient trust' in their health care provider."

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Tweeted by @jburns18

"Doctors' muddled statistical knowledge may harm patients"
http://necir.org/2015/01/16/doctors-muddled-statistical-knowledge-may-harm-patients/

QuoteWhen asked to calculate the probability that a positive screen result was actually correct, the majority of doctors surveyed at one Boston hospital got that number wrong.
QuoteManrai believes that as more new medical tests enter the market, doctors must become more attuned to the complicated statistics behind a test's reliability.





LinksEtc

#147
Tweeted by @amcunningham

QuoteExcellent via @francesbell - ethical decisions are rarely one-off but an ongoing process bbc.co.uk/programmes/b04... #ukmeded

---

"Inside the Ethics Committee"
http://www.bbc.co.uk/programmes/b04brpdk


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Tweeted by @ESchattner

"The Last Checklist"
http://thehealthcareblog.com/blog/2015/10/17/the-last-checklist/

QuoteChecklists should supplement, not supplant, the dignity, caring, trust, and kindness that every patient needs.
QuoteOnly by being hospitalized oneself, or spending hour and hours at the bedside of someone close to you, can you grasp that miserable combination of anxiety, frustration, boredom, discomfort, fear, and uncertainty that rolls through a hospitalization in seismic waves.





LinksEtc

#148
Tweeted by @DrVes

"Ebola, Twitter, and misinformation: a dangerous combination?"
http://www.bmj.com/content/349/bmj.g6178.long?utm_content=buffer7d7e0&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer

QuoteMost tweets and retweets contained misinformation, and misinformation had a much larger potential reach than correct information


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Tweeted by @AllenFrancesMD

"A SECOND OPINION"
http://relationalwelfare.com/2015/01/06/a-second-opinion/

QuoteIt was easy to assume that patients would trust me from the outset. Why shouldn't they? I had so many qualifications. But one of the strongest themes to emerge on Patient Opinion is that people build, or lose, their trust in you from the tiny fragments of evidence available

-------------------------------



Tweeted by @theNPSF

QuoteHow about sharing our Ask Me 3 video with patients for #healthliteracy Month? youtu.be/B3EB-icaNKQ #ptsafety

https://m.youtube.com/watch?v=B3EB-icaNKQ&feature=youtu.be






LinksEtc

#149
"6 reasons why doctors grieve differently"
http://www.kevinmd.com/blog/2015/09/6-reasons-why-doctors-grieve-differently.html

Quotewe are mostly pretty good at maintaining "professional distance." We "hmm" and "ah" and convey genuine care and connection, but then walk out the door and start fresh with the next patient.
Quoteour usual relationship with death is geared to be disengaged from any emotional buy-in
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"When Healers Get Too Friendly"
http://well.blogs.nytimes.com/2013/11/11/doctors-boundaries-with-patients/?_r=1

QuoteIn a 1981 talk to an audience of physicians, Dr. Seldin deplored "a tendency to construe all sorts of human problems as medical problems" and thus within doctors' duty and purview to fix. If it isn't "relief of pain, prevention of disability and postponement of death," Dr. Seldin said, why then, doctor, leave it alone!
QuoteIn the opposite corner stands Dr. Gordon Schiff of Harvard's Brigham and Women's Hospital, who was issued an official reprimand a few years ago for egregious boundary crossing
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Dealing with non-medical factors that impact health


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"maintaining boundaries with patients"
http://www.cpso.on.ca/CPSO/media/images/Maintaining-Boundaries.pdf

QuoteMedical care can be compromised because objectivity diminishes to the same degree that feelings – both positive and negative – develop between a patient and a doctor.
QuoteHowever, the nature of the physician-patient relationship is such that the physician must take the responsibility for maintaining boundaries.
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"The intimacy gap between doctors and patients"
http://www.kevinmd.com/blog/2015/03/the-intimacy-gap-between-doctors-and-patients.html

QuoteWhat separates doctors and patients is a disjointed and unnatural version of intimacy that in no way mirrors the important bonds that we form in real life non-medical relationships.
QuoteThey had not gained this right through hours of conversation, years of support, or acts of selflessness.
QuoteThe physician remains stone-faced, objectively detached.
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Yes, yes ... really am backing off ... but something was still bugging me ... so I googled it b/c that's what I do  :P ...

I think that I may have a bit of transference going on ... CM & our doc remind me of each other ... how interesting & intriguing ...

don't want to mess things up for dd, so I will have to nip that in the bud ...

online support & non-med relationships very different from doc-pt relationships.

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Tweeted by @helenbevan

QuoteTeaching the Rx (doctor's prescription) narrative: story as medicine. An outstanding slide deck from @JBBC slideshare.net/ennoconn/teach...
---

http://www.slideshare.net/ennoconn/teaching-the-rx-narrative-story-as-medicine-53209513?utm_source=slideshow&utm_medium=ssemail&utm_campaign=upload_digest

Slide 36

QuotePhysicians have been taught in medical school that they must keep the patient at a distance
Quotethe emotional burden of avoiding the patient may be much harder

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This boundaries topic is interesting.  Not sure what I think.  Many mixed feelings.








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