Social Media

[LinksEtc]

Tweeted by @bigthink


"When You Feel Like You Have No One to Talk To, It May Be You Do"
http://tinyurl.com/grc2daj

I think he was addressing one of our most fundamental needs: The need to share our experience with others.

I’d say this single, simple act lies at the heart of our closest relationships.

We all understand, after all, how much it can help simply to be heard.

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Tweeted by @bengoldacre


"Health Advice from Internet Discussion Forums: How Bad Is Dangerous?"
http://www.jmir.org/2016/1/e4/

Concerns over online health information–seeking behavior point to the potential harm incorrect, incomplete, or biased information may cause.

Conclusions: Most of the information assessed in this study was considered by qualified medical doctors and nonmedically qualified respondents to be of reasonably good quality. Although a small amount of information was assessed as poor, not all respondents agreed that the original questioner would have been led to act inappropriately based on the information presented. This suggests that discussion forum websites may be a useful platform through which people can ask health-related questions and receive answers of acceptable quality.

Reminder - get your medical advice from docs. 

Rhetorical ? - Do I also see value/benefits in using forums?


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Tweeted by @hildabast

"Journey of a Wikipedian"
https://medium.com/@jakeorlowitz/journey-of-a-wikipedian-c2890e3a8d0c#.dqlykswoi

They say that Wikipedia is NotTherapy. It’s a serious place to write an encyclopedia, not to iron out one’s mental kinks or cracks. But I think that’s wrong. No one knew me on Wikipedia, except for my words, the wisdom of my input, and the value of my contributions. They couldn’t care less if I was manic, phobic, delusional, or hysterical.

We need to be kind. This is a higher calling than civility, and entirely compatible with achieving our goals.

[LinksEtc]

"Bile, venom and lies: How I was trolled on the Internet"
https://www.washingtonpost.com/opinions/bile-venom-and-lies-how-i-was-trolled-on-the-internet/2016/01/14/62207a2c-baf8-11e5-829c-26ffb874a18d_story.html

I love social media. But somehow we have to help create better mechanisms in it to distinguish between fact and falsehood. No matter how passionate people are, no matter how cleverly they can blog or tweet or troll, no matter how viral things get, lies are still lies.

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The Twitter Chat that Killed Sermo | #MedDevice
http://medicalmarcom.com/medical-device-marketing/twitter-chat-that-killed-sermo-meddevice/

Wait. Did he just say what I think he said?
Sermo listens to physicians conversations to mine business and competitive intel?

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"Stanford Medicine X and Symplur announce an Everyone Included™ social media research challenge"
http://medicinex.stanford.edu/2016/05/17/symplur-research-challenge-2016/

Who benefits from social media engagement in medicine? To what extent does it help form communities of practice, help patients feel less isolated, and unite caregivers and researchers in the common goal to improve health and cure disease? How might social media be used for medical education? What risks to patient privacy and health care might social media use impose? Who, if any, are being left out of these conversations?

[LinksEtc]

"#Cancer: Researchers Are Conducting Huge Studies Using Twitter, Facebook"
http://www.fastcompany.com/3058311/cancer-researchers-are-conducting-huge-studies-using-twitter-facebook

Broad Institute/Dana-Farber Integrative Cancer Biology Program in Cambridge, Massachusetts, formed the Metastatic Breast Cancer Project to find a long tail solution: Find people on the Internet. "The traditional way is that when a patient is at [a research] institution, someone will approach them and ask them in person," says Wagle. "We're trying to complement that by doing this 21st century, go directly to patients."

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https://m.youtube.com/watch?v=rnPGdjRIyHA&feature=youtu.be


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"Caregiver Forums Are Depressing, But They're Supposed to Be Depressing"
http://www.vice.com/read/caregiver-forums-are-depressing-but-theyre-supposed-to-be-depressing

The community is small but dedicated, and it provides an empathy that the rest of the world can't muster.

"People in real life don't really want to know what's going on. They don't want to hear anything other than, 'Life is great! My loved one is so sweet and I love being able to care for them! What a blessing!' The minute you voice the truth, people get uncomfortable."

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http://hellomynameis.org.uk/home

Hello, my name is Kate Granger and I'm the founder of the #hellomynameis campaign.

I'm a doctor, but also a terminally ill cancer patient. During a hospital stay in August 2013 with post-operative sepsis, I made the stark observation that many staff looking after me did not introduce themselves before delivering my care. It felt incredibly wrong that such a basic step in communication was missing. After ranting at my husband during one evening visiting time he encouraged me to "stop whinging and do something!"

We decided to start a campaign, primarily using social media initially, to encourage and remind healthcare staff about the importance of introductions in healthcare.

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"How to Cultivate the Art of Serendipity"
http://www.nytimes.com/2016/01/03/opinion/how-to-cultivate-the-art-of-serendipity.html?smid=tw-nytopinion&smtyp=cur

“But I haven’t found the real story yet; I’m still gathering string,” my friend told me, invoking an old newsroom term to describe the first stage of reporting, when you’re looking for something that you can’t yet name. Later that night, as I walked home from the bar, I realized “gathering string” is just another way of talking about super-encountering. After all, “string” is the stuff that accumulates in a journalist’s pocket.