Food Allergy Support

Discussion Boards => Schools and Food Allergies => Topic started by: FrustratedinNJ on October 10, 2012, 07:27:22 PM

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Title: Peanut Allergy and K teacher who thinks its no big deal
Post by: FrustratedinNJ on October 10, 2012, 07:27:22 PM
Hi everyone! I am new..I found this site in my research for peanut allergies and schools.
My son is in Kindergarten and has a peanut allergy.
He has been in schools that were peanut free since he was 2.5 but this is our first public school experience with him.I apologize if I ramble, but I am so worked up that I am thrilled to find a place where people understand what we are going through.
To start, I called the school nurse in the summer to discuss my son's allergy. I had filled out all the appropriate paperwork, and explained to me that she would talk to the teacher all about the allergy, that it wasn't the first one they had, and that I would need to supply snacks for my son to eat for special days. She would make sure teacher would share that there was an allergy at Back to School night. OK, I felt a little better when I talked to her...Fast forward...Back to School Night comes, there was no mention of the allergy in regards to snack...color snack letter came home  for us to sign up for snack and again, no mention of an allergy. So, I was concerned but before school began, I had signed the paper that he was to have no food unless I sent it in, so I wasn't worried. UNTIL...my son came home excited about a snack his teacher had given him. chocolate covered something... I again emailed the teacher and explained that I had signed a paper that no snack was to be given unless I sent it,etc and her response was... I didn't know about the allergy, that the nurse never told her.  WHAT??? She lied to the principal that she didn't give him the snack but apologized to my husband for giving it to my son. The principal had the nerve to tell me that my son was never in danger. I explained to him how my son had a reaction not 3 weeks ago before school began...in detail.  After this,  the halftruths and lack of communication began. I have requested a meeting several times and told it was unnecessary. The nurse emailed me to tell me she was qualified to do her job...?
Anyway, after several emails and phone calls, I was able to get notification sent home and the classroom as peanut free. Today, my husband went to drop off this weeks color snack (it is ridiculous how much food this class consumes) .When he went in, he noticed there was nothing outside saying the class was peanut free. The "sign" was posted low and covered up by something inside the class. He mentioned it at the end of the day to the teacher and the teacher was absolutely nasty saying that she was only told that she had to post the sign and until the main office told her otherwise, she wasn't moving it. She also said that she was unclear on how she was supposed to handle my son's allergy and that she didn't understand what the big deal was...Oh, this is a A " veteran" teacher When my husband said that she was singling our son out, she nastily replied that we were the ones labelling him and drawing attention to it. Don't forget this women fed my kid chocolate..which could have had traces of peanuts. And still we remained calm. Finally today was the last straw...my husband spoke to the principal (interim) and he was wishy washy about it and said that they can't guarantee a peanut free environment and they don't know why we are making a big deal cause next year we won't get peanut free anything. ((Not if I have anything to say!!!!)) Our allergist is shocked...said that they should provide an allergen free environment with no homemade snacks.He said as long as there is a peanut free zone that is properly maintained, that should be ok but a peanut free school would be ideal. He said that has not been done anywhere in our area. I am not looking for peanut free...but allergy aware would be nice. I have educated my son on safety when it comes to food. The lack of knowledge is just unacceptable. We have requested the allergy policy 4 times and received nothing. We feel very discouraged...I am thinking that especially since this is just an interim principal (the other one is on maternity leave) that I need to pursue a 504 so that there are clearly outlined steps and procedures that must be followed and that I can hold them to a level of accountability that they just don't seem to have now. I would appreciate any advice...this has just been a rocky road.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: maeve on October 10, 2012, 08:01:04 PM
Welcome. 

New Jersey has statewide food allergy guidelines.
 
http://www.state.nj.us/education/students/safety/health/services/allergies.pdf

I would recommend taking a look at the threads here related to 504 plans.  Read them first and then request a 504 determination for your son.  Get a letter from your allergist that indicates that your child has a life-threatening allergy, has a history of anaphylaxis (if that's the case), and what is needed in terms of accommodations to ensure your child's safety (peanut-free room, etc.).  After you have done those things, request in writing a 504 determination and include your doctor's letter as evidence of your child's allergy.  Has your child been prescribed an EpiPen?  Have you provided an EpiPen to the school?  These will be important points in your favor.

The school at that point must legally evaluate whether your child qualifies under Section 504.  Your child should qualify if he has a history of anaphylaxis because it affects breathing and self-care. 

Right now, I would go to your district's head of elementary education, the head of special ed (504 usually falls under this department), and head of nursing services about the principal and school nurse.  If possible, I would try to have your child moved to a different teacher because, personally, this teacher's ignorance and hostility pose a significant threat to your child.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: FrustratedinNJ on October 10, 2012, 10:40:08 PM
Thanks for you reply!
My son does have an epi-pen and it is currently kept at school with him.
I have reviewed the attachment...:-) Thanks for including it.
He has never experienced anaphlyaxis, but he did have a minor reaction at home that affected his breathing about a month ago. We were able to control it with Benadryll per his allergist.
I am absolutely sick over this. I guess I should have pursued a 504 right away, but they told me all the right things...too bad none of them happened.

The teacher asked me if I wanted to write a note home to the parents when I was asking for classroom to be nut free. I replied, 'isn't there a standard letter that comes from the nurse?' They keep telling me that my son isn't the first peanut allergic child. First, I can not imagine that other parents would allow this to go on though! Second, the way in which the staff is behaving you would think they never had an allergy in the building. The ignorance is astounding, but the attitude that because we want to insure my child's safety, that we are wrong is just nuts. We tried to handle it appropriately by requesting a meeting a month ago, only to be told it was unnecessary.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: twinturbo on October 11, 2012, 07:17:52 AM
Breathing is a major life activity, may I inquire what your emergency action plan states when breathing is affected? Every emergency action plan I've ever seen requires epinephrine then emergency services for further treatment and observation. Before you go in for your 504 you will need a solid emergency action plan to submit. Also, where are the epinephrine injectors kept and under what circumstances? Who has access to them?
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: Mfamom on October 11, 2012, 07:35:54 AM
Welcome...it is scary and disheartening when educators are indifferent about keeping our food allergic children safe. 
I would persue a 504 plan.  It sounds like there is poor communication between the nurse and the teacher and the teacher seems frustrated/unaware of how to manage your child's allergy. 
A 504 plan can help resolve the problems you're having.  It also helps maintain safety and inclusion for your child. 
There is a lot of information here in the "school resources" area about 504 plans.  Start by sending a simple letter to the principal requesting a 504 eligibility meeting.  They must respond to you. 
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: twinturbo on October 11, 2012, 08:06:34 AM
But there's going to be a huge legal and medical hurdle until the issue of breathing characterized as a "minor" reaction between parents and allergist is cemented before eligibility. It can't be both minor and major at the same time.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: AllergyMum on October 11, 2012, 08:31:26 AM
I am in Canada so others can speak to the U4 504 process.

I just wanted to offer my support and let you know that you are not alone on this allergy journey.  I hope you can get the school on board and create a safe ansd healthy environment for your child. 
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: Scout on October 11, 2012, 09:30:19 AM
get the 504...you will it just may be....a little frustrating at first.....

now mine works amazing......4th grade now.......

**seems silly now but ask (if you want it, I hve it) written in to the 504 that you have a seat on the bus for field trips and can be room mom or present for all parties.........

good luck......this board will help you,    the ladies are AMAZING :yes:
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: FrustratedinNJ on October 12, 2012, 10:19:50 PM
Thanks for your responses. 
His epi-pen is currently in the nurses office. The teacher is a delegate should the nurse be out...believe me, THAT is not a comforting thought.
The interim principal basically told us that we will get even less next year in regards to his allergy.
The allergist said that nothing homemade should be going into the classroom. He said he is uncomfortable with the principal asking the severity of it. Dr Said it is life threatening, my son is at the highest level and the dr will not give him a challenge test for fear he will cause my son to go into anaphylactic shock.
I have decided to let it lie for now until parent teacher conferences. They refuse to meet with me...my game plan is to let her go through her spiel, and then bring up the way she has treated us since Sept. In the meantime, we have Halloween...the thought makes me sick.
I think that they are very ignorant when it comes to allergies. I don't want the school to tip toe around the issue, I just want to insure they are allergy aware. My son is very aware and I have been teaching him since he was 2 not to take unfamiliar food from people. I am a counselor in a school for special needs students, so I am a big believer in communication. The fact that they shut us out is just so unprofessional.
I hear that the principal is anti-504, she doesn't "believe" in them...she will be back from maternity leave in January... in oher schools in my district, teachers make sure they do not let homemade snacks in the class due to allergies. My kid's teacher says she can't turn away food. What the heck...it's the same district! Where is the policy? (I asked 4 times for the policy)
Thanks again for your help and opinions...I will see what happens.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: rebekahc on October 13, 2012, 10:32:36 AM
If the accommodations are necessary to keep your son safe, then why are you letting it lie?  If its okay to wait a month or however long, then are the accommodations really necessary?  I'll bet your school will make that same argument.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: lakeswimr2 on October 13, 2012, 02:30:48 PM
I'm sorry you are dealing with this situation.

Before I talk about the school I have to tell you that I"m very worried you do not have a good emergency plan.  Breathing trouble in response to eating a food = automatic epi pen and 911 call, ambulance trip and 4+ hour ER stay on ALL emergency plans out there.  If your allergist told you otherwise or did not provide you with a good written plan I'd be on the phone first thing Monday to get a new allergist who specializes in food allergies. People can die from not getting the epi pen.  It works best when given within 10-30 minutes of a reaction.  The risk of giving it to someone with a healthy heart is about zero.  The risk of not giving it is that the person could die. 

As for school, you will get good advice here.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: hezzier on October 13, 2012, 03:49:14 PM
Can you transfer to another school in your district?  Or go to superintendent about 504?  Do you know if anyone in the district has one? 
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: Stinky6 on October 14, 2012, 02:49:59 PM
Read all the 504 info - and try try try not to be emotional in your arguements - and not to escalate the tone of things....there are laws, it is clear, it is simple and you are going to make sure that the school abides by the law and keeps your son safe.

The idea that your son wont get anything next year is rediculous and not worth arguing or being upset about - say - "we are discussing this year".....

I would request a 504 meeting - in writing - right now
I would walk into that meeting with three or four thick binders or folders stuffed with information

be cool, calm and collected

but you have to do your homework first and read, read, read

my son is in 4th grade, has had peanut free room and table since K - we are advised in advance of all trips, parties, etc....its not the best plan, but it is good - it took a lot of work...but has gotten easier every year - but I came in with a cannon  (note I'm in WA state - but I grew up in Jersey and boy am I glad that I didn't have to fight this in Jersey because I think people are much more comfortable with confrontationt there....which played to my advantage here - and in life.  Jersey rocks)
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: yelloww on October 14, 2012, 05:06:47 PM
My son's first 504 was in NJ. In a super small town with one k-6 school. He was the first MFA kid and they had a huge amount of learning to do. His first 504 plan was 52 pages long when you counted all of the supporting/educational documents I had to give the school in order to clue them in on how schools deal with severe allergies.

My advice is to NOT let this slide until teacher conferences. What if he isn't fine for Halloween? What if something else ends up happening between now and then? Stay on them, and the teacher, about all of it.

Question: Why isn't the principal the delegate after the nurse? What if the nurse and the teacher are both absent on the same day? We had our delegate as the principal and not the teacher just in case that situation arose.

Stay calm. Don't be emotional. Focus on the end goal and keep working on it.

That first 504 plan took me 47 hours of work on my part which included all of the time educating teachers, principals, and the school board about allergies. I kept a log because I knew it was going to take a ton of time. I just kept teaching them, explaining things, re-explaining, offering solutions, etc.

In the end, we moved out of NJ. Not because of the allergies, but because of the academics.

Someone here probably has a copy of our first 504 plan. I'm not sure I have it online anymore, but I know that I've provided copies of the plan (including the substitute teacher plan) to other people. Sorry I can't be of more help- my son is in middle school now. It gets better. Hang in there!!
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: rainbow on October 15, 2012, 08:36:09 AM
Hi! I agree not to let it slide for now.  Do the following:

- Read 504 threads here.
- Look up the article on wrightslaw.com - search "peanut allergy" on the site, about "When a school refuses a 504 for peanut allergy"
- Read the law related to ADA Amendment (ADAA)  and how life threatening allergies are covered
- ALWAYS use the words "life threatening" allergy when discussing the allergy with teacher/nurse/principal/school staff
- Get a note from Doctor explaining a peanut free zone is required to keep your child safe. But explain what that means (ie, shared snacks must be labeled as safe for peanut allergy; signage on classroom, no home baked or store baked goods due to cross-contamination, reduce shared food events).  This is also as per the recommendation of AAFA, AAAAI etc (google the articles and print them).
- Request a 504 meeting in writing.
- Insert a paragraph in the letter detailing the unsafe practices and lies (ie, chocolate given to your child)

Do this all within the next week or two. DO NOT wait until conferences.  Then they will use it against you and say "well he's been safe so far..." etc.

Also, check your Private message.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: twinturbo on October 15, 2012, 10:26:11 AM
He has never experienced anaphlyaxis, but he did have a minor reaction at home that affected his breathing about a month ago. We were able to control it with Benadryll per his allergist.

Have you revisited this with your current allergist to revise your emergency action plan for anaphylaxis? A good first step before you even take one more step towards a 504 is truly understanding anaphylaxis. I'm not remotely convinced based on the above that there is any congruence between you and the allergist on the use of epinephrine and calling for emergency services. Breathing is major, not minor and your school will need clear, accurate directions in case of a life threatening reaction that could include respiratory symptoms.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: rainbow on October 16, 2012, 08:25:50 AM
He has never experienced anaphlyaxis, but he did have a minor reaction at home that affected his breathing about a month ago. We were able to control it with Benadryll per his allergist.

Have you revisited this with your current allergist to revise your emergency action plan for anaphylaxis? A good first step before you even take one more step towards a 504 is truly understanding anaphylaxis. I'm not remotely convinced based on the above that there is any congruence between you and the allergist on the use of epinephrine and calling for emergency services. Breathing is major, not minor and your school will need clear, accurate directions in case of a life threatening reaction that could include respiratory symptoms.


Yes, this...breathing is considered an anaphylactic reaction.  Use the words ANAPHYLAXIS and LIFE THREATENING and AFFECTS BREATHING at all times with the school.
Talk to allergist about this...it is imperative that he use the above words (all of them) in his letter to the school.  These words are essential as it means 504 applies.

The allergist does sound good and supportive.  I'd continue with him for now as it sounds like he agrees about school safety (ie, getting him to write "no baked goods in the classroom" in his letter) will really help. Just be sure he uses the right words ...trust me if he does, the school cannot deny the 504 Plan.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: rainbow on October 16, 2012, 08:30:02 AM
Adding to above.

Do NOT use the words "minor reaction" with school. A reaction affecting breathing is anaphylaxis and can go downhill quickly. 

Also, check your inbox...let me know if you got my PM from yesterday.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal updated
Post by: FrustratedinNJ on September 05, 2013, 10:34:41 PM
I found my old post by googling about nut free policies at schools... I apologize for not returning to reply... Sadly, my situation did not really improved though I am dealing with a great first grade teacher. I have a different allergist who is amazing and has encouraged me not to be bullied by the principal at my sons school. Principal  told me I was making my son different and refused to make anything in the school nut free. I am pursuing a 504 with the help of my allergist. I just wanted to say thanks for all the guidance.
It won't take me so long to post again. I realized that I was not as educated as I could be thanks to your postings. I feel very prepared now, having received such resistance from the principal who told me I am making a big deal out of nothing- nothing I guess being my sons life threatening allergy. Thanks again! I feel prepared to advocate for my son .  :)
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: Macabre on September 06, 2013, 12:07:26 AM
Yea you!  Sounds like you've got a keeper in your allergist. If you need any other help, let us know. Good luck!
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: GoingNuts on September 06, 2013, 08:39:07 AM
Oh, please do come back and keep us updated.  I'm not sure how I missed this the first time around, but wow, that was appalling.

You go on that 504. 

My son is now in college, and I never pursued a 504 because I felt that 1) his school was doing everything right and there was no need, and 2) this being 1999, I was afraid to rock the boat.  It was a very different environment then, and I was afraid to antagonize a district/principal who really was working with me. 

It was a mistake.  I should have done it.

Good luck and  :paddle: :toothbrush: :bonking: to the old K teacher and interim principal!
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: dlibby1angel on September 06, 2013, 06:52:39 PM
I know this isn't an option for every family, but if I were in your situation I would pull my child and figure out a way to home school. It doesn't help families coming up behind you that have to deal with that school, but your child would be unquestionably safe.

We chose to homeschool for many reasons, including allergies. We love it and our kids have great experiences with other kids at our homeschool co-op. It's the best of both worlds.

Good luck and my heart goes out to you.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: Macabre on September 06, 2013, 07:40:15 PM
Things improved considerably for us once we got the 504.  We got the Special Education Director of the district involved, and he set our principal straight. 
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: FrustratedinNJ on September 07, 2013, 08:07:43 AM
Thanks everyone! We appreciate the support.
Sadly the principal just doesn't understand. She told my husband she never said those things to me about me making my son different because I requested a peanut free table for him. She told my husband a peanut free classroom won't happen because she doesn't believe in them. We are setting up a meeting for early next week. She won't know what hit her. I am so thankful for my allergist and for boards like this. Thanks again.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: FrustratedinNJ on September 07, 2013, 08:09:30 AM
Sorry to add... Principal is 504 coordinator and told my husband there are limits as to what can be done. Luckily, I work with 504s through my work as a special needs counselor!
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: CMdeux on September 07, 2013, 08:48:32 AM
Well, there are limits.

  Laws of thermodynamics, quantum nature of the universe and all...


But I'm guessing that isn't what your principal meant.  ;)

Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: twinturbo on September 07, 2013, 09:09:21 AM
You could agree w/principal by finishing the sentence, "... yes, undue burden and fundamental nature."

@dlibby, some kids don't really flourish in homeschooling. While it's entirely possible I'm the worst known homeschool teacher in the universe, the fact is for one of my children that we don't have a relationship that works well on standard methods of teaching. It turns into World War III and I start doubting his abilities. So even though I can "afford" to homeschool (meaning pool together with family to not go bankrupt) in a case like ours one child would stagnate in it long term.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: Macabre on September 07, 2013, 09:13:36 AM
So you know the Mystic Valley case?

Also take with you Gloucester, the new VA Beach letter and also Memphis (links to all are here).
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: FrustratedinNJ on September 08, 2013, 03:02:20 PM
Can you please point me in the direction of summaries of the cases so that I may bring them with me tomorrow? I feel as if the principal is so uneducated and keeps telling me to trust them. Sadly, I just don't.
I am nervous about tomorrow. I know what she said to us, but I want to address that after I address the important point of my child's safety
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: CMdeux on September 08, 2013, 03:27:58 PM
Be prepared for them to argue that they can keep your child SAFE without a 504 plan.

While that may be true, your child also deserves the same educational opportunities that his classmates get-- and that is why he needs a 504 plan.  He is getting a 504 plan because he qualifies for one.  Not because he "needs" one.  Do NOT confuse those two things in your mind.

If they are going to follow the law, it's very important that you let the horse pull that cart. 

1.  He qualifies under Section 504 because X, Y, and Z. 

2.  Because he qualifies, we must write a 504 plan that includes the means through which is educational access (and yes-- safety-- but only because THAT TOO, is a barrier to his access) is guaranteed.  It must spell out who will do what and when and how.  Both prevention and response, and "avoidance" in terms of curricular shifts or accommodations.

You can do it!!  Stay strong on point one.  Get that IN WRITING before you discuss the need for particular accommodations.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: CMdeux on September 08, 2013, 03:36:13 PM
VA Beach here.

Mystic valley here

Letter to Gloucester here

Letter to Zirkel here  <-- I sincerely hope that you don't need this one, but this basically says that the law says nothing about "reasonable" in an educational setting.  It's about "necessary."


Go get 'em!!
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: Macabre on September 08, 2013, 06:40:09 PM
OCR - Virginia Beach City Schools 2012

OCR Compliance Review: Referral for 504 Eval if IHCP

OCR Ruling on 504 Ineligibility--Gloucester

Look at the link in this thread and read the whole first page thre. I summarized relevant cases up to Gloucester there. But read up to that and after a bit. Read what I quoted  of Notnutty's post.
Link to the 504 evaluation request letter/504 eval. guidance thread

Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: FrustratedinNJ on September 08, 2013, 08:54:16 PM
Thanks so much! I appreciate your help!
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: Macabre on September 08, 2013, 09:21:30 PM
Ignore Land v Baptist in that list of case precedents.  The new ADAAA supersedes that. 

And the ADAAA doesn't mention food allergies specifically if I remember correctly, but it does mention the fact that medication/remission is not a mitigating measure.

And OCR interprets FAs on their page to be covered by the ADAAA. It specifically mentions peanut allergy.  :) FTW!
http://www2.ed.gov/about/offices/list/ocr/docs/dcl-504faq-201109.html

Quote
Q13: Are the provision and implementation of a health plan developed prior to the Amendments Act sufficient to comply with the FAPE requirements as described in the Section 504 regulation?

A: Not necessarily. Continuing with a health plan may not be sufficient if the student needs or is believed to need special education or related services because of his or her disability. The critical question is whether the school district's actions meet the evaluation, placement, and procedural safeguard requirements of the FAPE provisions described in the Section 504 regulation. For example, before the Amendments Act, a student with a peanut allergy may not have been considered a person with a disability because of the student's use of mitigating measures (e.g., frequent hand washing and bringing a homemade lunch) to minimize the risk of exposure. The student's school may have created and implemented what is often called an "individual health plan" or "individualized health care plan" to address such issues as hand and desk washing procedures and epipen use without necessarily providing an evaluation, placement, or due process procedures. Now, after the Amendments Act, the effect of the epipen or other mitigating measures cannot be considered when the school district assesses whether the student has a disability. Therefore, when determining whether a student with a peanut allergy has a disability, the school district must evaluate whether the peanut allergy would be substantially limiting without considering amelioration by medication or other measures. For many children with peanut allergies, the allergy is likely to substantially limit the major life activities of breathing and respiratory function, and therefore, the child would be considered to have a disability. If, because of the peanut allergy the student has a disability and needs or is believed to need special education or related services, she has a right to an evaluation, placement, and procedural safeguards. In this situation, the individual health plan described above would be insufficient if it did not incorporate these requirements as described in the Section 504 regulation.

The nature of the regular or special education and related services provided under Section 504 must be based on the student's individual needs. As noted in Q2 above, the student would also be protected from discrimination under Title II's statutory and regulatory requirements, as well as Section 504's general nondiscrimination provisions.

Q14: Does the Amendments Act affect the situation in which a parent or guardian believes that his or her child has a disability and is not receiving special education or related services as described in the Section 504 regulation?

A: As stated in Q4 above, students who were in the past determined not to have a disability may now, in fact, be found to have a disability. If a parent or guardian of a child with an impairment believes that the child may be a student with a disability and therefore requires services that he or she is not currently receiving in school, the parent or guardian can ask the school district to evaluate or reevaluate the child pursuant to the requirements of the Section 504 regulation. The evaluation would determine whether the child has a disability, and, if so, whether the child needs special education or related services. As noted in Q9 above, school districts must evaluate a child if that child needs or is believed to need special education or related services because of a disability.

If, as described in the Section 504 regulation, a child is receiving special education or related services that the parent or guardian believes are inadequate, the parent or guardian can request changes to the educational placement. If agreement cannot be reached, the parent or guardian may invoke the procedural safeguards set forth in 34 C.F.R. § 104.3615 to address the child's needs and current educational placement.[/quote
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: FrustratedinNJ on September 09, 2013, 05:07:52 AM
Thanks! I reviewed the district policy and it was clearly not followed in my sons case. We don't have an individualized health plan and was told that the action plan created by my allergist was not used in the district, even though it says in the policy that the district requires it. I feel armed and ready. First step is determination that he qualifies. Which he absolutely does... She will try to talk me out of the504 and I wish I had fought last year but honestly, she made me feel that I was doing my kid a disservice... She played to my emotions I guess... I allowed that to happen. I thought I was so educated until I started reading this forum...then I realized how much I didn't know!
Shame on me... However, I am back and prepared.
I know she will again make the argument that 400 other kids have the right to peanut butter... Instead of focusing on what will make my child safe.
This will be an uphill battle...thanks again.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: Macabre on September 09, 2013, 06:15:00 AM
You will be great! 
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: twinturbo on September 09, 2013, 07:46:54 AM
Quote
I know she will again make the argument that 400 other kids have the right to peanut butter... Instead of focusing on what will make my child safe. This will be an uphill battle...thanks again.


Read this: Parent challenges 504 nut ban accommodation

It's a very handy logical guide for counterarguments regarding the interpretation of disability law specifically a nut ban accommodation. The opinion cites state law but it mirrors federal and OCR was involved.

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Defendants also submitted the affidavit of Nancy Campbell, the superintendent of the school district, who explained the procedures that were followed to adopt the 504 plan for student A. According to Campbell, the board of education had voted in September 2010 to seek guidance from the federal Office for Civil Rights regarding the ban and was advised that § 504 of the Rehabilitation Act required school districts to provide a free, appropriate public education to students with disabilities, including students with nut allergies. The Office for Civil Rights was not aware of any law that required a school district to accommodate a student who wished to consume nut products at school



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Plaintiff argues that the nut-ban policy deprives her of a liberty or property interest because it requires her to purchase more expensive foods she otherwise would not have to buy. The trial court did not err in rejecting this claim. The nut-ban policy does not require plaintiff to purchase any specific food item; it only prohibits plaintiff’s child from bringing to school one very narrow class of items. The ban is not an arbitrary exercise of power but, rather, is rationally related to the legitimate government purpose of providing an education for a student with a life- threatening allergy to nut products


Beware the use of equivocation on the term "reasonableness". It should be in the docs linked above mine in the Letter to Zirkel.

Additionally from OCR's site:

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Reasonable accommodation: a term used in the employment context to refer to modifications or adjustments employers make to a job application process, the work environment, the manner or circumstances under which the position held or desired is customarily performed, or that enable a covered entity's employee with a disability to enjoy equal benefits and privileges of employment; this term is sometimes used incorrectly to refer to related aids and services in the elementary and secondary school context or to refer to academic adjustments, reasonable modifications, and auxiliary aids and services in the postsecondary school context


Link --> http://www2.ed.gov/about/offices/list/ocr/504faq.html
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: Macabre on September 09, 2013, 01:42:38 PM
Hoping to see good things here at some point today!
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: CMdeux on September 09, 2013, 02:02:17 PM
Me, too!

(I was all excited to see a fresh post)

:crossed:

Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: FrustratedinNJ on September 09, 2013, 08:36:24 PM
Well, we got the ball rolling.
The principal is just so uneducated regarding allergies. It's amazing. ( Or disturbing...really)The assistant superintendent called today to tell me I basically can have whatever I want... She said that she went herself and reviewed everything with everyone and sadly it is the principal that is the one that just doesn't get it. School nurse is awesome as is the cafeteria manager...
Now, the presented a list of procedures to be followed which I felt was ok... Although we got resistance to having a peanut free sign but she finally agreed. With these obviously just typed procedures, I wanted to review it before we went to the 504.
I guess i felt like i wanted to sit and review what they gave me first... they answered my concerns...but i come home and think would a 504 protect him more than these procedures?
I dont know how they're making these accommodations for us without a 504 in place and I have many questions like- who is enforcing this? It is a tiny school and I felt that the staff was genuine and that me questioning forced the principal to become educated.
When she whipped out the 504 paperwork, I told her that I wanted to look through what she handed me first. When she said that she didn't want to hang the nut free sign bc she feels that parents will be upset and what if a nut comes in to the classroom... ( yes she said that)  I kind of looked at her like she was nuts and said the priority is to keep the kid with a life threatening allergy safe. I also encouraged her to follow the district policy and write a letter home which she said she had to run by the superintendent... Huh..she is the authority in school and she allows the teacher to send home letters about no nuts. As I am typing this, I am literally smacking myself in the head saying duh! 504.
My husband and I did a good job of pointing out flaws in what she was saying to us... She told to lead off with the conversation that she claims to not have had with me about me making my kid different. Not sure where she went to principal school but, you don't lead off a meeting with a parent like that!
I am getting long winded... Sorry!

I kind of hate the peanut free table bc I feel like he is 6 and socialization is huge. Today he sat with the other nut allergic kid who he doesn't know... They say he is just interested in eating and getting outside... It totally bothered him...heis 6; he doesn't know he to ask someone yet to sit at lunch!

Be kind... I feel stupid that I didn't just say 504. I wanted to see what they had in place...My allergist told us to see what they offer first, assistant superintendent said same. It's a small school, I know they are being accommodating but am I wrong if I do not do the 504? As I am sitting here I think that I know the answer...
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: twinturbo on September 09, 2013, 09:28:08 PM
They would be in the wrong to deny eligibility and accommodations. I'm not saying that to either be nice or mean, I mean legally. It's part of the foundation of what must be done to provide FAPE.

Take a short break. Watch a movie w/the family, exercise, garden. Then come back to it.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: Macabre on September 09, 2013, 09:31:27 PM
I had a six page document listing everything we could dream if in the way of procedures that I used when DS was in K in Dallas and in 1-3 in Houston and in 4th in Virginia. Every year folks signed off on it. Literally. It was signed by the principal.

In 3rd grade DS was sent out into the hallway because a mom brought cupcakes to celebrate the teacher's birthday. This happened more than once. And wow, she was such a sweet teacher, too. Really. And she lived DS. But she sent him into the hall while the other kids ate cupcakes. My document had covered this. It shouldn't have happened. But it did.

In 4th the Junior League came to help make bird feeders. They didn't use peanut butter for DD's class but they did for other classes and they used the same sunflower seeds. DS sat out. He didn't know if the seeds had been made on shared lines with peanuts. My document had covered a situation like this in great detail.
But those procedures weren't followed.

Later that year the class went on an overnight trip to DC. DH was not allowed to ride on the bus. I tried to get info about the trip, who would be in the room with DS's group, etc., from his teacher. But at 5:00 the day before the trip (the left at 6:00 am) I still hasn't heard from him.


The procedures that the schools had agreed to were not enforceable. There was nothing binding the school to hold to them.

With a 504, there have been missteps, but with it there have been opportunities to say that the 504 plan says X and Y happened. With the 504, my email pointing this out means something to the school.  If there were egregious violations, I would have recourse.

Your child is only 6. Really, you have no idea what the future will be like at school and what situations will arise--and what kind of changes in accommodations he will need. I don't know why you wouldn't grab the chance to get the designation--that can follow him to college. Really (and I'm not being mean) you have no idea what he will need in four years. Why not cover your bases now?  Administration can change. Nurses can change. You could move. We did--out of state--and we never dreamed we would. Really. But DS started high school with a 504--was the first one to do so--because we brought it with us.

There are plenty of people here who don't have 504s. Some have an amazing school and haven't felt the need. Some have tried and have given up.

Your child might be fine without one. But it seems to me it's like insurance--better to have theborotection coverage offers if you can get it.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: Macabre on September 09, 2013, 09:35:55 PM
Btw it's rare that an allergist is well versed in disability law. I don't know that the allergist's advice to wait is what you want to be paying attention to. If the vice superintendent advised that, too, yikes. I would suspect that she or he is trying to get out of the responsibilities of the 504.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: FrustratedinNJ on September 09, 2013, 10:57:58 PM
Point taken. Thank you.
Allergist said first see, and he would help. Assistant super said see and then go from there... So I feel like we saw but now a 504 would be appropriate...
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: CMdeux on September 10, 2013, 08:03:42 AM
I dont know how they're making these accommodations for us without a 504 in place a


Um-- by not following the Federal law on the subject?



Seriously-- they aren't SUPPOSED to grant accommodations WITHOUT a finding of eligibility under 504.

How would it be if some students-- but not others-- were to get "extra" help with reading?  Extra time on exams that determine future placement?

Just because, I mean.

Because that is essentially what they are "offering" you.  I wouldn't do it.  Because you'll be right back where you started if an administrative change occurs. 

It isn't about NEED.

It's about the fact that he is qualified.  Which-- to be clear-- they've already de facto determined anyway since they admit that accommodations ARE NEEDED...  ergo, he IS a student with a suspected disability or they wouldn't be "offering" you anything at all except maybe a walk to the front doors and a handshake.  And really, as an aside, trust me on this one-- if they WOULD offer any parent more than that just for the asking, ohhhhhhhh BOY do you need the protections of a 504 plan.  With teeth.  You'll see.  I'm concerned at just how "worried" your principal seems to be about "parents" and what they think and how happy they are.  That may be baaaad, baaaaad news down the road. 

So your answer really needs to be --

This all looks GREAT.  That's going to make writing a 504 plan very straightforward.  Now about that eligibility...

If they balk, hand them your documentation (from up-thread) and act puzzled if they get unhappy.... WOW, why wouldn't everyone want a document that offers them a basis upon which to accommodate your child.  This gives the SCHOOL a way to shrug and say "Well, look-- federal law... compliance... blah-blah-blah..." if/when other parents complain.

Also-- read Stinky's thread.  Her school tried some of this, too.  The "you don't NEED a 504 because we're going to do all of this and call it a healthcare plan."

I mean-- look at VA Beach and Gloucester again.  Truly-- you're helping them.  Helping them to be in compliance with the law.    :yes:


Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: CMdeux on September 10, 2013, 08:10:07 AM
Stinky's thread-- He doesn't need a 504...

Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: CMdeux on September 10, 2013, 08:47:51 AM
Also--

this thread is one that I seldom link to anymore... but it changed my life.  Seriously.  I've been almost a decade paying it forward at this point.  :)

Why not obtaining a 504 is a disservice to your child...

Please note that it isn't just about your CHILD here.  It's also doing a lot of favors to the SCHOOL, too.

Once you ASK for an evaluation under 504, they HAVE to hold an eligibility meeting.  Under the law.

Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: twinturbo on September 10, 2013, 08:54:00 AM
NJ, would it be fair to say the net result in negotiations with your school admin is an effort to discourage you from following the 504 process? No matter how politely or civilly it may presented.
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: joanna5 on September 10, 2013, 09:34:03 AM
At our old school, we had a similar experience.  They were quick to offer accommodations without a 504.  I just kept steering it back to eligibility.  Since he meets the criteria, he's eligible.  Full stop.  He was the first kiddo to get a 504 for food allergies in the district- and it was only three years ago. 

Then, after that, they kept trying to say "oh, we don't need to put that in the 504- it's just our regular policy."  The response to that is, "Great, then since it's policy, it won't be a problem to add it to the 504." 

Given the principal's wishy washy-ness, I'd be extra sure to get the 504.  He qualifies.  There's no down side to having one for you or him.  The only down side for the school (since they're offering you all of the accommodations anyway) is the accountability... which is a huge thing for you guys to have in place.

Good luck!
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: FrustratedinNJ on September 10, 2013, 08:25:52 PM
Truth. I appreciate everyone's feedback. Assistant super is in full support of us and expressed disgust for the way in which principal acted. I will check out those threads :-) thanks again
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: Macabre on September 11, 2013, 07:41:09 AM
Oh I'm glad you do have the support if the assistant super.



I know all of this isn't easy. Figuring out what to do at times like this can be so hard sometimes. :grouphug:
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: twinturbo on September 11, 2013, 09:42:21 AM
An excellent time to write up a thank you in the format of a letter of understanding to assistant superintendent?
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: yelloww on September 12, 2013, 06:26:14 AM
I had a similar situation to Johanna in an adjacent state to yours after having a 504 in NJ and moving. They wanted just an IHP. We have the 504, but were the first ones here who had one for MFA's.

Fast forward five years- there are a bunch of 504's in the lower grades for FA's and that's just how things are done here now.  I just happened to be the first. Now they use them as a CYA. :thumbsup:
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: bleh on September 13, 2013, 07:20:15 AM
How early can you start the 504 process? My daughter starts Kindergarten next year and I am tempted to call now and ask about it...
Title: Re: Peanut Allergy and K teacher who thinks its no big deal
Post by: Macabre on September 13, 2013, 07:35:53 AM
Stinky got one for her son before he started K.

Children with special needs often go through the Child Find process in preschool and receive services then.

My assumption is that you can do this now, but you may want to be aware if testing in the spring if standardized testing is big in your state. It occupies a lot of time and energy in some areas, and teachers and administrators can really want to focus on that without distraction. If that's the case with your school, schedule well in advance of that intense prep time.