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Discussion Boards => Schools and Food Allergies => Topic started by: Mfamom on August 15, 2012, 08:43:31 PM

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Title: NASN new position statement
Post by: Mfamom on August 15, 2012, 08:43:31 PM
http://www.nasn.org/PolicyAdvocacy/PositionPapersandReports/NASNPositionStatementsFullView/tabid/462/smid/824/ArticleID/9/Default.aspx
Title: Re: NASN new position statement
Post by: CMdeux on August 15, 2012, 10:45:36 PM
:sigh:

Quote
Completely banning nuts or other foods is not recommended as it is 1) not possible to control what other people bring onto the school grounds, and 2) does not provide the allergic student with an environment where he/she can safely learn to navigate a world containing nuts.  When a ban is instituted, parents feel their child will not be exposed to allergens.  A ban can create a false sense of security (“Banning allergies from school”, 2012).

Seriously??   ~)  Are they STILL misusing and abusing FAAN/AMF's quote made back a decade ago??

Maybe the stupid parents actually think that...

And really... GOOD GRIEF, already??  Didn't the hearing officer pretty much debunk this on in Mystic Valley??  I thought so.

I did like that they now acknowledge that federal law has something to say on the subject of management...

Quote
Federal laws including the American Disabilities Act, Individual with Disabilities Education Act, and Section 504 of the Rehabilitation Act of 1973 protect the legal rights of students with allergies along with the Food Safety Modernization Act (FSMA) which became law January 2011.  These laws protect students’ individual rights as well as direct schools to develop voluntary guidelines on food allergy management while they prohibit preempting state laws (FMSA, 2010).   


But, as usual... they get it wrong, wrong, wrong when it comes to interpretation of what federal law MEANS here.  It can, too, trump state law if an individual child's needs demand that it do so. 



NASN has consistently ticked me off over the past ten years, and this document is a shining (glaring?) example of why.  In the one instance, they make statements of OPINION (as in the first quote above) with zero evidence to support those statements, and then later on make stinkers like this gem:

Quote
Entering school or changes in the school environment are stressful events, and many parents view these events as opportunities that increase their child’s chance of exposure to allergens (Roy & Roberts, 2011).

Uhhhh... NO.  We don't "view" them that way-- they are that way.  Evidence backs that up.  Disruptions in routine and a lack of clear expectations and communication = disaster.  Period.  Several studies have said so.
Title: Re: NASN new position statement
Post by: Janelle205 on August 16, 2012, 12:06:52 AM
While I think that there are a lot of times that bans aren't necessary, the fact is that sometimes they are, and organizations should really be giving more support to the people that do need them.

It's like my asthma.  I don't think that most people with asthma have the same ridiculous sensitivity that I do.  I'm not asking for family members to not smoke or wear perfume for a 'false sense of security' though.  I'm asking them to do it so I don't die.


And for preschool aged kids and the younger grades, bans are necessary.  You can not expect a four year old to display the level of vigilance needed to keep them safe in a room full of their allergen with young children that touch EVERYTHING.  I'm an adult, and I couldn't keep myself safe in a preschool classroom where my allergen was present.
Title: Re: NASN new position statement
Post by: GoingNuts on August 16, 2012, 07:44:58 AM
While I think that there are a lot of times that bans aren't necessary, the fact is that sometimes they are, and organizations should really be giving more support to the people that do need them.

It's like my asthma.  I don't think that most people with asthma have the same ridiculous sensitivity that I do.  I'm not asking for family members to not smoke or wear perfume for a 'false sense of security' though.  I'm asking them to do it so I don't die.


And for preschool aged kids and the younger grades, bans are necessary.  You can not expect a four year old to display the level of vigilance needed to keep them safe in a room full of their allergen with young children that touch EVERYTHING.  I'm an adult, and I couldn't keep myself safe in a preschool classroom where my allergen was present.

Perfectly stated Janelle - as usual.
Title: Re: NASN new position statement
Post by: Mfamom on August 16, 2012, 08:16:40 AM
I feel like nurses are good at handling an emergency (in most cases), but they seem to be really weak on understanding how to prevent a reaction in the first place. 

As much as I worried about ds having a rx in his room in elem., I worried just as much about his emotional well being....he would be very distracted when he wasn't sure what people were eating and constantly being left out of classroom activities that turned to food fest bothered him.

Also, in early elem. especially, sometimes it is difficult to advocate for yourself.  Teacher is trying to keep kids orderly, move on with lessons etc and many times they dismiss kids in attempts to keep order.  My ds was dismissed many times (put your hand down, go back to your seat, etc).  I blew once when ds had hives all over his arms and he was dismissed/told to sit down.  Nurse said well, your ds needs to learn to speak up.  EHEM...he tried and was told to sit.  what is he supposed to do when that happens!? 

Title: Re: NASN new position statement
Post by: ajasfolks2 on August 16, 2012, 09:35:31 AM
Nothing like putting the  ~)  risk  ~)  of an attack of false sense of security on par -- or even above -- the real AND DOCUMENTED risk of anaphylaxis or death for the LTFA child.

Title: Re: NASN new position statement
Post by: Mfamom on August 16, 2012, 10:17:33 AM
I also hate the statements about "learning to live in a world full of your allergens".  Need to navagate life statements etc.
Different at school because you have to be there, options outside of school include non attendance etc.  I think this statement along with the false sense of security statements are total spineless copouts.
Title: Re: NASN new position statement
Post by: Jessica on August 16, 2012, 02:46:52 PM
does not provide the allergic student with an environment where he/she can safely learn to navigate a world containing nuts.

I always love this stupid argument (not). I liken it to letting your 5 or 6 yo child cross a busy street on their own or play at the park unsupervised or something similar. They'll have to learn to deal with strangers and busy streets someday right? ~) Not to mention that they are 1) trapped at school without any way to get away from risky situations and 2) subject to authority from adults who they are supposed to obey but it seems the majority don't really get it.
Title: Re: NASN new position statement
Post by: socks on a rooster on August 17, 2012, 01:46:29 AM
I say that not banning allergens in a classroom setting creates a "false sense of learning." My 8 yr old daughter once ran from her classroom forgetting her homework and everything else because the teacher's daughter pulled out a bag of carrots in the back of the room which she thought were Cheetos. The only thing my daughter was learning was precisely how much danger she was in at any given time. Teacher could not wrap her head around the fact that chocolate indeed contains milk, even if they are on raisins. That's with a 504 plan.  :dunce:
Title: Re: NASN new position statement
Post by: Momcat on August 17, 2012, 01:53:44 PM
Think they'd listen to us?

http://www.nasn.org/AboutNASN/ContactUs
Title: Re: NASN new position statement
Post by: ajasfolks2 on August 17, 2012, 02:18:56 PM
Think they'd listen to us?

[url]http://www.nasn.org/AboutNASN/ContactUs[/url]



We can always try.

Needs to be from UNemotional stance -- facts, studies, evidence of bans making things better/safer . . . anecdotal experiences (so far as more emotional situations) might be best separately?

This should be about the WHOLE child . . . and the WHOLE learning environment!

Title: Re: NASN new position statement
Post by: YouKnowWho on August 17, 2012, 04:42:46 PM
While I think there doesn't need to be a blanket answer to not removing allergens from the classroom, nor do I think all classrooms need to have removal of all allergens.  This truly needs to be a case by case basis. 

Okay fine, my son can have gluten and egg containing snacks in his class.  But at the same time, I am not crazy about him touching those items to graph with and frankly cooking in class using wheat is a personal nightmare.  Yes, real world.  I get that.  My DS has to wear a mask if we are going to be in our grocery store buying produce because of the location of the bakery.  Do you think he wants to do that in the classroom or is it better he just be asked to leave (which is what the preschool teacher asked us to do for the pancake making lesson).  Neither is exactly inclusive.  But my point is - there are no clear cut rules for any of us dealing with allergens in the classroom. 
Title: Re: NASN new position statement
Post by: CMdeux on August 17, 2012, 05:01:59 PM
Think they'd listen to us?

[url]http://www.nasn.org/AboutNASN/ContactUs[/url]


No.  I don't.

The reason is that there is language in this statement that is (deliberately, I should think) indicative that parents are, by definition, rather 'emotionally invested' to a degree that prevents any FA parent from objectively evaluating risk.

In other words, that parents are not "experts" in management (by definition) because they are parents.  The reason that planning needs to include them is to make them FEEL more comfortable, and to make sure that the school gains their cooperation. 

 :-/

Until NASN begins to understand that its members would be well-advised to LEARN about management quirks from the parents, because those parents are quite often experts in that particular child's medical management by the time schools see those children...


well, I don't think that anything that a group of parents says to them is going to get through this kind of hubris, honestly.  I hate to sound bitter, but there it is.

Title: Re: NASN new position statement
Post by: rainbow on August 25, 2012, 11:24:27 AM
This is really bothersome.

I do think we should write to NASN.  The parent is actually the expert on that child's food allergy management.  Parents do focus on PREVENTION, not just treatment, which is the focus of nurses.

Remove food from the classroom and most of these problems are a non-issue. 

Nurses are totally underestimating the stress on the child of being around his allergens in a classroom, a place where the child should be able to learn safely and inclusively.

I do think we need to separate the *real* risks from those that are not significant....peanuts/nuts account for most (90%+) reactions in schools.  Spillable milk also significant concern for person with anaphylactic dairy allergy....otherwise no one will listen. 

Really think we should be writing to NASN or FAAN/FAI to address this.
Title: Re: NASN new position statement
Post by: twinturbo on September 15, 2012, 11:43:33 AM
I also hate the statements about "learning to live in a world full of your allergens".  Need to navagate life statements etc.
Different at school because you have to be there, options outside of school include non attendance etc.  I think this statement along with the false sense of security statements are total spineless copouts.

It certainly has no clinical relavence. My phone is uncooperative at the moment but I was trying to search for that excerpt in the citations from "Section 504 Complance Advisor" does anyone know if that is some sort of industry journal? I'd like to source that directly.

Found info that it's a private publication newsletter from LRP Publications. Will update as I find more. Plan on rectifying it if I can maybe forward it to OCR.
Title: Re: NASN new position statement
Post by: CMdeux on September 15, 2012, 11:48:17 AM
It appeared so to me, TT.  I looked when I first ran through this one.  I could NOT find a non-subscription source, nor was it a citation used anywhere but here and in other school nursing venues.  Ergo, my interpretation of that is that it is likely to be industry-associated, yes.  That probably also means that the biases common in that industry (school nursing and school administration) are likely to be reinforced by that particular publication.

Title: Re: NASN new position statement
Post by: twinturbo on September 15, 2012, 12:22:29 PM
It is a trade mag from a private publisher LRP Publications. Which means it's time to write a letter to NASN regarding the use of this citation in their position statement. I will probably petition them to either retract or include a statement that their position in no way overwrites federal laws prohibiting discrimination based on disability. In other words a little light trolling via email.

But LRP Publications website is worth a look under the "Education" section it's Education Administration and Law, subdivisions of special education, SD attorneys, legal issues educating students with disabilities. There's their lrpinstitute site as well. Why would we all want to take a look? Because their materials are being used as if it comes from the regulating body they are interpreting privately b2b.

While drafting a letter using DOE OCR Section 504 info and reviewing Mystic Valley it occurred to me that HHS OCR has jurisdiction over medical institutions.
Title: Re: NASN new position statement
Post by: ajasfolks2 on September 15, 2012, 05:17:56 PM
TwinTurbo . . . u make me smile . . . or is it U make my Prop Rotate?

Thank you.

~ ~ ~

I'm just so bleeping  sick of the SH** that pretends to be "fabulous" policy .  .  . that I don't even want to engage anymore.


I know.  I know.

THAT is exactly what


THEY want.


~e,
need to recharge

AND NEED OTHERS TO RECOGNIZE THE sh** FOR WHAT IT IS

AND

TO ENGAGE!!!


Title: Re: NASN new position statement
Post by: ajasfolks2 on September 15, 2012, 05:21:21 PM
.
Title: Re: NASN new position statement
Post by: ajasfolks2 on September 16, 2012, 06:30:00 PM
I see that this is what Team Anaphylaxis has sent to NASN:

https://docs.google.com/viewer?a=v&pid=sites&srcid=ZGVmYXVsdGRvbWFpbnx0ZWFtYW5hcGh5bGF4aXN8Z3g6M2JkNGU4Yjc2NzJhMTBkNQ
Title: Re: NASN new position statement
Post by: ohreally on September 16, 2012, 07:54:16 PM
Above letter is excellent - where did you find it?
Title: Re: NASN new position statement
Post by: ajasfolks2 on September 16, 2012, 09:18:59 PM
It's at Team Anaphylaxis' website.  One of their members got link to me via Facebook.

Title: Re: NASN new position statement
Post by: twinturbo on September 17, 2012, 07:29:06 AM
Now might be the best window of opprtunity for other complementary letters of concern to
follow their momentum.
Title: Re: NASN new position statement
Post by: twinturbo on September 19, 2012, 08:34:46 AM
I've had a first round draft of my letter for a while but I need to make it less cease and desist and more helping them towards compliance. I'd like to use the following excerpts from Mystic Valley. Team Anaphylaxis' letter is impeccable but I'd like to head on challenge their citation, point to their bias and counter their outdated use of false sense of security.

Quote
Dr. Biegler testified that Mystic Valley feared an increase in liability by imposing a ban. (Testimony of Dr. Biegler) He explained that if said policy were in place the staff would have a false sense of security and would fail to act as diligently as they would without the ban. This argument is not persuasive first, because the Parents never argued that this ban should be implemented to the exclusion of any other accommodation which is already in place (eg., teacher checking students’ lunches and snacks daily, sanitation protocols). Those accommodations should stay in place. Second, this charter school imposes numerous other additional bans regarding food, dress code, make-up, hair style, personal appearance, body piercing, jewelry, weapons, drugs, smoking, etc. For an infraction on each of these, the student’s handbook states a consequence. (PE-24; Testimony of Ms. Kinnon, Mr. Biegler) Dr. Biegler testified that for the most part, parents and students comply with the school rules and that the most common infraction has to do with food. Dr. Biegler stated that “if you have a ban there will be violations” (Testimony of Dr. Biegler) While infractions may occur, Mystic Valley’s own experience shows that having a policy in place is a deterrent and that more often than not students and parents follow its strict policies. Also, as is the case now, if a student brings a forbidden food item it is taken away and the student is offered the alternate lunch.
The evidence shows that personal agendas may have gotten in the way of Mystic Valley’s administration’s better judgment. (See testimony of Ms. Kinnon, Ms. McKinnon, Dr. Biegler) Mystic Valley does not have the best track record in avoiding accidents that could have had a tragic outcome; incidents like the distribution of M&Ms in the bus, not checking a child’s snack containing a peanut product before the child began to eat it in the classroom are some examples. Mystic Valley has been fortunate in avoiding having to address a life-threatening situation involving Student, but a child’s life cannot depend on fortuitous events when the inconvenience of the alternative could significantly decrease the life- threatening risks to a student.

Since Mystic Valley failed to introduce substantial evidence with respect to the costs or other burden of implementing the peanut/tree nut free classroom for Student, there is no basis to conclude that the accommodation sought by Parents imposes an undue hardship on Mystic Valley. Moreover, Student did show that he requires the aforementioned accommodation and that it can be provided. I find that Student met his burden but Mystic Valley did not meet its burden to show that the accommodation would cause it undue hardship. See Garcia-Ayala v. Lederle Perenterals, Inc., No. 98-2291 (1st Cir. 5/18/00) cited in In re: Worcester, at 26, 27. 

Quote
Order:
Mystic Valley Regional Charter School shall implement the following accommodations under Student’s 504 Plan:

1. No peanut/tree nut products are allowed in Student’s classroom.

2. All other accommodations accepted by Parents shall continue to be implemented.

3. Child must have access to all classroom activities such as the celebration of the Chinese New Year, accommodated accordingly ie., no restaurant prepared food, food preparation not to include peanut oil, etc.

4. Letter to parents of classmates must describe Student as a child that has a “life-threatening allergy” not a “severe reaction” which is misleading. Provide an informational session to Parents and additional training to staff timely.
5. Provide an orientation to Student’ s classmates regarding Student’ s life-threatening peanut/tree nut allergy. So Ordered by the Hearing Officer, 
Title: Re: NASN new position statement
Post by: LinksEtc on January 20, 2014, 07:16:02 AM
:sigh:

Quote
A ban can create a false sense of security


Seriously??   ~)  Are they STILL misusing and abusing FAAN/AMF's quote made back a decade ago??


A new blog post on an old topic:

"Misquoted And Misunderstood: Peanut Bans In Schools And A False Sense Of Security"
http://blog.onespotallergy.com/2014/01/misquoted-and-misunderstood-peanut-bans-in-schools-and-a-false-sense-of-security/

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I was very interested to learn that in 1999, Ms. Munoz Furlong received a $14,000.00 grant from The Peanut Foundation, which is the research arm of the American Peanut Council.


Quote
Here are the grant particulars:

Quote
The decision makers and parents should also be educated that bans do not work.



Same story-- different year...

-------------------------------

Also, I'll put this here ...

"Are Food Allergy Bans Even Protective?"
http://foodallergybitch.blogspot.com/2012/08/are-food-allergy-bans-even-protective.html
Quote
The sad part of all of this is that, probably at least in part due to the phobia and overreaction of parents who did not need this level of protection, we now have a strong policy statement from the NASN. It's going to make it a LOT harder for the kids who really could benefit from a ban to get one.