Food Allergy Support

Discussion Boards => Main Discussion Board => Topic started by: YouKnowWho on October 03, 2012, 08:53:48 AM

Title: "May Contain Tree Nuts"
Post by: YouKnowWho on October 03, 2012, 08:53:48 AM
DS2 is not allergic to tree nuts.  We have been periodically challenging tree nuts at home that are PF with success (with allergist's blessing because he shows no reaction on SPT or RAST to them).  His issues started out as legume related only and we were avoiding all "starchy" beans but those reactions seemed to have passed.  His only positive is peanuts at this point...

As a result, I have been lax on products that are a may contain for tree nuts such as Hershey Bars and some of DS1's gluten free foods.  I still don't give him overtly tree nutty foods that are not verified PF.

The PTA president was asking why we hadn't submitted our order form for the fundraiser.  Magazines that don't fit our lifestyle, wrapping paper that is too thick, the freaking expense.  She mentioned that the chocolates were Peanut Free.  Now, my definition of PF means they are on dedicated equipment.  The fundraiser's definition means they share lines with peanuts and tree nuts.  I may be lax, but not that lax (plus I refuse to support a company based on their screwed up definitions, kwim).  So I tried to explain that to this woman about while we do eat some shared lines stuff, we don't do shared lines with peanuts.

Now this woman has somewhat of an idea (I think the other co-president has been schooling her).  She questioned why I would allow shared tree nut lines since they often contaminated with peanuts.  (Mind you this is the same woman who told everyone I was a B for not letting my kids eat snowcones and Rita's without prior knowledge). 

Am I crazy to consider shared lines or may contains for tree nuts?  I would think the risk for contamination is high, but the risk for contamination with a tree nut that has contaminated with peanuts is a stretch...
Title: Re: "May Contain Tree Nuts"
Post by: rebekahc on October 03, 2012, 09:02:57 AM
You're doing fine, IMO.  If my kid was only allergic to peanuts, I would not worry about that may degrees of separation either.  Sounds like she's a bully trying to intimidate you - don't let her.   :heart:
Title: Re: "May Contain Tree Nuts"
Post by: twinturbo on October 03, 2012, 09:13:26 AM
For MFA with cross-reactivity like we have we have to crawl botanical families. The FDA also considers some drupaceous seeds to be tree nuts. I would leave it at telling someone the answer would require a serious investment of her time beginning with understanding how anaphylaxis occurs in the body per AllergistMom's blog entry.

People like that are more dangerous with partial information. There is no half-butting it here.
Title: Re: "May Contain Tree Nuts"
Post by: SilverLining on October 03, 2012, 09:14:25 AM
I agree with Rebekah.  She sounds like a bully.

I expect she'll be trying to force you to justify your decisions.  Don't.  It's not her business.

Title: Re: "May Contain Tree Nuts"
Post by: twinturbo on October 03, 2012, 09:17:23 AM
Agreed. It's a trap. You can't pierce perceptual defense.
Title: Re: "May Contain Tree Nuts"
Post by: Janelle205 on October 03, 2012, 09:35:20 AM
Agreeing with everyone else here - she's being a bit ridiculous and seems to be trying to get into an argument with you.

Everyone here knows that life with allergies, especially with MFA is pretty much a risk benefit analysis on everything that you put in your mouth.  If I were in your situation, I'm pretty sure that I would do the same thing.  You're not having problems doing what you are doing, and while it is important to keep kids safe, it is also important for them to have treats and be restricted as little as possible.
Title: Re: "May Contain Tree Nuts"
Post by: GingerPye on October 03, 2012, 11:12:19 AM
what surprises me is that they are asking why you didn't order?!  So, do they call everyone who doesn't order?? 

More often than not I forget about those fundraisers, or else I send a check of money and don't order anything.  Half of it is candy that we cannot have and the other half is junk stuff that I don't want to spend my money on.  I'd rather the school get my money.

I agree-- that woman is trying to get a rise out of you and she just doesn't get FAs.  And she's obviously got a bee up her butt. 
Title: Re: "May Contain Tree Nuts"
Post by: Mfamom on October 03, 2012, 12:45:06 PM
tell her to MHOB
agree with everything posted, she's a bully.
totally uncool to outright ask why you didn't participate in the fundraiser. 
Title: Re: "May Contain Tree Nuts"
Post by: YouKnowWho on October 03, 2012, 01:38:15 PM
Small school and she knows who I am - we were at the PTA meeting last night for a concert.  She started with how much DS1 was admiring the prizes and asking if he sold enough to earn them.  Conversation snowballed from there.  Yes, she is a bully and a few other choice words.  I know that.

Basically my brain is not wired right currently and she had me judging what works for our family.  I just wanted to make sure I was not far off the mark, kwim?
Title: Re: "May Contain Tree Nuts"
Post by: PurpleCat on October 03, 2012, 01:50:46 PM
I'm speechless!  Really?  Looking for you to submit your order?

Now I know why I stay away from all fundraisers!
Title: Re: "May Contain Tree Nuts"
Post by: twinturbo on October 03, 2012, 02:15:58 PM
There's no way to explain how you have to trade off risks between so many allergens. After getting FA sandbagged midway seemingly casual conversations I now never assume any conversation will be innocent even with good friends or family.
Title: Re: "May Contain Tree Nuts"
Post by: Ra3chel on October 04, 2012, 01:22:13 PM
Quote from: twinturbo on October 03, 2012, 02:15:58 PM
There's no way to explain how you have to trade off risks between so many allergens. After getting FA sandbagged midway seemingly casual conversations I now never assume any conversation will be innocent even with good friends or family.

I've explained it successfully as an issue of degrees of separation relative to level of risk. I'm comfortable with two degrees of separation: for instance, I wouldn't eat a may-contain, but I'm comfortable kissing M after he has (obviously not the issue here!), or with someone else eating it in my kitchen.
Title: Re: "May Contain Tree Nuts"
Post by: twinturbo on October 04, 2012, 01:40:30 PM
For some reason there is more disconnect with reality when you explain on behalf of kids, my best guess is it becomes conflated with how one parents as in overprotective.
Title: Re: "May Contain Tree Nuts"
Post by: YouKnowWho on October 04, 2012, 03:47:44 PM
It's weird because I am always "that" parent that makes a big deal over food.  Apparently I have the most allergic kids in the school for based on what I have to fight for (which all of us know isn't necessarily true, I just have knowledge of what is right and wrong legally).

And really you have to question why I don't want certain candy in my house or why I make the decisions that I do?  Considering that I am the reason you got your butt handed to you on a silver platter?

Like I said, serious case of self doubt.  Which is odd for me allergy wise because I am generally pretty confident, right or wrong in decisions that I make for the household.
Title: Re: "May Contain Tree Nuts"
Post by: CMdeux on October 04, 2012, 04:02:06 PM
Quote from: Ra3chel on October 04, 2012, 01:22:13 PM
Quote from: twinturbo on October 03, 2012, 02:15:58 PM
There's no way to explain how you have to trade off risks between so many allergens. After getting FA sandbagged midway seemingly casual conversations I now never assume any conversation will be innocent even with good friends or family.

I've explained it successfully as an issue of degrees of separation relative to level of risk. I'm comfortable with two degrees of separation: for instance, I wouldn't eat a may-contain, but I'm comfortable kissing M after he has (obviously not the issue here!), or with someone else eating it in my kitchen.

Perfectly phrased. 

This is why I'm okay with products which share lines with may-contains... but not those which share them with known allergens (because in my mind that IS a "may contain" rather than possibly cross-contaminated with one).

Title: Re: "May Contain Tree Nuts"
Post by: twinturbo on October 04, 2012, 04:19:53 PM
Not disagreeing with the answers above but what I meant was entirely something different where the situation calls for making a hard decision between opposing allergen interests. Ideally I could avoid shared lines with all the kids known allergens but I have to pick products on a very case by case basis. There's just too many allegens for me to write off even shared lines for every product I buy. As is the case for which allergens we buy, serve, eat and how we eat it at home.
Title: Re: "May Contain Tree Nuts"
Post by: hopechap on October 04, 2012, 04:20:36 PM
This post is helping me. I have two moms at school who seemingly try to understand the "may contain" issue -- but are really trying to trap me with it. really. And one of them is, in fact a bully. And she was very unhappy that she did not trap me and I had good answers for her. 

"may contain" is not a science, really. If your child eats a may contain, chances are good they will survive. It is that one time in 100 or 200 or a million that a significant amount of residue may cause a reaction. You can tell her that you appreciate her attention on the matter - but what you do is take calculated risks and a trace of a trace is one you ARE willing to take. Heck - a perfectly uncontaminated product -- who knows the factory worker may have had PB&J that day and not washed their hands before returning to work. No one can really guarantee a peanut free product --gotta eat. But you can pick odds in your favor.

It is a trap and she may be a bully -- but there is a chance that she may have helped pick this product and thought you'd be pleased it is peanut and treenut free. Someone behind the choices MAY have been thoughtful. I;d say how wonderful it is that they chose a nut free candy. how it goes a long way to ensuring safety if children eat the candy in school. It is just great -- but you will have to decline it for a food your child can use directly. You see, someone may also be looking for acknowledgement. Give it.
Title: Re: "May Contain Tree Nuts"
Post by: CMdeux on October 04, 2012, 04:56:13 PM
Quote from: twinturbo on October 04, 2012, 04:19:53 PM
Not disagreeing with the answers above but what I meant was entirely something different where the situation calls for making a hard decision between opposing allergen interests. Ideally I could avoid shared lines with all the kids known allergens but I have to pick products on a very case by case basis. There's just too many allegens for me to write off even shared lines for every product I buy. As is the case for which allergens we buy, serve, eat and how we eat it at home.

yes, separate issue, but yes-- also one that is nearly impossible for anyone with a single allergy concern to fully understand.

Some risks one has to live with the 'least worst' options and that's that.  It's not a comfortable way to live, but you have to do what you have to do, ultimately.

So-- for example, here, we knew that RiceDream was on shared lines with treenuts.  KNEW it.  But-- when you have a kid who is anaphylactic to peanut, egg, and milk... and allergic to soy and wheat...  well, what can you do?  They have to get calcium and vitamin D somehow.  KWIM?

Same thing with pastas.  We were often left choosing the lowest risk rather than having an option for which risk was actually where we wanted it to be. 
Title: Re: "May Contain Tree Nuts"
Post by: maeve on October 04, 2012, 05:08:32 PM
Quote from: Ra3chel on October 04, 2012, 01:22:13 PM
Quote from: twinturbo on October 03, 2012, 02:15:58 PM
There's no way to explain how you have to trade off risks between so many allergens. After getting FA sandbagged midway seemingly casual conversations I now never assume any conversation will be innocent even with good friends or family.

I've explained it successfully as an issue of degrees of separation relative to level of risk. I'm comfortable with two degrees of separation: for instance, I wouldn't eat a may-contain, but I'm comfortable kissing M after he has (obviously not the issue here!), or with someone else eating it in my kitchen.

This is my approach (though DD is too young to be kissing).  I have no problem with people in her class eating may contains in the classroom but I would never let her eat the item.  Her only anaphylactic reaction was to a may contain (as far as we can tell).  In fact, in the past few years, I've loosened my comfort zone and buy may contains for DH and I to eat (and for which DD gives me grief).

On a tangent, I did have to have a discussion with DD about kissing when she was in kindergarten because a boy in her day care class had kissed another girl in the class.  The likelihood that a kid that age had had peanut is very high. 
Title: Re: "May Contain Tree Nuts"
Post by: YouKnowWho on October 05, 2012, 09:06:12 AM
Quote from: twinturbo on October 04, 2012, 04:19:53 PM
Not disagreeing with the answers above but what I meant was entirely something different where the situation calls for making a hard decision between opposing allergen interests. Ideally I could avoid shared lines with all the kids known allergens but I have to pick products on a very case by case basis. There's just too many allegens for me to write off even shared lines for every product I buy. As is the case for which allergens we buy, serve, eat and how we eat it at home.

While I can make most meals safe for all people between all we have a long list of allergens and intolerences.  I cannot do shared lines with wheat, barley or oats for DS1 (oats are usually wheat contaminated and oddly enough, a common issue) unless it comes from just a few companies who clean and test appropriately.  I am looser on eggs in regards to shared as long as they are cooked egg as opposed to raw (ie salad dressings are an issue whereas Kinninnick baked products are not). 

I am lax with DS2 in regards to shared or may contains for tree nuts.  He does not react to tree nuts, only peanuts.  And I feel the risk is small enough for the minute tree nut to be contaminated with peanuts.  I am not lax (to the best of my knowledge) in regards to shared peanut lines.  Shared facilities I am okay with.  Though it has been pointed out that I have missed products with shared lines either due to old information or misinformation. 

We do have both kids allergens in the house and products are well labeled for each child and adult LOL  But yes, I understand your reasoning on having to go down the line and figure out the lesser of the evils.  It's like voting :)
Title: Re: "May Contain Tree Nuts"
Post by: twinturbo on October 05, 2012, 12:02:49 PM
Lol@voting. So true.
Title: Re: "May Contain Tree Nuts"
Post by: AllergyMum on October 11, 2012, 11:26:21 AM
Quote from: YouKnowWho on October 05, 2012, 09:06:12 AM
Quote from: twinturbo on October 04, 2012, 04:19:53 PM
Not disagreeing with the answers above but what I meant was entirely something different where the situation calls for making a hard decision between opposing allergen interests. Ideally I could avoid shared lines with all the kids known allergens but I have to pick products on a very case by case basis. There's just too many allegens for me to write off even shared lines for every product I buy. As is the case for which allergens we buy, serve, eat and how we eat it at home.

While I can make most meals safe for all people between all we have a long list of allergens and intolerences.  I cannot do shared lines with wheat, barley or oats for DS1 (oats are usually wheat contaminated and oddly enough, a common issue) unless it comes from just a few companies who clean and test appropriately.  I am looser on eggs in regards to shared as long as they are cooked egg as opposed to raw (ie salad dressings are an issue whereas Kinninnick baked products are not). 

I am lax with DS2 in regards to shared or may contains for tree nuts.  He does not react to tree nuts, only peanuts.  And I feel the risk is small enough for the minute tree nut to be contaminated with peanuts.  I am not lax (to the best of my knowledge) in regards to shared peanut lines.  Shared facilities I am okay with.  Though it has been pointed out that I have missed products with shared lines either due to old information or misinformation. 

We do have both kids allergens in the house and products are well labeled for each child and adult LOL  But yes, I understand your reasoning on having to go down the line and figure out the lesser of the evils.  It's like voting :)

The women is a total A$$  big hugs you have to deal with the crazy lady.

I completely get your oats problem. When my son was allergic to oats we had to avoid all wheats\glutens as well due to his reactions from the cross issues with oats. I was so tired that I had to explain why we avoided all wheats\glutens when he was only allergic to oats.

Bottom line people need to keep their noses to themselves. 
Title: Re: "May Contain Tree Nuts"
Post by: rainbow on October 19, 2012, 08:32:15 AM
She doesn't need to know any of this and I wouldn't have the conversation.

And, she should not pressure anyone for participation in OPTIONAL fundraisers in a PUBLIC school.  She lacks etiquette and should go to Miss Manners training.
Title: Re: "May Contain Tree Nuts"
Post by: YouKnowWho on October 19, 2012, 09:10:43 AM
She lacks a lot of things and should not be PTA president at all :)