Specific Food Allergies => Milk Allergy => Topic started by: Ree on January 28, 2012, 11:05:24 AM
FAS has upgraded our forum security. Some members may need to log in again. If you are unable to remember your login information, please email food.allergy.supt@flash.net and we will help you get back in. Thanks for your patience!
Title: Baked Milk - Goldfish OK, now what?
Post by: Ree on January 28, 2012, 11:05:24 AM
My DS passed his baked milk challenge last year and we've been gradually increasing his daily intake. He started off last May with eating 2-3 goldfish a day, but he'd get itchy ears every once in awhile. Now he can eat about 1/2 cup of cheddar goldfish, no problem. I'd like to try to transition him to something equivalent so we can move into cheeses, but I'm so nervous. I'm concerned that he'll have a reaction and he'll regress emotionally.
The allergist said the next food challenge would be straight milk, but we need to move him onto true baked cheese products before we can schedule. She suggested sprinkling in cheese to every day baked meals. But that seems like such a big jump to me.
Any suggestions on what to try next?
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: Carefulmom on January 29, 2012, 08:42:07 PM
If you are feeling really brave and if the allergist is okay with it, I`d try a small amount of pizza, slightly overbaked. I read about that on this board when another child on baked milk was able to try pizza. I really didn`t think dd would tolerate it, but she did! We buy the one serving frozen ones that you bake in the oven. I bake it about two minutes longer than it says. I would try a small amount of that, but ask your allergist first.
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: my3guys on January 30, 2012, 10:44:30 AM
According to Mt. Sinai, the first "baked milk" phase is a muffin with milk baked into it, and phase 2 would be pizza. I think my Mt. Sinai thread is at the other site, I'll have to go look when I can. Yay for the goldfish!
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: Ree on January 31, 2012, 07:37:32 AM
Thanks for your replies! Pizza, huh? Well that's a little scary.. :-/ His baked milk challenge was muffin and when he got home he wanted to try a goldfish. I was feeling gutsy so I gave him one. We just went with it from there!
I didn't realize that Mt. Sinai had phases. I'll search for it - thanks!! ;D
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: my3guys on January 31, 2012, 10:34:41 AM
Well Ree, if he passed the muffin challenge...then yes, Mt. Sinai would move to pizza next as Stage 2. You might want to think about that pizza!! :happydance: Then stage 3 would be macaroni and cheese and things like it, while stage 4 would be uncooked milk.
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: Ree on January 31, 2012, 01:01:44 PM
my3guys - I'm reading through your thread from the old board and have a question... You said they told you to "only foods with milk baked in (not sprayed on)." And,
"Yep, We can only do baked cheese. Either milk cooked into a baked good or cheese cooked for a set amount of time at set temp. No straight cheese or crackers/chips where cheese is "sprayed" on. So no Doritos or Cheetos or things like that. It's all about cooking the cheese to change the protein. The messy milk things are not baked in, but sprayed on towards the end of the process. Weird that they think a piece of pizza is safer than Pepperidge Farm Cheddar Goldfish."
Really?? That just seems so hard to believe... but obviously I believe you! ;) Did your DS not tolerate the goldfish but did tolerate pizza?
How is he doing now with milk products? Have you gone back since your last update (passed pizza, but failed straight milk)? Hope everything's going well!!
BTW - I teared up when you said he ate a slice of pizza... can't even imagine! :happydance:
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: Carefulmom on January 31, 2012, 01:31:25 PM
My3guys, are you sure that Cheddar Goldfish has cheese sprayed on as opposed to baked in? Dd can eat Cheddar Goldfish. I am not sure if I ever called them to see if the cheese is baked or not. Dd is fine with pizza, and a little bit of mac and cheese, but I overbake it. She cannot tolerate any unbaked milk at all. She has had a taste of cake batter that had sour cream in it, and she had symptoms. A cracker with cream cheese gives her symptoms. A heavily milk cross contaminated item like sorbet gives her symptoms. That is why I am wondering about the Cheddar Goldfish. She can eat a whole one serving bag of those and she is fine. Have not tried Doritos, because the cheese is sprayed on, not baked, but I am pretty sure that she would have symptoms.
Ree, the first time dd had pizza, she ate about 1/4 of a one serving and had a little bit of symptoms. Allergist said keep giving it, so we did. That was 1 1/2 years ago. She is fine with it now. We even order Domino`s. We ask for light cheese, and she can eat 2 - 3 slices. Just to give you some perspective, the baking really seems to cut down on the allergenicity. Dd cannot tolerate a tiny amount of unbaked milk or a full serving of mac and cheese, but does fine on pizza. Last year they had a pizza party after AP testing at school and I even let her participate. Never thought that day would come that she could eat pizza at school. So you may be pleasantly surprised how your child does on pizza.
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: rebekahc on January 31, 2012, 02:24:24 PM
I think the Flavor Blasted Goldfish have cheese sprayed on them.
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: my3guys on January 31, 2012, 03:36:55 PM
I think the Flavor Blasted Goldfish have cheese sprayed on them.
Yep, this is right. At the time of the other thread, I think more goldfish had cheese sprayed on, but according to PF as of a few months ago, any bag that says "baked" in the title means the cheese isn't sprayed. I'll come back later Ree, and answer your other questions, have to run to bball practice now...
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: my3guys on February 01, 2012, 07:36:40 AM
Back again.
Last year when DS went to Mt. Sinai, he passed phase 3 of the baked milk study :happydance:. However, he still failed straight milk. We will be going back again soon, this will be his fourth year going.
He eats macaroni and cheese and similar type things. I've noticed improvement this year with the mac and cheese because I used to have to basically overcook it, and now he can eat it more "soupy". So I'm crossing my fingers for this year.
Off the top of my head for snacks with milk, he eats Nutrigrain Bars, Cheeze-Its, Gripz, Keebler Vanilla Wafers (all considered to be more in line with muffin, in phase 1). There are also breads and rolls he can eat with milk in them. He's still allergic to egg or else he would have other options too.
We still avoid the stuff with cheese sprayed on like Doritos, Cheese puffs etc., and soft cheeses like Ricotta.
I know it seems wild Ree to consider a slice of pizza, but that's how Mt. Sinai does it, all under nurse's supervision in hospital setting with meds premeasured. They used to also insert an iv to give emergency meds if need be, but they no longer do that. Maybe your allergist would consider letting you bring in a well cooked slice of pizza and do an office challenge? I would be intimidated letting my kid eat pizza for the first time at home too.
Good luck!!!
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: suevv on February 01, 2012, 02:58:48 PM
Ree,
Another route for more "milky" things - assuming baked egg is not an issue - is pancakes-waffles, and then if that is successful French toast. That's where we are, and DS is loving his French toast. I'm dying to take the pizza "leap" but allergist hasn't okayed it yet, and I'm just terrified of it. I did make some meatballs with parmesan cheese grated into them - and that went OK. Maybe you could try that so you could ramp up to more cheesy stuff.
I'm so excited to see all the progress folks are making on baked egg and baked milk!
Sue
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: Ree on February 03, 2012, 10:47:30 AM
Thanks everyone! I may just get up the courage this weekend to try overcooked pizza...even just a bite is a start, right? He's allergic to eggs, so the waffles aren't an option.
I'll keep you posted! Thanks again!
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: callisto on February 03, 2012, 02:42:59 PM
My daughter passed baked milk last May as well.
We started off with cakes and muffins, then progressed to goldfish and cheez-its.
Next I gave her cheese baked for a long time - I added some grated cheese to a veggie loaf (like meatloaf) that was baked for about 40 minutes, similarly I put cow's milk and a little cheese into a Spanish omelette, again baked for a 40 minutes or so. Cheese biscuits worked too.
Now I am giving her pizza but I make the dough myself. She has Daiya "fake cheese" and a little shredded real cheese, and I bake for 30 minutes. I am slowly increasing the amount of real cheese and she is doing fine. At first she said it felt like a little hand was tickling inside her throat, but now she has no symptoms. The allergist has said it is OK to try commercial pizza, but I am more comfortrable increasing it slowly. It is hard to imagine giving her a store or restaurant pizza!
I have also given her stove cooked pancakes, very well done. I have used part cow's milk and part soy milk - again I am increasing everything slowly, mainly for my own peace of mind.
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: callisto on February 03, 2012, 02:45:09 PM
I just saw he is allergic to eggs - maybe Spanish omelette and pancakes aren't helpful suggestions for you!
Good luck with the pizza!
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: Ree on March 10, 2012, 07:47:33 AM
Update - Still too chicken to try pizza. Haven't really done anything new since this post. Ugh...what aisle is courage in? I'd like to buy some. :-/
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: Carefulmom on March 14, 2012, 10:07:25 PM
What does the allergist say? I`d suggest buying a frozen pizza where you can read ingredients, bake it in the oven longer than it says, and let your ds try a little bit. Only if the allergist says okay, though.
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: Ree on March 15, 2012, 11:30:34 AM
She said to try it and doesn't want to do a full milk challenge until he's eating pizza or cooked cheese at home.
What about mac & cheese? If I cooked the Kraft mac & cheese as directed on the box, and then baking it in the oven for 30-40 minutes? He really wants to try it, since my other boys eat it every once it awhile.
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: my3guys on March 15, 2012, 03:11:03 PM
FWIW, on Mt. Sinai's stage list, pizza would be stage 2 after baked muffin, and mac and cheese would be stage 3 after pizza is passed. They've figured out the stages by the amount of milk protein in a serving of food. Since your allergist said it was ok, I would do as Carefulmom suggested, and buy a frozen pizza and overcook it a little. Again, FWIW, Mt. Sinai recommended Amy's brand. That's the one my ds has been eating since he began this journey. They do have a warning made in a facility with tree nuts, but if I recall correctly, it's only pine nuts, and they have very strict cleaning procedures.
If you still feel uncomfortable, would your allergist let you bring the pizza into the office for a 1x challenge?
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: Ree on March 16, 2012, 08:18:52 AM
I'm glad I asked about the mac & cheese! I'll hold off on that. I was worried about Amy's since it has the nut warning...Is your ds allergic to nuts?
I think I'm concerned about his anxiety more than a reaction. He's very nervous and I've allowed him to pace himself in this. He started with 3-5 goldfish and he's increased it when ready. He's not ready for pizza, but I feel like we should try it.
Thanks!
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: my3guys on March 16, 2012, 08:30:13 AM
Yep he's allergic to nuts, not sure about pine nuts specifically. There may be other brands out there that just make pizza (Without the pine nuts). Take a look, see what you find. I probably sound casual about this...I was amazed the day my ds ate pizza, flat out floored. I would tell your allergist that he's feeling very nervous and see what they advise. Good luck!
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: Carefulmom on March 16, 2012, 08:57:21 PM
When I heat frozen pizza at home, I buy the brand Red Barron. I really don`t remember if I called on it or just read this board to decide it was safe. Dd is allergic to peanuts and also avoiding tree nuts. Dd has had a bit of mac and cheese, but it definitely looks way cheesier than pizza. She has done okay on it, but I only let her have half a serving. The cheese is also runnier on mac and cheese than on pizza.
Another tip is to let the pizza cool a bit before giving it to your ds, if you decide to do it. Dd has found that if it is really hot and the cheese is runny, she gets a bit of lip swelling in a small area where the pizza touched her lower lip. Allergist said this is okay, but it may not be okay for your situation. Dd has found if she waits about 10 - 15 minutes after the pizza comes out of the oven, the cheese is harder and she does not get any lip swelling.
I was amazed, too. Today a club dd is in did campus clean up for two hours after school and the teacher got pizza to reward the kids. Dd had one slice of Little Caesar`s large pepperoni pizza and no symptoms. Unlike your ds (Ree), dd was thrilled about getting to try pizza. She had been wanting to have it for years. In fact at one point in time, she was asking for a cap rast to be drawn to see if her milk was low enough for a challenge so that she could hopefully pass and eat pizza. It was only after my3guys posted that her ds could have pizza that I called the allergist and he said to try it. Dd was already on baked milk in things like cookies or bread. I never thought she would be able to have pizza.
If you do it, I would definitely do frozen pizza with ingredients first. You know more about what he is consuming than if he tries Little Caesars or another pizza place.
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: Ree on March 28, 2012, 06:02:38 PM
I looked for Red Baron cheese, but could only find 4-cheese. He got sick on pepperoni last year, so I want to make sure not to confuse the issue. Not that it matters...he's just not ready. :(
BUT, he ate Cheez-Its today! About 10 of them, no problem. It's still probably in phase 1, but I feel like we've made more progress by adding another food with milk.. :)
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: Carefulmom on March 28, 2012, 08:17:39 PM
That is wonderful about the cheese-its! Congratulations! Dd almost never eats plain cheese pizza. I am totally guessing here, but I would think that a plain cheese pizza would have more cheese than a pepperoni pizza. I know this is not scientific, but I look at the amount of calcium on the label. If it is high, like 20% or 25%, then I figure there is a lot of cheese. Since he got sick on pepperoni, I wonder if you could find another kind that isn`t just plain cheese. We have asked at pizza places and they did say there is more cheese on a cheese pizza than a pepperoni or other topping pizza. Don`t know if the same holds true for frozen pizza, though.
I would guess that cheese-its probably have more milk than cookies or bread, so that is progress.
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: bonestable on March 30, 2012, 10:26:17 AM
What I do is make my own pizza, so I can control the amount of cheese. I make dough in the breadmaker. I haven't used those premade bases, but that would be an option too. Then I put DD's toppings of choice on it and bake it.
I started off using almost all Daiya with just a tiny bit of real shredded cheese.
The plan is to slowly increase the amount of real cheese and decrease the cooking time.
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: Ree on April 07, 2012, 07:08:51 AM
Thanks Carefulmom & bonestable!
Seasonal allergies are hitting us now. I think it might be awhile. :-/
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: Ree on June 03, 2012, 05:26:37 PM
I finally did it! I gave my DS one piece of VERY overcooked Red Baron pizza! He loved it and so far has had no symptoms. He started with 1 small bite, then increased it every 10-15 minutes. After about 1 hour, he finished the whole piece. Before cooking it, I scraped off a layer of cheese so there was only 1 layer shredded on the top.
After he took the last bite, he asked for something to drink because of the taste. But, that's what he does when he eats goldfish, so I'm trying to ignore it.
I read this thread right before giving it to him to get my courage up... Thanks so much for all your support and encouragement!! ;D
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: my3guys on June 03, 2012, 06:49:09 PM
:happydance: :happydance: :happydance: Pizza can really be a game changer for these kids since it's the go-to food at parties! YAY!!!!! So glad he ate the slice without a problem!
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: Ree on June 03, 2012, 08:59:54 PM
Thanks my3guys! I think I'm still in shock and hope I have the courage to do it again!
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: booandbrimom on June 06, 2012, 05:28:26 PM
Ree, that's so awesome! (Took me a while to see your thread.) The baked milk really is a miracle. I hope it keeps going well for you guys!
Title: Re: Baked Milk - Goldfish OK, now what?
Post by: my3guys on August 20, 2013, 10:54:40 AM