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Discussion Boards => Schools and Food Allergies => Topic started by: LianneV on January 09, 2012, 12:11:43 PM

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Title: New here, but need help before meeting with principal
Post by: LianneV on January 09, 2012, 12:11:43 PM
Hi everyone,
I need some help please.  My son is 5 years old and is in kindergarten.  He has an extremely severe peanut allergy, as severe as it gets.  He has all the forms on file with the nurse, epipens in her office etc.  When he first started school things were great.  Until last week, when he informed me that everyone else got to eat "yummy cupcakes" but the nurse didn't check them and the teacher wasn't sure so he got goldfish.  Aside from the unfairness of a 5 year old watching everyone else enjoy them, I was very concerned with the safety issue.  Come to find out recently 2 sets of parents created a huge fuss cause their cupcakes didn't make it to the classroom cause they weren't safe, and so they CHANGED the policy.  Without informing parents.  Now even something listed containing nuts can go through with a tag on it saying so and it's up to the teacher to "use caution" I am so angry. What if I kicked up a fuss and demanded my son bring a knife? Do they just normally change their policy anytime a parent complains? So I'm waiting to hear back from the principal to set up a meeting, but I need some help with what I should bring with me, if there's any official paperwork to make it go back the way it was.  From my understanding it is a school district policy so can the school change it?
Title: Re: New here, but need help before meeting with principal
Post by: CMdeux on January 09, 2012, 12:52:31 PM
School "policy" can be changed whenever school administration sees fit.

THIS is why all children who depend upon particular protocols must have those details included in a 504 plan.  The reason why that is superior to school policy is that a disability plan CANNOT be unilaterally changed at will.

The school has changed the safety of your child's access to the educational environment (by allowing his allergen into a previously allergen-controlled environment) and they have denied him inclusion on the basis of his food allergy (by singling him out to eat crackers while other children ate cupcakes).

IMMEDIATELY request evaluation under section 504, which grants that qualified individuals with a disability (food allergy qualifies if it is life-threatening) shall be included in all educational activities to the same extent as non-affected peers.
Title: Re: New here, but need help before meeting with principal
Post by: CMdeux on January 09, 2012, 01:06:13 PM
Also-- do NOT discuss accommodations until you have elgibility in writing.

Because until/unless he's found eligible,



well.  You've already seen what he's entitled to, in that case.  Whatever WHOever decides he gets in the way of safety and inclusion with his classmates, basically.   :P


DO have a list of absolute REQUIREMENTS for him to: a) safely and b) inclusively, attend school.  Don't get into the list of specifics, though, until you have eligibility established, and DO NOT be side-tracked by "policy" covering those items, or by the notion that they could be included in a "health plan."  Practice saying (cheerfully/pleasantly/neutrally); "That's wonderful.  Since you're already doing that, let's include it in {child}'s 504 plan, too."  (As though it will be NO PROBLEM to do it-- after all, why WOULDN'T they want it in writing if they are promising it to you, hmmm?)

  This could be things like him not using the drinking fountain but a water bottle instead, having classmates wash/wipe hands after snacks/meals, a special seat in the cafeteria, desks being wiped down/washed by the teacher, having his epinephrine kept WITH him (ie-- teachers carry and keep it, not having it locked in a nurse's office), etc.  Inclusion means that it isn't okay for the teacher to plan to do a huge food project while your child sits in the principal's office.   ~)  I realize that this sounds far-fetched, but trust me, if they think him watching his classmates eat cupcakes is fine, it's a short mental step to "sending him to the office" so that the rest of the class can do "fun stuff" without him.

You'll need ADVANCE NOTICE of food in the classroom-- period.  You will also need to consider how to handle subs, or days when the nurse isn't present. 

Title: Re: New here, but need help before meeting with principal
Post by: lakeswimr on January 09, 2012, 06:19:47 PM
They should have informed you.  First things first--I'd want to make sure my child will be safe.  If the classroom is no longer peanut and nut-free what are they doing to prevent allergens from being spread around the classroom?  ARe they having the children sit slightly apart from your child while everyone has the treats but your child (infuriating that they allow that but you don't want those treats right next to your child!) and having others wash hands and then is the teacher cleaning desks and under desks for crumbs?  Is your child of the age where he can be relied upon to not pick up a crumb and eat it?  I'd work on that first.

I'd also request a 504 if you don't yet have one.  if you do then they can't change the plan without you so I'd protest that!  Oy!  I'm sorry.

You may or may not get them to change this.  You may have to use a treat box that you leave at school so your child can have something while others get cupcakes.  It is very unfair but it is a lot safer than letting  your child eat things other people bake.  Even cupcakes that others say are 'nut free' may be cross contaminated and it isn't safe to let others bake for children with food allergies.  people have died eating baked goods others made and mistakenly cross contaminated.  Even touching an allergy-free food with a cross contaminated knife or spatula can cause a life threatening reaction or worse in people who are allergic. 

What would you like to have happen at birthdays?  Would you prefer no treats allowed?  Would you prefer people to have to choose from some prepackaged treats that you get to check the label for before they are served?  I'd at least ask for what you want. 

Even if you do not have a written plan i would complain that they changed accommodations without notifying you.

I like the analogy Gina Clowes made on her Allergy Mom's ebook that you can get on her website--schools do not allow people to pass out birthday cards at school unless they are inviting everyone so no one will feel excluded so why do they allow children to serve 22 cupcakes to a 23 child class?  It isn't nice or fair!  I can't imagine doing that! 

My son's school did away with birthday cupcakes under the wellness policy but before then I sent in his cupcakes.  I kept them in the freezer, pre-made including pre-frosted.  They held up well in zip loc freezer bags.  I sent them in cup-a-cake holders and also had a treat box with cookies, chips, candy, etc in it and popsicles in the school freezer.  i sent enough for the other FA child in his class.  I didn't like that they allowed this and was very happy when the birthday treats were done away with.  They have a few food events each school year which is a lot better than all those bdays and the food events, both.  Good luck making positive change.  ((((hugs))))
Title: Re: New here, but need help before meeting with principal
Post by: lakeswimr on January 09, 2012, 06:21:22 PM
CM--great post.  I would take care of safety issues regarding cupcakes wtih nuts in the classroom now, though, but otherwise I totally agree.

Also-- do NOT discuss accommodations until you have elgibility in writing.

Because until/unless he's found eligible,



well.  You've already seen what he's entitled to, in that case.  Whatever WHOever decides he gets in the way of safety and inclusion with his classmates, basically.   :P


DO have a list of absolute REQUIREMENTS for him to: a) safely and b) inclusively, attend school.  Don't get into the list of specifics, though, until you have eligibility established, and DO NOT be side-tracked by "policy" covering those items, or by the notion that they could be included in a "health plan."  Practice saying (cheerfully/pleasantly/neutrally); "That's wonderful.  Since you're already doing that, let's include it in {child}'s 504 plan, too."  (As though it will be NO PROBLEM to do it-- after all, why WOULDN'T they want it in writing if they are promising it to you, hmmm?)

  This could be things like him not using the drinking fountain but a water bottle instead, having classmates wash/wipe hands after snacks/meals, a special seat in the cafeteria, desks being wiped down/washed by the teacher, having his epinephrine kept WITH him (ie-- teachers carry and keep it, not having it locked in a nurse's office), etc.  Inclusion means that it isn't okay for the teacher to plan to do a huge food project while your child sits in the principal's office.   ~)  I realize that this sounds far-fetched, but trust me, if they think him watching his classmates eat cupcakes is fine, it's a short mental step to "sending him to the office" so that the rest of the class can do "fun stuff" without him.

You'll need ADVANCE NOTICE of food in the classroom-- period.  You will also need to consider how to handle subs, or days when the nurse isn't present.
Title: Re: New here, but need help before meeting with principal
Post by: Lianne on January 09, 2012, 07:10:09 PM
He has a health plan on file, but not a 504.  To be honest I've seen it mentioned many times online, but was never really sure what it was.  Can they refuse to put a 504 plan for him?  Would I need extra information from his allergist?  I swear they made me call and fax him at least 5 times at the beginning of the year to make sure everything was perfect, then they go and do this!  That is so true about the birthday invitations! I will be sending in some safe treats with him tomorrow when he has school.
I shouldn't mention specifics until he's been deemed eligible, so how long does that normally take?  Does it go over the principal and school district nurse's head (she'll be attending the meeting too) I'm a little confused, I should just have a list of requirements not accomodations?
My son has had it drilled into his head that he never takes food from others and he's old enough not to put crumbs in his mouth, but once a classmate (at a peanut free preschool no less) somehow had peanut butter on their hands and he broke out all over his arms and legs so the idea of a messy treat just inches from him bothers me.  I wonder if they think I'm over reacting but if he gets some of it on his hands and rubs his eyes or for whatever reason puts his fingers in his mouth then what?
It's frustrating because I hate being the "problem" person but it's my son's safety, I have no choice but to fight this.  I already heard a parent complaining the first week about his peanut allergy, she didn't know I was the mother of the peanut allergy kid, when she was complaining to the principal about the list of safe snacks they have to choose from.
The thing is, in their defense, peanut free cupcakes or any kind of pastries are virtually impossible to find.  No place is willing to say they are safe so to avoid their own lawsuits they all say they may have been cross contaminated.  I can't imagine how much parents would protest if I asked that they bring in hershey kisses, or skittles or lollipops cause at least I'd feel better about that.  Shoot if I was a better baker, I'd offer to make all the cupcakes everytime a kid had a birthday.
Title: Re: New here, but need help before meeting with principal
Post by: CMdeux on January 09, 2012, 08:41:29 PM
The underlying issue, though, is this:

how safe will a contact-sensitive child feel in a classroom where an allergen is routinely served (non-instructionally, no less!!) several times a month and without notice to you first?

Do consider carefully whether or not serving birthday treats in the classroom like this is a good idea going forward.  It's certainly setting up a situation which is almost inevitably going to be an opportunity for a series of errors at some point down the line.   :-/


Some other alternatives that I have heard of from other parents in this community:

a) treats are not permitted for birthdays-- period  (they don't meet most district wellness policies now anyway, aside from food allergy concerns)

b) treats are eaten in the cafeteria, not in the classroom, and child has his/her own safe version or can choose something from a parent-provided treatbox

c) you are notified when it happens and the treats GO HOME at the end of the day.  This is my personal favorite, and most teachers like it too-- no mess in the classroom AND no safety risks all day during instructional time, AND you know how often the exclusion is happening.  I might even enlist the school counselor/principal in this one-- as in, s/he needs to CALL to let you know that treats are going home with kids... that way, see, you can be there with something special for your child, too, when he's picked up.  Heheheh... this also has the impact of making it CRYSTAL clear to administrators how frequent and pervasive this kind of exclusion is.  You would be ASTONISHED at how it adds up if the teacher and administrators allow this crapola to go on in classrooms.  It can literally be weekly and at random otherwise.

I also, PERSONALLY, don't like the 'safe treat box' for a series of reasons:

a) safety.  What if someone else 'borrows' from it and replaces items with what they THINK is 'close enough' to the original items? 

b) how 'equal' is it for parents to have to provide for this at our own expense so that the school can "out" a child's medical condition at will, anyway?

c) many times, the child who is shy/retiring will not insist on being allowed to choose something from the box, and the teacher may well forget, too... plus, how safe is it if teacher has been handling goopy cupcakes and then handles your child's 'safe' treat?

d) subs can EASILY make a mistake if treats are allowed into classrooms for distribution there.  This is the TRULY scary one... what if your ds is trusting enough to believe a claim by another adult that something is "safe" for him to eat?
Title: Re: New here, but need help before meeting with principal
Post by: lakeswimr on January 09, 2012, 09:43:37 PM
I think a safe treat box is safer than, say, having treats served by others when I can't be there.  If DS only eats food from home or that I provide or from his treat box (and everything in the box has a special mark on it DS knows to look for before eating) it helps eliminate him accidentally getting served an allergen, having another parent x-contam his food, etc.  The outside of the box even says, "please wash hands before handling contents."  At a recent party where I was present another parent touched allergens and then touched safe food on DS's table even with me there!  Luckily she didn't x-contam the food DS was going to eat on another plate but if I weren't there DS could have easily ended up eeating the food she x-contamed.  I don't trust anyone else.  I don't trust parties if I can't be there.  I don't want others label reading for me. 

The only way I like parties is either food-free or with me providing all the food.  If I can't be there due to work then I don't like the idea of DS eating food others have anything to do with.  Recently my nephew had a party where some foods were allergens and some weren't.  His mom was too worried that the other parents would x-contam the allergy-free food while distributing treats and felt it was not worth it so sent all his own food in a separate container. 

It stinks to eat separate food.  it stinks more to have  your food xcotnamed and end up in the hospital.

My first choice is same food and safe for all (well, really no food is my first choice).  But if that cant' happen and other parents have anything to do with it I don't trust them.  Not because I think they would intentionally hurt DS.  They wouldn't.  But mistakes happen.  I have seen a bunch of x-contam mistakes at the many school parties I have attended and prevented my son and the other FA child from eatiing xcontamed food many times.  So, whatever the OP decides I recommend thinking about how the food and untensils and napkins, etc will be kept x-contam-free.  How will other parents be informed of this?  How will you know someone didn't just eat trail mix in their car and then come pass out allergy-free pretzles or napkins or whatever?  Or that someone won't pass out something that you didn't get to check that was sent in last minute? 

I have fought hard for DS to be fully included this year only because I am able to get time off to attend the few parties there will be.  Otherwise I would just send safe food for him and forget it.
Title: Re: New here, but need help before meeting with principal
Post by: rainbow on January 09, 2012, 10:07:12 PM
All above is what you need to know.   What I'd add is...

Very concerning that they asked for all your information but are not keeping you informed as far as what is being served in the classroom -- and practically seems like they are hiding information. They are also bowing to cupcake queen mom complaints --- at the expense of your child's SAFETY.

Timing is "good" for you because sadly, you can provide them with a compelling article about the 7yo child that died last week in a VA school - it's believed a peanut product was somehow "shared" with her.

You need to
1) Request 504 in writing
2) Request in interim that you be INFORMED of all snacks being served in the classroom
3) Remind them your child has both ingestion and contact reaction history
4) state you are very concerned about SAFETY, and also inclusion of your child based on his disability of Life threatening food allergies - it is ESSENTIAL that you use the words "LIFE THREATENING" -- check www.wrightslaw.com (search on "peanut allergy" and an article will come up that explains this)

We can help you through this.  Most of us have been there with a Kindergartner.  :grouphug:

REiterate this needs to be done ASAP due to the LIFE THREATENING nature of your child's food allergies.
Title: Re: New here, but need help before meeting with principal
Post by: rainbow on January 09, 2012, 10:14:21 PM
Be careful about precedent with treat box.  It gives them a license to exclude your child, and it will set precedent that you are "ok" with that (some of us are, some aren't).  My personal experience was that in K/1st -- when my child was so young and really not able to self-advocate -- the teacher, or the sub, etc couldn't FIND the treat box. It kept getting "lost" in the supply closet. Also another child in the class had peanut allergy but that child had some anxiety and was "happy" to sit and eat nothing. I was told my son should "take a cue from that child because that child was fine sitting with nothing"...Ummm NO.  My child was hungry and wanted a treat like all the other kids (interestingly that child was also underweight - NOT a good cue for my athletic kid).

More commonly, the other allergy kids will share in the homemade cupcakes etc. without any regard for LTFA risk (ie, cross contamination, unverified ingredients, etc).  So it is confusing for the teacher, child, etc when one allergy child can eat a treat brought in by a parnet, and the other LTFA child cannot.

AAFA and AAAAI both suggest either NO shared treats, or only shared treats that are PACKAGED with an INGREDIENT LABEL (but YOU should still read it - how will they ensure this occurs?).  Don't feel guilty asking for this, as it is a required practice by state law in some states. And in many places, schools are no longer allowing birthday treats (due to food allergies, obesity, curriculum time, etc).
Title: Re: New here, but need help before meeting with principal
Post by: Lianne on January 10, 2012, 02:18:48 PM
Thank you all for all this information. I would rather he get to share in it with others, but it seems like cupcakes are the only way for people to celebrate birthdays.  I don't like that he has a treat box, but if it's that or a plain snack at least he gets some sort of a goody.
I never really thought about crosscontaminating, I will be sure to make a point that if it has to be from the treat box, he is to receive his first before the cupcakes are opened.  The thing is, this shouldn't even be an issue, as if it was deemed unsafe it shouldn't be in the classroom anyway.  I mean his nurse, she calls companies and asks if she isn't sure, she's wonderful.  It's a policy she protested but she's "just" the nurse.  It's insane that they'd rather listen to parents whine about their kids  not able to hand out cupcakes than to the nurse or to me who is trying to keep my son safe!  I'm sure they're not going to like the pain I'm being forced to be, but I'm very angry about how they kept the change in policy from me.  As far as I knew anything that made it's way there was ok. 
I don't want to feel this way, but I feel like they hope parents are laidback about it so they don't have to do as much work, such as calling me when food is coming in, making sure parents notify them if they're bringing it in, all that, but tough luck.
Title: Re: New here, but need help before meeting with principal
Post by: rainbow on January 10, 2012, 07:45:55 PM
That's great you have a good school nurse. Worth weight in gold.  :thumbsup:
Title: Re: New here, but need help before meeting with principal
Post by: eggallergymom on January 11, 2012, 08:26:40 AM
The safe treats box worked for my daughter in kindergarten, but didn't work in first grade, when my DD's teacher brought in homemade pudding and served it to the class. My DD knew I'd spoken at length with the teacher about her LTFA to eggs. so she thought the pudding was safe. She ended up anaphylaxing at school, anaphylaxing again in the E-R, and ultimately was admitted for 2 days. The fine people on this website saved me (and likely her) by pushing me in the right direction on a variety of fronts. She now has a tough 504 plan, and our district has a new food allergy policy that has meant new training procedures for teachers, new restrictions on where kids can eat homemade treats (the cafeteria), etc. Lianne--do you know what kind of safety training the teachers have? I know you said you have Epi pens in the nurse's office. Is the nurse always there? Does she ever leave the building? How far is the nurse's office from your son's classroom? Could you ask that his teachers be trained on the Epi, too, and that you keep a pen or two with him?  I also agree with Lakeswimmr that you need to shore up the safety in his room in terms of cross-contamination while you "negotiate" the rest of this stuff. Our 504 process took a few months, beginning to end, and that was probably quick compared to most, because we had some real momentum, given the school's liability in what happened to our DD. I hope your son stays safe and healthy, and that you're able to get the 504 plan for him!
Title: Re: New here, but need help before meeting with principal
Post by: AllergyMum on January 11, 2012, 08:56:28 AM
If you want to do a safe treat box label each individual thing that you put in the box with your child's name.  Then make sure your child knows that he/she can only eat things that are specifically identified as theirs.  At my son's last school we did this and had yellow stickers with his name on them, if he saw a yellow label he know it came from us.  Our new school does not allow any treats so we no longer need a safe treat box.
Title: Re: New here, but need help before meeting with principal
Post by: lakeswimr on January 11, 2012, 11:31:26 AM
We also put a special mark on each thing in the treat box and any treats I send to school for DS or check for the teacher for other things so he knows to look to see the special mark.  No mark = don't eat it. 
Title: Re: New here, but need help before meeting with principal
Post by: Carefulmom on January 11, 2012, 04:04:51 PM
I agree that the safe treat box is unsafe for the reasons that some others have posted above.  I don`t think it is the job of a 5 year old to make sure that teacher washed her hands before giving the allergy child his treat.  Not to mention substitutions of a different brand of a similar item which is unsafe.  And it definitely encourages exclusion.  It eases teacher`s guilt about having unsafe food for the other kids if the allergy kid has his safe treat.  It encourages impromptu passing out of food.  It encourages food rewards, because then the allergy kid can have his safe treat while others eat the unsafe food.  If the child`s allergen is passed out in class, I would be concerned about residue on the books, computers, etc.

Here is how we handled it in our 504:
1.  I was to be given a list of birthdays when school started.  Whenever there was a birthday I put a cupcake in dd`s lunchbox.  In kindergarten I think it is important to teach the allergy child to only eat what came out of his lunchbox.  It will prevent accidents later by teaching him that just because teacher tells him something is safe, doesn`t mean it is safe.  Sometimes dd got lucky if the birthday was on a Saturday or Sunday, because then if there were no cupcakes brought in on Friday, she still got her own cupcake.  Sometimes she got lucky if the birthday parent never brought in cupcakes, dd still had hers in her lunchbox.  I kept unfrosted cupcakes in the freezer, and when we were expecting a birthday, I  took one out which dd got to frost and decorate.  She put a ton of frosting and sprinkles on and hers usually looked better than the store bought ones that other parents brought.

2.  Dd`s room was food free.  Cupcakes were passed out at the end of the day outside.

3.  Under no circumstances was dd permitted to eat food that had not come out of lunchbox, no matter how convinced the teacher was that it was safe.  This probably saved her life.  I cannot even count the number of times that dd was told an item was safe when it wasn`t.  The same has been true for other kids on this board. See eggallergymom`s post about her dd being told that pudding was safe when it was not.

4.  Parents were required to give teacher 48 hours notice if bringing treats.  If treats were brought in with less than 48 hours notice, they were sent home uneaten.

5.  At the beginning of each year, teacher sent home a note stating that there were allergies in the class and if parents wanted to include all children, here is a list of safe store bought treats (including brand name).  The list actually came from me.  If that happened, teacher would then let me know.  I would read the ingredients when I dropped off dd, and put one of the safe treats in dd`s lunchbox, so that later when the kids got their treat, dd got the same thing.  This really is doable.  Parents do not have to read an ingredient label.  Even with dd allergic to milk, egg, and peanut, I was able to come up with 8 or 10 things to put on the safe treat list.  About 1/3 of the time the parent brought a store bought item off the list.  2/3 of the time they brought store bought cupcakes that dd could not have.

Hope this helps.  I would stick to your guns on this one.  Your child has to be kept safe.  It is the school`s legal responsibility.  And I agree, get the 504 process going.
Title: Re: New here, but need help before meeting with principal
Post by: lakeswimr on January 11, 2012, 07:01:41 PM
Even if all the food at a party is "allergy-free" and there is no treat box the teacher still must wash his or her hands before handing out the treats.  If the teacher ate allergens at lunch she or he could x-contam all the safe food.If food comes out of a treat box with a special label on it, that eliminates the worry about someone getting the wrong brand or a different size of the food that has an allergen in it, etc.  My son always will have a treat box.  His school doesn't allow food rewards, hasn't had impromptu passing out of food treats (thus the box came back full last year and probably will this year -- it gets used more in case I forget to send snack or something).  Allergens are not allowed in my son's classroom ever.  So, none of your opening paragraph applies to our situation, Carefulmom.  And we don't have bday cupcakes, either. 

Your plan requires you to go into the school and label read.  That's nice that you can do that but it isn't practical for everyone. 

I'm glad your way works for YOU but it is not the only way. 

Again, my first choice is no food at parties.  I'm glad at the least we have only 2 or 3 food events this year and zero bday cupcakes.  I get to bring the food for the last party.  The other one is just cake for the whole grade and I'll send in cupcakes.  Thankfully not a lot of food.  I still like the treat box there.  makes me feel better to know if someone something came up he has it and won't be tempted to eat an allergen, will get SOMETHING, etc. 
Title: Re: New here, but need help before meeting with principal
Post by: Carefulmom on January 11, 2012, 07:31:09 PM
Even if all the food at a party is "allergy-free" and there is no treat box the teacher still must wash his or her hands before handing out the treats.  If the teacher ate allergens at lunch she or he could x-contam all the safe food.If food comes out of a treat box with a special label on it, that eliminates the worry about someone getting the wrong brand or a different size of the food that has an allergen in it, etc.  My son always will have a treat box.  His school doesn't allow food rewards, hasn't had impromptu passing out of food treats (thus the box came back full last year and probably will this year -- it gets used more in case I forget to send snack or something).  Allergens are not allowed in my son's classroom ever.  So, none of your opening paragraph applies to our situation, Carefulmom.

I never let dd`s teacher touch her food.  Like I said in my post, when parents did send a group treat on dd`s safe list, I took it out of the package and put it in dd`s lunch box.  The teacher never touched anything that was going into dd`s mouth.  At that young of an age, the parents walk the kids in to class anyhow, so it was no trouble to take a minute to read the ingredients on one item.  A minute of reading a box of cookies or crackers isn`t going to really make me late to work. 

No one is saying it has to be done my way.  As I said in my post:  "Here is how we handled it in our 504."  I have seen two different situations of a substitution of a similar item different brand causing anaphylaxis.  In a perfect world, every child and every teacher would look for the sticker or identifying item to show it is his.  Unfortunately, in the excitement of the party, it doesn`t always happen.  In one situation the guilty parent who ate the treat simply moved the sticker on to her replacement item.  She didn`t realize how life threatening moving a sticker could be.  It happens....unfortunately.  She was a pregnant mom at a Girl Scout meeting.  She was feeling hypoglycemic and since the allergy child was not in the troop, she had no reason to know what the sticker was about.  The troop was just using the classroom for their meetings.  It wasn`t until weeks after the anaphylactic reaction that it was figured out what happened, since the item looked the same.  The replacement item had a may contain warning, though.  Unless you were aware of the allergies and looking for the may contain, those can be pretty small.
Title: Re: New here, but need help before meeting with principal
Post by: Lianne on January 11, 2012, 11:42:29 PM
Yes his teacher is trained to use an epipen and to reconize the signs of a reaction.  They are kept locked in the nurses room which is maybe 2 feet from the office.  Both secretaries have keys to the nurses room and medicine cabinet and are trained to administer it.  All classrooms have an emergency button and his class is maybe a few seconds run from the office.  Having a wonderful nurse doesn't seem to be enough as they completely overlooked her protests and changed the policy anyway.   I will be reminding DS that he is to ask everytime if it is safe for him.  He is very well aware that he is to not share food and only eat from his own lunchbox. 
I can't imagine the complaints now when I insist I be informed 48 hours in advance.  Or if I insist on no food or just safe food even for birthdays.  I'm very saddened by how many parents would rather risk a child's life than just not buy cupcakes.  What I don't understand is by them changing the policy, forcing me to get a 504 (which I now realized I should have done anyway) is now going to make things much more difficult for them.  His teacher really does her best, I think she felt that once all the kids saw the cupcakes that it was too hard to then not hand them out so she felt like she did what was best at the time.  She let me go through every single bag of candy when we decorated gingerbread houses at christmas time, cause I had told her I was going to take him home early cause I was worried about it.  She put away every single thing I told her was unsafe and we still had tons to use and DS had a wonderful time.  I really like the idea of cupcakes being handed out at the end of the day, but how does that match with the no food on the school bus rule.  This doesn't bother me so much as DS doesn't take the bus.  But just in case there are kids on the buses with allergies. 
Do your kids schools stand their ground with the policies? That's where it all started cause parents didn't follow the rules then whined cause they didn't like the consequences.  How can I make sure that gets enforced?  All of the snacks the teacher brings in are checked by the nurse and the teacher listens to her opinion on them, so I feel safe in that. 
Title: Re: New here, but need help before meeting with principal
Post by: CMdeux on January 12, 2012, 10:54:22 AM
Well, you'll actually be doing your school a FAVOR by insisting on covering accommmodations with a formal 504 plan rather than "policy" or worse, individual off-the-record promises to you...

because if they will change policy, practices, and procedures for YOU just for "the asking" then why not for another parent, hmmm?  The answer:  they will.  Legally, there's no difference between you SAYING that you want no birthday cupcakes in the classroom (for your child's safety) and another parent saying that they want to/insist upon bringing them in for their child to share.  KWIM?

With a 504 plan, you have the backing of federal law and so does the school.  This will allow them to shrug and tell other parents that it isn't up for discussion, as it is about another child's federally protected disability.  Like I said-- in the end, a 504 plan does the school a lot of favors.  Your classroom teacher in particular sounds as though she'll be a terrific partner in your 504 plan.   :yes:


One more thing-- DO NOT NOT NOT allow your school to keep your child's only epinephrine in a locked location.  PERIOD.

If your child is in anaphylaxis, seconds matter.  What if the nurse is attending to another child at the time and isn't in her office, hmmm?  What if she isn't in the building?  How long will it take to unlock them if nobody knows exactly where the key is?  This is something that the AAAAI and FAAN both say is absolutely WRONG from a management standpoint.  Emergency meds MUST NOT be locked.

Title: Re: New here, but need help before meeting with principal
Post by: Carefulmom on January 12, 2012, 11:29:45 AM
The difference between having a rule in a 504 versus it just being a rule with no 504 is that the school can lose federal funding if they violate the 504.  If the requirement is 48 hours notice and the cupcakes come in with no notice and teacher serves them, with a 504 the school can lose federal funding for doing that.  It forces them to follow the 504 whether they agree with the rules in it or not. 

Also, I would really discourage you from telling your ds to ask others every time if something is safe.  Others often do not know what is safe for your child.  They think they do, but they don`t.  Unless you live with the allergy, it is really hard to know all the tiny little details.  The only ones I trust to read a label for dd are dd (age 16) and me.  I cannot even count the number of times dd has been told something is safe and it isn`t.  I would not teach your ds to rely on others to determine what is safe for him---only you and your husband.  The Memory thread on the old board (is it on this board?  Can someone link it?) is full of stories of kids who were told something was safe when it wasn`t.
Title: Re: New here, but need help before meeting with principal
Post by: CMdeux on January 12, 2012, 11:53:40 AM
Agreed-- even close friends and family (ie-- people who truly LOVE my daughter) have routinely made major errors in food safety, and it isn't because they don't understand how important it is, or that they aren't trying their best.

None of those errors have resulted in reactions, though, because we don't rely on others to be able to do what we do.  My daughter has grown up knowing this, and I'm very glad that we didn't do it any other way.

Title: Re: New here, but need help before meeting with principal
Post by: Lianne on January 12, 2012, 02:10:32 PM
I wasn't aware they could lose funding, thank you so much, I plan on pointing that out at the meeting today as well. 
So far here is what I will be asking.  Obviously stop allowing the allergen into his classroom.  I found out today they have lunch, go to recess then wash their hands, so I will be insisting they wash their hands before recess.  I want to be notified if a sub is coming in, so I can go and introduce myself and DS.  I will ask that a second set of epipens be allowed in his classroom (we were told that's not allowed, nor is DS allowed to keep them in his backpack cause he's so young) but now I know I can ask for that.  I will also ask that if all food is still to brought to the nurse first and if it's not on the approved safe list that they send out (I've read it and I'm ok with it) then I am to be called.  I don't want to ask that the teacher wash her hands to avoid cross contamination or before using his treat box because that would seem that I am ok with allergen foods  being in the room.
I understand about not letting him trust others.  But when he's in the classroom and I'm not there, I feel like I need to rely on a teacher.  I can't trust a 5 year old to figure out what's safe or not.  Now I need to rethink that and figure out what to do in his classroom, although hopefully that won't even be an issue.
My meeting is in 2 hours.  I'm very nervous.  Is there any other official lingo I should know to use so they know I mean business?
Title: Re: New here, but need help before meeting with principal
Post by: Carefulmom on January 12, 2012, 03:00:11 PM
My point about not trusting others was that we let dd only eat what was in her lunchbox.  No exceptions.  Then she doesn`t have to figure out what is safe, and also is not at risk for being told something is safe that isn`t.  I still remember dd being told that the cookies did not have milk, when butter was clearly on the ingredient list.  It happens. 

I`d be leery of a "safe list".  Ingredients can change any time.  Even today at age 16 we read every label of everything dd eats.  (Usually she reads it.)  I have on occasion been in the grocery store and seen different sizes of the same item with different ingredient labels.  Or one size has a may contain and the other size does not.  I personally would not let the nurse decide what is safe for my child.  She doesn`t live with the allergy.

As far as your child being allowed to have an epi in his backpack, I think it depends on the state you are in as far as whether or not it is legal.

As far as subs, the teacher should have a sub folder that has information on all the kids with 504s or IEPs.  The difficulty for us was that often the sub was called last minute, arrived after the bell rang, and did not have time to look at the sub folder until later.  I always stayed with dd until the teacher or sub arrived.  If it was a sub, I cornered her as soon as she came in and told her briefly about dd.  It was not optimal, but when they arrive at the last minute there isn`t a lot of options.
Title: Re: New here, but need help before meeting with principal
Post by: CMdeux on January 12, 2012, 03:55:03 PM
Ask for evaluation of eligibility under section 504 of ADA/ADAA, explaining that your son clearly qualifies on the basis of his profound impairment in the major life activities of:

a) self-care compared to his unaffected peers (other children his age can determine whether or not a food is safe to eat as well as adults can)

b) breathing (during reaction)

c) walking (during reaction)

d) talking (during reaction)

e) cognition (during reaction)

f) eating (duh)

g) social interaction (because of exclusion on the basis of allergy)



They should have all the evidence that they need already to establish eligibility.  They have documentation regarding his condition, his history, and the potential for fatal anaphylaxis.  They need NOTHING MORE.  No waiver, no discussion with your doc, nothing.  If they have questions for your doc, they can damned well put them in writing and include YOU in communications with your child's physician.  Anything else is "inappropriate" as it doesn't include you.  Trust me-- you do NOT want them to have unfettered access to your physician.

Once you have eligibility, figure out:

a) a plan for emergency response (run through his action plan, basically, and assign people to each task)

b) avoidance and inclusion issues--
   this includes things like whether or not he's allowed to use the drinking fountains, who MUST/CAN go on field trips, how in-class parties will be handled, use of food in lesson plans, seating and cleaning in classroom and cafeteria, handwashing/wipes procedures, etc.





finally, as Carefulmom reiterates, I'd be VERY careful about ever allowing the practice of feeding your child something which hasn't been specifically read by you (and later, your child).  Most of us have house rules that go something like every label-- EVERY time.

You're setting up a situation which technically violates that fundamental tenet if you rely on a food list.  Things change, and sometimes suddenly.  Some foods are unsafe seasonally.  Keebler, for example, has remarkably good labeling practices for peanut; but it also means that at some times of the year, as production changes, SOME cookies are unsafe that usually are safe for PA.  I appreciate knowing that they go to the trouble-- but it's on me/us to read that label EVERY time.  Until your child is old enough to do that, I really believe that it's not safe to leave that task in anyone else's hands, based on our experience.







Title: Re: New here, but need help before meeting with principal
Post by: CMdeux on January 12, 2012, 07:03:54 PM
 :crossed:

How did it go??
Title: Re: New here, but need help before meeting with principal
Post by: Carefulmom on January 12, 2012, 09:42:06 PM
Checking in to see how the meeting went.
Title: Re: New here, but need help before meeting with principal
Post by: Lianne on January 12, 2012, 11:00:59 PM
well, the meeting went about as badly as it could have possibly gone.  I went in and told them I want a 504 plan, the principal tried to convince me that the health plan he has currently is good enough to which i said clearly it isn't since you changed the policy and I wasn't informed.  She then tries to tell me I was informed.  Um hell no, cause I scheduled a meeting the second I found out.  oh but wanna hear something funny, guess when the policy was changed, when they started allowing products with nuts into his classroom!  the end of OCTOBER!  they have been doing this for 2 months without telling me, had he had a reaction, I would have sued their asses.  Anyways, so I say no I want a 504 plan they say ok.  I said for starters there is to be no nut products in the classroom.  She looks right at me and says "i'm happy to write up the plan, but I will not write in a provision for no nut products" can you believe that?? it gets better, she had the nerve to say that if I don't like DS being excluded, under my theory the whole class would be excluded.  she must be a moron.  if the whole class doesn't have it, no one is being excluded, oh but she said, we are welcome to have DS leave the class whenever there is a treat to make sure she's safe.  Had my mother been there, i think it would have been this point that she would have jumped over the table at the woman.  Even if I was ok with him leaving the classroom, or with him having his own special treat, that's not enough.  he's 5, they're 5, kids are messy! I mentioned he had a contact reaction last year so this is why i'm concerned and i was told "oh well yeah but that's not an anaphalytic reaction" oh ok so being covered in hives doesn't matter?  being sent to the ER isn't a big deal?  sure that's not scary for 5 year old. the whole meeting just went around in circles, they kept saying they're doing what their school district policy says and what washington state law says.  Their policy states that they have to "take reasonable measures to keep him safe" and they think what their doing is enough and they don't think me asking them to keep peanuts products out is reasonable.  I even asked if they could hand them out at the end of the day as the kids are leaving, and that wasn't acceptable to them either.  i found out today that the kids eat lunch, then go to recess then wash their hands.  so i asked them if they could wash their hands on the way to recess or even use sanitzier and i was told that would be too hard to enforce.  so i said to them, ok so if we bring in a mediator, (i was told to suggest that if they wouldn't co operate) and they said that's fine I can do that, but that they wouldn't agree to stopping the food in his class.  so i said you're telling me that if you are ordered by law to stop you won't.  she said well i would have to "speak to my counsel, the school's laywers" but if they advised her to she would.  So the only way they will listen if i go all the way to force them legally.  they told me they don't think they can keep DS as safe as I expect them to, so i said are you saying my son shouldn't attend your school, and of course they backpedaled a bunch and said "well you need to decide as a parent what you want to do"
i'm so angry with them.  i didn't cry though, not til the very end when i realized how little these people care about my son's life.  I teared up as I was walking out, i left the school and then i cried.  of course i had to stop cause i still had to pick up DS but once i got home, i just cried and cried.  I feel so hopeless.  I never thought they'd refuse.  never.  apparently they felt his school was too strict and they wanted all the schools on the same page.   i'm at such a loss right now. part of me wants to pull him out of school but then what?  they have a duty to provide a safe learning environment for hima nd they're not doing that, how is that fair to him.  How dare they say other kids getting their stupid fattening cupcakes is just as important as DS's safety and ability to attend school.  they told me that i'm trying to put him in a bubble and that he could just as easily have a reaction from touching a door handle.
anyway, tonight i just sit here and cry cause i'm so so sad, but tomorrow, i have to fight and start calling anyone who will listen to help me get this fixed!

Title: Re: New here, but need help before meeting with principal
Post by: CMdeux on January 12, 2012, 11:14:43 PM
First--  :grouphug:

I think that you did well for your first at-bat. 


Did you get your eligibilty SIGNED and IN WRITING?


If not-- insist on this.

We can help you to write a letter of understanding to get the ball rolling.

On that and on other things.

Firstly, you're going to include this person's BOSS in your letter, and you're also going to include the special education people at the district level.

And you're going to "explain" exactly what this tool told you in this meeting-- that some accommodations were already "off the table" so to speak, before even writing the plan.

Then include a copy of Letter to Zirkel, explaining that "reasonable" isn't the standard, and follow it with evidence from OCR which explains that they CANNOT 'refuse' necessary accommodations.

You could explain that they are CHOOSING to ENHANCE RISK in the educational environment and demand that THEY sign a statement that they understand and agree to continue taking this elevated risk, knowing what they are risking. But I would give them one more chance, first.

Here's a name that should make this administrator QUAKE with terror (so use it with caution):  Nathan Walters.

I can give you two other fatalities from your state that should really and truly strike terror into the hearts of litigation-fearful school district attorneys.


Do you have a physician to write a letter for you?  You'll need that, it sounds like.  We can help you there, too.

Honestly, there have been less auspicious beginnings.  Don't worry-- you're helping them.  Honest.  They'll get there eventually.   :heart:
Title: Re: New here, but need help before meeting with principal
Post by: Lianne on January 13, 2012, 12:02:45 AM
Oooh and I forgot to add that the district nurse told me there's something I should keep in mind.  If I push this then word will eventually get around that it is my DS's fault that no one in class can have cupcakes and that could cause problems.
I'm sure she didn't mean it but it certainly sounded like she was trying to intimidate me into worrying that DS will be blamed and/or bullied.  After the fact, I found what I wanted to say which was, so do you allow bullying in your school as well?
Title: Re: New here, but need help before meeting with principal
Post by: twinturbo on January 13, 2012, 07:05:05 AM
On the surface it seems ridiculous over cupcakes (hint: this is not really about cupcakes) but what the nurse said/did actually constitutes intimidation by alluding to a threat of retaliation based on disability. I'd make a note about that including time, date, statements any time you encounter it from any source whether it is from a school official or parent, and if you're not keeping a log, a folder, start one.

We all handle it differently. I like to call BS aloud when it finds me such as, "Wow, sounds like that might have INTIMIDATED a person or two in the past from invoking disability law. Good thing medical privacy and bullying students is legally protected." End with a mirthless Jim Carrey laugh.
Title: Re: New here, but need help before meeting with principal
Post by: ajasfolks2 on January 13, 2012, 07:20:02 AM

We all handle it differently. I like to call BS aloud when it finds me such as, "Wow, sounds like that might have INTIMIDATED a person or two in the past from invoking disability law. Good thing medical privacy and bullying students is legally protected." End with a mirthless Jim Carrey laugh.

Excellent!

Might even go so far as to use "You wouldn't be attempting to intimidate this food allergy family into giving up rights to inclusion in this public school, would you?"

Title: Re: New here, but need help before meeting with principal
Post by: twinturbo on January 13, 2012, 07:26:52 AM
Maybe. The more practical way might be to keep a straight face while you say Oh, my! How would the parents find out if medical information is so highly protected? Who are you telling me would retaliate against us? What are you saying they will do to my child? Who do you think I should report this to?

I mean, she wants to go there? Suuuuuure. Let's really go there. Put it all out, sister.


ETA: This is a portion taken from a short article on witness intimidation. An all too common tactic in discrediting a hidden disability involving the immune system triggered by food is to emphasize the food rather than medical condition. Hence, see the forest for the trees. It's still intimidation.

Quote
Witness intimidation commonly takes two mutually-reinforcing forms.[5]

Case-specific intimidation involves threats or violence intended to discourage a particular person from providing information to police or from testifying in a specific case.
 
Community-wide intimidation involves acts that are intended to create a general sense of fear and an attitude of non-cooperation with police and prosecutors within a particular community.†

Beware that you're likely dealing with a gossip rich school. "It will get out" "the parents" "problems for your child" to me reads Community-wide intimidation.
Title: Re: New here, but need help before meeting with principal
Post by: ajasfolks2 on January 13, 2012, 08:17:43 AM
Amen and alleluia!
Title: Re: New here, but need help before meeting with principal
Post by: CMdeux on January 13, 2012, 11:42:20 AM
I like to use "I'm confused" statements in order to get "clarification" when someone tries to pull this kind of crap with me.

For example, in response to "we can't control... blah-blah-blah";

"I'm confused-- are you telling me that you lack the authority and ability to control student behavior at school-sanctioned events??  <pregnant pause>

Wow.  How do you prohibit inappropriate activities like smoking, then?
<pause again>

Or is it that you just don't want to?  There seems to me to be a difference between 'can't' and 'won't' here."


 :evil:


Another approach is a sunny "Oh, I just KNOW that would never happen," (meaning intimidation or the creation of a hostile learning environment due to releasing your child's private medical information) "because I'm sure that everyone in this room-- everyone who would need to have the information about my child, in fact-- would NEVER gossip about my child's privatemedical information like that.  So how would all these parents know, hmmm?  I'm sure that won't be a problem.  Unless there is something else that you aren't telling me, I mean.  Is there?"


The hard-line approach, of course, is to suggest none-too-gently that what you are hearing IS harrassment and intimidation already.  Which it is, of course-- but you want to play a long game here, if you'll pardon the euphemism.   I personally think it is best to remain "the calm one," which you've done ADMIRABLY at so far.  Not bursting into tears in the face of such a meeting is quite a feat, really.   :yes: You should be proud of yourself.

Being calm means simply being an immovable force in this context.  Know the law, know what your child's rights are, and KNOW that you will win.  Because you are in the right. 

Making a child's medical condition the scapegoat for undesirable changes in schools is-- WRONG.  Illegal in no uncertain terms.  If they wouldn't announce "No more climbing wall during PE for the first through third graders, since John in Mrs. Smith's room has Juvenile RA, so it's off-limits for him," then they shouldn't be announcing blaming a child as an explanation why there won't be a (food project) either.

Threatening to release a child's federally-protected, private medical information is BAD.  My school tried this tactic with me once, too.  I told them to call their attorneys and talk that one over.  And I laughed.  I also pointed out that they were basically threatening to tell EVERY IGNORANT PARENT who found out about it precisely how to KILL my daughter.  I don't take that risk, because all it takes is one person who is both completely ignorant, over-confident that it's an exaggeration, and also a bit indignant over changes to things to render that situation deadly.  Yeah, what are the odds, right?  Not too many of THOSE people around.   ~)

This message sunk in, apparently.  Because that was the last time that I was "encouraged" to "share" about the specifics of my daughter's food allergies with all and sundry, and it was the last time that handwashing and food restrictions at events were "blamed" on them, too.

 

 


 
Title: Re: New here, but need help before meeting with principal
Post by: Lianne on January 13, 2012, 12:33:45 PM
Is there a resource where I can call someone who can help me through all these steps?  I did reach out a support group, and they were very helpful but it was a bit vague.  I hate to admit this but I need some hand holding, I've read what needs to happen next but I don't understand how to phrase it and all of that stuff.  Right now my husband is deployed so this is falling at an even worse time than it could have been had he been home.  Some friends suggested I go to the media with it, but I'm trying to give the school district a chance.  I want to see if it's just this principal and district nurse or if it's everyone.  I was told by a the support group lady that the principal cannot ignore a letter from his doctor.  I hope this is true.  I've already called him and I explained what is going on and told them what specific language needs to be in the letter.  I have an appt on tues with the woman in the district office in charge special needs, or special education, to be honest I don't remember but she oversees the nurse, which I don't understand as I thought being a district nurse she was the highest I could go, but this is great hopefully this woman is helpful.  Of course the earliest is Tuesday at 4.  Then I have an over the phone appt with someone from the education ombudsman team at the gov's office on wednesday.  I will also be getting a call back from someone at the OSPI, I think it's called but again, not til Tuesday. 
I really didn't want to take him to school today, but if I didn't, it felt like I was saying I give up.  So I approached his teacher and said ok they won't fix things, but here are my requests to you, give him his treat first, make sure all the tables are wiped down, floors swept and hands washed.  She agreed to it all very willingly.  I asked her why we can't hand them out at the end of the day and was told "no because of the no food on the school bus policy" and clearly that can't be changed.  although maybe there's an allergic child on the bus and that wouldn't be fair to them.  DS told me that it was a student's mother handing out the cupcakes yesterday but told me that only his teacher touches his treat box, so at least there's that. 
As for the thing about private medical information, the thing is everyone in his class knows about his allergy, so if the parents read that peanut products were banned all they would have to do is ask their child and they'd easily know it was my son who's the "problem"
Title: Re: New here, but need help before meeting with principal
Post by: Carefulmom on January 13, 2012, 01:08:51 PM
I am at work and have to keep this really short, but just wanted to say a few things.  You will get through this.  You have lots of people here who know all about the laws relating to food allergies as a disability and they will walk you through it.  Really, they will tell you step by step.  Also, you mentioned you are in Washington state.  Sometime around 2000 to 2002 there was a death of a third grader in Washington state.  I think it was in Spokane.  He was allergic to peanuts and died on a field trip.  School mistakenly gave him a pb cookie.  He was told it was safe and thought it was a sugar cookie.  He reacted and the school did not give epi until 1 to 2 hours later.  He died.  My understanding is that since then the laws in Washington state have gotten stricter as far as food allergies, although I may be wrong and that may be specific to Spokane.  His name was Nathan Walters.  There is lots of information out there on this, or at least there was.  It was a long time ago.  However, his story helped me when dd was younger as far as getting accomodations.  Once the school makes that fatal mistake, there is no undoing it.  His father has posted on our old board.

BTW, I am a single mom.  It is hard when your dh is deployed, but you will get through this.  Also, there is a food allergy advocate out there named Rhonda.  Website is www.foodallergyadvocate.org   I am pretty sure that her phone number is on her website.  She is supposed to be wonderful.  Several on this board thought she was great.  However, one person tried to contact Rhonda and never got a response. 

I have to run.  I will come back to this thread over the weekend.
Title: Re: New here, but need help before meeting with principal
Post by: ajasfolks2 on January 13, 2012, 01:47:04 PM
Hang in there, Lianne. 

I'll try too to get into this thread over weekend with some step-by-step help.

Be sure to log in to your username rather than posting just as guest -- you may get some private message help as well to your username, especially if you want to keep some details "behind curtains" -- if you know what I mean.

Thank you to your husband AND you & family for your service.

Title: Re: New here, but need help before meeting with principal
Post by: CMdeux on January 13, 2012, 03:05:27 PM
I cannot caution you strongly enough to NOT engage the media here.

DO NOT.

It pretty much never goes well.  I've seen dozens of instances where it's been done over the years, and NONE of them have gone in a direction which is sympathetic to the family... or, more to the point, to the child.  It doesn't matter how heinous the behavior of the school or other parents has been, it doesn't matter how "reasonable" you are.

Disgusting?  Yes.  But it makes the "my RIGHTS! my FOOD RIGHTS!!" crazies come out of the woodwork.  Some of those situations can (really) become scary and possibly even dangerous as those nutsos go about "proving" you a loon.  How?  By exposing your child and "demonstrating" that nothing happens. 
With a very sensitive child, you really can be handing some nutjob in desperate need of a anal craniotomy a way to 'get' at your child.

I know that sounds paranoid.  But hell, we've all had family members who have leaned in that direction-- why on EARTH wouldn't we be willing to admit that a hostile stranger might?

  Also-- if *you* treat your son's medical and disability information as though it isn't private, then why should the school handle things differently?  Answer-- they won't.  At least not one BIT beyond what they are obligated for under the law, that is.


We can help you with verbiage-- either on the open boards, with names/places redacted, or via PM. 

Stinky's posts may be especially helpful to you, as she is also in your state.   :yes:
Title: Re: New here, but need help before meeting with principal
Post by: yelloww on January 13, 2012, 06:34:12 PM
Btw, before you send your letter of understanding, pm it to CM or someone else in this thread (I could do it but I don't always login) to make sure you aren't missing anything. We will edit the letter for you.
Title: Re: New here, but need help before meeting with principal
Post by: yelloww on January 13, 2012, 06:42:37 PM
Also, you need to think of this as a game of chess.

They made a move (by letting the food into the classroom without notice)

You made a move (by meeting with them today)

They made a move (by threatening to expose private medical information and telling you what he is NOT elligible for with accommodations even though no formal 504 paperwork was signed/written)

Now it is your move.

Do NOT be reactive. Do your research here in the schools forum (and the subforum). Give us every question you have. Figure out your plan.

THEN make your next move. And make it so that it is one where they very quickly realize that the law is on your side.

Especially in WA. Especially after Nathan Waters. We all know his name here.

Don't go to the media. And be careful about withholding attendance. If you have to, people here can pm you about it. There can be consequences for that as well.

Basically you want this to go your way without escalating it into a huge fight. Do that the same way you would win a game of chess: wit, research, intellect, and calculated moves.

 :grouphug:
Title: Re: New here, but need help before meeting with principal
Post by: lakeswimr on January 13, 2012, 07:28:38 PM
Can you get a doctor's note saying your child's classroom should be free of allergens because your child is contact reactive?

Ditto the not going to the media.  Would not help your case.  I would consider hiring a food allergy advocate if I were you.
Title: Re: New here, but need help before meeting with principal
Post by: yellow on January 13, 2012, 08:43:03 PM
Oh and you may want to change your screen name to something more generic in case your district does any googling about FA's and schools. This site is one of the first to come up.
Title: Re: New here, but need help before meeting with principal
Post by: AllergyMum on January 13, 2012, 09:04:39 PM

I live in Canada so I can not help with any advice on the US's 504 process, but I did want to offer you a BIG HUG of support.  I know that this is a very difficult time for you and your family, but you are a Mum and Mum's can and will do everything to make a great life for our kids.  Keep working towards the creation the school environment that works for your family.
Title: Re: New here, but need help before meeting with principal
Post by: LianneV on January 13, 2012, 09:37:05 PM
Thank you everyone so much.  My family and friends are supportive but they are just as much in the dark as I am with all this, so it's great to have people who are much more in the know, although sad that we all have to deal wtih this.
When I got home from picking up DS this afternoon (btw I saw the principal and district nurse in a meeting with a woman, might be coincidence but maybe not) anyway, I realized I had a message on my home which I never checked.  Turns out the head nurse left me a message at around the time I was taking Ds to school.  Asked if I could stop in today cause she "felt bad that I left feeling uncomfortable" and her heart goes out to me so she "did some research" and has some options for me that might make me feel better.  Of course by the time I heard the message it was too late, but I wonder why the research wasn't done before the meeting.
Thank you all for the advice about not going to the media, I never even thought of it htat way so I will be steering clear of that path.
His allergist is writing a letter for me before my meeting on Tuesday with the woman in charge of the school's district's special needs (again I think that who it is) I did specify that it needs to say allergens can't be in his classroom. 
One school here in washington just pulled kiwi out cause a child who is highly allergic had a reaction while  in a "safe area" yet they just don't get it.
I agree that I need to be careful and not rush back in there.  So here are my questions.
as I said at the meeting the principal said she'd be happy to write a 504 plan but will not write in an accomodation for not having peanut products in the classroom.  I have the doctor writing the letter but then what?  What is a letter of understanding? She didn't question his eligibility just refused that accomodation, so how do I get him a plan if she refuses to write it in? What do I do now?
Do I bring up the names of children like Nathan Walters?  Will that make them take me serious?  It's pathetic how terrified schools are of lawsuits yet they're willing to risk my son safety, don't they think I'd sue them then?
I keep going over the meeting and getting more annoyed.  The nurse used the words "fatal reaction" like it's some clinical thing and I keep thinking, that means I will be burying my son, so don't make it seem like it's some foreign concept that doesn't mean anything.
Title: Re: New here, but need help before meeting with principal
Post by: Carefulmom on January 14, 2012, 10:41:51 AM
You have gotten lots of great advice here, so I don`t have much to add.  I would work on getting written verification that he has been found to qualify under section 504 before you discuss accomodations any more.  I know that keeping the peanuts out of the classroom is a pressing issue.  However, I would still try to keep it qualification first, accomodations later.  Maybe you can temporarily work something out with the teacher.  Buy a package of brown paper bags and give it to her so that if birthday treats come in they can be passed out in a brown paper bag for each child.  If the child rides the bus, he can eat the treat when he gets home.  In my opinion, they are making the logistics sound much harder than they really are.  It seems to me that they don`t want to work out a solution (operative word "won`t" as opposed to "can`t").  There is no need to pass out birthday treats in the classroom.  There are so many other solutions.  I`d be really worried about getting the classroom contaminated.  Also, I would work in FAPE when they give you a hard time.  It is not about what accomodations are "reasonable".  I believe "reasonable" is the standard used for workplace disability accomodations under the ADA.  However, if your son is in public school and/or a school that receives federal funding, he is entitled to FAPE---Free Appropriate Public Education.  If the classroom is not safe for him or he is asked to leave so that his allergens can be passed out in class, he is being denied access to FAPE.  That phrase may come in handy when you work on accomodations.  But for now, I would just work on getting it in writing that he qualifies for a 504 plan.

Also, I posted recently a letter about disability harassment.  Your child is protected from harassment due to disability.  If the school wants to threaten that there may be repurcussions to your child if the parents cannot bring in cupcakes, I would point out it is the school`s legal responsibilty to address and put a stop to disability harassment.  I will come back and post the link to the letter.  I had to use it with our elementary school, and the harassment stopped immediately.  I would not let them threaten repercussions to your child.  I would try to calmly say, "Well, since he is legally protected from being harassed due to disability, it will be up to the school to keep that from happening."

Also, our school tried to remove accomodations dd had (she is in high school, different situation), claiming that they had consulted with their attorney.  They were removing accomodations that they were not legally allowed to remove.  I guess they didn`t plan on me knowing the law.  Either I know more about disability law than their attorney (just from having a food allergy child; I am not in the legal field) or else they never really consulted with their attorney.  In my situation they sent me a letter saying their attorney said that they can remove a certain accomodation so they are removing it.  I called the Office of Educational Equity Compliance in my state and the Office of Educational Equity Compliance called the school, told them what they were doing was illegal, required an additional 504 meeting with them present.  So if your school says their attorney says blah blah blah, don`t let that intimidate you.  It doesn`t mean that their attorney is correct, or that they even really consulted an attorney.  They may be bluffing, as they probably were in my situation.  Either they were bluffing or the attorney did not know the first thing about disability law.

Keep us posted.  You may want to call Rhonda www.foodallergyadvocate.org  (860) 760-6636 if you really feel you need some hand holding.

ETA:  I would not let them railroad you out of getting it in writing that he qualifies under section 504.  If they try and sidetrack you with well we won`t give a peanut free room or we won`t do handwashing, I would just keep repeating your one sentence that you are requesting written verification of the fact that he is eligible under section 504.  I would just ignore their comments that they won`t do this or that for now.
Title: Re: New here, but need help before meeting with principal
Post by: Carefulmom on January 14, 2012, 10:50:42 AM
Here is the link to the letter about disability harassment.  If it happens, they are legally required to address it and put a stop to it.  Otherwise your child is being denied FAPE.
http://ed.gov/about/offices/list/ocr/docs/disabharassltr.html
Title: Re: New here, but need help before meeting with principal
Post by: LianneV on January 14, 2012, 01:15:25 PM
So, I can get the eligibility without the accomodations.  I thought that part of the 504 plan was the accomodations and that without them there wasn't any point in getting it.  Ok so once I get the letter from my doctor do I sit down with them again and tell them I will not be discussing specifics, I just want him to be deemed eligible?  How does that process work?
Title: Re: New here, but need help before meeting with principal
Post by: lakeswimr on January 14, 2012, 02:16:56 PM
Eligibility and accommodations are separate.  The school's 504 committee will vote on whether or not  your child is eligible or not.  You can use resources you can find here to prove eligibility.  I have a short one pager I used I"d be happy to share with you.  Send me a message and I'll PM it to you.  Others have posted things you can use to prove eligibility. 

Accommodations are usually negotiated.  I would get a letter from your child's allergist or doctor saying she is contact ingestion allergic, has had ana from contact ingestion and it is a risk for her so her classroom should be free of allergens.  This is a fight you may, unfortunately, lose.  It is still worth getting a 504.  504s can be added to and modified and the classficiation will follow her to college so she can qualify for accommodations then, too.  It is good to have.  504 doesn't guarantee a person will have all the accommodations they need, though.  I had an IHCP for DS and no 504 for years and his IHCP was much better as far as accommodations on paper and what the school really did than many with 504s.  Having a good relationship with the school is usually helpful in getting accommodations.  In  your case the school shot the first arrow already and make things bad by changing the plan without notifying you so playing nice may or may not be helpful to you.  You probably have to instead be very insistent, firm, and professional (not emotional as they will write you off for that.)

I'd print out examples of 504 plans from here and from kids with food allergies website, etc and use them to show that what you are requesting is typical and basic.  I'd look at FAAN's website in their school section, too.  You can call FAAN and speak with them.  They have Chris Weiss, their legal expert who gives free advice.  you can also get guidance on how to proceed from a food allergy advocate that you can hire.

You should not sign the 504 until you have finished negotiating the contents of it.  YOu can write up a proposed plan and show it them and go from there.  If they refuse x, y or z I'd put in writing your concerns of what can happen if they don't do X, y, or z.  Maybe a solution is to have all food eaten in the cafeteria.  My son's school does that.

You might look for people concerned about the school wellness plan. There should be a group interested in this.  Our district eliminated cupcakes because ONE mother went to the school board and complained when her child was given 3 treats at one party.  It just took her to get the school board to establish a new wellness plan!  I'd talk to them about how districts around the country are doing away with cupcakes for bdays due to lost instructional time and obesity issues, etc. 

I also like Allergy Moms! website.  Gina there made an ebook and resources and has a 90 min talk you can download.  It costs maybe $20 for the book and 90 talk and its good stuff. 

It will be a work in progress.  You can do this!  Get help if you need it. Sounds like you do and if you can afford to pay for help it could be very, very worth it.  What I would do if I were you is hire an advocate to hear your sitatuion and give you a big picture plan rather than someone to hand hold you through the whole process. If you get stuck in negotiations later you can pay for another consultation at that time.
Title: Re: New here, but need help before meeting with principal
Post by: yelloww on January 14, 2012, 03:37:03 PM
Also, is this a public school? Most have wellness plans on file that are tied to some sort of federal funding now...
Title: Re: New here, but need help before meeting with principal
Post by: ajasfolks2 on January 16, 2012, 06:36:57 AM
Assuming this is public school?

#1 (1. a.)  = go to school district's website and read and print everything there as to their "process" for 504.  From the sounds of things your school has not even appropriately followed the policy & procedure process that they likely publish.  Their policy and procedure is supposed to comply with federal law.

For 504 --
First there is an official request for 504 Eligibility Determination.  Typically this is from the parent, but a staff member or other person may request as well (by law).

The ELIGIBILITY for 504 needs to ber officially determined BEFORE any 504 accommodations are agreed upon and granted (hopefully written plan).



YES -- (#1.b.)  meanwhile get with allergist and get everything POSSIBLE put into writing by allergist on his/her letterhead. 

AND make it plain -- politely but firmly and in writing -- with allergist's office that all correspondence between physician's office and school GOES THROUGH YOU and needs to be in writing.  You are patient/parent and there shouldn't be any attempt by school to cut you out of that or for them to attempt to influence YOUR physician behind your back (we've seen this done a lot here). 


Title: Re: New here, but need help before meeting with principal
Post by: rainbow on January 16, 2012, 11:30:27 AM
Agree - do NOT contact media. NOT NOT NOT.

You are doing great. Nurse is on your side and has compassion.  That will be very helpful.  Teacher seems reasonable.

However, you do need a documented 504 Plan with accomodations.

The law is on your side.  Things have evolved over the past few years and this has gotten easier.  The allergy parent that knows the law almost always wins now (ie, gets the 504 Plan). But it can still be stressful going through this.  Just stay calm, keep educating yourself, and be strategic in the meetings.  YES, bring the Nathan Walters information (there is a powerpoint presentation you can find if you google).  Have it available to use in the meeting when appropriate. When they try to say "that would never happen here" say GOOD well that is exactly why we need a detailed 504 Plan so everyone is CLEAR.  Successful LTFA management at school is in 1) PREVENTION and 2) Immediate access to Epipen.  RISK REDUCTION is very, very important. 

If they are refusing a 504, then you start documenting the risky things they are doing.  State you are uncomfortable, that the professional (AAAAI, AAFA etc) recommendations are for NO food in the classroom or if there is food, ONLY food with clear ingredient labels showing the child's allergen is not present.  Even still, ingredient labels often change and must be continually monitored (ie,  I read them at school before my child partakes in the shared food activity -- the process for this is outlined in the 504 Plan).  If they are sharing too much info (ie, "other parents want to bring cupcakes" etc.and blaming the allergy child, you need to remind them that your child's medical information is PRIVATE and protected by FERPA and only staff "needs to know" of your child's LTFA.

Just keep asking us as you get ready for the meeting.

Also print out this from wrightslaw (see the link to actual letter, and the legal commentary):
http://www.wrightslaw.com/blog/?p=58

Also be sure you know the ADA Amendment (2009 I think) which INCLUDES Life Threatening Food Allergies (and Asthma) as conditions covered by ADA and 504.  If you don't have time to read it, just refer to it as "The ADAA in 2009 made it clear that LTFA are covered under ADA and 504.  Why would you not comply with the ADA Law?" 

The ADA Amendment + the OCR Lettter to Gloucester both made it MUCH easier to get a 504 Plan for LTFA.  Schools basically must comply with the law. They do try to "play dumb" but they KNOW. It is just a stall tactic. I caught my Director of Special Ed (504 Compliance Officer) in some lies here...but then the OCR Letter to Gloucester came out and suddenly they complied after stalling for a year.  The more knowledgeable the parent, the quicker it should go becuase this is one they really can't win -- esp when you pull out articles on the recent deaths in schools from LTFA (the one in VA, Nathan Walters, one in Chicago last year, etc).
Title: Re: New here, but need help before meeting with principal
Post by: LianneV on January 16, 2012, 03:16:52 PM
Ok I got my letter from DS's doctor, (who it turns out is also the clinical assistant professor of pediatrics for the university of washington!  Never even knew that!)
Amongst other things it explains how DS knows  to avoide peanuts but may come into contact with peanuts, especially at a young age crosscontamination is such a risk and needs an epipen at all times and he is requesting that DS be in a peanut free classroom to ensure his safety. (Maybe they can stop telling me I'm just being emotional now)
So here is my current plan.  I will go to the school district meeting tomorrow and talk to them (armed with my letter) and talk to the 2 people calling me back tomorrow and wednesday from ospi and the education ombudsman so I get all the info I can. In the meantime, I will set up my second meeting to happen after that so maybe thurs or friday.  With any luck, the district office lady will be on my side and if not, I will go with my letter and request that his 504 eligibility be ascertained.  When I call to schedule the appt with the principal, do I tell her on the phone that I want it to be a 504 eligibility hearing and that I want a 504 team assembled?  Can I request the school nurse be there as well as teh district nurse?  I don't want to get her in trouble by agreeing with me, but it'd be nice to have her there.  Who else is usually there?  I know the principal didn't take anything into consideration when I asked about the accomodation.  I didn't have a letter, she didn't have anyone but the nurse there and just flat out said no without any discusssions that I know of.
Having read the OCR letter, I will now bring that up and tell them once the 504 eligibility has been established, if they are not willing to make it peanut free, I will go to the OCR and ask for an investigation at the school to look into discrimination against my son by not abiding by the FAPE rules (silly question, it's pronounced  Fape as in cape right? I just want to make sure I look like I know what I'm doing) I will also bring up Nathan Walters.  Am I allowed to bring in a tape recorder to record the meeting?
Am I missing anything?
Title: Re: New here, but need help before meeting with principal
Post by: Carefulmom on January 16, 2012, 07:31:58 PM
I would take it one step at a time.  I think you need a 504 for him no matter who is or is not on your side.  I would request the 504, whether or not the district office lady is on your side.  They can promise you whatever you want verbally, but without a 504 plan, it is meaningless.  They don`t have to follow it, can say they never agreed to certain accomodations, can say the conversation never happened, etc., etc.  I would get the 504 designation and not discuss any accomodations until you have something in writing saying that he is eligible.  I would not get into the fact that once eligibility is established, if they are not willing to make it peanut free you will....  I think all that will do is make them more reluctant to find him eligible.  I would get written documentation of eligibility first.  I really would not get into discrimination and FAPE until they make a decision about his eligibility (which should be that he is eligible, but anything can happen).  Yes, it is FAPE, rhymes with "cape".

As far as recording it, you are allowed to bring a tape recorder, but they have to be informed that you are recording it.  I guess that is obvious.  They have to agree to it.  There is at least one person on this board who has recorded 504 meetings and she has a good line for how to tell them that you are going to record it.  Is it McCobbre?  Not sure if it is her or not.
Title: Re: New here, but need help before meeting with principal
Post by: yellow on January 16, 2012, 07:41:46 PM
Wait! You are jumping around all over the place.

tonight you need to type up a formal WRITTEN request for a 504 eligibility meeting. Hand that to the principal tomorrow. Tell him you are sending a copy to the 504 director for the district.

Photocopy the letter from your allergist and attach it. In your request for the 504 meeting, write something like "in light of recent changes made to policies for Johnny's classroom, and the recommendations made by my child's allergist (see attached), I am formally requesting a 504 eligibility meeting.

You cannot talk accommodations until you have had that meeting. Certain people have to be there amd there are procedures and paperwork that go along with it so they can't just throw it together for you tomorrow. It is not your job to request people be there. The district nurse, and probably the school nurse should be part of the 504 team for the bldg. In my district, the building guidance counselor is the 504 coordinator for each bldg. she organizes the schedules for the meetings.

Do NOT talk about 504 accommodations until you have had a formal eligibility meeting and he's been deemed eligible.

If he has a health plan currently, the letter from the allergist could be part of the dr's orders. For the school to follow. Maybe for now they can add it to his health plan.

Do not jump the gun with the OCR. You don't have enough of a case yet. And don't bring it up in the meeting either. Let them paint themselves into a corner, then talk to the OCR. You don't need to inform the school that you may be calling them if things don't work out well. That's threatening to them and puts you in an adversarial position that won't help you get what you want.

In my state you can bring a tape recorder. I don't. It makes people nervous and give them the impression that I'm there for a fight. Really, I'm there to get things resolved.

If the nurse is on your side, then you should be ok. She can talk sense into the principal usually if she has a clue.

Just remember you must follow the processes which means this won't be resolved tomorrow most likely. They have 30 days to schedule the 504 meeting after receiving the request.
Title: Re: New here, but need help before meeting with principal
Post by: LianneV on January 16, 2012, 11:22:48 PM
Ok so new plan.  Type up request for 504 eligibility tonight.  (is it basically just a "to whom it may concern I would like to request that my son be evaluated for 504 eligibility) attach copy of dr. letter, go to school tomorrow (assuming there is school we got a whole bunch of snow today) and just hand it to the principal to get the ball rolling and start the count on the 30 days they have to comply.  My guess is they'll take as long as possible since they clearly don't seem that helpful thus far. 
Sadly the nurse protested the decision to change but wasn't listened to, it's the district nurse who is against removing peanuts, unfortunately
Title: Re: New here, but need help before meeting with principal
Post by: rainbow on January 17, 2012, 09:51:32 AM
Right. Definitely include the attachment.  And request the meeting occur ASAP -- if they are reasonable they may indeed turn tomorrow's mtg into the 504 meeting. Honestly, it is really the same meeting, just more formal.  I'd request that in the meantime, they are COMPLIANT with the doctor's order attached. 

Bring a red folder to the meeting which includes things like:
- OCR Letter to Gloucester
- Nathan Walters Powerpoint
- Article about other kids that died in schools very recently (VA this month and Chicago last year)
- ADA Amendment showing that LTFA is covered (get from OCR site)
- AAAAI Position Statement on Anaphylaxis in Schools (recommends non food celebrations or only safe packaged treats with clear ingredient labels; recommends handwashing to remove allergens)
Be ready to refer to those documents at appropriate times.

The main thing you want to state, if they are pushing back and trying to not accomodate, is that you are uncomfortable with the risks they are taking and they are putting your child at risk of a severe, possibly LIFE THREATENING reaction.

Know the accomodations you want:
- Nut free classroom
- Nurse on field trips (or you go, or both)
- Birthday celebration/ Class party food - SAFE food or NON-food celebrations; NOTICE of food celebrations
- Handwashing
- Full time nurse, and/or Epipen designees available at all times
- Anaphylaxis training for staff
- Cafeteria (seating, food, etc - food is an easy one as FDA instructs them to comply with 504 - another reason to get one!)
- Bullying / threats (how will they handle this)
- ETC

I would not sign 504 in Meeting unless you feel they are bending over backwards to grant excellent accomodations in writing.  I'd take it home, sleep on it, review it with us, ensure it is thorough, etc.

You're going to do great.  :thumbsup:
Title: Re: New here, but need help before meeting with principal
Post by: rainbow on January 17, 2012, 09:52:34 AM
Ok so new plan.  Type up request for 504 eligibility tonight.  (is it basically just a "to whom it may concern I would like to request that my son be evaluated for 504 eligibility) attach copy of dr. letter, go to school tomorrow (assuming there is school we got a whole bunch of snow today) and just hand it to the principal to get the ball rolling and start the count on the 30 days they have to comply.  My guess is they'll take as long as possible since they clearly don't seem that helpful thus far. 
Sadly the nurse protested the decision to change but wasn't listened to, it's the district nurse who is against removing peanuts, unfortunately

If the meeting is tomorrow, I would just bring this letter to the meeting.
Title: Re: New here, but need help before meeting with principal
Post by: socks on a rooster on January 17, 2012, 10:03:59 AM
I have tape recorded meetings. In my state you must ask permission something like 24 hrs in advance. I did this via email.

I agree not to discuss accommodations until he is approved. But, be prepared for them to say yes, and for the eligibility meeting to turn into a 504 meeting immediately to discuss accommodation plans. It is typical for a team to attend the meeting. This might include the principal, nurse, district nurse, teacher and possible Director of Special Education (disabilities).
Title: Re: New here, but need help before meeting with principal
Post by: ajasfolks2 on January 17, 2012, 10:05:43 AM
Wanting to suggest again that you find the online info for Special Ed/504 in your district.  There may be some add'l info as to # of days they have to respond and forms for inviting supporting people to your meeting . . .

Title: Re: New here, but need help before meeting with principal
Post by: LianneV on January 17, 2012, 10:17:12 AM
Sadly, I know they won't say unless forced as to, as the principal was extremely firm in her decision that they are already taking "reasonable" measures.  I will ask that they be compliant with the doctor's request, but they won't until forced to legally, they made that very clear.  I was going to go in to schedule the meeting for ASAP, but today and almost definitely tomorrow are snow days, so I'm on hold til Thursday just to even set the meeting up.  Not to mention, my meeting with the school district is now cancelled too!  I don't mind the snow but it picked a bad week to hit us this hard!
Title: Re: New here, but need help before meeting with principal
Post by: ajasfolks2 on January 17, 2012, 10:21:12 AM
"Reasonable" does not apply in 504 for life-threatening food allergies.

"Necessary and appropriate" DOES.




Meanwhile, take a deep breath and enjoy the snowdays with kids home safe with you.    :grouphug:


Title: Re: New here, but need help before meeting with principal
Post by: rainbow on January 17, 2012, 12:38:05 PM
Sadly, I know they won't say unless forced as to, as the principal was extremely firm in her decision that they are already taking "reasonable" measures.  I will ask that they be compliant with the doctor's request, but they won't until forced to legally, they made that very clear.  I was going to go in to schedule the meeting for ASAP, but today and almost definitely tomorrow are snow days, so I'm on hold til Thursday just to even set the meeting up.  Not to mention, my meeting with the school district is now cancelled too!  I don't mind the snow but it picked a bad week to hit us this hard!

In my case, they started to come around when I started stating in writing that 'I am uncomfortable with the risks the school staff is taking with regard to shared food in the classroom'  and that 'as a parent of a child with life threatening food allergies, I felt they were subjecting my child to risks, and that should there be a reaction, the school staff is responsible due to unwillingness to provide a safer enviornment, as recommended by the child's board certified allergist, due to the life threatening nature of his food allergies...']

Use the words 'life threatening' whenever you refer to the allergy, because that is what makes it fall under ADAA/504, and makes the OCR Letter to Gloucester relevant.
Title: Re: New here, but need help before meeting with principal
Post by: LianneV on January 17, 2012, 12:51:11 PM
I actually told them both of those things in the meeting and was told that I'm being emotional and they have to be fair to the other 399 students. That their responsibility is to  have reasonable procedures in place and that was as far as they would be willing to go.
Looking forward to the little one's nap so DS and I can go play in the snow in the backyard!
Title: Re: New here, but need help before meeting with principal
Post by: twinturbo on January 17, 2012, 01:22:36 PM
I'm curious, did they say yes to eligibility then? This was an eligibility meeting? Or was it a fast tracked eligible then immediately talk accommodations after?
Title: Re: New here, but need help before meeting with principal
Post by: CMdeux on January 17, 2012, 01:34:23 PM
Okay-- understand that the following ASSUMES that you've already covered eligibility.  I want to emphasize that you need that LOCKED in before you address accommodations.  To the point that you will need to play stupid if they try to side-step and figure out what you "want" in order to decide whether or not they are willing to do it (ie-- grant eligibility in the first place, since that obliges them to make accommodations).




Look over at Wrightslaw about the "letter of understanding."

Use that to get this word.... REASONABLE...

 from them in writing.

Then bring in Letter to Zirkel (also available at Wrightslaw as a PDF, I believe) to disabuse them of this erroneous notion.  "Reasonable" does not apply to this part of ADA.  In K-12 education, it's about FAPE and LRE.  NOT 'reasonable.'

Smile wolfishly and sweetly tell them that you understand completely that they were CONFUSED about this word, and that perhaps they'd like to confer with district counsel-- or, better yet (!!) that they could CALL OCR THEMSELVES.  For technical assistance in understanding this matter.  Maybe even add that (if you've called the helpline yourself) OCR is incredibly helpful at explaining this matter clearly.  :evil:

I did that.  Seriously.  It was very effective.  The school was entirely taken aback that I was SO certain of my standing on this point that I invited them to consult their attorney and OCR.   :thumbsup:



<cue Princess Bride quote here... This word.... I do not think it means... what you think it means...>



For clarity, the "letter of understanding" is a method of documenting verbal weaseling that happens in e-mails, but mostly in meetings, conversations, and phone calls.

An example of how it can be used:

Quote
Mr. Malevolent Administrator,

I appreciated our conversation after school today (date).  It was enlightening.  I need to make sure that I have understood our conversation correctly, however, so I am following up with you in this letter/e-mail.

When I asked about including disabled children in the considerations in our new playground design, you responded that those kinds of children should be happy just to be included in the educational activities at school in the first place, and that a wheelchair ramp was going to add a lot to the project's initial costs.  When I expressed surprise that the committee had not researched ADA compliance, you promised to "look into it" at some point this week.

I want to thank you for your willingness to find out more information about ADA compliance as it pertains to the new playground.  Can you let me know what you learn?   

My apologies if I have misunderstood our conversation, or left anything important out.  If I have not had a response from you by {date} then I will assume that my understanding expressed above is correct and complete.

Thanks so much,

Mrs. Why-yes-I-AM-that-big-a-pain

Title: Re: New here, but need help before meeting with principal
Post by: LianneV on January 17, 2012, 02:00:28 PM
When we sat down I first explained that I was there to get DS a 504 plan so we can get the peanuts out of his classroom.  She immediately said yes she has no problems writing him a 504 plan but there was no way she would write a provision banning peanuts.  So she clearly knows he will be eligible.
Title: Re: New here, but need help before meeting with principal
Post by: CMdeux on January 17, 2012, 02:16:28 PM
"will be" found eligible isn't interchangeable with "IS" eligible.

Sorry, but you can't really discuss accommodations until AFTER eligibility is established formally.

Becuase the noises this administrator is making?  Yeah-- my experience tells me that they(s/he?) intend to look for a way to find him ineligible if you push for proper accommodations.

Don't forget what you've learned-- they've tipped their hand to you by admitting that there are SOME accommodations that they are "unwilling" to grant, regardless of appropriatenes or need...  You are under NO obligation to do likewise in tipping your own hand, however.

INSIST on eligibility paperwork SIGNED officially before discussing accommodations.  INSIST upon it.
Title: Re: New here, but need help before meeting with principal
Post by: Carefulmom on January 17, 2012, 02:23:24 PM
I`d like to echo what CM Deux is saying.  He isn`t legally eligible until you have it in writing that he is eligible, no matter how much they imply verbally that they consider him eligible.  And I would be really careful about discussing any accomodations at all until you have it in writing that he is eligible.  I would pick your one sentence to keep them on target and just repeat it whenever they try to sidetrack you into what accomodations they will or won`t grant.  Maybe someone here can provide your one sentence to keep them on track.

CM Deux, love who your letter of understanding was addressed to and signed by.  Too funny.
Title: Re: New here, but need help before meeting with principal
Post by: twinturbo on January 17, 2012, 03:32:20 PM
I think at this point the whole process is being hindered by both sides defining the 504 in its entirety as peanuts in the classroom or not. The 504 can be used through post-secondary institutions so look at this school as the locus and instrument through which the 504 is granted as per federal law. It will grow with your son so immediacy is important but no more so than the long term and all that the 504 should encompass.

The principal's sticking point is allergen removal--for now. You can circle back to that after eligibility.
Title: Re: New here, but need help before meeting with principal
Post by: CMdeux on January 17, 2012, 03:42:59 PM
 :yes:

Right.  Eligibility means that any accommodation is, at least potentially, once more on the table.


Know that.  Don't mention it, of course.   :thumbsup:  But KNOW it for yourself.

Title: Re: New here, but need help before meeting with principal
Post by: socks on a rooster on January 18, 2012, 09:56:44 AM
Secure approval first like everyone said. Then, here is the Zirkel letter stating that reasonable is not the standard in education. They must provide accommodations to address the UNIQUE NEEDS OF THE DISABLED CHILD. Use those words. They delay is a blessing. Your child is home safe and you can prepare. I strongly urge you to tape record the meeting. They are already adversarial and you have nothing to lose. Remember to ask the critical question, "If we do not agree with these accommodations what do we do?" (Naively) If they don't provide the right answer which I pm'd you, you get OCR on speed dial and file a complaint. The failure you inform you of your rights is a violation in which OCR will get involved.  :heart:

http://www.dueprocessillinois.org/zirkel.html
Title: Re: New here, but need help before meeting with principal
Post by: rainbow on January 19, 2012, 09:55:26 AM
I actually told them both of those things in the meeting and was told that I'm being emotional and they have to be fair to the other 399 students. That their responsibility is to  have reasonable procedures in place and that was as far as they would be willing to go.
Looking forward to the little one's nap so DS and I can go play in the snow in the backyard!

Did you state it IN WRITING?  Documenting their liability tends to start changing their mindset.
Title: Re: New here, but need help before meeting with principal
Post by: Carefulmom on January 19, 2012, 10:50:10 AM
One more thing:  When I had trouble with the school, I would always ask the allergist to write a letter regarding whatever the issue was, and conclude it with the following sentence.
"Peanut allergy can be fatal."

I think that sentence works well, because then they are warned.  Even if they do not agree with the accomodation, they will probably think if we don`t do this accomodation and something happens to this child, we could be sued.
Title: Re: New here, but need help before meeting with principal
Post by: LianneV on January 19, 2012, 01:12:07 PM
Secure approval first like everyone said. Then, here is the Zirkel letter stating that reasonable is not the standard in education. They must provide accommodations to address the UNIQUE NEEDS OF THE DISABLED CHILD. Use those words. They delay is a blessing. Your child is home safe and you can prepare. I strongly urge you to tape record the meeting. They are already adversarial and you have nothing to lose. Remember to ask the critical question, "If we do not agree with these accommodations what do we do?" (Naively) If they don't provide the right answer which I pm'd you, you get OCR on speed dial and file a complaint. The failure you inform you of your rights is a violation in which OCR will get involved.  :heart:

[url]http://www.dueprocessillinois.org/zirkel.html[/url]

I can't thank everyone enough for all of this effort you are all putting in to help me.  I hope one day I can pass on what I've learnt to other parents going through this.
I will write a letter of understanding and post it here first to make sure it's good enough.  The day after the meeting, my friend who came with me, came to my house and we sat down and wrote down everything that happened before we forgot anything. 
I also was very interested in the letter to zirkel.  I didn't get a PM thoogh with the answer about what we will do if the accomodations can't be agreed upon.
Title: Re: New here, but need help before meeting with principal
Post by: CMdeux on January 19, 2012, 01:36:26 PM
Ahhhh-- well, cross that bridge when you come to it.

Partly that answer depends on your district's particular "procedural safeguards" which you have apparently NOT BEEN GIVEN.

(Please note that this in and of itself might put them in violation already...)

There is:

mediation arbitration
due process hearing

(but be careful approaching any of the above, because some districts can stack the deck against you by hand-picking the mediators/judges)

formal complaint with state agency(ies)
formal complaint with OCR
Title: Re: New here, but need help before meeting with principal
Post by: lakeswimr on January 19, 2012, 08:25:31 PM
If you have to go to that level often things do not go well unfortunately.  I highly recommend you get a food allergy advocate if you don't have one already.
Title: Re: New here, but need help before meeting with principal
Post by: socks on a rooster on January 19, 2012, 09:07:01 PM
Agreed, but I have to point out the obvious. Things are not going well now. How can it when a school tells you flat out, that they will not accommodate your child no matter what? Rhetorical question, what is the point of OCR and Due Process if parents are not going to be willing to use them when their school denies FAPE to their children (which a classroom full of allergens does)? I know how unpleasant it can be to go nuclear so to speak, but how is sitting on your hands praying your plan is good enough just to maintain a cordial relationship going well?  Yes, your child is in danger, but at least they don't think you're a pushy jerk? I think it's helpful to know what ALL your options are in any situation. I love the idea of advocates, but honestly I've yet to find one any more knowledgeable than me, that has the POWER to do anything. Due Process and OCR do however. 
Title: Re: New here, but need help before meeting with principal
Post by: lakeswimr on January 19, 2012, 09:43:38 PM
I'm not sure where the OP is in the process but first things first.  1)  Get the 504.  2)  Request accommodations  in writing.  I'd bring a sample 504 plan that I want along with that doctor's letter and sample 504 plans from other districts.  3)  negotiate. 

I think jumping when she doesn't have the 504 designation doesn't make sense.

I don't know of anyone who went to arbitration, etc and had a good outcome.  I know of those who now homeschool because they couldn't get what they want that way, though.

I recommend she at least try to convince them to give her what she wants first via the above which as far as I know haven't happened yet.  Food allergy advocates may not know more than you but they probably know more than the OP and probably could help her.  I think also Allergy Mom Gina Clowe's book and audio talk might be helpful as well. 

The fact is that not all schools will remove allergens from the classroom.  If the OP can't get that she MUST get proper accommodations to make sure allergens aren't being spread around the classroom.  I don't like having allergens in a FA classroom but many FA kids go to schools with allergens in their classrooms.  I have seem districts where they don't even do simple handwashing in such rooms!  Freaks me out but it happens.  She may not be able to get them to remove the allergens.  I hope she can.  I think negotiating is her best chance.  I like the suggestions people have given here, esp the doctor's letter, letter of understanding, etc. 

The school certainly took things to another level by changing the plan without even bothering to inform the OP. 

My suggestions are not about not wanting the OP to seem pushy.  I am thinking about what would be effective.  I haven't seen proof that going to those other steps is usually effective at all, unfortunately. 
Title: Re: New here, but need help before meeting with principal
Post by: socks on a rooster on January 19, 2012, 11:16:03 PM
Was Gloucester successful?

I'm not suggesting the OP should skip getting the 504 designation and skip through the negotiation process at all. I agree with what everyone has suggested. Pursue all avenues of making it work. Exhaust them all. Yes. But, sometimes, it doesn't work. Some schools are just filled with bad people who don't care about your child.  I'm just saying have a game plan. Learn the system and how it works. You need to know firmly in your own mind how far you're willing to go to keep your child safe, even if it means homeschooling. Or changing schools.  Not every child CAN have allergens in the classroom. That's why 504  accommodations need not be "reasonable." They must take into account the unique needs of the disabled student. Doesn't matter what they do for other children. Or have done, or want to do. It would never be acceptable for me to have a deadly allergen in my child's classroom based on her rxn history. I don't consider walking away from a deadly environment a bad outcome because I didn't get what I asked for. Sometimes a situation is just bad, and it'll be bad whether you negotiate in good faith and don't get what's needed, or go the Due Process or OCR route. The point is, we don't have to tolerate it.
Title: Re: New here, but need help before meeting with principal
Post by: CMdeux on January 19, 2012, 11:57:55 PM
Excellent points, for sure.  Know-- truly KNOW-- where your own personal line in the sand is, and keep that information purely to yourself and your spouse, but HAVE DISCUSSED IT.

This is why we educate my DD at home, frankly-- when the difference between what "is" and what NEEDS to be is so far apart... AND you encounter profound ignorance/hostility, you can pretty much bet that it isn't going to go anywhere positive.


I am not sure that is the OP's situation, however.

I think that she is dealing with: a) ignorant administration-- both of legal rights and of her child's actual needs, and b) slow communication hampered by recent weather events. 

Do keep in mind that about 60-70% of the counties where she and I live are currently in a state of emergency for the fifth day running and with virtually no end in sight.   ;)

My assessment of this one is that it's way too soon to KNOW how this one is ultimately going to go.

I think it can still go well-- IF she's meticulously careful and doesn't escalate unecessarily.  If she can be patient-- and let them find that flashlight and use those two hands, as the rather crude saying goes.    Given the level of cooperation of the classroom teacher and the nurse, that seems plausible here.  (It isn't always-- not at all if you have a teacher that is actively posing a daily danger to a child in the interim.)

My advice is that she should treat the administration team involved as though they were just ignorant-- and behaving in a fairly belligerent fashion mostly because they aren't too quick on the draw.  It's probably close enough to the truth anyway, and it might allow her to keep her temper with them to think of them as being slow rather than obstructionist. 

Title: Re: New here, but need help before meeting with principal
Post by: lakeswimr on January 20, 2012, 06:22:10 AM
Glouster was about 504 eligibility.  Whole nother thing and the school has already told the OP they will grant 504. 

I agree with the end of what you wrote.  One possible problem for the OP is that the school made this change several months ago and her child has been fine and reaction free in spite of it.  Doesn't mean the child always will be but makes it more difficult to get them to take the risk seriously.

Was Gloucester successful?

I'm not suggesting the OP should skip getting the 504 designation and skip through the negotiation process at all. I agree with what everyone has suggested. Pursue all avenues of making it work. Exhaust them all. Yes. But, sometimes, it doesn't work. Some schools are just filled with bad people who don't care about your child.  I'm just saying have a game plan. Learn the system and how it works. You need to know firmly in your own mind how far you're willing to go to keep your child safe, even if it means homeschooling. Or changing schools.  Not every child CAN have allergens in the classroom. That's why 504  accommodations need not be "reasonable." They must take into account the unique needs of the disabled student. Doesn't matter what they do for other children. Or have done, or want to do. It would never be acceptable for me to have a deadly allergen in my child's classroom based on her rxn history. I don't consider walking away from a deadly environment a bad outcome because I didn't get what I asked for. Sometimes a situation is just bad, and it'll be bad whether you negotiate in good faith and don't get what's needed, or go the Due Process or OCR route. The point is, we don't have to tolerate it.
Title: Re: New here, but need help before meeting with principal
Post by: lakeswimr on January 20, 2012, 06:24:20 AM
Glouster was about 504 eligibility.  Whole nother thing and the school has already told the OP they will grant 504. 

I agree with the end of what you wrote.  One possible problem for the OP is that the school made this change several months ago and her child has been fine and reaction free in spite of it.  Doesn't mean the child always will be but makes it more difficult to get them to take the risk seriously.

I agree with CM.

Was Gloucester successful?

I'm not suggesting the OP should skip getting the 504 designation and skip through the negotiation process at all. I agree with what everyone has suggested. Pursue all avenues of making it work. Exhaust them all. Yes. But, sometimes, it doesn't work. Some schools are just filled with bad people who don't care about your child.  I'm just saying have a game plan. Learn the system and how it works. You need to know firmly in your own mind how far you're willing to go to keep your child safe, even if it means homeschooling. Or changing schools.  Not every child CAN have allergens in the classroom. That's why 504  accommodations need not be "reasonable." They must take into account the unique needs of the disabled student. Doesn't matter what they do for other children. Or have done, or want to do. It would never be acceptable for me to have a deadly allergen in my child's classroom based on her rxn history. I don't consider walking away from a deadly environment a bad outcome because I didn't get what I asked for. Sometimes a situation is just bad, and it'll be bad whether you negotiate in good faith and don't get what's needed, or go the Due Process or OCR route. The point is, we don't have to tolerate it.
Title: Re: New here, but need help before meeting with principal
Post by: twinturbo on January 20, 2012, 06:34:56 AM
Have a cascading set of contingencies in place that flows up chain of command, not leapfrogs it, for every outcome so you're not scrambling for the next move. I think that's all anyone is saying.
Title: Re: New here, but need help before meeting with principal
Post by: lakeswimr on January 20, 2012, 07:10:09 AM
I agree but I would not think of going that route without hand holding by a paid food allergy advocate or possibly even a lawyer and I would want to avoid having to hire a lawyer if at all possible.  I would want to avoid going up that ladder unless it is necessary. 

who here has had that go well?  We had a whole thread about how it usually DOESN'T.  My experience with the OCR is they were a lot of talk with no action.  Their talk helped and I got a lot of changes made at one town organization but in the end we deadlocked on a simple, basic accommodation and I couldn't make them budge.  The OCR suggested various strategies, making it sound as though they would do something but in the end they did nothing.  I'm not impressed. 
Title: Re: New here, but need help before meeting with principal
Post by: twinturbo on January 20, 2012, 07:13:56 AM
I would want to avoid going up that ladder unless it is necessary. 

Yes.
Title: Re: New here, but need help before meeting with principal
Post by: ajasfolks2 on January 20, 2012, 08:54:30 AM
Was Gloucester successful?



I started a thread to discuss anything we can find as to current situation in Gloucester.

It's here:
Gloucester County Schools, Virginia

Title: Re: New here, but need help before meeting with principal
Post by: socks on a rooster on January 20, 2012, 11:17:25 AM
Have a cascading set of contingencies in place that flows up chain of command, not leapfrogs it, for every outcome so you're not scrambling for the next move. I think that's all anyone is saying.

Yes. Exactly.

My point about Gloucester is not to say that it's the same as the OP's situation. My point is the family did not just accept the school's "no." They fought it. They won. Someone had to rock the boat for the rest of us to reap the benefits. (Keep in mind how groundbreaking this was.....this was the very first time OCR took jurisdiction over deciding placement.)

Not everyone wants to blaze the trail, but I'd hate to discourage those who desire to, as long as they know all the risks.  :yes:
Title: Re: New here, but need help before meeting with principal
Post by: CMdeux on January 20, 2012, 12:03:52 PM
... and I do know of one due process hearing that went WELL.  (In CT.)

I also know that the odds are not in a family's favor once it gets to that point, because for that ONE case, I also know of about seven others where it did not go well in the end.

Title: Re: New here, but need help before meeting with principal
Post by: twinturbo on January 20, 2012, 12:29:14 PM
I would not risk open war.

Open war is upon you, whether you would risk it or not.

You're either with Theoden or with Aragorn.
Title: Re: New here, but need help before meeting with principal
Post by: rainbow on January 21, 2012, 11:35:56 AM
I agree with CM's post above. I think this is going to work out because the teacher and nurse seem like they get it.  The administrator is the problem.  Administrators usually DO know better, but they will stonewall and delay so they can avoid having to grant documented accomodations.  The doctor note will help too.

Just go to the meeting with all your information ready. The law IS on your side.  Serving allergens in your child's classroom is NOT prudent.  if the meeting does not go well, I'd state in writing that you feel the Administrator is putting your child at risk of a severe / life threatening reaction to his/her allergens.  Even quote the nurse and teacher as being helpful (examples) but call the Principal out on his refusal to provide safe accomodations for your child and you WILL be holding him liable if your child has a reaction and he didn't take prudent steps / simple accomodations to avoid risk. State that nut-free classrooms are available in MANY school districts (research locally and give examples) and this is a COMMON accomodation for children with life threatening food allergies. And, it is NOT necessary for other children to eat those foods but it IS necessary for your chlid to completely avoid these allergens to avoid a life threatening reaction.  Refer to recent deaths and Nathan Walters.  Conisder copying Principal's boss.

I'm thinking you are going to win this.  Stay calm, firm, confident, and strategic.  Provide documents like OCR Letter to Gloucester and ADAA and AAAAI Position Statement on Anaphylaxis.  Start documenting princpal's refusal to provide a safe environment and the fact he is putting your child at unnecessary risk.

When the parents know their stuff, this usually goes well now, after ADAA and OCR Letter to Gloucester.
Title: Re: New here, but need help before meeting with principal
Post by: rainbow on January 21, 2012, 11:43:10 AM
Due process takes a long time and will cost $$ for a lawyer.  You can do this without going there. Remember, the law is on your side, and many, many schools are providing appropriate accomodations.  Many of us DID have to fight administrators for them, but we ARE winning due to medical information, law, liability, deaths in school from life threatening food allergies proving the worst case scenario does happen, etc. 

Think of it this way, if you DOCUMENTED your discomfort with the principal's subjecting your child to risk, and a reaction occurs, he is going to be liable. Right now he is trying to avoid documentation to avoid liability. But if you document that he is putting your child at unnecessary risk (by serving allergens in the classroom AND going against the doctor's order), then you proved that he must TRY to provide a safe environment or the environment is surely not safe and he is clearly liable because he didn't TRY to accomodate.  Administrator is at MORE liability if he doesn't TRY.  If he can show he did everything he could and the child has a reaction, OK...but if he didn't and the child has a reaction, he is going to be liable.  By documenting, you shift the liability back to him.

Come to think of it, good idea  to have your letter re: risk NOTARIZED.   
Title: Re: New here, but need help before meeting with principal
Post by: rainbow on January 21, 2012, 11:44:31 AM
Due process takes a long time and will cost $$ for a lawyer.  You can do this without going there. Remember, the law is on your side, and many, many schools are providing appropriate accomodations.  Many of us DID have to fight administrators for them, but we ARE winning due to medical information, law, liability, deaths in school from life threatening food allergies proving the worst case scenario does happen, etc. 

Think of it this way, if you DOCUMENTED your discomfort with the principal's subjecting your child to risk, and a reaction occurs, he is going to be liable. Right now he is trying to avoid documentation to avoid liability. But if you document that he is putting your child at unnecessary risk (by serving allergens in the classroom AND going against the doctor's order), then you proved that he must TRY to provide a safe environment or the environment is surely not safe and he is clearly liable because he didn't TRY to accomodate.  Administrator is at MORE liability if he doesn't TRY.  If he can show he did everything he could and the child has a reaction, OK...but if he didn't and the child has a reaction, he is going to be liable.  By documenting, you shift the liability back to him.

Come to think of it, good idea  to have your letter NOTARIZED.
Title: Re: New here, but need help before meeting with principal
Post by: lakeswimr on January 21, 2012, 12:23:56 PM
Rainbow--great advice!   :thumbsup:
Title: Re: New here, but need help before meeting with principal
Post by: LianneV on January 22, 2012, 10:32:49 AM
Sorry I haven't been online to answer all the awesome posts that I just read.  This weather is really getting to me!  DS hasn't had school since the day after the meeting last Friday.  He has school tues and thurs, but I'm going to call in on Monday to get the 504 eligibility scheduled.  Does email count in the 30 days they have to comply.  As in, if I email her my request for that meeting, does it count on that first school day?  That way if she tries to avoid me, the request has already been sent?  I will also be rescheduling my meeting with the school district office.  I got a phone call on Thursday I think or Friday from someone who received my number from OSPI.  She's on a regional level and is familiar with the nurses and principals but this is the problem that I"m having.  Everyone I'm contacting all seems to be within the school system.  I can't seem to find someone who will advocate for my son and I.  This woman kept stating that we should go and have another meeting, which I will to get the 504 eligibility done.  The thing is, I certainly do not want to go on the war path.  I am as non confrontational as they come.  But when the woman is so firm in her decision that she absolutely will not meet the request of no allergens in the classroom, I fail to see the point in dealing with her unless I can find a way to get her to do it. At the same time, someone made the point that I should try to view them as ignorant to the facts, not someone who is trying to hurt my son.  I am trying, but I feel that's how they felt about me.  I feel that they assumed I wouldn't know anything (which is partially true I'm still learning) and that I'd be easily placated and stop bothering them.  There's a little girl in the 3rd grade who is as severe as my DS.  I wish I could meet her mother, but I'm not supposed to know (the lunch lady pointed her out one day when I went to his school at lunchtime to discuss what's been going on with everything) and find out what her mom thinks about this, or if she even knows either!
So tomorrow will be the email of understanding and seperate email requesting the 5o4 eligibility meeting.  I will also speak to the district nurse if I can find her just so she can't say I didn't call her back and listen to the options given.
I did find a bakery that ships in peanut free cookies, and will ask if I can supplies snacks for birthday parties, but I'm sure that will be turned down too.  It's frustrating when I've tried to offer ways around it, even at a financial cost to myself and still might  not work.
Title: Re: New here, but need help before meeting with principal
Post by: yellow on January 22, 2012, 04:45:46 PM
I think I already explained this but you cannot just call or email and ask for the 504 meeting. Written request is the official formal request.

Please read through this thread again. There are good steps to follow listed to help you already. Follow the advice and follow the 504 procedures. Don't make calls. Don't try and negotiate things or call for informal meetings until you have started the official 504 process and have a 504 designation. That will not help you in the long run.

Like I said earlier in this thread, type up a letter, print it out, sign it and drop it off at the school. Then bring another copy to district office. Not email.
Title: Re: New here, but need help before meeting with principal
Post by: CMdeux on January 22, 2012, 05:07:12 PM
I would also not offer to do anything which puts a greater burden on you as a family re: cost or time.  You can't discuss ANY of those things prior to eligibility (though it is good that you are thinking about them for yourself, so that you are prepared, of course.)

Make them ask you-- because really, while you might be willing to provide all of the food for a couple of class parties THIS year, what if you can't next year?  What if you wind up needing to work and can't be there for every field trip?

Eligibility first.  This is like a horse that PULLS the cart (accommodations).

Without the horse, there is no cart-- there's only largesse on the part of school employees, and that can change in the blink of an eye. 

Title: Re: New here, but need help before meeting with principal
Post by: socks on a rooster on January 22, 2012, 08:56:11 PM
Yes, write the 504 Plan Eligibility request letter and personally deliver it to the office. Do not talk to anyone at all about accommodations until you hear that your son has been approved. The law requires that the school provide (pay for) a parent approved treat for your son should they decide to allow treats for birthdays. Don't offer to take on that financial obligation, or obligate yourself to shadowing every party to make sure it's safe. Insist on a safe educational environment for your son. I know it seems like the thing to do to show them you want to work with them, but, if you do, you set the precedent that they can do what they want, and you will bend over backwards to make it work. This is only kindergarten, and it will get old REALLY fast with all the food activities that take place.  You are not asking for a favor, they are obligated to provide a safe educational environment to your son.