Food Allergy Support

Specific Food Allergies => Milk Allergy => Topic started by: MaryM on July 13, 2012, 08:33:56 AM

FAS has upgraded our forum security. Some members may need to log in again. If you are unable to remember your login information, please email food.allergy.supt@flash.net and we will help you get back in. Thanks for your patience!

Title: Dairy Challenge next week
Post by: MaryM on July 13, 2012, 08:33:56 AM
I posted back in May that our allergist wanted DS to do a dairy challenge.  I cannot believe that it is next week.  On Wednesday morning DH will take DS.  I have to get DD to camp and then I will head over.  I am trying to remain calm.  He is very excited and I have to remind him that he may not pass.  We are trying not to get our hopes up.  It's very hard not to because life without a dairy allergy would be so amazing.  Anyway, prayers, thoughts and encouragement are welcome!  I am struggling with this because I had a severe (Ana) reaction to peanuts in my 20s.  It's hard to have first hand knowledge of how it feels, that impending sense of doom, etc.  I considered not even going to the challenge but I know that I should be there and that DS wants me to be there. 
Title: Re: Dairy Challenge next week
Post by: pitter patter on July 13, 2012, 12:11:36 PM
Good Luck!!!!
Title: Re: Dairy Challenge next week
Post by: booandbrimom on July 13, 2012, 04:39:06 PM
Anyway, prayers, thoughts and encouragement are welcome! 

You got 'em! Hope it's all done and successful!
Title: Re: Dairy Challenge next week
Post by: CMdeux on July 13, 2012, 06:50:27 PM
 :grouphug:  You can do it, Mary!!

BIG, deep breaths. 

If it helps-- I've approached challenges with the notion that DD will probably 'fail' and that our goal is to "find out how much" it takes to cause that to happen.  Then a pass is a nice surprise.  (Hey, the little tricks I play work just fine for my mind... and it keeps me sane, because otherwise I'd be asking myself those 'crazy' questions...)

Remind yourself that, win or lose, you'll get information.  Information which is GOOD to have.   :yes:
Title: Re: Dairy Challenge next week
Post by: GingerPye on July 13, 2012, 10:47:52 PM
Good Luck!!!!!!!!!!!!!!   :crossed:
Title: Re: Dairy Challenge next week
Post by: my3guys on July 16, 2012, 06:10:16 AM
Good luck!!
Title: Re: Dairy Challenge next week
Post by: MaryM on July 16, 2012, 07:37:58 AM
Thanks everyone!  CM - I hadn't thought about it like that!  Thank you.

Before bed last night DS told me that he is nervous about Wednesday.  We've been talking about it quite a bit and he has been excited. I guess the reality is sinking in now that it is in 2 days. 
Title: Re: Dairy Challenge next week
Post by: shoshana on July 20, 2012, 05:59:44 AM
Hope everything went well, Mary. 
Title: Re: Dairy Challenge next week
Post by: MaryM on July 20, 2012, 09:08:22 AM
Thanks Shosh.  Good to see you here!  Hope you are doing well.
DS passed the challenge but got hives in his chin after ice cream at home the next day.  He is bummed, I'm devastated.  We are going to try baked dairy.
Title: Re: Dairy Challenge next week
Post by: CMdeux on July 20, 2012, 09:44:11 AM
Mary, do think that this means that he's likely to tolerate traces pretty well, though?  At least that would be something to have gotten out of doing the challenge.

I know that many people who have failed peanut or egg challenges find that the amount needed is surprisingly high, which actually (once the disappointment wears off) is pretty comforting.


Being given a "pass" and then having it turn out to be a fail, though-- that is just rotten. 

   I've been thinking about you this morning.  :console:
Title: Re: Dairy Challenge next week
Post by: MaryM on July 20, 2012, 10:17:13 AM
CM - I think he would definitely tolerate traces.  He had 3 1/2 spoonfuls yesterday and got hives (small ones) on his chin.  He didn't even really notice them.  Our pediatrician (who I took him to yesterday after the reaction) really encouraged us to do baked dairy.  I may call and leave a message for the allergist - his nurse told me no more dairy for now.  I'm confused but my gut says to try baked dairy.  DS seems totally fine & happy today.  Yesterday there were tears then he was very stoic & then more tears.  Thankfully we were able to go to a friends house & he had a great time.
Title: Re: Dairy Challenge next week
Post by: GingerPye on July 20, 2012, 10:26:49 AM
I'm sorry for the disappointment, MaryM.  But it does sound like baked milk would be possible.    :grouphug:
Title: Re: Dairy Challenge next week
Post by: MaryM on October 13, 2012, 11:47:22 AM
Both kids are scheduled for a baked dairy challenge at Mt. Sinai next Friday.  Hoping both can pass but trying not to get our hopes up.
Title: Re: Dairy Challenge next week
Post by: GingerPye on October 13, 2012, 11:58:00 AM
 :luck:
Title: Re: Dairy Challenge next week
Post by: Macabre on October 19, 2012, 09:22:10 AM
Thinking about you.
Title: Re: Dairy Challenge next week
Post by: CMdeux on October 19, 2012, 12:08:06 PM
Still checking... I know it's early still, and no news right now is probably good news (at least I hope so).

 :crossed:
Title: Re: Dairy Challenge next week
Post by: MaryM on October 19, 2012, 02:41:05 PM
It's going well.  Both kids are an entire muffin each. 1/6 cup of milk baked in each muffin.  DD got stuffy so they slowed her down but she are the whole thing.  We are just waiting now.  I'm sure we will get sprung right around rush hour.  We may go to the Met for a bit til the traffic calms down.
Title: Re: Dairy Challenge next week
Post by: MaryM on October 19, 2012, 03:20:46 PM
Both kids passed!!!  Cautiously optimistic.  Kids are excited!
Title: Re: Dairy Challenge next week
Post by: twinturbo on October 19, 2012, 03:28:30 PM
That is GREAT!
Title: Re: Dairy Challenge next week
Post by: my3guys on October 19, 2012, 03:42:06 PM
 :happydance: :happydance: :happydance:
Title: Re: Dairy Challenge next week
Post by: Macabre on October 20, 2012, 09:07:00 AM
This is so amazing. I know you've received many high fives in another thread. I just wanted to post here that I'm thrilled it went so well!
Title: Re: Dairy Challenge next week
Post by: GingerPye on October 20, 2012, 10:04:06 AM
oh WOW!!!!  Congrats!!!   :thumbsup: :thumbsup: :thumbsup:
Title: Re: Dairy Challenge next week
Post by: Janelle205 on October 20, 2012, 01:39:47 PM
Happy for you and hoping things are still going well!
Title: Re: Dairy Challenge next week
Post by: MaryM on October 20, 2012, 02:55:42 PM
I am very happy to report that both kids gobbled up their milky muffins today with no issues whatsoever !!!  Tomorrow they will try some plain goldfish or maybe a Thomas' English Muffin!

Thank you all so much for the well wishes and congratulations. I'm still a nervous wreck but its looking very good!
Title: Re: Dairy Challenge next week
Post by: GingerPye on October 20, 2012, 03:11:22 PM
I'm very envious.  My DS passed a baked milk challenge but refuses to eat anything with baked milk.  <sigh>  So glad to hear of kids who are doing it and are doing well!!!   :thumbsup: