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Topic summary

Posted by twinturbo
 - April 01, 2014, 02:34:12 PM
Soy is scheduled for the 14th. I think I'm going to push for egg in May. At this point I don't think I'll push for an egg SPT prior to challenge. It doesn't seem to be all that related to baked egg. I'll have to see the Sinai records for the date of the last RAST. We had to reschedule right as Sandy hit I think it was no later than Jan 2013. This time I'm going to stick the peanut component on. Note I'm not hoping for much but the Sinai test was a little weird. Yeah it was over 100 for peanut but it was some sort of unexplained novel test.

*#&!@%^ BARLEY for DS2. That was a momentary vent in the form of emotional belch.
Posted by CMdeux
 - April 01, 2014, 02:07:02 PM
Allergist is convinced he can squash my birch issue and that it's worked for all of his patients that use pollen immunotherapy to eradicate OAS to fruits.

Yeah-- it lasted all of 20 months for DD, after a six year investment.   :misspeak:  As noted though, she's not most people, any more than your DS2 is.   :-/
Posted by twinturbo
 - April 01, 2014, 12:46:34 PM
This summer is going to be a huge batch of at home intro and in office challenge. The allergist is game and DH will be working here, FIL will be home. That will allow me the luxury of time to work through my own list. Allergist is convinced he can squash my birch issue and that it's worked for all of his patients that use pollen immunotherapy to eradicate OAS to fruits.

We've got too many free floating allergens that need to be challenged. DS1 is old enough that in order to be as free as possible we need to confirm tree nuts and baked egg. It would be important come 504 time in fall.

Next year for DS2 I think we need to really check if oats and beef are merely skin results or true allergens. By then he'll probably be able to communicate in rudimentary terms if his stomach hurts or his throat itches.

DS1 will just have to get on board with the egg challenge since he has a good chance of tolerating baked egg across the board.
Posted by Mfamom
 - March 11, 2014, 08:57:26 PM
I believe birch pollen was the reason my ds showed positive to many tree nuts.  I cannot remember all the details now. 
Posted by booandbrimom
 - March 11, 2014, 05:48:16 PM
Quote from: maeve on February 07, 2014, 03:25:14 PM
Quote from: booandbrimom on February 07, 2014, 12:33:41 PM
Yes, 12 is the RAST. This just came up during the clinical trial, as they were thinking they could use hazelnut as the allergen if peanut didn't work.

It may be a pollen cross-reaction. None of us remembers a reaction to hazelnut - my son swears he's eaten them.

Does he react to birch pollen, I think hazelnut is cross-reactive with birch. Wow, DD's RAST is so much lower and there's never been a mention of challenging.  She's never had hazelnut either.  If you and the doctor are up for challenge, I'd go for it; it would be so nice to get rid of an allergy.

DD will always be allergic to peanuts and tree nuts, and I'm beginning to think that she'll never outgrow egg.  Even if she did outgrow egg, I just don't see her eating it.

Gosh, never saw this Maeve. Yes, my son reacts to birch and just about every environmental allergen.

I think the calculus changes a bit when a child's overall IgE is so high. The doctors at Children's said they would not do a challenge for the hazelnut at that level (other than in the context of the clinical trial), so doctors definitely disagree. 
Posted by ajasfolks2
 - February 10, 2014, 05:01:27 PM
Honestly, I'd rather she have the experience of the texture / chew of real nuts.  I think it would be helpful for her  . . .  esp if it is a fail.

Posted by CMdeux
 - February 10, 2014, 12:30:51 PM
Links, I recalled that as well when we challenged, and although I could never FIND the AAAAI source for the info (and still can't)-- we didn't use Nutella for DD's challenge--

Food challenge-- hazelnut.

This seems to indicate that the major concern in that particular question was related to heat-processing which might have reduced the allergenicity of an OAS offender in Nutella in particular.

Honestly, our allergist suggested Nutella for the challenge.  I just wanted a better idea of threshold if she failed, given where we live.  Knowing whether or not her threshold is VERY low or quite high makes a huge difference in quality of life here.  For most people it wouldn't because daily exposure is not very likely as it is with us (we have filbert/hazelnut TREES-- everywhere... shell-based MULCH-- everywhere....).


Posted by LinksEtc
 - February 10, 2014, 11:53:44 AM
I thought I remembered something about Nutella not being the best for challenges & found this ...

Re: Dd's OIT for PA, an update

it mentions an AAAAI tweet on the topic.


Posted by Macabre
 - February 10, 2014, 11:39:05 AM
And look in the Teen Travel thread. I show a picture of portable Nutella. You can get it at Target. It comes in n a box that is just a bit bigger than a Wet Ones box and had packets. That way you can open small amounts and easily and without mess throw the rest away if it doesn't work.
Posted by Macabre
 - February 10, 2014, 11:36:58 AM
:yes:
Posted by CMdeux
 - February 10, 2014, 10:21:36 AM
Sure-- but unless you have a milk allergy, nutella is a GREAT option.  :)

Posted by ajasfolks2
 - February 10, 2014, 07:39:01 AM
CM, I may take you up on the hazelnuts for DS as we *may* get to a point this summer where allergist would agree to challenge her on that.

Posted by maeve
 - February 07, 2014, 03:25:14 PM
Quote from: booandbrimom on February 07, 2014, 12:33:41 PM
Yes, 12 is the RAST. This just came up during the clinical trial, as they were thinking they could use hazelnut as the allergen if peanut didn't work.

It may be a pollen cross-reaction. None of us remembers a reaction to hazelnut - my son swears he's eaten them.

Does he react to birch pollen, I think hazelnut is cross-reactive with birch. Wow, DD's RAST is so much lower and there's never been a mention of challenging.  She's never had hazelnut either.  If you and the doctor are up for challenge, I'd go for it; it would be so nice to get rid of an allergy.

DD will always be allergic to peanuts and tree nuts, and I'm beginning to think that she'll never outgrow egg.  Even if she did outgrow egg, I just don't see her eating it.
Posted by CMdeux
 - February 07, 2014, 12:47:36 PM
Unfortunately nutella isn't available for you guys as a challenge material, either.   :-/

I have whole in-shell hazelnuts if you ever need them.  I've had about three gallon containers of them stashed in my china hutch for a bit.  Just sayin.


[spoiler]But you have to promise that you'll never call me a squirrel.

;D [/spoiler]
Posted by booandbrimom
 - February 07, 2014, 12:33:41 PM
Yes, 12 is the RAST. This just came up during the clinical trial, as they were thinking they could use hazelnut as the allergen if peanut didn't work.

It may be a pollen cross-reaction. None of us remembers a reaction to hazelnut - my son swears he's eaten them.