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Posted by lakeswimr
 - January 23, 2012, 07:54:59 AM
nevermind.
Posted by lakeswimr
 - January 16, 2012, 10:35:12 PM
Quote from: Carefulmom on January 16, 2012, 08:23:30 PM

If someone committed suicide simply by SMELLING pb, if that REALLY ever happened you can bet it would be so widely published we would all have read about it many times over.  FAAN would use it to our benefit all it could.  The fact that FAAN, etc never mention it speaks volumes.

' most recently having been told the same thing at a FAAN event, I guess then one would have to believe that FAAN is not a reliable source either.'

Um, he is an allergist who happened to attend a FAAN walk.  YOu just made a huge leap by making it sound as thought he represents FAAN.  He does not.  He isn't on the FAAN medical board. 

I'm posting because I want newbies to take cafe of ingestion and contact ingestion and only worry about inhalation if need be.  The vast majority 99.9% of us do not need to worry about inhalation unless it is something like heated proteins, agitated proteins, etc.  Many newbies may read things like this story and get freaked out and think their child is likely to die from smelling pb when in fact there is about a zero % chance of that happening.  They would be much better served being told to do good handwashing, surface cleaning of eating areas, label reading, etc.  It's a safety issue IMO. 
Posted by Carefulmom
 - January 16, 2012, 08:23:30 PM
Quote from: lakeswimr on January 14, 2012, 12:31:18 PM
' And I don`t picture our school district allowing a doctor who trains every school nurse in the district on the epipen (hundreds of nurses; our district is huge) to be teaching wrong information.  That seems pretty far fetched to me.'

Unfortunately it doesn't sound far fetched to me at all.  My son's former pediatrician is our district's physician--the one who writes the standing orders for the epi pen.  He doesn't know ANYTHING about food allergies and gave me so much bad advice he could have ended up causing my son's death.  We are only LUCKY that DS was fine in spite of his terrible lack of knowledge about food allergies.  DS didn't get diagnosed until age 2 because of him and the terrible first allergist we saw.  Because of the two of them DS ended up having super severe anaphylaxis and they still were telling me to just give Benadryl even then!  The fact that someone is a doctor doesn't mean they know anything about food allergies.  Most general practitioners are lacking in their knowledge of food allergies because it is a specialized field where the current best practices and recommendations differ a lot even from 5 or 10 years ago.  There are many here who went through several doctors before they got a proper diagnosis, many who got diagnosed and weren't told to carry epi pens, many who got epi pens but weren't told when to use them or were given dangerous emergency plans such as 'use if he stops breathing', etc.  And if we want to talk about nurses, unfortunately many have even less information about food allergies.  They apparently teach that Benadryl can stop reactions in many nursing schools because it is a very common myth among nurses. 

How would your school district be expert enough to know whether this doctor is teaching the right thing with regard to how to treat anaphylaxis?  School districts often know even less than doctors about food allergies and they will NOT question a doctor on what they say.  They won't have the legal authority to contradict the district doctor.

the fact that a school nurse said this story means zero.  I'm not sure what type of medical conferences you went to where people were saying this story but this story, if true, would be PUBLISHED.  It doesn't appear to be published anywhere.  Even some allergists do not know food allergies and can be ill informed.  My son's first allergist told me I was just a nervous mother and that ds didn't have FAs in spite of my telling him about DS's lip and eye swelling, hives and vomiting after eating certain foods. He didn't give me an epi pen or anything.  I'm not impressed by hearing 'an allergist said blah blah'.  I pay attention to things that come out of top allergist's mouths (even they are not infallible but they go by science) and what FAAN published and other researchers publish, etc.   

Again, the suicide was so long ago, there is no way that you could possibly know that it was not published.  Have you read every single piece of medical literature ever published?  Probably not.  Many of us on this board have been misinformed by pediatricians, including me.  I already posted on this very thread about being told to give milk allergic dd butter to increase her weight gain, being told wrongly that butter does not have milk protein.  Many of us here have stories about wrong information about allergies from pediatricians.  However, the physician who trains the nurses on the epipen is an allergist, not a pediatrican, and actually very well known and well respected in the medical community.  And then most recently having been told the same thing at a FAAN event, I guess then one would have to believe that FAAN is not a reliable source either.  And that might have been true at one point years ago when they published articles saying airborne reactions do not occur, but at that time some felt that the motivation for publishing such articles was that FAAN was receiving funding from the peanut industry.  The motivation for an allergist at a FAAN event falsely stating that airbore pb reactions occur would be far more obscure to me.  But again, if you are so sure that it is not true, you could email him.  I mean after all, if you are so sure that he will reply stating he never said that, you would have spent far less time emailing him to get the facts that posting over and over and over on this thread about how you don`t believe it.  The fact that those on this thread who insist that this pb suicide story is made up, and who insisted on a source, have not emailed the source to "prove" I made this up says it all.

And no, of course, I am not going to post my credentials on an internet message board.  That`s just common sense.  I am under no more obligation to post my credentials than when some of our members who work in the legal field give input on legal situations or when an opthomologist on this board posted in response to an eye question.  When Ark has posted about nursing situations, no one is asking her for her credentials.  When teachers on this board post about learning disabilities, no one is asking for their credentials. 

It is a shame that a couple of people on this thread have such a hard time with the fact that not every allergist agrees with you.   Whatever....I am finished with this thread.  I posted initially because I didn`t want new people to see information that may not be correct.  I think anyone objective can read this thread and see what is really going on.  And as for me, I am moving on. 
Posted by CMdeux
 - January 14, 2012, 07:22:59 PM
Well, as most might imagine, anyone who IS a practicing physician or other medical professional, or IS a practicing attorney is likely to be very wary of "outing" that openly as a member of this community.

If Carefulmom wants to discuss her professional credentials in the context of this discussion, then I think that is fine.  But really, I'm not sure that it is entirely relevant, and I wouldn't be surprised if she does not.

IMMV, personal opinion, not practicing over the internet, etc. etc.  Y'all know the drill.



Posted by catelyn
 - January 14, 2012, 04:57:10 PM
delete
Posted by YouKnowWho
 - January 14, 2012, 01:02:58 PM
I just had an ER pediatric physician two days ago tell me that I read too many labels and I need to give DS1 wheat and barley so they can get an accurate Celiac test even if he is anaphylactic to those allergens.  Are you kidding me?  Even if he is diagnosed with Celiac he would still have to avoid wheat, rye, barley and most oats - oh yeah, his allergens. 

I had an allergist office tell me that barley couldn't cause an ana rxn while I was watching DS1 have one from trace amounts.  Same office told me to start feeding DS1 his allergens after the age of 2.  Yeah, huge chain practice here in a my very large southern city.

Another allergist declared DS1 was allergic to wheat, rye, barley, oats, rice, corn, eggs, dairy, soy, peanuts and all tree nuts just by testing alone and refused in office food challenges (we did many behind her back at home as they were foods he was eating - corn, rice, dairy, soy).  We found out a year later peanuts and tree nuts were a false positive because we had that allergist (third time is the charm) who had a clue in regards to food allergies.
Posted by lakeswimr
 - January 14, 2012, 12:31:18 PM
' And I don`t picture our school district allowing a doctor who trains every school nurse in the district on the epipen (hundreds of nurses; our district is huge) to be teaching wrong information.  That seems pretty far fetched to me.'

Unfortunately it doesn't sound far fetched to me at all.  My son's former pediatrician is our district's physician--the one who writes the standing orders for the epi pen.  He doesn't know ANYTHING about food allergies and gave me so much bad advice he could have ended up causing my son's death.  We are only LUCKY that DS was fine in spite of his terrible lack of knowledge about food allergies.  DS didn't get diagnosed until age 2 because of him and the terrible first allergist we saw.  Because of the two of them DS ended up having super severe anaphylaxis and they still were telling me to just give Benadryl even then!  The fact that someone is a doctor doesn't mean they know anything about food allergies.  Most general practitioners are lacking in their knowledge of food allergies because it is a specialized field where the current best practices and recommendations differ a lot even from 5 or 10 years ago.  There are many here who went through several doctors before they got a proper diagnosis, many who got diagnosed and weren't told to carry epi pens, many who got epi pens but weren't told when to use them or were given dangerous emergency plans such as 'use if he stops breathing', etc.  And if we want to talk about nurses, unfortunately many have even less information about food allergies.  They apparently teach that Benadryl can stop reactions in many nursing schools because it is a very common myth among nurses. 

How would your school district be expert enough to know whether this doctor is teaching the right thing with regard to how to treat anaphylaxis?  School districts often know even less than doctors about food allergies and they will NOT question a doctor on what they say.  They won't have the legal authority to contradict the district doctor.

the fact that a school nurse said this story means zero.  I'm not sure what type of medical conferences you went to where people were saying this story but this story, if true, would be PUBLISHED.  It doesn't appear to be published anywhere.  Even some allergists do not know food allergies and can be ill informed.  My son's first allergist told me I was just a nervous mother and that ds didn't have FAs in spite of my telling him about DS's lip and eye swelling, hives and vomiting after eating certain foods. He didn't give me an epi pen or anything.  I'm not impressed by hearing 'an allergist said blah blah'.  I pay attention to things that come out of top allergist's mouths (even they are not infallible but they go by science) and what FAAN published and other researchers publish, etc.   
Posted by catelyn
 - January 13, 2012, 10:15:48 PM
Quote from: Carefulmom on January 13, 2012, 09:28:49 PM
Quote from: catelyn on January 12, 2012, 10:30:22 PM
So you really found out about this from the school nurse.  So we have all now heard this story on the internet so ergo it must be correct and we are free to pass it around as well.

Enough said.

A person died, and they used this as a control.  The rest of the story sounds like a whole lot of embellishment.  Like I said, broken telephone.

No, not at all what I said.  Please read my complete post before twisting my words around.  I first heard this from the school nurse.  I emailed the allergist who stated it and confirmed.  I also heard it at several medical conferences over the past years.  I also heard it at the FAAN Walk from the allergist who was there.  I posted this on the old board long before the FAAN Walk.

Believe it or don`t believe it; it makes no difference to me.  It is apparent that you don`t want to believe it.  Whatever....But at least bother to read my posts before responding.


I hope the OP gets a good allergist who is knowledgeable on the subject and has a good bedside manner.
Posted by Carefulmom
 - January 13, 2012, 09:37:29 PM
bold added (again)

Quote from: Carefulmom on January 12, 2012, 08:52:54 PM
bold added
Quote from: Carefulmom on January 11, 2012, 09:56:40 PM
If you think Dr. Sher is wrong, you could always email him to confirm the story.  He was very certain when we spoke.  He did not say "Oh, I heard...."  It is actually well known in the medical community that the positive control for the cap rast is from this patient in Colorado who committed suicide by peanut inhalation. I have heard it in medical meetings as well.  I just can`t name names in that scenario, due to privacy concerns.  I don`t feel right quoting on the internet what transpires in medical meetings for medical professionals.  But Dr. Sher was available at the FAAN Walk for lay people to ask questions, so I don`t think it is a big deal that I am naming him on the internet.

So it isn`t one doctor who is hypothetically making this up.  It would be several.  I know all about misinformation from doctors.  I was told by a doctor to give milk allergic dd butter to increase her calories, because according to her butter does not have milk protein, only fat.  BTDT with the wrong information.  But is FAAN really going to allow themselves to be represented by an allergist who gives out blatantly wrong information by saying that airborne reactions kill?  Given that just a few years ago FAAN wanted us to believe airborne reactions don`t happen, I can`t see them letting themselves be represented by a doctor who gives out false information about airborne reactions having the ability to kill.  And I don`t picture our school district allowing a doctor who trains every school nurse in the district on the epipen (hundreds of nurses; our district is huge) to be teaching wrong information.  That seems pretty far fetched to me. 

Again, the positive control on the cap rast has to be someone who is much more sensitive than the vast majority of pa people.  That is the point of a positive control.
Posted by Carefulmom
 - January 13, 2012, 09:28:49 PM
Quote from: catelyn on January 12, 2012, 10:30:22 PM
So you really found out about this from the school nurse.  So we have all now heard this story on the internet so ergo it must be correct and we are free to pass it around as well.

Enough said.

A person died, and they used this as a control.  The rest of the story sounds like a whole lot of embellishment.  Like I said, broken telephone.

No, not at all what I said.  Please read my complete post before twisting my words around.  I first heard this from the school nurse.  I emailed the allergist who stated it and confirmed.  I also heard it at several medical conferences over the past years.  I also heard it at the FAAN Walk from the allergist who was there.  I posted this on the old board long before the FAAN Walk.

Believe it or don`t believe it; it makes no difference to me.  It is apparent that you don`t want to believe it.  Whatever....But at least bother to read my posts before responding. 
Posted by ajasfolks2
 - January 13, 2012, 09:58:18 AM
Posted by ajasfolks2
 - January 13, 2012, 09:52:56 AM
I was curious about Larry Sher.

Dr Lawrence Sher, MD

http://www.vitals.com/doctors/Dr_Lawrence_Sher.html


Quote
Dr. Lawrence D Sher, MD has obtained board certification from the member board for Pediatrics and Allergy & Immunology.

In addition to the specialty of Pediatrics, Dr. Lawrence D Sher, MD has expertise in 5 areas. This includes Asthma, Eczema, Immunotherapy


I see him listed here:

http://www.acaai.org/members/Documents/ACAAI-AAAAI_PearlsTesting_Annals.Dec08.pdf

Also at research listing site:

http://www.centerwatch.com/news-resources/research-centers/profile-details.aspx?ProfileID=1122&mp=empty

Quote

Lawrence Sher, M.D.
Medical Director

Dr. Lawrence D. Sher received his medical degree from the University of Utah School of Medicine in 1983. After completing his residency in pediatrics at the University of California Los Angeles in 1987, Dr. Sher attained two fellowships; one at the University of California Los Angeles Department of Allergy and Immunology and the other at Harbor UCLA's Department of Allergy and Immunology. Dr. Sher is certified from the American Board of Pediatrics and from the American Board of Allergy and Immunology. He holds fellowships with the American Academy of Pediatrics, American College of Allergy, Asthma, and Immunology and with the American Academy of Allergy, Asthma, and Immunology.

Since opening the doors to Peninsula Research Associates, Inc. in 1999, Dr. Sher has served as the principal investigator for over 200 clinical trials. He actively contributes to the development of medicine by conducting clinical trials that focus on areas such as allergic rhinitis, asthma, Attention Deficit Hyperactivity Disorder, Chronic Obstructive Pulmonary Disease, and vaccinations.


When I Google his name and "FAAN" I don't get hits -- anybody else get some? 

Any one able to find quotes from Dr. Sher anywhere online?

Posted by catelyn
 - January 13, 2012, 08:39:36 AM
Quote from: AllergyMum on January 13, 2012, 07:47:58 AM
I think that it may be appropriate to split this discussion on the doctor's story from the original discussion.

Totally agreed.