Quote from: Macabre on March 15, 2013, 09:43:55 PM
I was talking with DH about this.  He said for cookies you use a solid fat, like butter or shortening. Peanut oil would not have been used.

I hope that if it was cross contamination that this comes out.  It could be a very powerful thing if it did.  The idea of his consuming peanut oil in the cookie will be brushed off because people can ask about that. But people do not get cross contamination.  Bakeries don't get it. Family friends don't get it. 

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His friend must feel just awful. And I bet the emergency respondent who told her not to give him the Epi does, too. But I really feel for his friend--in addition to his family, of course. 

This is absolutely tragic. 

I agree with this.  It does not sound like it was peanut oil.  It sounds like it was cross contamination.  And since peanut oil in cookies is very very very rare, people will miss the point.  Can anyone find me a reference saying that it was actually a cross contaminated cookie?  I have a 504 meeting tomorrow and we are currently "discussing" (i.e. disagreeing) on the fact that they think it is good enough to tell us that the meal at a school event held outside school will be peanut free---no access to a conversation with the chef or caterer, just the school telling us it will be peanut free is supposed to be good enough.

I would really like the correct information, which I believe is that the cookie was cross contaminated.  Can someone find this?  Thanks.

Oh this poor family.  Just yesterday DS came home because a friend had given out bags of trinkets for st. patrick's day, and he was annoyed and kind of pushing me to eat it because it was "just a lollipop" but had no label, I didn't know the manufacturer etc.  I thought we'd come to a point where he wouldn't question this...but I guess it can come and go in cycles, and he hasn't had a reaction in a long time.  But with his MFA, no label, no eat. Period.  I don't think at this point he'd try something when I'm not around...but...he had me wondering yesterday.

So...since he was really pushing me -- I shared the story of this poor family. He "knows" that people can die from eating from an allergen, but hearing about someone who just did had quite the impact.

I credit the people who posted on our first board with hammering home this message which truly can be life-saving, not any doctor, and I will always be more grateful than words can express.

CM, that was stated so well ... exactly what I was thinking but wasn't sure how to say.

I also agree that many people are not warned/educated properly.  Many doctors/allergists do an excellent job, but others don't.

We also had multiple doctors give us incorrect or partial information and fail to let us know that our son had a potentially life threatening food allergy. Just yesterday a teen I know described her reactions to milk and they are obviously IgE.  She said she doesn't have an epi because her doctor doesn't believe you can be allergic to milk.  I know many adults who avoid their allergens without epis.  In the past doctors did not treat FAs the same way and even now there are many doctors who do not understand FAs.  There are many people who do not have insurance and can't got in to an allergist to get a proper diagnosis.  Certainly there are many people walking around who have FAs who have not been told that they are potentially life threatening, and many who haven't been given epi pens.  My son's former pediatrician didn't want to give me epi pens but I insisted just because I had heard my friend had them for her child.  so he wrote me a script for a single pen and told me it was unnecessary and overboard but he guessed it wasn't such a big deal to just have it in my purse.  I felt that I was being silly because of this and I certainly had no idea that DS's FAs were the serious type because of the response of that doctor and then later the first allergist we saw who told me I was worrying about nothing and that DS was fine.  I wasn't prepared when DS had his first big reaction.

I also feel very sorry for that friend and even for the first responder and my heart is broken for the family. 

I was talking with DH about this.  He said for cookies you use a solid fat, like butter or shortening. Peanut oil would not have been used.

I hope that if it was cross contamination that this comes out.  It could be a very powerful thing if it did.  The idea of his consuming peanut oil in the cookie will be brushed off because people can ask about that. But people do not get cross contamination.  Bakeries don't get it. Family friends don't get it. 

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His friend must feel just awful. And I bet the emergency respondent who told her not to give him the Epi does, too. But I really feel for his friend--in addition to his family, of course. 

This is absolutely tragic. 

It is amazing the number of people--many of us here--say that the doctor didn't tell them that it could lead to a fatality. Even allergists.

I know in my experience, our allergist--a well known name--didn't think we needed to get DS tested--didn't think it was that bad and did not prescribe an Epi (however, I know he is NOT that frame of mind anymore. He would never ignore reaction history like he did DS' now--or even a year after this happened.  I doubt he made the same mistake many more times. This was 1999 or 2000, and I know DS' age was the first sizeable wave of peanut allergies.) 

I made the next appointment with his partner.  Dr. #1 didn't see patients on Fridays because he played golf, and I insisted on a Friday appointment so we could see his partner--younger and with many small children himself. He did a test, and before he let us go, he gave us an EpiJr script a FAAN card (if that's what they were then) that had the code words for peanut and a list of where peanut might show up. It was credit card-sized.  And he told us to avoid Asian restaurants and ice cream parlors always. He told us anaphylaxis could be fatal.  He did this based on reaction history, and two weeks later the ImmunoCAP confirmed it.

Had I not been adamant and not a little bit crafty, we may have ended up in a very bad situation.

Patients-- or parents-- may fail to absorb the full gravity or import of a physician's words for any number of reasons, however.  That is unfortunate-- tragically so in cases where the information is related to a life-threatening condition-- but it isn't criminal of either the physician OR the patient.

It's just very very sad-- and I think that most good physicians would give up an arm to know the exact magic words to use so that they are VERY clearly understood by patients 100% of the time.

In any case, we have no idea what passed between the family and their physician.  It is certainly heartbreaking that this family didn't understand that their child's life was in jeopardy from his food allergy either way.   

Many people are normally careful and every once in a very great while take a chance on something they think should probably be OK or just loosen their comfort zone.  Very tragic and sad. 

 We can't know but if this mother truly didn't know FAs were potentially fatal as she said then that's my opinion of the situation. 

So sorry to hear about this family's loss.

We can't really know what exactly the dr told the family ... negligent
is an accusation probably best left for a judge/jury if it came to that.

Their doctor was criminally negligent.  The first responders should have known better.  So sad and tragic.  My heart breaks for the boy and his friend and family.

Here's an ongoing discussion about this:
http://foodallergysupport.olicentral.com/index.php/topic,6932.0.html

also this but no replies:
Peanut Allergy Death - college Freshman home on spring break; ate cookie

http://gma.yahoo.com/allergic-teen-dies-eating-cookie-050855791--abc-news-wellness.html

Tragic in so many ways. Mom said she didn't know son could die from peanuts. He had an epi, but didn't have it with him and mom couldn't find it when he got home because he hadn't unpacked from college. She had expired ones, but was told not to use them--I would have tried them anyway!! Son was normally very careful--much more careful than my son who ate a cookie from a friend the other day. But my son has his epi with him at all times and has never reacted, unlike this kid. Just so sad. The cookie supposedly only had peanut oil in it, which really shouldn't be a problem    He seemed so careful.  If only he'd had his epi.

Yeah, when I read it this morning, linked to from A FB post, I had to put my phone down after seeing the Emergency staff said NOT to use an expired Epi. I got so, so angry.

I will say that we avoid peanut oil for a reason. Before DS' vegetarian days, when he was a toddler he would cry if I pulled into CFA (if I was going to have to eat fast food on the run, their chicken tasted the BEST). Eventually I avoided it and he forgot. I went there one day, and DS  had some chicken bites and developed hives all over the area around his mouth. (Burks discounted this as possibly being allergic to milk or egg then, but he never had problems with egg and was doing fine with milk by that point). Another time he became lethargic and vomited after having chips friend in regular pn oil. He was much bettr after he threw up.

So we avoid peanut oil.

That said, I highly doubt there was peanut oil in the cookies. It's not an ingredient typically used in cookies. It's also more expensive.

I bet it was cross contamination, as CM said. It's far more likely.

I just feel horrible for this family.

I am glad DS knows that at least with the EpiPen you can look at the color if the fluid and see if it has yellowed. That's a drawback with the AuviQ I guess. When we were moving I find yellowed epis and we all looked at them in various light before disposing of them (properly).

Oh my. This didn't have to happen. This family shouldn't be experiencing such a loss.
The mom said she feels foolish. That should be the least of her troubles. I feel for her. Their doctor should feel horrified that he or she didn't communicate the risks. In this day and age I can't imagine not knowing this could be fatal. I mean, when DS had his first reaction, is seen peanut allergy in parenting mags.  I knew right away he could die. That was 14 years ago though. Her son was older. She probably never saw that when Cam was little. Still, I did not fully understand the ramifications of having a child with a food allergy. That's not something that floats in over the media transom, yk?

I also think it's heartbreaking that no one told her (or she forgot, which seems unlikely) that you can die from food allergies. Why did her son's doctor never tell her the full risk?