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Topic Summary

Posted by: TwoDDs
« on: May 30, 2013, 02:14:42 PM »

exactly.   :yes:  Being a teen does not mean one can be (or should be) a disrespectful little brat.

Need to add:  yesterday I explained (again/more fully) to DD why I made the phone call to the restaurant
(found the epipen on the bed; tried and couldn't get hold of her on her phone; called Dad to see if he knew; finally called the restaurant even tho I didn't want to and knew it would embarrass her = Mom was in a moment of panic since DD was eating at an unknown restaurant). 
She said she understood and that "it's okay, Mom." 

Made some progress there.   :)

I've been away - but OMG - I so want a "like" button for this!  It IS ok.
Posted by: Macabre
« on: May 25, 2013, 03:06:08 PM »

I have created a thread to discuss school-related dinners specifically, as I think it's a topic that will be very useful for middle school and high schoolers with food allergies and worthy of separate conversation.  I've put it in the Teens board.

School-related Dinners
Posted by: BensMom
« on: May 25, 2013, 01:44:50 PM »

Just happened across this. I usually stick to off-topic. The part that stood out to me was about moving epis back and forth between her pencil case and her purse.

Yeah, get her another one, so she'll always have 2 in her purse. DS has 4. Two are in a carrier in his backpack for school. The other two are in a carrier that hangs by the door. When he goes anywhere other than school, he grabs the set by the door. No moving back and forth from the backpack to somewhere else. When he travels, he takes both sets in case one set gets lost. Sometimes the smallest inconveniences get in the way. Make it easy.
Posted by: CMdeux
« on: May 20, 2013, 05:34:18 PM »

This is the numero uno reason why we'd have LOVED to have a Twinject rx for DD.

Single device, two doses.  Genius.

Posted by: GoingNuts
« on: May 18, 2013, 08:29:30 PM »

Guess who I caught leaving he house tonight with only one AuviQ?

I'm sure you're all really struggling with this one.  :banghead:
Posted by: twinturbo
« on: May 07, 2013, 12:33:01 PM »

Yep, muscle memory. One thing on my to do list as the boys get older is attending a community course for extended first aid or EMT basic to get their mind prepped that it's about readiness including their allergies. The best laid plains, eh.
Posted by: CMdeux
« on: May 07, 2013, 12:30:36 PM »

Definitely, becca.

DD wears hers cross-body, as well-- and when she goes into the show ring, she sets the bag on the judges table-- or leaves it on top of the dog's crate (which is generally only a few feet away) or hands it to someone not showing in the same class with her, if neither of those works.

One nice thing about wearing them all the time (and not in a 'purse-purse' per se) is that the weight/heft of the bag is something that DD is so used to that she REALLY doesn't forget to put them back on.  It feels strange to her to be without that bag on her body.

She's had questions in some events-- but generally judges/etc. are fairly understanding when she explains why she wears the bag.  She has had speech judges mark her down when she forgets to take them off.
Posted by: becca
« on: May 07, 2013, 12:17:18 PM »

FWIW, it is not so easy for all girls because girls carry purses.  Some girls do not, or prefer not to do so, and are athletes and the purses do not go to the track, or the soccer field, much like McC's ds and his situation with his speech attire and no extra items.  This has been a hurdle for dd.  she has started to carry a small cross body vera purse simple because she must to carry her epis.  I need to check now:  Where is that at track practice and meets?  I presume it is on the ground somewhere.  I need to make sure she tells an adult and some friends where it is.  She cannot wear it or carry it with tiny track shorts a sports bra and Tshirt while she runs a 100m or 200m.  She has been very good with it, but I feel a sudden panic and need to know many more details.  Her life has become suddenly so Independent of me.  7th grade has changed life a lot for us. 

I am trying to allow dd to be more in charge of her epis and allergies than the school or even me, because I find it makes her better at remembering and doing well with it.  It is better than when I would sometimes carry for her, or sometimes ask for her, etc...  And I think she knows her allergies better than any teacher or school personnel at this point.  My bigger concern with school is that they respond to or recognize her allergies appropriately, if she has a reaction.
Posted by: GingerPye
« on: May 07, 2013, 08:25:26 AM »

exactly.   :yes:  Being a teen does not mean one can be (or should be) a disrespectful little brat.

Need to add:  yesterday I explained (again/more fully) to DD why I made the phone call to the restaurant
(found the epipen on the bed; tried and couldn't get hold of her on her phone; called Dad to see if he knew; finally called the restaurant even tho I didn't want to and knew it would embarrass her = Mom was in a moment of panic since DD was eating at an unknown restaurant). 
She said she understood and that "it's okay, Mom." 

Made some progress there.   :)
Posted by: YouKnowWho
« on: May 07, 2013, 08:19:29 AM »

You can be a teen without being disrespectful.  My favorite teens were the ones who were disgusted by how others treated their parents rudely.

You can experience growing pains without being a total brat about it, kwim?
Posted by: GingerPye
« on: May 07, 2013, 08:09:51 AM »

oof, Janelle.   :-/

YKW, THANK YOU for those links.  Those stories are what I need.  I printed Link's info and gave to DD yesterday; I had highlighted where they told how many people needed multiple doses.  She scoffed.  Didn't prove anything to her.   ~) 
I need to scare her straight.

and yes, we continue working on respect and acting like an adult.   ~)  Doesn't help when Dad says (in front of DD) that she's just being a teenager.  Sorry, but I know teenagers who are respectful.
Posted by: Janelle205
« on: May 06, 2013, 11:10:00 PM »

She only has to carry the two epis - I will trade her in a heartbeat.  I carry 4-6 (the kids have juniors, I obviously don't), inhaler with spacer, Benadryl melts and spoons, Tums and whatever else various meds are needed.  I need a purse with rollers at this point...

If you ever find the roller purse...let me know.

I had to use a hiking style waist pack for my emergency kit at summer camp. (Yes, I know that it's a fanny pack.  But it is at least a nice one.  3-5 epis, depending on what I was doing for the day.  Albuterol and Atrovent puffers.  Battery operated neb, albuterol, atrovent, mucomyst and lidocaine for the neb.  Syringes for drawing up mucomyst if necessary.  Benadryl plus a med syringe full of cough syrup.  Emergency allergy free snack just in case.

The thing must have weighed 10 pounds.
Posted by: LinksEtc
« on: May 06, 2013, 09:18:33 PM »

CM -  thanks for making me  :).

GP - I'm glad you found the articles helpful.
Posted by: lakeswimr
« on: May 06, 2013, 06:18:47 PM »

There is a horribly tragic story of a preschooler in I think New Zealand or maybe Australia where the first epi didn't work and the teacher injected the 2nd into her thumb.  I started carrying 3 after reading that one.  :(
Posted by: Macabre
« on: May 06, 2013, 03:41:13 PM »

That first story is reason enough. College student. His cafeteria had been safe--except this time. His needed a second epi.


Also--Dr. Wood's reaction that required 5. I am just taking a small work break but maybe someone can find that.