Posted by: lakeswimr
« on: November 16, 2013, 07:10:17 PM »It sounds like you might have some yet undiagnosed food allergies. I would want the allergist do to food challenges in the office or hospital to narrow down the cause of the mystery reeactions. You can't avoid what you are not sure you need to avoid. Do you know that sesame does not have to be listed on labels and can be in foods? It can hide as 'spice' or 'natural flavor' or 'favoring' or other names as well. You have to call companies to ask in order to know. My son had reactions to foods that were cross contaminated with sesame but which had labels that read as safe. So, I call or email companies before getting foods or eating out with DS.
It is not unusual for ER staff to not know that much about food allergies, unfortunately. Do you have an emergency plan that clearly tells you when to epi?
As for milk--testing alone can't diagnose a food allergy because it has a very high false positive rate and it also can have false negatives, too. Has your daughter ever had a for sure reaction to milk? What happened?
It is not unusual for ER staff to not know that much about food allergies, unfortunately. Do you have an emergency plan that clearly tells you when to epi?
As for milk--testing alone can't diagnose a food allergy because it has a very high false positive rate and it also can have false negatives, too. Has your daughter ever had a for sure reaction to milk? What happened?