Discussion Boards => Main Discussion Board => Topic started by: GingerPye on November 16, 2014, 10:12:54 AM
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Title: DS had a reaction
Post by: GingerPye on November 16, 2014, 10:12:54 AM
DS attended a school event at a state university this weekend. Both DD and DS have attended this event for years now, and the dietary director has always been great to work with. No problems until this year.
The food prep staff saw "food allergy" on DS's note for his meal, and assumed he needed the gluten-free tortilla. The GF tortilla had egg in it.
Ten minutes after he ate, it was obvious he was having a reaction. TG his teachers were right there with him. I'm so proud of DS -- he gave himself the epi for the first time. (weird thing to be proud of, isn't it) Teacher called 911 and then went with him to the hospital.
He had a lot of vomiting, both before and after the epi, and his teacher told me more than once that DS was very disoriented. The vomiting is a typical reaction for my kids, but not the disorientation. That symptom was scary.
DH and I drove up in a hurry, although it was a 2.5 hr drive. Extra "fun" was the snowstorm we drove into. DS was fine and sleeping by the time we got there. I hugged his teacher so hard ...... she was terrific and did all the right things. She kept me updated by phone as we made the drive up there.
Title: Re: DS had a reaction
Post by: hezzier on November 16, 2014, 10:37:30 AM
How scary. How's he doing now?
Glad to see the teacher did a great job
Title: Re: DS had a reaction
Post by: GingerPye on November 16, 2014, 10:41:58 AM
He is fine now; sleeping. He slept much of the way home last night.
I've had a rather lengthy apology email from the dining director. I feel bad for her; she always has done such a good job for us.
Title: Re: DS had a reaction
Post by: SilverLining on November 16, 2014, 10:45:22 AM
So sorry to read this, but glad he's doing OK. Good to know birth he and his teacher knew what to do.
Title: Re: DS had a reaction
Post by: MaryM on November 16, 2014, 10:47:56 AM
Oh my Ginger. I'm so glad he is ok.
Title: Re: DS had a reaction
Post by: momma2boys on November 16, 2014, 10:59:32 AM
Oh no, how scary to be so far away! I would've been an absolute mess. So glad they handled it well and he is ok.
Title: Re: DS had a reaction
Post by: GingerPye on November 16, 2014, 11:02:29 AM
ummm yeah, I was a mess. Sick with worry on the way up there. So glad I have a new smartphone and was able to stay updated with his teacher. I also kept busy with texting a friend from here, :thumbsup: The support was great. Helped keep me from going over the edge, LOL.
Title: Re: DS had a reaction
Post by: YouKnowWho on November 16, 2014, 11:04:58 AM
:grouphug:
It is amazing how outside support can be - I found that out this week.
I hope he is feeling better soon!
Title: Re: DS had a reaction
Post by: TT on November 16, 2014, 11:32:55 AM
GP, I am so sorry that he both anaphylaxed and it was due to that stupid assumption people have that allergy means gluten free lifestyle. I'm just glad he's okay. I get this a lot with my kids they assume that my peanut allergic child can be cured by a gluten free diet. It makes education efforts and disclosing for food service requests nearly impossible.
Awesome teacher. :thumbsup:
MFA, I'm tellin' ya.
Title: Re: DS had a reaction
Post by: my3guys on November 16, 2014, 12:11:21 PM
:grouphug: :grouphug: So glad he's ok!! And kudos to him for giving himself the epi! I would've been a basket case on that ride.
What is it with this group and reactions lately?! There's been a number of them!
I've run into that issue with the rolls too. When I say egg allergy, multiple restaurants go to offer me the gluten free rolls, which will almost always contain egg!
Title: Re: DS had a reaction
Post by: GoingNuts on November 16, 2014, 12:46:48 PM
OMG GP, your poor DS! And poor you! Thank heaven he is OK, and no, it's not strange to be proud of him for giving himself the epi. It's quite worthy of being proud. :yes: He did great, and thankfully his teacher was sensitive enough to your needs to keep you informed. How we ever survived pre-cell phone is beyond me.
Just thinking of you racing in the car made me cry. This stuff is terrifying.
What is it with this group and reactions lately?! There's been a number of them!
I had the same thought, my3 - it was my second thought, once I knew he was OK. It really is strange, don't you think? We aren't even into the holiday season! :-X
Title: Re: DS had a reaction
Post by: becca on November 16, 2014, 01:06:58 PM
I hope he is feeling better today! I could not put my phone down. felt like I was on the ride with you. :grouphug:
How are you today, GP?
Title: Re: DS had a reaction
Post by: LinksEtc on November 16, 2014, 01:12:07 PM
GP, I'm so glad that your ds is ok. Although a mistake was made giving him the tortilla, your ds & the teacher handled things so well.
:grouphug:
Title: Re: DS had a reaction
Post by: Mookie86 on November 16, 2014, 01:18:47 PM
Oh my, what an awful mistake. Thank goodness he is ok.
Kudos to ds and the teacher for handling it so well. It sounds like you also did great. Traveling there must have seemed like an eternity.
I also was wondering what is going on lately the there have been so many reactions. Geesh, enough!
Title: Re: DS had a reaction
Post by: PurpleCat on November 16, 2014, 01:20:35 PM
So very glad for a good outcome. What a fantastic teacher! What a long ride in the car for you and your DH. Disorientation has happened to DD depending on the allergen that sparks the reaction.
Title: Re: DS had a reaction
Post by: CMdeux on November 16, 2014, 01:46:44 PM
Having a smart phone and a line to a few people that I can talk to during this stuff.... makes the cost of that smart-phone totally worth it for the few times when I've been so worried/anxious/antsy that I would otherwise be totally over the edge.
:grouphug:
Ginger, I'm so sorry that this happened. VERY glad that he is okay, and glad that you were able to get there quickly. (Well, relatively-- could have been worse this time of year.)
Title: Re: DS had a reaction
Post by: MandCmama on November 16, 2014, 08:39:09 PM
Oh. Wow. I'm relived to hear the outcome was a good one! And so glad his teacher did all the right things. My guts are twisting just reading about it. Prayers for you both ❤️
Title: Re: DS had a reaction
Post by: Macabre on November 16, 2014, 08:53:47 PM
Oh wow. I'm glad he was able to give himself the Epi. That disorientation symptom--so, so scary.
I assume it was a speech thing? :-/
I'm glad you had becca with you.
:heart:
Title: Re: DS had a reaction
Post by: Janelle205 on November 16, 2014, 09:21:27 PM
So glad that he is ok and was able to give himself the epi - that disorientation can sneak up on you.
I think it is totally normal to be proud of him for giving himself the epi. The last time I went to the ER, the great ER doc said: "You should be proud, you saved your own life today." Totally a good reason to be proud.
Title: Re: DS had a reaction
Post by: Mfamom on November 16, 2014, 09:33:11 PM
oh wow! how scary. I'm happy he's ok and yes, giving yourself the epi pen is something to be proud of!!
Title: Re: DS had a reaction
Post by: rebekahc on November 16, 2014, 10:15:08 PM
Oh my, GP - so glad he's ok! I can't imagine how stressful that trip must have been for you! Sounds like he and his teacher both did a great job (and hopefully dining services learned a BIG lesson, too). :grouphug:
Title: Re: DS had a reaction
Post by: momma2boys on November 16, 2014, 10:26:02 PM
Ds had that disorientation last reaction too.
Title: Re: DS had a reaction
Post by: ajasfolks2 on November 17, 2014, 07:32:01 AM
Oh wow. :heart:
How are things today? How is he? How are you?!
Yes, seems quite a few reax here lately . . . but I think many of us had gone quite some time without reax . . . so it likely evens out. I hope, anyway.
Have to agree with TT and the mix up of food allergy with "gluten free" . . . that is something that we all need to focus on with our kids and young adults -- how to get that across and be clear AND how to tell if we were not understood, if at all possible.
I'm so sorry this happened to you.
Whoever it was upstream who said was in tears reading about you driving in the snowstorm, well I was in tears there too!
:grouphug: today for all of your family!
Title: Re: DS had a reaction
Post by: GingerPye on November 17, 2014, 10:56:36 AM
Thanks, you guys :heart: I knew you'd all know exactly what I was going through.
DS is fine today. He is minus an epipen, so I've got an order in to get another set at the pharmacy. There is a set of epis at school, so he's fine while there.
Mac, it was ThesFest.
Title: Re: DS had a reaction
Post by: PurpleCat on November 17, 2014, 12:55:13 PM
It's great there was no hesitation about going back to school.
When DD had her last reaction the school nurse called to see if there was anything she could do to make DD feel safer even though the reaction was not at school.
Going back into the public can be scary.
How are you feeling?
Title: Re: DS had a reaction
Post by: Penny on November 18, 2014, 11:21:46 AM
How very scary - especially having to drive through a snowstorm to be with DS. Glad he's ok!! :heart:
Title: Re: DS had a reaction
Post by: GingerPye on November 18, 2014, 12:21:50 PM
Update: the dining director at the university has met with her food service personnel a couple of times now. They have brainstormed ways to make sure this doesn't happen again. I don't know the specifics; just that they have met and worked out a better plan.
Title: Re: DS had a reaction
Post by: Mookie86 on November 18, 2014, 01:24:41 PM
I am very sorry anyone had a reaction, let aline for it to happen to your ds, but I am glad they are taking it seriously and improving safety.
Title: Re: DS had a reaction
Post by: becca on November 20, 2014, 06:02:56 AM
That is good that she is keeping you in the loop and implementing changes. I think I would still send my own food next time! Just so scary.