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Title: Reviewing your (child's) medical records
Post by: ajasfolks2 on January 26, 2013, 04:20:17 PM
Just as a parent should/would fully review the school record for child, so should the parent review the complete medical record for child at pediatrician and allergist and any other med care providers.

So, what are the rights of parents/patient if med records have inaccuracy or an "opinion" that is not based in fact in the record?

HIPAA only goes so far as to access . . . but not much there so far as right to correct inaccuracy, yes?

Thoughts and suggestions?

Title: Re: Reviewing your (child's) medical records
Post by: twinturbo on January 26, 2013, 05:10:35 PM
A lot of our developmental ped reports had glaring clerical errors due to being outsourced to another country to be written in report form. It was done through university and we were not informed until adter the fact so 20/20 hindsight I'd start asking before any more records are made. It's a horrendous bureucratic feat to get corrections. It would be easier to add a separate statement to amend the existing file.

I also start leanin' on folks when I see things get out of line. Using the Austin Powers method I want to know who number 2 is working for and if it's not ME then I find someone competent who will. Like when I start seeing statements about my emotional state when my kid is anaphylaxing right in front of everyone that's a hell no. That required some one on one time where I said report on the patient in your care confirm we understand one another.
Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on January 26, 2013, 05:21:52 PM
A very helpful article.  Actually, I like that whole patient empowerment site.

http://patients.about.com/od/yourmedicalrecords/a/howtocorrect.htm
Title: Re: Reviewing your (child's) medical records
Post by: CMdeux on January 26, 2013, 10:50:51 PM
I had to lean pretty hard on a hospital administrator to get "parents suspect allergic reaction" amended to read "florid presentation of anaphylaxis" when DD was a baby.

Yeah.  Wasn't much "suspect" about it, actually-- and the attending physician KNEW IT when he finally showed up.  They didn't triage, and therefore didn't call for transport (which they should have done, since post-disaster, they weren't actually an operational ER and had NO PHYSICIAN ON-FLOOR).  Which would have been fine IF the way they coded it had been how it was going down-- but it wasn't.

Our child was on the edge of "conscious" when we rolled through the ER doors shrieking for help.

Similar to TT, I leaned hard on them about that coding-- with the reasoning that if they CHOSE to mis-code that, it could have a deleterious impact on our future ability to access appropriate resources for MANAGEMENT of our DD.  Oh, and that it would sure be a shame if we had to get ugly over how poorly they "handled" us that morning.  (Our pediatrician and brand new allergist had already apparently had parts of that conversation, by the way-- including things like "what do you MEAN you don't have a peds crash cart on floor?") So Ms. Administrator knew that wasn't an idle threat; they were grossly incompetent, and they (and we, obviously) were VERY lucky that she didn't die.  Because she certainly didn't get any care for the first thirty minutes we were there-- nobody even checked in on us.  DD was not awake/was unconscious at that point.  Hard to know which given that she was 11months old.  We also told them very specifically that she was anaphylaxing-- TO PEANUT.  I still have very serious PTSD when I think about that morning.  I have never felt more hopeless, helpless, and heartbroken in my life. 

I was deeply unpleasant to that hospital administrator, and I have NO regrets about that.  She was CYA-ing her staff. 





Title: Re: Reviewing your (child's) medical records
Post by: hurt on January 27, 2013, 08:32:48 AM
Thoughts and suggestions?

The first step is to make sure you get all of your records.  The office originally did not give us all the allergy records even though I wrote on the release form "any and all" allergy-related records.  I had to call back and tell them I wanted the phone conversations also.  BTW, this is a dr that I only met once ... we never had any problems with my former allergists, very nice, very professional, very competent.
Title: Re: Reviewing your (child's) medical records
Post by: ajasfolks2 on February 05, 2013, 02:16:02 PM
After reading links' link:
So, after submitting the proposed amendment, the med provider has 60 days to respond.

Side bar:  also might be interesting to see what MIB has, esp if working on life insurance:
http://www.mib.com/
Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on February 05, 2013, 02:33:44 PM
They can extend another 30 days.

Quote
The provider or facility must act on your request within 60 days, but may extend up to 30 days if they provide a reason to you in writing.


Quote
If they have refused to amend your records as per your request, you may submit a formal, written disagreement which must be added to your file.


--------------

You should tread with caution, however ...

"Doctors Reject Difficult Patients, Denying Them the Medical Care They Need"
http://patients.about.com/od/doctorsandproviders/a/dealwdifficultpts.htm
Title: Re: Reviewing your (child's) medical records
Post by: Gray on April 12, 2013, 09:25:12 AM
*** poof ***
Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on May 24, 2014, 08:17:45 PM
Tweeted by @writeo & @Farzad_MD

--------------------


"Defeating The Medical Records Paper Copy Scam"
http://www.litigationandtrial.com/2014/03/articles/attorney/medical-records-paper-copy-scam/

Quote
We are not requesting paper copies. Do not bill us for paper copies. The HITECH Act and its regulations do not allow you to bill for paper copies when an electronic copy has been requested.


Quote
If any of the above records are available only as paper copies, and have never been made into an electronic format, please identify the record and provide the cost of copying.


--------------------

FWIW, all of the docs & hospitals we have dealt with have been very decent in terms of charging for copies of records.  In fact, I don't remember having to pay any of them, even for very large files.

Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on May 24, 2014, 08:49:21 PM
"The Smart Way to Create a Transparent Workplace"
http://www.wsj.com/articles/the-smart-way-to-create-a-transparent-workplace-1424664611?mod=e2tw

Quote
the same openness that at times can increase accountability, collaboration, knowledge sharing, innovation and productivity can also undermine it


-----------------------------------------

Tweeted by @SusannahFox


"OpenNotes: Putting Medical Record Transparency to the Test"
http://www.rwjf.org/en/research-publications/find-rwjf-research/2014/02/opennotes--putting-medical-record-transparency-to-the-test.html?cid=xsh_rwjf_tw

Quote
She cautions, however, that because OpenNotes appears to be popular and effective in primary care settings does not necessarily mean that it will be equally so in specialty settings—especially those such as psychiatry and oncology, where the balance between openness and patient protection may have to be set differently.





Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on July 22, 2014, 09:32:38 PM
Tweeted by @CancerDotNet

"Keeping a Personal Medical Record"
http://www.cancer.net/navigating-cancer-care/managing-your-care/keeping-personal-medical-record?et_cid=34067702&et_rid=539063352&linkid=http://www.cancer.net/navigating-cancer-care/managing-your-care/keeping-personal-medical-record

----------------------------------


Tweeted by @subatomicdoc

"Electronic medical records, for-profit medicine, and the doctor-patient relationship"
http://www.thehealthculture.com/2014/12/electronic-medical-records-for-profit-medicine-and-the-doctor-patient-relationship/?utm_content=buffer0d9d4&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer

Quote
A Canadian physician friend, though, says he uses an electronic record that does not disturb his rapport with patients.

Quote
we tend to include extraneous information to justify higher levels and satisfy potential insurance company audits. Canada has only two levels, so doctors’ notes are short and succinct.




Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on August 15, 2014, 11:21:22 AM
What exactly is the law on requesting medical records?
Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on September 28, 2014, 11:18:50 AM
Tweeted by @drval

Quote
Lawyer group auditing EMRs state that the info contained is too unreliable to be admitted as evidence in court: avemarialaw.edu/lr/Content/art…


---


"ELECTRONIC HEALTH RECORDS SYSTEMS: TESTING THE LIMITS OF DIGITAL RECORDS’ RELIABILITY AND TRUST"
Barbara Drury,† Reed Gelzer,†† and Patricia Trites†††

http://www.avemarialaw.edu/lr/Content/articles/v12i2.Gelzer.pdf


Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on October 08, 2014, 04:26:08 PM
These are more of a doc issues, but interesting.


Tweeted by @EricTopol

"Doctors Find Barriers to Sharing Digital Medical Records"
http://www.nytimes.com/2014/10/01/business/digital-medical-records-become-common-but-sharing-remains-challenging.html?ref=health&_r=0

Quote
Regardless of who is at fault, doctors and hospital executives across the country say they are distressed that the expensive electronic health record systems they installed in the hopes of reducing costs and improving the coordination of patient care — a major goal of the Affordable Care Act — simply do not share information with competing systems.



&



"Feds move into digital medicine, face doctor backlash"
http://www.usatoday.com/story/news/nation/2015/02/01/backlash-against-electronic-medical-records/21693669/

Quote
A group of 37 medical societies led by the American Medical Association sent a letter to Health and Human Services last month saying the certification program is headed in the wrong direction, and that today's electronic records systems are cumbersome, decrease efficiency and, most importantly, can present safety problems for patients.






Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on November 10, 2014, 09:33:07 PM
Tweeted by @ahier

"End-of-life instructions find no place in electronic health records"
http://www.politico.com/story/2015/01/end-of-life-instructions-ehr-114139.html

Quote
Recording the desires of patients who are on their death beds — or even noting whether a patient has appointed someone to make medical decisions on his or her behalf — has become a huge gap in the nationwide effort to computerize patient care. The few hospitals trying to come up with their own digital approaches are finding it’s not easy.


---------------------------------------------------




Tweeted by @CMichaelGibson

"Medical Records: Top Secret"
http://www.nytimes.com/2014/11/09/sunday-review/medical-records-top-secret.html?ref=opinion&_r=1

Quote
“When hospitals talk about Hipaa or charge for releasing records what they’re really saying is, ‘I don’t want to do this and I have to find an excuse,’ ” said Dr. David Blumenthal, president of the Commonwealth Fund, who was previously President Obama’s national health information technology coordinator.





Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on February 06, 2015, 08:10:01 AM
"A Difficult Patient"  (Seinfeld - about medical chart)
https://m.youtube.com/watch?v=ZJ2msARQsKU



Lol



--------------------------



Re: Docs helping patients to surf the internet

“Good” Patients and “Difficult” Patients — Rethinking Our Definitions
[url]http://www.nejm.org/doi/full/10.1056/NEJMp1303057[/url]

Quote
Abiding by the unspoken rules of medical etiquette, I had quieted my internal alarms for more than 2 hours.

Quote
When we call patients and families “good,” or at least spare them the “difficult” label, we are noting and rewarding acquiescence. Too often, this “good” means you agree with me and you don't bother me and you let me be in charge of what happens and when.


---


Re: Tweet response for @GilmerHealthLaw
Tweeted by @helenbevan

Quote
The outstanding talk that @allyc375 gave at #confed2015: "From patient voice to patient leadership" youtube.com/watch?v=dnhjgY… #mustwatch



[url]https://m.youtube.com/watch?sns=tw&v=dnhjgYGbEpk[/url]

Quote
7:33
Quote
I'm a label queen

8:57
Quote
"Maelstrom of mayhem" is my particular favorite




--------------------------



Re: Communication and/or negotiation skills


Chapter 31
Communicating with the Difficult Patient or Family

Quote
Difficult patients, defined as those who do not assume the patient role expected by the healthcare professional, are encountered in every setting

Quote
Labels, such as difficult, hateful, or crazy, tend to follow patients and family members throughout the medical care process and negatively affect the way they are approached and treated (Lin et al., 1991).

Quote
By reinforcing and modeling professional behavior and avoidance of labeling, the team leader promotes high quality and safe, patient-centered care.



-----------------


Re: Bias





Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on February 22, 2015, 10:20:22 PM
Tweeted by @SPulim


Medical Records were not meant to be “Sugarcoated”
https://www.linkedin.com/pulse/medical-records-were-meant-sugarcoated-christian-assad-kottner


Quote
I am now encountering physicians, being contacted by their patients, arguing that they do not appreciate being called obese in the note. They do not appreciate hearing that they are not compliant when obviously they are not. Since physicians do not want to aggravate more people then they reword or simply refrain from placing particular information in the chart.


----------------------------


Tweeted by @eliza68

"The Healing Power of Your Own Medical Records"
http://www.nytimes.com/2015/04/01/technology/the-healing-power-of-your-own-medical-data.html?smprod=nytcore-iphone&smid=nytcore-iphone-share&_r=0

Quote
Steven Keating’s doctors and medical experts view him as a citizen of the future.

Quote
He pushed doctors to conduct an M.R.I., and three weeks later, surgeons in Boston removed a cancerous tumor the size of a tennis ball from his brain.

Quote
encountered a medical culture resistant to sharing data, owing to tradition, business practices and legal concerns





Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on February 28, 2015, 06:57:16 AM
Tweeted by @EricTopol

"Many Patients Would Like To Hide Some Of Their Medical Histories From Their Doctors"
http://www.fastcoexist.com/3042699/many-patients-would-like-to-hide-some-of-their-medical-histories-from-their-doctors


Quote
But does, say, your podiatrist really need to know about the abortion you had 10 years ago?

Quote
Given the option, 49% of the 105 patients who participated decided to withhold at least some information from their doctors. Four patients went so far as to withhold all of it, meaning every time they saw a doctor, they’d start with a clean chart. Every single patient, even those who wanted doctors to see all their data, said they wanted to be asked.



--------------------------


Tweeted by @CUsafepatient

Patient Advocates Fight for Access to Medical Data: ‘It’s a Matter of Life and Death’
http://ww2.kqed.org/futureofyou/2015/05/11/patient-advocates-fight-for-access-to-medical-data-its-a-matter-of-life-and-death/

Quote
“After requesting Kate’s records, I saw all sorts of things that concerned me, whether it was tired residents making mistakes, factual errors, or written notes that contradicted each other.”

“Most people don’t ask for a copy of their medical record, which is a terrible mistake,” she said.


--------------------------


Tweeted by @AtulGroverMD

"The 5 Percent Conundrum"
http://thehealthcareblog.com/blog/2015/05/11/the-5-percent-conundrum-is-about-freedom/

Quote
the CMS recently announced its intention to eliminate this requirement and stick with letting people choose whether they wish to access their medical records or not, and not penalize physicians for letting their patients exercise free will

Quote
Contrary to what you may have heard in your Twitter/tradeshow/conference echo chamber, most people have no interest in running around with a miniature ICU strapped to their wrist, and couldn’t care less about the difference between lymphocytes and monocytes.


-------


Other POV from @ePatientDave

“No MU without ME”: join the campaign to fight health data hiding
http://e-patients.net/archives/2015/04/no-mu-without-me-join-the-campaign-to-fight-health-data-hiding.html

Quote
The new draft says no more “5% rule” – they only have to show that one patient has done it, and they’ll get full federal reimbursement.



I agree w/Dave on lots of stuff, but as long as I can get access if I want it - that's what seems important to me ... @AtulGroverMD has a good point about how docs shouldn't have to force people to look.

-------


ETA more ...

"My comment submitted for Meaningful Use Stage 3 last week"
http://www.epatientdave.com/2015/06/03/my-comment-submitted-for-meaningful-use-stage-3-last-week/

Quote
I’ve heard of doctors begging their patients to log in to the thing, as a personal favor. Docs I know and like. Yet, back in November, half the providers who’d already succeeded at this measure said that 32% of their patients are doing it! What the heck??



-------



Tweeted by @UtahInnovation

"These tweets perfectly sum up the divide on patient engagement"
http://medcitynews.com/2015/06/these-tweets-perfectly-sum-up-the-divide-on-patient-engagement/?utm_source=MedCity+News+Subscribers&utm_campaign=de3e71e17c-RSS_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_c05cce483a-de3e71e17c-67860709

Quote
Patient advocates and pro-engagement types dominate the audience at Health Datapalooza in Washington, which kicked off Monday morning. This tweet tells what happens when a vendor executive suggests to this crowd that maybe not enough consumers have requested access to their health data.





Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on February 28, 2015, 06:57:34 AM
Tweeted by @JBBC


"RX NARRATIVE: STORY AS MEDICINE #DOTMED14"
http://journeyingbeyondbreastcancer.com/2014/12/08/rx-narrative-story-as-medicine-dotmed14/?utm_content=bufferda040&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer


Quote
The medical chart becomes the official story and the doctor the teller of the patient’s story. What happens when the patient narrative doesn’t match the physician’s version?



--------------------------------



Tweeted by @ConsumerDavid

Will you be able to help your college-age child in a medical emergency?
HIPAA Privacy Rule can get in your way

http://www.consumerreports.org/cro/news/2014/08/will-you-be-able-to-help-your-college-age-child-in-a-health-emergency/index.htm

Quote
Once a child turns 18, the child is legally a stranger to you,” said Jane F. Wolk, a trusts and estates attorney practicing in New York and New Jersey, referring to the legal age in almost all states (in a few it's older).

Quote
Three forms—HIPAA authorization, medical power of attorney, and durabe power of attorney—will help facilitate the involvement of a parent or other trusted adult in a medical emergency.








Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on February 28, 2015, 06:57:48 AM
Tweeted by @rzeiger


"Confession of a dishonest physician"
http://ronizeiger.com/confession-of-a-dishonest-physician/


Quote
The thing is, I have a conflict of interest. I want to be the hero, the one who asked just the right question and guided the patient to the appropriate treatment.

At a minimum, I don’t want to sound dumb.



-------------------------



Tweeted by @EricTopol

"How Differently Patients and Doctors View Health Technology, With Dr. Eric Topol"
http://www.cfah.org/blog/2014/how-differently-patients-and-doctors-view-health-technology-with-dr-eric-topol

Quote
Welcome to the digital health chasm, that gap between what consumers want out of digital health and what doctors believe patients can handle at this stage in EHR adoption in doctors' offices and in patients' lives.

I have the video of Jack Nicholson's general in A Few Good Men asserting, "You can't handle the truth!"


&



"Hipaa’s Use as Code of Silence Often Misinterprets the Law"
http://www.nytimes.com/2015/07/21/health/hipaas-use-as-code-of-silence-often-misinterprets-the-law.html?_r=1

Quote
By the time Ms. Gray found a nurse willing to listen, hours later, her mother had already been prescribed a drug she was allergic to. Fortunately, the staff hadn’t administered it yet.

Each scenario, attorneys say, involves a misinterpretation of the privacy rules created under the Health Insurance Portability and Accountability Act. “It’s become an all-purpose excuse for things people don’t want to talk about,” said Carol Levine, director of the United Hospital Fund’s Families and Health Care Project, which has published a Hipaa guide for family caregivers.

---


For Family Caregivers
HIPAA: Questions and Answers for Family Caregivers

http://www.nextstepincare.org/Caregiver_Home/HIPAA/






Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on June 08, 2015, 10:06:57 AM
Tweeted by @danmunro


"New Poll Shows Two-Thirds Of Doctors Reluctant To Share Health Data With Patients"

I was having trouble with this link, but it seems to be working for me now.
http://www.forbes.com/sites/danmunro/2015/06/08/two‒thirds-of-doctors-are-reluctant-to-share-health-data-with-patients/


Quote
Should patients have access to their entire medical record ‒ including MD notes, any audio recordings, etc…?

For many, the response by over 2,300 physicians came as no real surprise.

Quote
this represents the first poll of physician’s directly and was conducted through the large physician social network known as SERMO.


---------------



Re: Docs helping patients to surf the internet


Quote
Tweeted by @kevinmd

"A physician responds to OpenNotes critics"
[url]http://www.kevinmd.com/blog/2014/07/physician-responds-opennotes-critics.html[/url]

Quote
I can’t get away with labeling a patient in my chart as a symptom magnifier or minimizer, having poor insight into their contribution to the problem, describing pain that does not fit with the setting or findings, making poor choices, non-compliant.


Quote
The point is, the collected information, assessment and plan that the patient and clinician are basing diagnosis and treatment on should be used as a collaborative tool, not as the clinician’s private record of why they did what they did (to the patient).


I admire this approach/philosophy.

---------------------------------------------------------


Tweeted by @drval

"When Patients Read What Their Doctors Write"

[url]http://www.npr.org/blogs/health/2014/08/14/340351393/when-patients-read-what-their-doctors-write?utm_source=twitter.com&utm_campaign=health&utm_medium=social&utm_term=nprnews[/url]

Quote
I sat down next to her and showed her what I was typing. She began pointing out changes.

Quote
As we talked, her diagnosis — inflammation of the pancreas from alcohol use — became clear, and I wondered why I'd never shown patients their records before.


---------------------------------------------------------


"Progress notes are a poor tool for doctor-patient collaboration"
[url]http://www.kevinmd.com/blog/2014/08/progress-notes-poor-tool-doctor-patient-collaboration.html[/url]

Quote
Defenders repeatedly invoke “transparency,”

Quote
Some of the rhetoric has a defiant, even self-righteous tone

Quote
And there’s no clear endpoint: about 60% of the patients surveyed in the OpenNotes study believed they should be able to add comments to a doctor’s note







Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on June 08, 2015, 12:57:06 PM
Tweeted by @ePatientDave

"How to Take Charge of Your Medical Records"
http://www.wsj.com/articles/SB12367224787933994021304581064031716335262


Quote
For most people, of course, it’s all too easy to simply leave their health records in the hands of doctors and hospitals. But that’s a big mistake, the advocates argue. First, it gives doctors too much power over information that is vital to patients, and it creates opportunities for errors. Perhaps more important, it keeps patients from using the information themselves for their own benefit.



----------------


Re: Docs helping patients to surf the internet


Tweeted by @SusannahFox

"OpenNotes: Putting Medical Record Transparency to the Test"
[url]http://www.rwjf.org/en/research-publications/find-rwjf-research/2014/02/opennotes--putting-medical-record-transparency-to-the-test.html?cid=xsh_rwjf_tw[/url]

Quote
one kind of record has consistently remained off-limits—the doctor’s own notes


Quote
The program—called OpenNotes—has been testing, in three different medical settings, the idea of patients having access to their physician’s notes.



------------------------------------------

"The promise and peril of OpenNotes"
[url]http://www.kevinmd.com/blog/2014/05/promise-peril-opennotes.html[/url]

Quote
Don’t give them information in the privacy of their own homes that they aren’t equipped to deal with, or anything that might hurt their feelings.


------------------------------------------

"Trisha's Misdiagnosis Story   "
[url]http://www.everypatientsadvocate.com/misdiagnosis.htm[/url]

Quote
I told him I was trying to find another oncologist for a second opinion. There were too many question marks. His reply to me makes me shudder to this day, “What you have is so rare, no one will know anymore about it than I do!”


Quote
Records in hand, I began to google every word I didn't understand to see if I could learn more.

If I had to pinpoint an exact moment when this patient advocacy mission began, that moment would be it.


------------------------------------------

I guess I'm a fan of transparency.  I can deal with hurt feelings or difficult news, but let me know what is going on.  There may be some sense in letting the doc talk to a patient before giving them the record like in the cancer example.







Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on July 05, 2015, 11:46:24 AM
Tweeted by @Atul_Gawande

Quote
Must read for anyone who needs healthcare... ie, everyone. #getmyhealthdata twitter.com/hmkyale/status…

------


"Happy Data Independence Day!"
https://getmyhealthdata.org/2015/07/04/happy-data-independence-day/

Quote
This opening of health data silos will be under the patient’s control, and can lay the foundation for a healthcare system that sees patients as partners, and spur unforeseen innovation in technology that helps us manage our health, our healthcare, and healthcare finances.






Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on July 22, 2015, 08:13:55 PM
Tweeted by @EricTopol

"The tragedy of the electronic health record"
http://alphaomegaalpha.org/pharos/PDFs/2015-3-Editorial.pdf?http://alphaomegaalpha.org

Quote
Time, sympathy, and understanding must be lavishly dispensed, but the reward is to be found in that personal bond which forms the greatest satisfaction of the practice of medicine. One of the essential qualities of the clinician is interest in humanity, for the secret of the care of the patient is in caring for the patient.
—Francis W. Peabody

Quote
the authors described their institution’s and physicians’ experiences with electronic health record (EHR) systems, discussed the general state of EHRs and how they are used today, related the problems they have experienced with EHRs, and made recommendations for changing how we use them to reestablish the primacy of the doctor-patient relationship







Title: Re: Reviewing your (child's) medical records
Post by: CMdeux on August 21, 2015, 11:08:19 AM
Patients who reviewed treatment notes improved care and safety


Not a surprise, by any means.  :)  Hopefully this will catch on!
Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on April 22, 2016, 09:47:01 AM
Tweeted by @hmkyale

Quote
Key point: 92% patients want full access to their records! only 18% docs agree. Patients should win. #HIMSS16

--------


"PATIENTS WANT A HEAVY DOSE OF DIGITAL"
https://www.accenture.com/_acnmedia/PDF-8/Accenture-Patients-Want-A-Heavy-Dose-of-Digital-Infographic-v2.pdf

Quote
Most (92%) patients believe they should have full access to their records, while only 18%
of physicians share this belief. Interestingly, about half (49%) of patients believe they have full access (see Figure 5). The perception gap about EHR access has widened in the past two years, a 42% decline in physicians and a 10% rise in patients.




Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on April 22, 2016, 09:55:25 AM
Tweeted by @mahoneyr

Quote
I think it would be interesting to read a chart full of "no I didn't" and "wasn't like that." @AureliaCotta #hcldr


  :)



 :hiding:





Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on April 22, 2016, 10:15:09 AM
Tweeted by @EricTopol

"Let Patients Read Their Medical Records"
http://well.blogs.nytimes.com/2016/03/31/let-patients-read-their-medical-records/?ref=health&_r=0

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When I read a patient’s electronic health record, I now assume what’s written there is as likely to be wrong or outdated as it is to be accurate. Sometimes these discrepancies are minor and inconsequential; sometimes they can be devastating.

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We now spend two hours a day reporting quality measures, but what needs to be mandatory in the age of digitalization is the art of story gathering and storytelling.







Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on April 22, 2016, 10:21:58 AM
Tweeted by @CMichaelGibson


"As hospitals go digital, human stories get left behind"
https://www.statnews.com/2016/04/06/electronic-medical-records-patients/?utm_content=bufferbd91e&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer

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Epic is not well-suited to communicating a patient’s complex experience or a physician’s interpretation of that experience as it evolves over time, which is to say: Epic is not built to tell a story.



Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on April 22, 2016, 10:25:34 AM
Tweeted by @ePatientDave

Individuals’ Right under HIPAA to Access their Health Information 45 CFR § 164.524
http://www.hhs.gov/hipaa/for-professionals/privacy/guidance/access/index.html#newlyreleasedfaqs




Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on April 22, 2016, 11:07:15 AM
Re: Tweet response for @GilmerHealthLaw

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"Partners computer system brings prescription for frustration"
http://www.bostonglobe.com/business/2016/05/16/partners-healthcare-new-computer-challenges-some-doctors-nurses/1I4QsWGjCJ97xFmUbcDbaJ/story.html

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Now, she says, she’s become a captive of the keyboard, spending far more of her time recording every blood pressure reading, every feeding, every diaper change. The demands of the new system are so taxing and time-consuming, Lydon said, that the computer has come between her and her patients.

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“They’re more about billing and complying with mandates than about what’s really useful to the physician to help us take better care of patients,” said Dr. Glenn A. Tucker, who chairs the Massachusetts Medical Society’s committee on information technology.






Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on April 24, 2016, 12:44:31 PM
RT by @Atul_Gawande


"Putting Doctors and Patients on the Same Page"
https://medium.com/@CommonwealthFund/putting-doctors-and-patients-on-the-same-page-cfed43819a2d#.xvmvyv10f

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When doctors share their clinical notes with patients, it can lead both parties to change their behavior
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But the evidence to date suggests that OpenNotes can spark more open and informed conversations among doctors and patients and — as part of broader efforts to encourage patients to become active participants in their care — may lead to fewer medical errors and better care.




Title: Re: Reviewing your (child's) medical records
Post by: LinksEtc on September 10, 2017, 10:50:12 PM
Just a quick FYI for those interested in med recs ..... realize that your copy may not be the final & complete copy if all of the encounters are not signed.