My first is that I do not like it. I don't care for the graphics- they seem too distracting. OTOH, I do like the inclusion of instructions for Auvi-q. I'd add a link here, but I'm at work and such feats aren't possible :)
Links put it downpage somewhere I'm too lazy to link to. I'm unsure how to use it for MFA considering not all allergens are an automatic epi. Egg would be wait and see even for known ingestion. Peanut, that would be epi even if you think he might have eaten a trace amount.
I think I like it. It isn't our plan, though. Our plan calls for the epi for anything other than localized hives with known or suspected ingestion. I have failed to epi sometimes in situations the new plan would call for watch and wait or Benadryl and those symptoms seem more moderate to my non-MD self. I like how it treats GI symptoms, unlike the old plan that didn't treat GI seriously enough IMO.
Quote from: twinturbo on August 16, 2013, 02:35:56 PM
Links put it downpage somewhere I'm too lazy to link to.
:)
Emergency Action Plan from the Food Allergy and Anaphylaxis Network (http://foodallergysupport.olicentral.com/index.php/topic,4868.0.html)
I'm looking at it more and I think it could be a bit confusing with the check boxes at the top but I think that is the only way to make it work for all possible plans regarding giving the epi with known ingestion, etc.
http://foodallergybitch.blogspot.com/2013/08/new-food-allergy-action-plan-from.html (http://foodallergybitch.blogspot.com/2013/08/new-food-allergy-action-plan-from.html)
http://www.foodallergy.org/document.doc?id=234 (http://www.foodallergy.org/document.doc?id=234)
They've changed it again since I printed the forms at the beginning of the school year. Thoughts?
How did they change it?
The forms I sent to school at the end of August had slightly different wording of options when to give epi and different descriptions of symptoms. They've now added pictures for body symptoms and I think further simplified when to give epi.
Quote from: twinturbo on August 16, 2013, 02:35:56 PM
I'm unsure how to use it for MFA considering not all allergens are an automatic epi. Egg would be wait and see even for known ingestion. Peanut, that would be epi even if you think he might have eaten a trace amount.
They could solve this issue pretty easily .... Have something like this up top, above those boxes ...
"Allergy to: ________________________"
"Give epinephrine for ANY symptoms if the following allergen(s) was/were likely eaten (extremely reactive): _____________________________________________"
"Give epinephrine BEFORE symptoms if the following allergen(s) was/were definitely eaten (extremely reactive): ___________________________________________"
*****************************
I love making forms better. I would love to be part of a team that develops allergy/asthma forms for real.
Another thing I wish they'd change ....
On items like this:
QuoteThroat
tight, hoarse, trouble breathing/swallowing
add an "or" in there
QuoteThroat
tight, hoarse, or trouble breathing/swallowing
It doesn't make sense to me for them to have this wording
QuoteOr a comination of mild or severe symptoms from different body areas.
inside of the "severe symptoms box" if they really want us to look at mild symptoms also.
Quote from: LinksEtc on November 21, 2013, 09:17:15 AM
Quote from: twinturbo on August 16, 2013, 02:35:56 PM
I'm unsure how to use it for MFA considering not all allergens are an automatic epi. Egg would be wait and see even for known ingestion. Peanut, that would be epi even if you think he might have eaten a trace amount.
They could solve this issue pretty easily .... Have something like this up top, above those boxes ...
"Allergy to: ________________________"
"Give epinephrine for ANY symptoms if the following allergen(s) was/were likely eaten (extremely reactive): _____________________________________________"
"Give epinephrine BEFORE symptoms if the following allergen(s) was/were definitely eaten (extremely reactive): ___________________________________________"
*****************************
I love making forms better. I would love to be part of a team that develops allergy/asthma forms for real.
This most closely resembles the old-old-OLD forms from FAAN.
I know, because I still have one of those somewhere-- I remember going over it with Nancy Ott in about 2000.
Hmmm ... that was before dd was born so I'm not familiar with that form.
I wonder why they changed it. It just seems there needs to be a place to write in the relevant allergens for those with MFA of different severities.
I think it was to streamline it for caregivers. I do remember that it was confusing for daycare providers. Different rules for different allergens, different rules for different symptoms, etc.
Unfortunately, this is a decision tree that can only BE simplified just so much before it becomes too overgeneralized to use for some people.
Great points, as usual :) .
What would my allergy life have been like without you CM?
:smooch:
http://blog.foodallergy.org/2014/02/07/food-allergy-reactions-what-to-do-in-an-emergency/ (http://blog.foodallergy.org/2014/02/07/food-allergy-reactions-what-to-do-in-an-emergency/)
hmmm ...
QuoteAntihistamines may be given, if recommended by a physician, for a single mild symptom
fwiw, I prefer the term FAAP over ECP, but the trend seems to be towards the latter.
QuoteAgain, when in doubt, give epinephrine! This is critically important. You could save a life.
Quote from: LinksEtc on February 07, 2014, 06:44:18 PM
http://blog.foodallergy.org/2014/02/07/food-allergy-reactions-what-to-do-in-an-emergency/ (http://blog.foodallergy.org/2014/02/07/food-allergy-reactions-what-to-do-in-an-emergency/)
hmmm ...
QuoteAntihistamines may be given, if recommended by a physician, for a single mild symptom
http://www.foodallergy.org/document.doc?id=294 (http://www.foodallergy.org/document.doc?id=294)
This is on my list to talk to our allergist about at next appt.
Quote from: LinksEtc
fwiw, I prefer the term FAAP over ECP, but the trend seems to be towards the latter.
There's a reason for that. :-X
BTW, just saw the new one. I know no one form is going to be everyone's cup of tea but I thought it looked solid.
Quote from: twinturbo on May 19, 2014, 05:39:16 PM
Quote from: LinksEtc
fwiw, I prefer the term FAAP over ECP, but the trend seems to be towards the latter.
There's a reason for that. :-X
BTW, just saw the new one. I know no one form is going to be everyone's cup of tea but I thought it looked solid.
What is the reason?
---------------------------------
The newest version of the FARE plan:
http://www.foodallergy.org/document.doc?id=234 (http://www.foodallergy.org/document.doc?id=234)
I like that they made that separate box for the "extremely reactive" instructions.
I would have had to epi dd many times in the past if I had been following this plan for mild symptoms. :misspeak:
ok ... getting my school forms together :P
Something that bugs me on the new FAAP/ECP ....
In the (mild symptoms box), they just say "Give Epinephrine" if more than 1 system area.... but all the other epi instructions are in the (severe symptoms box) like call 911, etc. The former computer programmer in me says both should point to 1 "give epi" instruction area. :tongue:
My :heart: of forms ... based on a talent or a curse or both? :coffee:
Do you think it would have been better to have that mild/epi area an optional checkbox for allergist to decide? Those going through OIT and/or having OAS often have those symptoms. I'll leave that ? to the experts.
My forms just came in the mail today from our allergist visit last week. I was a bit surprised to see they switched back to the old FAPs. I know our school nurse also prefers the old ones.
Quote from: MandCmama on August 26, 2014, 06:12:31 PM
My forms just came in the mail today from our allergist visit last week. I was a bit surprised to see they switched back to the old FAPs. I know our school nurse also prefers the old ones.
Which format do they like ... the 5/2013 one? Did they say why they prefer the older ones?
Once upon a time DH and I discussed these Allergy Action Plans and the many formats . . . and we decided that an experienced PILOT should consult with them so that the forms were more streamlined and user-friendly . . . as well as SUPER clear.
In an emergency, the fewer the words and the firmer the instructions ("Emergency Procedures"), the better.
*sigh*
Hubby just added:
Needs to be easy to understand when you're on fire.
I'm not sure why the allergist doesn't use the new one. I know the nurse thought it was too cluttered with the pictures. I want to say it was the last version before the current one.
Just looked. It's actually the one from 2010 they are using.
Many kids with FA and/or asthma don't have school health plans (http://foodallergysupport.olicentral.com/index.php/topic,9403.0.html)
Quote from: LinksEtc on September 15, 2014, 12:44:50 PM
On the FARE FAAP/ECP, have a check box the allergist could check saying something like it's their opinion this child should be evaluated by the school for a 504 plan ... that the child has a major life activity that is affected ... that the CDC guidelines should be referred to ...
make the wording bold. :evil:
Allergic to everything, Help! I'm desperate. (http://foodallergysupport.olicentral.com/index.php/topic,9321.0.html)
Quote from: LinksEtc on September 13, 2014, 12:35:26 PM
In addition to the grading chart, there is the FARE "Food Allergy & Anaphylaxis Emergency Care Plan" ... there is some language about "child" in there as it's often used for students, but your doc could make a few minor changes & sign the plan for you (if the doc agrees that the plan is appropriate for you).
http://www.foodallergy.org/document.doc?id=234 (http://www.foodallergy.org/document.doc?id=234)
From FARE plan (my bold/blue):
Quote2. Call 911. Tell them the child is having anaphylaxis and may
need epinephrine when they arrive.
I do think it's important for adults to have a plan ... it'd be nice to have one without "child" language.
Quote from: ajasfolks2 on August 26, 2014, 07:14:45 PM
Once upon a time DH and I discussed these Allergy Action Plans and the many formats . . . and we decided that an experienced PILOT should consult with them so that the forms were more streamlined and user-friendly . . . as well as SUPER clear.
:yes:
FASers could help develop some great forms. :)