login
FAS has upgraded our forum security. Some members may need to log in again. If you are unable to remember your login information, please email food.allergy.supt@flash.net and we will help you get back in. Thanks for your patience!


Post reply

Warning: this topic has not been posted in for at least 365 days.
Unless you're sure you want to reply, please consider starting a new topic.
Name:
Email:
Subject:
Message icon:
Verification:
Type the letters shown in the picture Type the letters shown in the picture Type the letters shown in the picture Type the letters shown in the picture Type the letters shown in the picture Type the letters shown in the picture
Listen to the letters / Request another image

Type the letters shown in the picture:
Three blonde, blue-eyed siblings are named Suzy, Jack and Bill.  What color hair does the sister have?:
Spell the answer to 6 + 7 =:

shortcuts: hit alt+s to submit/post or alt+p to preview

By posting you acknowledge you are subject to our TOS, rules, and guidelines .


Topic Summary

Posted by: ninjaroll
« on: April 12, 2015, 10:27:37 AM »

I didn't understand any of that, sorry.  But the basis is the same for any immunotherapy which is in no way a treatment for celiac.  The patch is only a different method for delivery of the allergen for desensitization.  It has been fast tracked by the FDA for peanut if somewhere in your post you were inquiring about IgE desense for peanut.
Posted by: NDAlexander
« on: April 11, 2015, 09:33:10 PM »

Do you wear a new patch every day? I'm doing a study on this and can't seem to find that answer anywhere. I would appreciate anyone's help with this. I completely understand what you're going through, I have celiac disease and have done too studies now. They are not fun, but to feel better even for the shortest amount of time is so worth it! :) Thank you!!
Posted by: guess
« on: December 22, 2014, 12:40:19 PM »

 :bump:
Posted by: Beth Dickson
« on: August 30, 2013, 01:35:34 PM »

My 7 year old son is currently wearing the patch.  We are on month 4 now.  He should be wearing the patch all day everyday, but it seems he is only able to tolerate an average of 18 hours.  IWhen they gave him the food challenge, he threw up on the very first dose. I'm optimistic and hoping this will desensitize him!
Posted by: Jenn
« on: May 25, 2013, 08:56:01 AM »

Hi Corinna,
Just wondering how your little one did at the peanut food challenge. Our story is similar to yours. Our son has proven highly allergic to peanuts, but somehow he was able to tolerate the challenge needed to qualify for the Viaskin study. Everyone was surprised. So, now we are considering challenging him further.
Jenn
Posted by: Corinna
« on: May 01, 2013, 10:22:37 PM »

Hello
Sorry I haven't been back but we haven't really done anything about his peanut allergy since his reaction. I am scared to death of giving him any more peanut butter...sort of want to challenge him in the waiting room of the ER!
He had RAST testing that ranged from a high of 62 to 30 on his latest one. No ARA testing done. SPT was done as a toddler and highly positive ..I think greater than 10.
I will be following the others with interest

Posted by: jny65
« on: February 15, 2013, 08:52:09 PM »

My son is starting this clinical trial in March.   He has recently failed an oral food challenge at our local allergist (he got to 1/4 tsp of peanut butter which is when he reacted with hives, decreased peak flow and sneezing/congestion).  He also had a skin prick test of 9mm.   I'm concerned that he won't react to the oral food challenge required for the study - approximately 1 peanut.  I guess we'll have to wait until the double-blind placebo-controlled food challenge to see if he qualifies.   

What were your son's Rast and skin prick test results?  How did he react with the oral challenge?  I would love to share experiences - assuming my son is accepted.  Any info you have would be great!  Thanks!
Posted by: NancyH
« on: November 06, 2012, 11:18:43 AM »

My son is actually in this study for his peanut allergies.  We've been using the patch for the last month.  i'm trying to find others who are also on the patch so we can compare stories and offer advice.

I'm very positive about this test so far.
Posted by: Macabre
« on: October 20, 2012, 10:49:38 AM »

That's wonderful! Congratulations!
Posted by: CMdeux
« on: October 19, 2012, 10:50:47 AM »

 :happydance:  That's AWESOME!!!!


Interesting, as I know that there was a recent blog post about FAHF-2 treatment also resulting in a much increased toleranace upon challenge, but still with a HUGELY positive SPT.

That seems to not be indicative of much in terms of ingestion, surprisingly.
Posted by: Corky
« on: October 19, 2012, 10:33:56 AM »

Just as an update. My son just had his open challenge today with peanut butter and he passed!! His spt was still positive today (no surprise). My son liked the taste of peanut butter and had no reaction whatsoever to the peanut butter. I am flabbergasted. Based on his rast and spt i never would if predicted this.....
Posted by: Corinna
« on: September 21, 2012, 05:34:06 PM »

His SPT was over 10 I am sure and his RAST was 28 two months ago. He had a reaction when he was 18 months old when he touched peanut and his face became so swollen he was almost unrecognizeable. He has never had another reaction as far as I know although we have been very careful about not exposing him. His highest RAST was when he was 2 and it was 63. It went down to 23 when he was about 4.
Posted by: twinturbo
« on: September 21, 2012, 01:10:03 PM »

That's nothing but good news that he ate at least one full peanut symptom free under double blind. I know you mentioned positive SPT and RAST, what was his reaction history? I'm sorry if you wrote it out already and I missed it. Sleep deprivation is getting me. Thus far it's looking in your favor. :)
Posted by: Corinna
« on: September 21, 2012, 11:48:26 AM »

I think the total dose was over 450 mg. They progressively doubled the dose until the final dose was 300 mg which I think is equivalent to 1 peanut. WIth the other doses it added up to over 460mg of peanut protein. They challenged another little girl the previous day and she got through all the doses but complained about nausea throughout and then promptly threw up the within half an hour of the last dose and had to be given epi and antihistamines
Posted by: Corinna
« on: September 21, 2012, 11:45:48 AM »

I am absolutely stunned at his results and I feel a little hopeful. There is the voice in the back of my mind (as all you parents know) keeping the what if's going...what if there wasn't enough of hte peanut prpotein? what if he reacts terribly to a smaller amount next time since his immune system is now primed? How are we going to get him to eat the peanut butter without him or me freaking out?
The allergist seemed prettty confident about the open challenge and he said we could do it in our home town. I know our local allergist and he wouldnt do an open challenge on Jett for a million dollars since the literature says that his chance of a severe reaction is so high. So we are going to fly back to Ottawa to do the challenge (and visit the grandparent) next month. What a life changer this may turn out to be. In some ways I am glad that the challenge was done under such a controlled situation with the study, there is no allergist that would have ever challenged him in a million years with his rast and spt unless it was part of a study I bet.

Thanks for your support and I will update you with the results of the open challenge!