Posted by: LinksEtc
« on: May 29, 2015, 08:23:49 PM »"The media loves the Gates Foundation. These experts are more skeptical."
http://www.vox.com/2015/6/10/8760199/gates-foundation-criticism
More transparency & accountability in FA orgs seems like it would be a good thing. Also, would be good if they gave patients a bigger role ... our priorities, concerns, suggestions, etc.
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"A message to those taking care of my medically-complex child"
http://www.kevinmd.com/blog/2015/03/message-taking-care-medically-complex-child.html?utm_content=bufferd7a5c&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer
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Statistically funny
Commenting on the science of unbiased health research with cartoons
http://statistically-funny.blogspot.com/2013/12/whats-so-good-about-early-anyway.html
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The Disease Prevention Illusion: A Tragedy in Five Parts
http://blogs.plos.org/absolutely-maybe/the-disease-prevention-illusion-a-tragedy-in-five-parts/
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Tweeted by @subatomicdoc
"Patients and the Power of Online Communities – Get on the Train"
http://www.intersectionofonlineandoffline.com/patients-and-the-power-of-online-communities-get-on-the-train/
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Tweeted by @FdAllergySleuth
"Dire Consequences from Health Reporting: Portlandia-Style"
http://www.foodallergysleuth.com/2015/05/dire-consequences-from-health-reporting.html
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To come around full circle from the 1st post in this thread ... I think that it is confirmed that I am a sesame PITA. I'm ok with that.
CSPI Sesame Petition filed!!!
http://www.vox.com/2015/6/10/8760199/gates-foundation-criticism
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Even though the foundation is one of the single most powerful actors in global health, remarkably few people ever had anything negative to say about its work outside of skeptical academics.
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Another explanation for the silence, Harman argues, is that "everyone is scared of challenging Gates and the foundation's role because they don't want to lose their funding."
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"The question of accountability and transparency is not unique to the Gates Foundation, but is a concern about the role of philanthropy generally."
More transparency & accountability in FA orgs seems like it would be a good thing. Also, would be good if they gave patients a bigger role ... our priorities, concerns, suggestions, etc.
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"A message to those taking care of my medically-complex child"
http://www.kevinmd.com/blog/2015/03/message-taking-care-medically-complex-child.html?utm_content=bufferd7a5c&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer
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I, like many parents in my shoes, have taken the time to learn the language you speak, read the same articles you read, ask many professionals and other parents for their experience, interpretation, etc. So please don’t treat me like I’m some lay-person new to this environment. And even if I was, don’t insult the capacity of a mama bear to understand a completely foreign subject when her child’s life is at stake.
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Statistically funny
Commenting on the science of unbiased health research with cartoons
http://statistically-funny.blogspot.com/2013/12/whats-so-good-about-early-anyway.html
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And even most physicians - just the people we often rely on to inform us - don't understand enough about the pitfalls that lead us to jump to conclusions about early detection too, well…early.
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The Disease Prevention Illusion: A Tragedy in Five Parts
http://blogs.plos.org/absolutely-maybe/the-disease-prevention-illusion-a-tragedy-in-five-parts/
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It’s ironic really. The lure of prevention is freedom from disease. But it has become a key driver of over-medicalization of our lives and a growing shadow of disease angst when we’re the healthiest generation the world has ever seen.
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Tweeted by @subatomicdoc
"Patients and the Power of Online Communities – Get on the Train"
http://www.intersectionofonlineandoffline.com/patients-and-the-power-of-online-communities-get-on-the-train/
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I can tell you that on many occasions, I have seen that online (particularly Twitter) can have a meaningful impact that is often dismissed for lack of scientific rigor
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I have seen new frontiers of vibrant, online communities that began with patients talking to patients and now include active discussions among prominent physicians.
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Yeah, online matters.
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Tweeted by @FdAllergySleuth
"Dire Consequences from Health Reporting: Portlandia-Style"
http://www.foodallergysleuth.com/2015/05/dire-consequences-from-health-reporting.html
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Any one scientific study is not enough evidence to change behavior/medical advice/etc.
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Do any credible educational, research, and professional organizations with a medical board comment on the topic? In the food allergy world, this means FARE, AAFA and KFA, FAACT, AAAAI, and ACAAI.
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To come around full circle from the 1st post in this thread ... I think that it is confirmed that I am a sesame PITA. I'm ok with that.
Also, I'm free to be critical of those respected sources. For instance, I am a huge cheerleader for FARE's food allergy action plan (ECP), but I'm probably a huge pain in their rear concerning sesame. Another example, if I just go to the FDA site to learn about sesame labeling, I would not be able to safely figure out how to read a label for sesame.
CSPI Sesame Petition filed!!!