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Topic summary

Posted by LinksEtc
 - October 02, 2014, 04:18:14 PM
This has a lot of good info that you might find helpful.   :heart:


Demystifying Oral Food Challenges
http://www.kidswithfoodallergies.org/docs/Demystifying-Food-Challenges-for-Food-Allergy.pdf?pdf=Oral-Food-Challenges

Posted by QCmama
 - October 02, 2014, 02:11:00 PM
Thank you!
I haven't told her yet either. She's only 5, but we've basically scared her and everyone at her school, too, because of nuts  :-[
Posted by Irene
 - October 02, 2014, 01:57:35 PM
QCMamma,
Yes, the allergist was okay with Nutella and my son can eat all forms of hazelnut now (as long as they are not contaminated with peanut because he's still allergic to peanuts).  He's 12.  We have been undergoing food challenges for various tree nuts since June.  The pistachio challenge was the hardest because I used actual pistachio nuts and he did not like them!  I am using nut butters from now on because they taste better.  He loved the Nutella.
I understand your being nervous about the challenge.  I was nervous about the first one too, and I did not let my son know because I did not want him to be anxious as well.  I pray all goes well for your daughter on Tuesday!

Irene
Posted by QCmama
 - October 02, 2014, 08:30:54 AM
Hi Irene,
Congratulations! That's awesome! How old is your son?

My daughter's test is on Tuesday. I have a tub of Nutella in hiding at home (in hiding from the rest of us as much as from her...that stuff is addicting). My husband also found a package of roasted unsalted hazelnuts at a local market. I don't know if they're ok to use. It's packaged by the store, so they don't even know about cross contamination, so we'll see. I have it in case.

I assume your allergist was ok using Nutella vs actual hazelnuts, but do you know if that means your son can confidently eat an actual hazelnut or something other than Nutella with hazelnuts? I just want to cover all our bases so not sure if they'd try both at the test.

Thanks!
Posted by Irene
 - October 01, 2014, 12:59:08 PM
Don't know if the food challenge is over, but wanted to say that my son underwent a hazelnut food challenge 4 weeks ago using Nutella.  He had tested negative on a skin prick test and a very low positive on the RAST.  He passed the challenge!

Posted by CMdeux
 - September 29, 2014, 10:44:29 PM
Really I would probably go ahead with a challenge even with a small, positive wheal on a skin test.  As long as it wasn't, you know, HUGE like a nickel sized one or larger.

Posted by Macabre
 - September 29, 2014, 10:43:02 PM
skin prick test.

It's generally thought of as less reliable than blood tests. Though as CM mentioned, a negative result could mean some great things before a challenge!
Posted by QCmama
 - September 29, 2014, 10:21:02 PM
Hi Macabre,
What doe that mean? I'm not sure what SPT is.

Thanks!
Posted by Macabre
 - September 29, 2014, 04:48:27 PM
But typically the general wisdom is that skin tests have a higher false positive than blood tests, so in that way they are less accurate.

However, if you have a skin test morning of and its negative, that's a good sign.

My thinking--and I could be wrong here--is that it may also help to gage reactivity/responsiveness that day. For instance, if they do a histamine or saline control with the SPT, that could also tell the doc where your kid is. It may not have a predictive value  for the challenge itself, but it may help to provide some information about how your kiddo is responding.
Posted by CMdeux
 - September 29, 2014, 04:46:03 PM
I think that as a parent, you'd have to be pretty callous or at least unaware to NOT be going into a food challenge with at least some level of nervousness!!   :thumbsup:

The trick is in breathing deeply (or appearing to) and seeming reasonably relaxed and calm in front of your child during the challenge.

This is where I confess that we never, ever challenge on a day that DH is out of town, right?  Because I want him to be a five minute ride from the ER.
Posted by QCmama
 - September 29, 2014, 03:16:29 PM
Thanks for the tips! I had no idea about that re. the skin tests. Well, I take that back. The allergist did say that the skin tests are more reliable (my word, not his), but that adding a RAST test to the mix would paint a fuller picture and, if both negative, a food challenge would be warranted. At least now I know that he knows what he's talking about.

Can you tell I'm nervous for her?
Posted by CMdeux
 - September 29, 2014, 10:07:33 AM
Well, skin tests can remain positive (or just BE positive) in the absence of a clinical allergy, so... if the skin test is NEGATIVE, that's a really good indicator for a pass.

On the other hand, if you take daily antihistamines, bring them with you the morning of-- that way you can get those on-board immediately after that skin test.

(BTDT, btw.)
Posted by QCmama
 - September 29, 2014, 09:18:34 AM
Well, thankfully "just" rash-type reactions, but we've been insanely vigilant. The poor kid can't eat anything without me inspecting the ingredients, the website etc like a hawk.

I think the allergist plans on doing a skin test the morning of the food challenge. Is the skin test more accurate than the RAST? This is what I think they've told me, but not sure. If so, then what was the point of the blood test?

Thanks again for everyone's help!
Posted by CMdeux
 - September 23, 2014, 11:13:10 PM
Probably not, but that's me.  It would also depend upon her history with hazelnuts.
Posted by QCmama
 - September 23, 2014, 11:06:30 PM
Definitely. I would be more comfortable with that anyway.
Another thing that's got me anxious is that her blood test, which showed she's negative for all tree nuts, was done at the end of July, so exactly 2 months ago. Would you repeat it at this point? I guess I'm just still in shock that it was negative!