Food Allergy Support

Discussion Boards => Main Discussion Board => Topic started by: Hermes on August 24, 2011, 10:25:26 AM

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Title: I'm working on an advocacy tool
Post by: Hermes on August 24, 2011, 10:25:26 AM
http://allergy.hyperboards.com/action/view_topic/topic_id/18034
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:29:06 PM
Momcat
Member
Posted: 02.09.2011 at 09:11:44 
   


(http://i10.photobucket.com/albums/a134/cvalvarez/MaslowAllergyColor.jpg)


My idea is to emphasize that schools must meet a food allergic student's basic needs before the student can concentrate on learning.

Comments?  Suggestions?  Ideas?  This is my first draft, and I'd like to make a polished version to share.

This work is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License. To view a copy of this license, visit http://creativecommons.org/licenses/by-sa/3.0/ or send a letter to Creative Commons, 171 Second Street, Suite 300, San Francisco, California, 94105, USA.


DD12 allergies: peanuts
DS8 allergies: eggs
 
 
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:30:48 PM
McCobbre
Moderator
Posted: 02.09.2011 at 09:19:49 
     


Oooh-- I like it!! I need a bit of time to reflect in order to make suggestions, but my initial impression is that it's a great idea and in pretty good shape already.   
 

"Words are our most inexhaustible source of magic. They are potent forms of enchantment, rich with the power to hurt or heal."~Albus Dumbledore

Me: shellfish, chamomile, sesame and a few odds & ends
DS: peanuts 
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:32:30 PM
Arkadia
Member
Posted: 02.09.2011 at 09:23:43       



Oooo. Squeel!!! This is so such a parallel to how the nursing field would manage it!! And to think how many folks here said I was way off in my comparison to maslow (and piaget). Oh and erikson, too.   


"We're going to make everyone get along whether they like it or not."

~Oldest son, age 16, upon being asked what most typifies his generation. 
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:33:29 PM
GingerPye
Moderator
Posted: 02.09.2011 at 09:28:35       



Squeal! is right  I was just thinking tonight of what I could give to my DS's student teacher about food in the classroom.

The one who keeps using food in her lessons . . . . 

Something like this would be perfect.   


DD, 15 - MA/EA/PA/env./eczema
DS, 12 - MA/EA/PA/env./asthma
DH - adult-onset asthma
me - env. allergies, exhaustion, & mental collapse
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:34:30 PM
Momcat
Member
Posted: 02.09.2011 at 10:04:19       



I'm glad you like what I have so far! Arkadia, I like the idea of making a chart of developmentally appropriate expectations of kids with food allergies based on Piaget, or similar. 
 

DD12 allergies: peanuts
DS8 allergies: eggs 
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:35:41 PM
being human
Member
Posted: 02.10.2011 at 05:07:08       



i sooooo love this, am going to use it in my allergy management presentation to early years students at my local college.

so, wonderful. ........wish i thought of it.... 


current allergies,

egg, peanut,beans, yeast extract, kiwi fruit, dog, cat, dustmite, mold, tree pollen, hay fever, and current unknown allergy.
this year so far, 6 reactions and used epi pen twice. 
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:36:38 PM
MandCmama
Member
Posted: 02.10.2011 at 07:22:23       



<sigh> I only get a big red "x" b/c I'm at work, but heck yeah...I think of Maslow all the time in re: to food allergy management and our overall lives and well being! Can't wait to get home and look at it!   


DS#1- 4 yo allergic to peanuts/avoiding tree nuts
DS#2- 2 yo allergic to egg


Pennsylvania, USA 
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:37:45 PM
GingerPye
Moderator
Posted: 02.10.2011 at 08:47:34       



Momcat, do I have your permission to copy/print this? 


DD, 15 - MA/EA/PA/env./eczema
DS, 12 - MA/EA/PA/env./asthma
DH - adult-onset asthma
me - env. allergies, exhaustion, & mental collapse
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:38:35 PM
Mfamom
Moderator1
Posted: 02.10.2011 at 08:58:58       



Very nice. The presentation is awesome. I've tried so many times to address all those things and it seems like it comes out in a complicated mumbo jumbo.
The pyramid is just so on the money! Great job. 


"People may not remember exactly what you did, or what you said, but they will always remember how you made them feel."

Committee Member Hermes
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:39:32 PM
cya
Member
Posted: 02.10.2011 at 09:09:34       



EXCELLENT. This could be very useful. I've explained this verbally, only to get blank looks (actually I think they - the staff in 504 mtg - "got it" but didn't want to get it). The visual helps a ton! Great job!   


Please don't quote. 
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:41:26 PM
ajasfolks2
Moderator1
Posted: 02.10.2011 at 10:28:38       



Momcat,

You rock!

 :thumbsup:

~e


Enable the child with LTFA: Disable the food use!

Committee Member FIREBIRD

DS - PA/TNA, latex, other legumes, mango
DD - TNA/verifying PA; drug allergies
Me - sulfites and other drugs
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:42:46 PM
TabiCat
Moderator
Posted: 02.10.2011 at 10:56:43 
 

:thumbsup:  ;D


Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:43:51 PM
Momcat
Member
Posted: 02.10.2011 at 12:18:19       



GingerPye, I'm intending to share it freely with the condition that those who copy it also share it freely.

This work is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License. To view a copy of this license, visit http://creativecommons.org/licenses/by-sa/3.0/ or send a letter to Creative Commons, 171 Second Street, Suite 300, San Francisco, California, 94105, USA.

I'm also going to try to make a more polished version soon. When I do, I'll post that, too. 


DD12 allergies: peanuts
DS8 allergies: eggs 
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:45:20 PM
Momcat
Member
Posted: 02.10.2011 at 02:02:24       



Follow this link to download a pdf of my current version:

<broken link removed>

Please see my recent post for the new link.

Last Edited by Momcat 08.19.2011 at 04:16:30  


DD12 allergies: peanuts
DS8 allergies: eggs
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:46:42 PM
joanna5
Member
Posted: 02.10.2011 at 03:06:08       



I love it. What a great visual to help people truly get what we all try to explain. 


DS- 10/30/04- ana. to milk and mustard; allergic to eggs, peanuts, treenuts; asthma; IgA deficient

DD- 9/27/06- nka 
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:47:47 PM
fluffy
Member
Posted: 02.10.2011 at 04:13:52       



Oh, this makes me so happy. I just want to hug you right now!! 


DD (3 years old): egg, milk, peanut, cat, dog and mold allergies
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:49:07 PM
mommabridget
Moderator
Posted: 02.10.2011 at 06:37:03       


:thumbsup: :thumbsup:


Have a blessed day!

DS(18) Allergic to peanuts, cashews & soy and is a terrific trombone player
DD(25) Allergic to Bactrim, & iodine. DD(28) NKA

Louisiana, USA 
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:50:16 PM
GingerPye
Moderator
Posted: 02.11.2011 at 08:26:02
     


I'm absolutely thrilled to have this tool. The timing is wonderful! I just received an email from DS's student teacher about food she plans to use in the classroom. I discussed what she is planning to do, and I included the link to your chart!! Asked her to consider this for now and in the future, in her own classroom, for safe inclusion of all students.

 :thumbsup:


DD, 15 - MA/EA/PA/env./eczema
DS, 12 - MA/EA/PA/env./asthma
DH - adult-onset asthma
me - env. allergies, exhaustion, & mental collapse
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:51:09 PM
Momcat
Member
Posted: 02.11.2011 at 06:05:20       



GingerPye, I hope you post to let us know what the teacher's reaction to it was. I'm very curious! 


DD12 allergies: peanuts
DS8 allergies: eggs 
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:52:03 PM
GingerPye
Moderator
Posted: 02.12.2011 at 11:06:33       



Well, I haven't heard anything back. I hope she takes it the right way. I was extremely polite and tactful, I think. Just something for her to consider as she is student teaching, and when she gets her own classroom. Never hurts to plant the seed, yk?

Thanks again, Momcat, for this chart. It really is very useful. 
 

DD, 15 - MA/EA/PA/env./eczema
DS, 12 - MA/EA/PA/env./asthma
DH - adult-onset asthma
me - env. allergies, exhaustion, & mental collapse
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:52:52 PM
GoingNuts
Moderator
Posted: 02.12.2011 at 12:03:02       



Love. It. 
 

USA
Mom to two boys:
DS #1 - Age 20, Superbad OAS
DS #2 - Age 17, PA, TNA, Soy, Sesame and Chick Pea

"Speak out against the madness." -- David Crosby 
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:53:39 PM
Stinky6
Member
Posted: 02.12.2011 at 08:26:06       



meow Momcat!

that rocks! 


Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:54:46 PM
Ra3chel
Member
Posted: 02.24.2011 at 01:11:28       



That's great--and the Piagetian developmentally-appropriate responsibilities and accommodations table seems like a fantastic idea as well!! 


The 3 is silent. 
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:55:48 PM
kindergartenmom
Member
Posted: 02.24.2011 at 09:20:49       



Love it! Every teacher should have one. 


Tree Nut, Coconut, Acorns, Sesame
6 year old
PA, USA 
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:57:58 PM
Momcat
Member
Posted: 08.18.2011 at 09:55:41       



02.11.2011 at 06:05:20, Momcat wrote:
Quote
GingerPye, I hope you post to let us know what the teacher's reaction to it was.  I'm very curious!

GingerPye, did you end up using the Allergy Needs pyramid? What was the teacher's response to it? 


DD12 allergies: peanuts
DS8 allergies: eggs
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 03:59:33 PM
GingerPye
Moderator
Posted: 08.19.2011 at 08:47:33       



I did send it to the student teacher but never had any comments from her. But nothing negative came back, either, lol!

As I said before --- I just wanted to plant the seed. Every little bit, yk . . . .

I wish I had remembered to put this chart in my PowerPoint for the school staff last week.  :banghead: Would have been so helpful.

I need to place it in there now so I'll have it for next year.
 

DD, 15 - MA/EA/PA/env./eczema
DS, 12 - MA/EA/PA/env./asthma
DH - adult-onset asthma
me - env. allergies, exhaustion, & mental collapse
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 04:00:35 PM
Bunny
Member
Posted: 08.19.2011 at 10:55:44       



Momcat,

I love, love, LOVE your pyramid chart. It really explains all is a very efficient way.

When I clicked on the link, it wasn't there in PDF form. Can I find it somewhere and use it at school this year?

Thanks so much.
 

7 year old DS with LTFA to peanuts, tree nuts, eggs and flax seed.
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 04:01:38 PM
Momcat
Member
Posted: 08.19.2011 at 04:10:34       



Bunny, try this new link:

http://tinyurl.com/MaslowAllergy

You can download a copy of the pdf under the file menu in the upper left corner.

Last Edited by Momcat 08.19.2011 at 04:15:11  


DD12 allergies: peanuts
DS8 allergies: eggs 
Title: Re: I'm working on an advocacy tool
Post by: admin rebekahc on September 05, 2011, 04:02:30 PM
Bunny
Member
Posted: 08.19.2011 at 09:09:16       



Thank you! You should figure out a way to get this into every school. It is great. 
 

7 year old DS with LTFA to peanuts, tree nuts, eggs and flax seed. 
Title: Re: I'm working on an advocacy tool
Post by: ajasfolks2 on August 29, 2013, 05:54:42 AM
Bumping as contains still-working link to the .pdf of Maslow's diagram . . .

https://docs.google.com/file/d/0B2-soCDZDiY4MjY0ODc4YzAtMmQ5NC00ZjM4LWI2M2QtNGJjZmU0MDNjNjZm/edit?hl=en&pli=1


Title: Re: I'm working on an advocacy tool
Post by: LinksEtc on January 31, 2014, 08:24:18 AM
Social consequences of not being able to share food: Something I'm working on

LTFA Advocacy Tool Thread: Momcat's in MAIN

The Social Consequences of Food Allergy

http://www.creativitypost.com/psychology/social_consequences_of_food_allergy
Title: Re: I'm working on an advocacy tool
Post by: ajasfolks2 on September 13, 2014, 02:27:41 PM
Thanks, Links, for getting all the threads/links in here!  You rock, as always!

 :thumbsup:
Title: Re: I'm working on an advocacy tool
Post by: ajasfolks2 on September 13, 2014, 02:28:51 PM
Watch video . . .

Re: TF vs Fox Chapel School District