I just left a comment to Dr. Sampson's article in favor of OIT.
I know there are unknowns. I know dd may need to take PN's for life. I wasn't looking for a cure. I was looking for a better day to day life with PA for her.
She and I both feel we achieved that goal. When she asked what I was typing, and I told her, she was mortified. "Why wouldn't you do it? I am sooooo glad I did. I love being able to do all these things now." I know that a 9 year old is not going to understand the necessities of rigorous research or complexities of new medical treatments, but at the ultimate level of her life experiences, she will tell you any time you ask that this was the best thing that ever happened to her. She still says the best day of her life was the day we started treatment. This was an 8 hour day that involved a blood draw, more grape koolaid flavored doses of PN than she'd ever care for, and a shot of epi for a possible reaction at the last dose. STILL her best.day.ever.
I understand it is totally possible to live a full, wonderful, adventurous life with FA's. I also know it's a lot easier with the FA's no longer the main concern.