Curious how you were diagnosed-- do you mean that you have a glucoamylase (MGAM)
enzyme deficiency? Or that you are intolerant TO the enzyme (and if so, do you know from which sources)?
I know that there is some thought that such a deficiency can lead to IBS symptoms, and that some percentage of people with IBS probably have such an enzyme deficiency which hasn't been diagnosed as such. Given that the controls are dietary either way and the result of trial and error to find a tolerated diet, though, I'm not sure that there is a ton of pressure to diagnose people with unspecified IBS.
Not clear (in looking, and you're right, there's very little literature on it) that there are well-defined health sequelae as with celiac, but it probably wouldn't be a huge surprise to find out that there are, either. Damage to the colon is probably a universal kind of trigger for bad things down the road either way, right?
More info on MGAM in particular:
http://www.nextprot.org/db/entry/NX_O43451One thing that you may find helpful as you investigate here is that the community
as a whole is focused on IgE-mediated immediate-type food hypersensitivity; that is, "food allergy" in particular, and that may have some significance on the quality and nature of others' responses to your inquiries or posts. For us, avoidance
must (in general) be very very thorough, and the result of an error in judgment is often catastrophic, resulting in a trip to the local emergency room and the administration of a raft of prescription medications intended to keep us alive until we recover. The amounts needed are variable and individual, but can be very very low-- microgram amounts. Such things tend (for those of us with IgE-mediated food allergy) to be immediate onset (within an hour or two) and last generally only a few hours, but in rarer instances a few days.
So while we might be very able in terms of helping you find tricks to living "differently" from your friends and family where food is concerned, it's something to bear in mind about 'avoidance' and 'failures of avoidance' questions. We also tend to think about proteins as allergens, and not starches.
A warm welcome to you! I hope that you are able to find useful tips and information here.