The one time my ds went to the ER by ambulance they didn't even believe it was a reaction because he had no hives. I was arguing with the Dr that it wasn't an asthma attack and then the emt who is my neighbor, jumped in and said based on what he saw when he arrived it wasn't asthma. Luckily about ten minutes later his entire body was covered and I made the nurse get the Dr immediately to see them.
Momma2boys,
Would you mind if I put this story in this thread?
Standard Protocol for "Asthma Action Plans"----------------------------------
Sometimes I think the ideal of medicine (go to docs, don't try to diagnose yourself, follow your action plans, etc.) collides with reality (tired & stressed docs, atypical presentations, skepticism/stereotypes, a health care system that's a mess, patients not following the plans, etc.)
HeartSisters touches on lots of topics that are really important, but that are often not thought about. I can relate to so much of what she posts. She's probably my favorite on twitter so far, which has been a surprise to me since I never heard of her before & her focus is heart issues ... really, though, she nails so many general patient issues.