I think that the psychological harm of not having sesame labeled is underestimated.
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I feel like for years, I was in an impossible position:
Our first allergist told us to
very strictly avoid ... even for shared equip that had been cleaned.
Sesame is very potent & causes severe rxns so you don't want to mess up & hurt child.
Another non-allergist doc told close family member that dd didn't have a sesame allergy b/c blood test at time negative (latest blood test finally positive). Instead of support, I pretty much got emotionally beat up on for years for trying to follow allergist advice.
2 allergists refused to do OFCs on dd b/c of rxn history & size of skin prick so I couldn't "prove" to family member that dd really had an allergy. 1 was going to do a challenge, but I think he had second thoughts b/c he never got to the "oral" part.
I couldn't tell if most food products met allergist's safety criteria b/c of lack of labeling. People think you are being unnecessarily anxious, over-protective for not trusting the labels ... they don't understand the risk, they don't understand labeling inadequacies.
Something had to give ... it was like standing in a box & pounding on the sides ... better labeling, proof of allergy, permission not to be as strict ... something ...
In the end, events unfolded that pretty much broke me, I was the thing that gave out.
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Anyway, things are great now ... I don't even need this labeling as much for our family as dd is able to currently tolerate small amounts of sesame (with allergist approval). I would say that our current allergist is an expert in risk management & that this is really perfect for our family ... she's not going to make us go crazy with avoidance levels that are not medically necessary.
Soooo ... let's just say that this whole thing has left me with an emotional scar ... but that scar has motivated me to see this sesame labeling thing through ... I
know that this is something worth our efforts ... it is something that the food allergy community should work together on. Sesame needs to be labeled in the USA. We can save others from physical & psychological harm.
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Please don't quote ... it's a little more personal than I usually get ... may delete later.