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Topic summary

Posted by brownie
 - February 26, 2013, 03:14:42 PM
OK I need a clarification.  Steroid via IV doesn't help?!  We've not needed them yet but I would have assumed that was the number one best course of action.  So can they give epinephrine via an IV or is it an Epi-pen only?  Because I'll give another epi myself if the ER argues with me!

BTW I gave ds a chocolate bar with a may contain warning on the road.  Could have been worse...I had given the same chocolate bar to my 2nd ds who is also allergic, but he hadn't opened his yet.  We only had to find an ER for one kid and it did not progress pass a queasy stomach and a touch of sensation in the throat.  Benadryl cleared it up.  And yet I still wonder if I made a mistake not giving the epi.

Brownie
Posted by MandCmama
 - February 05, 2013, 02:32:51 PM
Glad to hear there are no lasting ill effects  :heart:
And a positive experience with the bakery is a bonus  :thumbsup:
Posted by PurpleCat
 - February 04, 2013, 03:17:56 PM
I wrote to the bakery , told them our story, noted that they are not required to list any sesame allergen warnings, and asked them to consider adding a sesame warning on their labels in the future.

I got the nicest note back written by the gentleman who originally spoke with me about the safety of their pita bread.  He expressed such genuine concern for DD and really took to heart what I asked.  He is going to bring it to the attention of the bakery owners, etc... for consideration.  I couldn't have asked for more.  What a great response.

DD continues to do very well!  She was quite impressed with the note I received.
Posted by MandCmama
 - January 30, 2013, 02:42:33 PM
I accidently stuck my self with a real epipen while training a new babysitter last year  :hiding: There was a bit of a sting, but I thought I just swung too hard and hit my vericose veins.  It wasn't until the blood began running down my leg (I did indeed hit a vericose vein) that I relized what happened.  For the size of the needle, I would expect it to hurt lots more...and when adrenaline is pumping, I'm sure you would feel it even less!
Posted by Janelle205
 - January 30, 2013, 02:13:11 PM
The last time I used the epi, it didn't hurt at all - in fact, I was worried that I didn't do it right, but held it in for the 10 seconds just in case.

Now, part of the reason it didn't hurt could be that I was distracted by the whole not breathing and thinking that I was going to die thing - in fact, I suspect that was a good part of it.
Posted by Mfamom
 - January 30, 2013, 10:14:55 AM
Oh wow!  I'm so happy she is okay.  You did a great job.  It is funny you mentioned about the EPI hurting.  I looked something up about EPI pen yesterday and on the "insert" it talked about the shot not hurting.  it struck me that it mentioned that a few times, then today i read your story and your note that your dd said it didn't hurt. 
I think the account of how the reaction progressed etc. is so valuable because it helps us in our own management in case we are ever in the same situation. 
Give your dd a hug and you probably need one too!   :heart:
Posted by yelloww
 - January 29, 2013, 05:41:31 PM
Dh has to take Zantac every 12 hrs for chronic hives. It is the h2 histamine blocker. For him, the Zantac works great!

Glad to hear your dd is doing better. How scary! Glad you used the Epi!
Posted by SilverLining
 - January 29, 2013, 05:26:20 PM
Thanks for the info.  It definitely is the prednisone clearing it up.  The doctor actually told him it would clear up.  But he didn't warn it might come back worse.

I'll have to check what his last day is, and how long before he's in to a doctor.
Posted by PurpleCat
 - January 29, 2013, 04:49:08 PM
According to the allergist it is well know by allergists that while on prednsione a nice side effect is that eczema is eliminated but when you stop taking it the eczema returns with a vengeance.  She said it is a steroid to avoid if you have a choice and the patient has eczema.

I do not know about psoriasis. 

(On the other hand she joked, at prom or wedding time it would be a way to have beautiful skin.....perhaps not completely a joke)

What I do know from experience is when DD was young, before her food allergy diagnosis, we'd be in the ER in the middle of the night with horrible asthma and flared eczema (really a food reaction I think now) and one of the drugs they would give her is prednisone.  Then we'd come home with a 5 day regiment.  After she'd stop taking it, we'd have weeks of horrible skin that I could not control.  Poor thing was still a baby and toddler and I was always at my wits end....not knowing at the time what the prednisone was doing.

That is why I knew to ask about what would happen to her skin on Friday.

Might be worth a call to your DH's doc, or at least you will know a possible culprit if it flares.
Posted by SilverLining
 - January 29, 2013, 03:10:02 PM
PC, can you explain a bit about the exzema?  My husband is on prednisone right now (weaning off actually).  His psoriasis is clearing up, which is great.  But, will it come back worse when he's off?
Posted by PurpleCat
 - January 29, 2013, 02:37:16 PM
Took DD to see the allergist today.  All is going extremely well.  She blew a 450 on the peak meter!

I knew from past experience to ask about DD's skin on Friday when she is off the prednisone and the doctor agreed - her skin is going to be a big issue.  If you are prone to eczema and you take prednisone, coming off it makes horrible eczema that is hard to get in control.

The doctor has started the paperwork for approval for Elidel.  I hope the insurance co approves and we can fill by Friday so we are ready.  I don't like DD using Elidel but she has not since 2008 and I know her skin will need it.

She showed us the new injector - so cool!
Posted by GoingNuts
 - January 28, 2013, 08:59:14 PM
 Oh my, I'm in tears reading your post.  So glad she's OK!  And you did great.  :yes:

My only criticism is the same as others mentioned; the hospital should have kept her longer and given another epi.  Butt you guys were fabulous.

Now for  nice, pampering mother-daughter activity!
Posted by CMdeux
 - January 28, 2013, 06:40:55 PM
Glad to hear that she's bouncing right back without a lot of PTSD symptoms or anything.

Now Mom just needs to do something nice for herself to let go of some of that jittery, horrible after-reaction stress.  :heart:
Posted by lakeswimr
 - January 28, 2013, 02:09:05 PM
I'm sorry that happened.  Good job giving the epi! 

I was going to say the same things CM said.  Many ERs do not give the epi when they should and instead give steroids (which have not been proven 100% to do anything for an allergic reaction last I read--they are only THOUGHT very likely to help.)  I would talk about this with your allergist and consider writing a letter to the ER about it.  They should have given the epi with the return of the symptoms you described.  It is not unusual to need 2 or even more epis.  Also, as CM said, they did not keep you there long enough.  4+hours is standard after symptoms resolve.  I have had ERs want us to leave much sooner.  Once we moved DS to a gurney in a hallway just to stay there that long.  I felt silly because he seemed fine but I know that biphasic reactions can and do happen.

I'm so glad she is OK.  You did great to give the epi over her objections!  Very good!
Posted by Jessica
 - January 28, 2013, 02:01:05 PM
How scary. One of my worst nightmares.  :grouphug: :grouphug: :grouphug: